Re: Canal wall window alternative to the canal wall down

February 16, 2006

sounds like the CWU or Canel Wall Up...

tom hansen

--- moms_a_nurse <jcarl22@...> wrote:

> My son is to have his CWD next week. However, I

> stumbled upon

> something called a canal wall window to substitute a

> CWD to improve

> hearing. The little I've found, it sounds like a

> mini-modified-CWD.

> Anyone else heard of this?

> Thanks.

>

__________________________________________________

February 16, 2006

No, it is different than a CWU, described as a 'hybrid mastoidectomy'

technique substituting for the CWD. This is coming out of Havard.

I can't find information if the 'window' is large enough for the

occasional clean out required with CWD.

We go in for pre-surg tomorrow, hope to run this by the

neurolotolgist.

Wish me luck!!

Jen.

>

> > My son is to have his CWD next week. However, I

> > stumbled upon

> > something called a canal wall window to substitute a

> > CWD to improve

> > hearing. The little I've found, it sounds like a

> > mini-modified-CWD.

> > Anyone else heard of this?

> > Thanks.

> >

>

> __________________________________________________

>

February 17, 2006

Never heard of it, I will ask my Otologist next month

when I have my yearly check up....Although I'm not the

only one to have a CWD, I only go in once a year for

cleaning. From what others have told they find this

common for them as well. So my question is what is

this about occasional cleanings? What is occasional

once a year, once a month once every 3 months? Please

define your take on this...

tom hansen

--- moms_a_nurse <jcarl22@...> wrote:

> No, it is different than a CWU, described as a

> 'hybrid mastoidectomy'

> technique substituting for the CWD. This is coming

> out of Havard.

> I can't find information if the 'window' is large

> enough for the

> occasional clean out required with CWD.

> We go in for pre-surg tomorrow, hope to run this by

> the

> neurolotolgist.

> Wish me luck!!

> Jen.

>

> >

> > > My son is to have his CWD next week. However, I

> > > stumbled upon

> > > something called a canal wall window to

> substitute a

> > > CWD to improve

> > > hearing. The little I've found, it sounds like

> a

> > > mini-modified-CWD.

> > > Anyone else heard of this?

> > > Thanks.

> > >

> >

> > __________________________________________________

> >

February 17, 2006

I think this must be what I'm having. My otologist said it was a

canal wall down but modified somehow and that I would likely not need

to have regular cleanings. I'm having mine on March 8th.

Gerry

> > >

> > > > My son is to have his CWD next week. However, I

> > > > stumbled upon

> > > > something called a canal wall window to

> > substitute a

> > > > CWD to improve

> > > > hearing. The little I've found, it sounds like

> > a

> > > > mini-modified-CWD.

> > > > Anyone else heard of this?

> > > > Thanks.

> > > >

> > >

> > > __________________________________________________

> > >

February 17, 2006

Tom, occasional meaning every 3 months. My son is schedule for CWD

next week and I am trying to get comfortable with it. I'm

considering hopping on a plane to Boston to get a second opinion even

though I've been pleased with our neurolotologist. Am I just scared

for nothing, making a big deal of a good thing...CWD? My son is an

avid swimmer in lakes and pools and my concern is of him drowning

from the chance of losing a plug and getting dizzy.

Please ally my fears, I need some reassurance that this is the way to

go. We have been through this 4 times.

Jen.

> > >

> > > > My son is to have his CWD next week. However, I

> > > > stumbled upon

> > > > something called a canal wall window to

> > substitute a

> > > > CWD to improve

> > > > hearing. The little I've found, it sounds like

> > a

> > > > mini-modified-CWD.

> > > > Anyone else heard of this?

> > > > Thanks.

> > > >

> > >

> > > __________________________________________________

> > >

February 17, 2006

I had the Modified Radical CWD, if done correctly it

should take care of everything. Learning to deal with

the balance issues will take time, to this day I have

to catch myself once in a while. After a while your

body self adjusts to this in most cases. As far as

swimming, I have not used a ear plug since my CWD,

however not everyone is the same. To me the CWD is

the only way to go, a lot of Otologists are now even

doing them as the 1st op depending on the case. I

know that there are those who disagree with this, but

coming from the perspective of being the person who

it's being done on I would have gone to the CWD for

the 1st op using hind sight. I remember my 1st 2

removal attempts that my Mom was upset about having to

go through all of this. However, I can say that she

did not over play it either. It is more inertesting

that I was able to get into the Marine Corps with the

C-toma, I had my CWD within in the 1st year I was in

the Corps. Still scratch my head on that one.....

tom hansen

--- moms_a_nurse <jcarl22@...> wrote:

> Tom, occasional meaning every 3 months. My son is

> schedule for CWD

> next week and I am trying to get comfortable with

> it. I'm

> considering hopping on a plane to Boston to get a

> second opinion even

> though I've been pleased with our neurolotologist.

