Guest guest Posted March 10, 2003 Report Share Posted March 10, 2003 Hi All; Here's a question that I haven't seen. Are there any restrictions regarding altitude after surgery? Tony is scheduled for surgery on 3/20 and we were wondering if after surgery we have to keep him below a certain altitude? Any restrictions on flying? Any info would help a lot Sandi (mom of Tony- age 7) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2003 Report Share Posted March 10, 2003 Hi Sandi, My son is 6 and just had his removal. The doctor said no flying for a month. I didn't ask why--we were not planning on traveling. I hope your son's surgery goes well. Is it his first? This was our first and I pray just one more for repairs. altitude Hi All; Here's a question that I haven't seen. Are there any restrictions regarding altitude after surgery? Tony is scheduled for surgery on 3/20 and we were wondering if after surgery we have to keep him below a certain altitude? Any restrictions on flying? Any info would help a lotSandi(mom of Tony- age 7) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2003 Report Share Posted March 10, 2003 Hi Sandi, My doctor told us that he preferred my son wait 3 weeks to a month before traveling in the air or in high altitude such as mountain terrain. I found this out as my son had his reconstruction surgery in June of last year and we had scheduled a trip to the Smokey's in the beginning of July. The doctor wasn't concerned about it injuring him or causing interference, he was more concerned it may cause my son discomfort. So we postponed until the end of July to be cautious. Hope this helps sandif424 <sales@...> wrote: Hi All; Here's a question that I haven't seen. Are there any restrictions regarding altitude after surgery? Tony is scheduled for surgery on 3/20 and we were wondering if after surgery we have to keep him below a certain altitude? Any restrictions on flying? Any info would help a lotSandi(mom of Tony- age 7) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2003 Report Share Posted March 10, 2003 Yeah pressure level goes down as we go at higher altitude which means pressure increases for ears (eardrums) and as eardrum is not fully healed so its kind of dangerous for its healing. -----Original Message-----From: [mailto:lisaJwill@...]Sent: Monday, March 10, 2003 4:16 PMcholesteatoma Subject: Re: altitude Hi Sandi, My son is 6 and just had his removal. The doctor said no flying for a month. I didn't ask why--we were not planning on traveling. I hope your son's surgery goes well. Is it his first? This was our first and I pray just one more for repairs. altitude Hi All; Here's a question that I haven't seen. Are there any restrictions regarding altitude after surgery? Tony is scheduled for surgery on 3/20 and we were wondering if after surgery we have to keep him below a certain altitude? Any restrictions on flying? Any info would help a lotSandi(mom of Tony- age 7) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2003 Report Share Posted March 10, 2003 Hi , this will be Tony's first surgery. We are scheduled for the 20th of this month. Very scary as a Mom knowing I can't fix this for him. We were wondering about the flying as since we are usually in our boat on the lake during the summer skiing and won't be able to this year. Thought we'd fly to see his grandmother. Guess we'll find something local to do instead. Thanks for the kind words, Sandi (mom of Tony age 7) From: " " <lisaJwill@...> Reply-cholesteatoma Date: Mon, 10 Mar 2003 16:16:20 -0500 <cholesteatoma > Subject: Re: altitude Hi Sandi, My son is 6 and just had his removal. The doctor said no flying for a month. I didn't ask why--we were not planning on traveling. I hope your son's surgery goes well. Is it his first? This was our first and I pray just one more for repairs. altitude Hi All; Here's a question that I haven't seen. Are there any restrictions regarding altitude after surgery? Tony is scheduled for surgery on 3/20 and we were wondering if after surgery we have to keep him below a certain altitude? Any restrictions on flying? Any info would help a lot Sandi (mom of Tony- age 7) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2003 Report Share Posted March 10, 2003 Debby, That's what we were thinking that is may cause Tony discomfort. I guess we'll change our plans to low grounds. Thanks Sandi (mom of Tony age 7) From: Debby <debf_3@...> Reply-cholesteatoma Date: Mon, 10 Mar 2003 13:42:51 -0800 (PST) cholesteatoma Subject: Re: altitude Hi Sandi, My doctor told us that he preferred my son wait 3 weeks to a month before traveling in the air or in high altitude such as mountain terrain. I found this out as my son had his reconstruction surgery in June of last year and we had scheduled a trip to the Smokey's in the beginning of July. The doctor wasn't concerned about it injuring him or causing interference, he was more concerned it may cause my son discomfort. So we postponed until the end of July to be cautious. Hope this helps sandif424 <sales@...