Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 i am 21 i have had c-toma since i was little i have had at least 5 major surgeries in attempt to get ride of the disease, i have had all my bones removed from the ear and reconstructed also an eardrum made, however my hearing is not that good in that ear. i still have problems with drainage and i am concerned now that the diseas is coming back. i was told at a very young age that i would have to deal with this problem forever. i have side affects that inculde dizzeness and constant sinus problems. i was just wondering if anyones else has had to deal with this problem because i feel like i am alone and don't know if i should consider anymore surgeries??? Quote Link to comment Share on other sites More sharing options...
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