> Am I just scared

> for nothing, making a big deal of a good

> thing...CWD? My son is an

> avid swimmer in lakes and pools and my concern is of

> him drowning

> from the chance of losing a plug and getting dizzy.

> Please ally my fears, I need some reassurance that

> this is the way to

> go. We have been through this 4 times.

> Jen.

>

> > > >

> > > > > My son is to have his CWD next week.

> However, I

> > > > > stumbled upon

> > > > > something called a canal wall window to

> > > substitute a

> > > > > CWD to improve

> > > > > hearing. The little I've found, it sounds

> like

> > > a

> > > > > mini-modified-CWD.

> > > > > Anyone else heard of this?

> > > > > Thanks.

> > > > >

> > > >

> __________________________________________________

> > > >

February 17, 2006

I agree with you, Tom. I had CWD first time - the only surgery for me

in respect of cholesteatoma - and so far, so good. Fingers crossed it

remains the only surgery I have for cholesteatoma, too!

Kazzy

xx

Re: Re: Canal wall window alternative to the

canal wall down

I had the Modified Radical CWD, if done correctly it

should take care of everything. Learning to deal with

the balance issues will take time, to this day I have

to catch myself once in a while. After a while your

body self adjusts to this in most cases. As far as

swimming, I have not used a ear plug since my CWD,

however not everyone is the same. To me the CWD is

the only way to go, a lot of Otologists are now even

doing them as the 1st op depending on the case. I

know that there are those who disagree with this, but

coming from the perspective of being the person who

it's being done on I would have gone to the CWD for

the 1st op using hind sight. I remember my 1st 2

removal attempts that my Mom was upset about having to

go through all of this. However, I can say that she

did not over play it either. It is more inertesting

that I was able to get into the Marine Corps with the

C-toma, I had my CWD within in the 1st year I was in

the Corps. Still scratch my head on that one.....

tom hansen

--- moms_a_nurse <jcarl22@...> wrote:

> Tom, occasional meaning every 3 months. My son is

> schedule for CWD

> next week and I am trying to get comfortable with

> it. I'm

> considering hopping on a plane to Boston to get a

> second opinion even

> though I've been pleased with our neurolotologist.

> Am I just scared

> for nothing, making a big deal of a good

> thing...CWD? My son is an

> avid swimmer in lakes and pools and my concern is of

> him drowning

> from the chance of losing a plug and getting dizzy.

> Please ally my fears, I need some reassurance that

> this is the way to

> go. We have been through this 4 times.

> Jen.

>

> > > >

> > > > > My son is to have his CWD next week.

> However, I

> > > > > stumbled upon

> > > > > something called a canal wall window to

> > > substitute a

> > > > > CWD to improve

> > > > > hearing. The little I've found, it sounds

> like

> > > a

> > > > > mini-modified-CWD.

> > > > > Anyone else heard of this?

> > > > > Thanks.

> > > > >

> > > >

> __________________________________________________

> > > >

February 17, 2006

Jen,

If you're going to have to go every 3 months and have his ears cleaned, it

is the same sort of thing we do with my son's CWD. My son still swims, he

wears custom earplugs and a neoprene band(the band helps keep the earplugs

in place and allows less water to enter the ear should the plug dislodge).

His doc said not to dive to the bottom of the pool, but he can swim under

the surface of the water and jump in. Seems to me if they leave a " window "

to get in there and clean it out, he'll have to wear earplugs anyway if they

leave him with a mastoid bowl. I would also think that if they only leave a

window, if he does get water back there, it will have a higher chance of

getting infected. With a CWD there is more of an opening for it to drain or

get more airflow to help dry it out. I've never heard of the hybrid

procedure so I'm not sure what they do or how they leave the anatomy, so I

don't know what the pros and cons are vs. a plain CWD. Tough call....

Barbara

>From: " moms_a_nurse " <jcarl22@...>

>Reply-cholesteatoma

>cholesteatoma

>Subject: Re: Canal wall window alternative to the canal

>wall down

>Date: Fri, 17 Feb 2006 16:30:19 -0000

>

>Tom, occasional meaning every 3 months. My son is schedule for CWD

>next week and I am trying to get comfortable with it. I'm

>considering hopping on a plane to Boston to get a second opinion even

>though I've been pleased with our neurolotologist. Am I just scared

>for nothing, making a big deal of a good thing...CWD? My son is an

>avid swimmer in lakes and pools and my concern is of him drowning

>from the chance of losing a plug and getting dizzy.

>Please ally my fears, I need some reassurance that this is the way to

>go. We have been through this 4 times.

>Jen.

>

> > > >

> > > > > My son is to have his CWD next week. However, I

> > > > > stumbled upon

> > > > > something called a canal wall window to

> > > substitute a

> > > > > CWD to improve

> > > > > hearing. The little I've found, it sounds like

> > > a

> > > > > mini-modified-CWD.

> > > > > Anyone else heard of this?

> > > > > Thanks.

> > > > >

> > > >

> > > > __________________________________________________

> > > >

February 17, 2006

Thanks Barb, Tom and Kazzy, I understand what you are saying and

agree with you.