> wrote: Hi All; Here's a question that I haven't seen. Are there any restrictions regarding altitude after surgery? Tony is scheduled for surgery on 3/20 and we were wondering if after surgery we have to keep him below a certain altitude? Any restrictions on flying? Any info would help a lot Sandi (mom of Tony- age 7) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2003 Report Share Posted March 11, 2003 Is was so scary. I am seven months pregnant and I thought I was going to have a nervous breakdown. Now that it is over (for a while) I look back and think that it wasn't so bad. I asked my little boy last night what was the worst part. He said the pain medicine and the I.V. I asked him if he had to could he do it again. He said that he didn't want to . but he thought that he could. I think it is a lot harder on us mom's than our little boys. Good luck. I will keep you in my prayers and thoughts. Oh yes, we have dissolvable packing. I think that was good hearing the other stories. altitudeHi All; Here's a question that I haven't seen. Are there any restrictions regarding altitude after surgery? Tony is scheduled for surgery on 3/20 and we were wondering if after surgery we have to keep him below a certain altitude? Any restrictions on flying? Any info would help a lotSandi(mom of Tony- age 7) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2003 Report Share Posted March 11, 2003 , I'm worried about the IV as well. Did they give your son a shot to relax him prior to giving the IV? I know they gave our oldest son something (liquid then) when he was 2 and getting ear tubes but I'm sure that was because he was a baby. I'm hoping they give Tony something to relax him so that he doesn't freak out when he gets his IV. I had all 3 of my boys by C-section and I gotta say the IV was the hardest part for me also, especially if they miss and have to try more than once. I can't imagine be pregnant and going thru this, I would be a bigger basket case with all those hormones running around. I'll make a point to ask about the disolving packing that seems to be the way to go. Thanks Sandi altitudeHi All; Here's a question that I haven't seen. Are there any restrictions regarding altitude after surgery? Tony is scheduled for surgery on 3/20 and we were wondering if after surgery we have to keep him below a certain altitude? Any restrictions on flying? Any info would help a lotSandi(mom of Tony- age 7) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2003 Report Share Posted March 11, 2003 Curtis, Let me know, others have said approx. 1 month with no flying. We are seeing the surgeon on the 17th so I'll know what his recommendation is then. Sandi (mom of Tony age 7) RE: altitude I just had my c-toma surgery and my doctor placed no restrictions on air travel. I will have to ask her again as I did have plans to fly in 2 weeks. Curtis -----Original Message-----From: Joe/Sandi Franco [mailto:franco5@...]Sent: Monday, March 10, 2003 7:44 PMcholesteatoma Subject: Re: altitude Debby,That's what we were thinking that is may cause Tony discomfort. I guess we'll change our plans to low grounds. :)ThanksSandi(mom of Tony age 7) From: Debby <debf_3@...>Reply-cholesteatoma Date: Mon, 10 Mar 2003 13:42:51 -0800 (PST)cholesteatoma Subject: Re: altitude Hi Sandi, My doctor told us that he preferred my son wait 3 weeks to a month before traveling in the air or in high altitude such as mountain terrain. I found this out as my son had his reconstruction surgery in June of last year and we had scheduled a trip to the Smokey's in the beginning of July. The doctor wasn't concerned about it injuring him or causing interference, he was more concerned it may cause my son discomfort. So we postponed until the end of July to be cautious. Hope this helps sandif424 <sales@...> wrote: Hi All; Here's a question that I haven't seen. Are there any restrictions regarding altitude after surgery? Tony is scheduled for surgery on 3/20 and we were wondering if after surgery we have to keep him below a certain altitude? Any restrictions on flying? Any info would help a lotSandi(mom of Tony- age 7) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2003 Report Share Posted March 11, 2003 Mu doctor asked me not to travel for at least two to three months. I think its needed as eardrum is very sensitive to air pressures which changes a lot as plane takes off and lands. -----Original Message-----From: Sandi Franco [mailto:sales@...]Sent: Tuesday, March 11, 2003 10:28 AMcholesteatoma Subject: Re: altitude Curtis, Let me know, others have said approx. 1 month with no flying. We are seeing the surgeon on the 17th so I'll know what his recommendation is then. Sandi (mom of Tony age 7) RE: altitude I just had my c-toma surgery and my doctor placed no restrictions on air travel. I will have to ask her again as I did have plans to fly in 2 weeks. Curtis -----Original Message-----From: Joe/Sandi Franco [mailto:franco5@...]Sent: Monday, March 10, 2003 7:44 PMcholesteatoma Subject: Re: altitude Debby,That's what we were thinking that is may cause Tony discomfort. I guess we'll change our plans to low grounds. :)ThanksSandi(mom of Tony age 7) From: Debby <debf_3@...>Reply-cholesteatoma Date: Mon, 10 Mar 2003 13:42:51 -0800 (PST)cholesteatoma Subject: Re: altitude Hi Sandi, My doctor told us that he preferred my son wait 3 weeks to a month before traveling in the air or in high altitude such as mountain terrain. I found this out as my son had his reconstruction surgery in June of last year and we had scheduled a trip to the Smokey's in the beginning of July. The doctor wasn't concerned about it injuring him or causing interference, he was more concerned it may cause my son discomfort. So we postponed until the end of July to be cautious. Hope this helps sandif424 <sales@...> wrote: Hi All; Here's a question that I haven't seen. Are there any restrictions regarding altitude after surgery? Tony is scheduled for surgery on 3/20 and we were wondering if after surgery we have to keep him below a certain altitude? Any restrictions on flying? Any info would help a lotSandi(mom of Tony- age 7) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2003 Report Share Posted March 11, 2003 HeySandi, They did give Clayce some "I don't care Medicine" before the surgery. It made him a little drowsy, but not too much. He was still a little agitated. He refused to put on "the stupid dress" (gown). I kept thinking that he would get sedated enough and let me put in on him-he didn't!!!! In fact, he had his entire surgery in his own clothes. I think that they did wait until he was put to sleep before they put the I.V. into his hand. He just didn't like it in there when he woke up. I have three other children ( 3, 5, 7,)and one on the way. I worry about my other children having ear problem too. I wonder if it is hereditary? If I can answer anymore of your question ...I will be glad to. altitudeHi All; Here's a question that I haven't seen. Are there any restrictions regarding altitude after surgery? Tony is scheduled for surgery on 3/20 and we were wondering if after surgery we have to keep him below a certain altitude? Any restrictions on flying? Any info would help a lotSandi(mom of Tony- age 7) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2003 Report Share Posted March 11, 2003 , ok I have 3 boys and I thought my hands were full, yours are way fuller than mine. LOL. Anyway, I'll ask and see how they do the IV, it concerns me. Our oldest (9) had many, many ear infections as a baby and had tubes in at 2 but he is fine and our 5 year old shows no signs of hearing loss. The doctor told me it was a rare but not uncommon diease and that to run in families would be even more rare. I am hoping he is right. Sandi altitudeHi All; Here's a question that I haven't seen. Are there any restrictions regarding altitude after surgery? Tony is scheduled for surgery on 3/20 and we were wondering if after surgery we have to keep him below a certain altitude? Any restrictions on flying? Any info would help a lotSandi(mom of Tony- age 7) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2007 Report Share Posted November 28, 2007 " pjeanneus " <pj7@...> wrote: > > Altitude doesn't make me better or worse. I can fly. I can walk at > 11,000 feet. Usually neither makes me better or worse. I would > certainly visit a higher altitude or sea level place before moving > there. I would also be more concerned with the level of mold. > > a Carnes If altitude per-se had anything to do with CFS, why would the CFS epidemic find its origins at 6,200 ft in Incline Village? Naah. It's not the altitude. It's the SHIFT in altitude, just as Dr Shoemaker describes. I get a kick out of climbing Mt. Whitney and passing dozens of people on the way up who are bent over, leaning on their knees, out of breath. They wonder how I can do it. And then, up at the top: 14,500 ft, I encounter people who have only vaguely ever heard of " Chronic Fatigue Syndrome " who are gasping and suffering from altitude sickness - and are forced to head down after a few minutes... while I have no problems at all. I used to have altitude sickness all my life until I started " mold avoidance " (not to mention this " CFS " stuff) Now, not a trace of altitude sickness. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2007 Report Share Posted November 28, 2007 Do you consider yourself cured of CFS? Gail erikmoldwarrior wrote: > > " pjeanneus " <pj7@...> wrote: > > > > Altitude doesn't make me better or worse. I can fly. I can walk at > > 11,000 feet. Usually neither makes me better or worse. I would > > certainly visit a higher altitude or sea level place before moving > > there. I would also be more concerned with the level of mold. > > > > a Carnes > > If altitude per-se had anything to do with CFS, why would the CFS > epidemic find its origins at 6,200 ft in Incline Village? > > Naah. It's not the altitude. > It's the SHIFT in altitude, just as Dr Shoemaker describes. > > I get a kick out of climbing Mt. Whitney and passing dozens of > people on the way up who are bent over, leaning on their knees, out > of breath. They wonder how I can do it. > And then, up at the top: 14,500 ft, I encounter people who have only > vaguely ever heard of " Chronic Fatigue Syndrome " who are gasping and > suffering from altitude sickness - and are forced to head down after > a few minutes... > while I have no problems at all. > > I used to have altitude sickness all my life until I started " mold > avoidance " (not to mention this " CFS " stuff) > Now, not a trace of altitude