Just that uneasy preop second guessing routine I go through.

It is tough not knowing anyone to bounce these ideas off of.

Thank goodness for this site.

We are all in this together.

Jen.

> > > > >

> > > > > > My son is to have his CWD next week. However, I

> > > > > > stumbled upon

> > > > > > something called a canal wall window to

> > > > substitute a

> > > > > > CWD to improve

> > > > > > hearing. The little I've found, it sounds like

> > > > a

> > > > > > mini-modified-CWD.

> > > > > > Anyone else heard of this?

> > > > > > Thanks.

> > > > > >

> > > > >

> > > > > __________________________________________________

> > > > >

February 17, 2006

-My 7 year old son had CWU with Dr. Eavey at the Mass. Eye and Ear

in January. The doctor explained to us that there were three

possible procedures and that it depended on what he found when he

got inside. The first 'choice' was CWU. If that didn't seem

possible he would then move on to CWU with a window. The window is

put in to better view inside the ear during the surgery. It is then

repaired. You are not left with a window. Worst case scenario we

would go with the CWD. I am probably not doing his explainations

justice as he was so patient and articulate when he explained the

surgery to us. Cholesteatoma is his thing and he does many

surgeries.

My son came through the whole experience so well. He got a spiffy

red velcro head wrap, looked like a ski cap, which he kept on a

week. I would highly recomend going to Boston for a second

opinion. That's what we did and we are so happ.

le

-- In cholesteatoma , " moms_a_nurse " <jcarl22@...>

wrote:

>

> Thanks Barb, Tom and Kazzy, I understand what you are saying and

> agree with you.

> Just that uneasy preop second guessing routine I go through.

> It is tough not knowing anyone to bounce these ideas off of.

> Thank goodness for this site.

> We are all in this together.

> Jen.

>

> > > > > >

> > > > > > > My son is to have his CWD next week. However, I

> > > > > > > stumbled upon

> > > > > > > something called a canal wall window to

> > > > > substitute a

> > > > > > > CWD to improve

> > > > > > > hearing. The little I've found, it sounds like

> > > > > a

> > > > > > > mini-modified-CWD.

> > > > > > > Anyone else heard of this?

> > > > > > > Thanks.

> > > > > > >

> > > > > >

> > > > > > __________________________________________________

> > > > > >

February 18, 2006

Thanks le, I was preparing to go to Boston on Tuesday to

consult with Dr. Eavey depending on how our neurolotolgist responded

to my fist full of research papers. Our surgeon knows him well and

was familiar with the window technique that has been surpassed by the

new endo/micro/scope in his office. He is always open to my crazy

suggestions on how to avoid a CWD. And he also said that he will

make that call during surgery, making the smallest bowl possible to

minimize effects. Sounds like Dr. Eavey has the same approach.

Thank you so much for your input as I was wondering if Dr. Eavey does

perform CWD if necessary.

Jen.

> > > > > > >

> > > > > > > > My son is to have his CWD next week. However, I

> > > > > > > > stumbled upon

> > > > > > > > something called a canal wall window to

> > > > > > substitute a

> > > > > > > > CWD to improve

> > > > > > > > hearing. The little I've found, it sounds like

> > > > > > a

> > > > > > > > mini-modified-CWD.

> > > > > > > > Anyone else heard of this?

> > > > > > > > Thanks.

> > > > > > > >

> > > > > > >

> > > > > > > __________________________________________________

> > > > > > >

February 18, 2006

Hello Tom, Larry has a cwd in his left ear. He goes in for cleanings every three months. We waited six months once and for Larry that was not good. Had to come at a later date to have his ear numbed and an extensive cleaning. The anesthetic then got into his balance canal and, well, he didn't like it. Got sick everytime he moved. Every three months for us. Michele, Group ModeratorTom Hansen <pingmn123@...> wrote: Never heard of it, I will ask my Otologist next monthwhen I have my yearly check up....Although I'm not theonly one to have a CWD, I only go in once a year forcleaning. From what others have told they find thiscommon for them as well. So my question is what isthis

about occasional cleanings? What is occasionalonce a year, once a month once every 3 months? Pleasedefine your take on this... tom hansen --- moms_a_nurse <jcarl22@...> wrote:> No, it is different than a CWU, described as a> 'hybrid mastoidectomy' > technique substituting for the CWD. This is coming> out of Havard.> I can't find information if the 'window' is large> enough for the > occasional clean out required with CWD.> We go in for pre-surg tomorrow, hope to run this by> the > neurolotolgist.> Wish me luck!!> Jen.> > > >

> > > My son is to have his CWD next week. However, I> > > stumbled upon > > > something called a canal wall window to> substitute a> > > CWD to improve > > > hearing. The little I've found, it sounds like> a> > > mini-modified-CWD.> > > Anyone else heard of this? > > > Thanks.> > > > > > > > > > > > > > > > > > > > > __________________________________________________> >

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