sickness. > - > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2007 Report Share Posted November 28, 2007 Gail, I think you were asking me, but not sure. I'm not sure what is wrong with me right now. It may well have nothing to do with my years of cfids/Lyme. It may be due to deconditioning or brain injury from quinolone antibiotics. I can only clarify that altitude and flying have never been a problem to me, even when I was at my sickest. I can only speak for myself. I have been so sick that I had a lack of oxygen in my tissues at any altitude - could not walk or stand for a long period. I recall the first year I got sick driving to a vacation place with my 20 yr old son. I was so sick I couldn't walk a half block down the beach and wanted to sit on the ground. Then on the trip home I let my son drive through a blinding rain storm and fell asleep. This was not normal for me. a > > Do you consider yourself cured of CFS? > Gail > > > > > > > Altitude doesn't make me better or worse. I can fly. I can walk at > > > 11,000 feet. Usually neither makes me better or worse. I would > > > certainly visit a higher altitude or sea level place before moving > > > there. I would also be more concerned with the level of mold. > > > > > > a Carnes > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2007 Report Share Posted November 29, 2007 Yes, and also . I am amazed at his climbing tolerance. As for me I can be doing pretty well and every time I fly it causes a serious relapse that usually lasts for weeks or months. I hate it cause I have a daughter who lives across the country. Easier for me to get away since I don't work but I got really tired of getting so sick so have quit visiting her. Gail pjeanneus wrote: > > Gail, I think you were asking me, but not sure. I'm not sure what is > wrong with me right now. It may well have nothing to do with my years > of cfids/Lyme. It may be due to deconditioning or brain injury from > quinolone antibiotics. > > I can only clarify that altitude and flying have never been a problem > to me, even when I was at my sickest. I can only speak for myself. I > have been so sick that I had a lack of oxygen in my tissues at any > altitude - could not walk or stand for a long period. I recall the > first year I got sick driving to a vacation place with my 20 yr old > son. I was so sick I couldn't walk a half block down the beach and > wanted to sit on the ground. Then on the trip home I let my son drive > through a blinding rain storm and fell asleep. This was not normal > for me. > > a > > > > > Do you consider yourself cured of CFS? > > Gail > > > > > > > > > > > Altitude doesn't make me better or worse. I can fly. I can walk > at > > > > 11,000 feet. Usually neither makes me better or worse. I would > > > > certainly visit a higher altitude or sea level place before > moving > > > > there. I would also be more concerned with the level of mold. > > > > > > > > a Carnes > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2007 Report Share Posted November 29, 2007 The " flight cocktail " that I have had great success with is low dosage heparin (nassel spray, or sublingual) and piracetam (1200 mg) every 4-5 hours starting at 1 hr after take off. It seems to both prevent flares and also prevent jet-lag. > > Yes, and also . I am amazed at his climbing tolerance. As for me I > can be doing pretty well and every time I fly it causes a serious > relapse that usually lasts for weeks or months. I hate it cause I have a > daughter who lives across the country. Easier for me to get away since I > don't work but I got really tired of getting so sick so have quit > visiting her. > Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2007 Report Share Posted November 29, 2007 Nobody is more amazed than I am. I didn't expect to be alive, let alone doing this. This is what got me so amazed that doctors would refuse to listen, that I would start yelling at them that this is really important. (REALLY important!) I don't just have normal altitude tolerance, I have SUPERIOR altitude tolerance compared to people without CFS, thanks to a specific strategy. This just plain doesn't make sense, and instead of finding out why such a thing could be possible, it's been discarded because doctors THINK it is impossible. That is, discarded by all except for Dr Shoemaker. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2007 Report Share Posted November 29, 2007 Everyone misses you on the other board > > > Nobody is more amazed than I am. > I didn't expect to be alive, let alone doing this. > > This is what got me so amazed that doctors would refuse to listen, that > I would start yelling at them that this is really important. > (REALLY important!) > > I don't just have normal altitude tolerance, I have SUPERIOR altitude > tolerance compared to people without CFS, thanks to a specific strategy. > > This just plain doesn't make sense, and instead of finding out why > such a thing could be possible, it's been discarded because doctors > THINK it is impossible. > > That is, discarded by all except for Dr Shoemaker. > - > Quote Link to comment Share on other sites More sharing options...
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