Re: Re: Pulsatile Tinnitus ATTN Vince

[Guest guest]

Hi Vince

I have always have pulsating tinnitus whenever having a ear infection of any

kind due either due to cholesteatoma or as in my last case for a month ago

before my latest surgery, ear infection up in the whole aricellsystem. I guess

fluid or cholesteatoma that connects to the hearing bones gives the sound of

pulsating.

I have had pulsating for two years before my last surgery and it was hell.

Cause they surgeon I went to, argue for that the infection in my aircells would

heal on its own (but I did not know that because he never said something about

that). It was first after having seen another surgeon that I got the

explanation. He then drilled the whole cellsystem out and that made a

difference.

Well this was a long story for a short question. Hope you sign up quick for

surgery now.

My regards

Hey Vince,

OMG, I thought I was CRAZY so I never said a word to my Dr.

Although, now that I read others have had it I might not be crazy

afterall. (some would beg to differ on this one)

My Ctoma was VERY LARGE as well and since the surgery (feb 4) It

hasn't happened since.

PS, Are you scheduled for surgery soon?

> I wondered if anyone if anyone has had a symptom called " Pulsatile

> Tinnitus " . It's where you can hear a pulsing sound in the ear of

the

> side which has c-toma. I was told that as the c-toma grows and

> presses against the bones of hearing. It is the actual pulsation

of

> blood which distorts the movement of the bones of hearing.

>

> My recent CT scan showed significant bulging of the tympanic

membrane

> which may reflect an acute process.

>

> I guess that means the c-toma is rather large. I wondered if

anyone

> had the experience and what the outcome was in their case.

>

> Thanks

> Vince

[Guest guest]

Not getting to the mastiod is a common error that

inexpernaced ENT's make, you can tell that by alot of

the posts that the we read here. The vast majority of

c-toma's will invade the mastiod, I think I read some

where that it's about a 85% chance that it will get

into the mastoid. Yes you need to start out on the

conserative side of things if the situation warrents

it, but there comes a time when treating c-toma the

Doc has to become agressive. This is way I try to get

those new in the group to see a Otologist for a second

opinion. Most GP's will send people to a ENT over a

Otologist as they don't know or realise that impact

that c-toma cause's....

tom hansen

--- PETER LARSSON <.larsson.867@...>

wrote:

> Hi Vince

>

> I have always have pulsating tinnitus whenever

> having a ear infection of any kind due either due to

> cholesteatoma or as in my last case for a month ago

> before my latest surgery, ear infection up in the

> whole aricellsystem. I guess fluid or cholesteatoma

> that connects to the hearing bones gives the sound

> of pulsating.

>

> I have had pulsating for two years before my last

> surgery and it was hell.

> Cause they surgeon I went to, argue for that the

> infection in my aircells would heal on its own (but

> I did not know that because he never said something

> about that). It was first after having seen another

> surgeon that I got the explanation. He then drilled

> the whole cellsystem out and that made a difference.

>

> Well this was a long story for a short question.

> Hope you sign up quick for surgery now.

>

> My regards

>

> ATTACHMENT part 2 message/rfc822

> Date: Wed, 25 Feb 2004 06:38:25 +0000

> From: <purr_30@...>

> Subject: Re: Pulsatile Tinnitus

> cholesteatoma

>

---------------------------------

Hey Vince,

OMG, I thought I was CRAZY so I never said a word to

my Dr.

Although, now that I read others have had it I might

not be crazy

afterall. (some would beg to differ on this one)

My Ctoma was VERY LARGE as well and since the surgery

(feb 4) It

hasn't happened since.

PS, Are you scheduled for surgery soon?

> I wondered if anyone if anyone has had a symptom

called " Pulsatile

> Tinnitus " . It's where you can hear a pulsing sound

in the ear of

the

> side which has c-toma. I was told that as the

c-toma grows and

> presses against the bones of hearing. It is the

actual pulsation

of

> blood which distorts the movement of the bones of

hearing.

>

> My recent CT scan showed significant bulging of the

tympanic

membrane

> which may reflect an acute process.

>

> I guess that means the c-toma is rather large. I

wondered if

anyone

> had the experience and what the outcome was in their

case.

>

> Thanks

> Vince

[Guest guest]

Tom,

I heard the term " Otologist " before. What is the

difference between ENT doctor and Otologist? Could you

please clarify it for the group.

Thank you for your help.

Lincoln

--- Tom Hansen <pingmn123@...> wrote:

> Not getting to the mastiod is a common error that

> inexpernaced ENT's make, you can tell that by alot

> of

> the posts that the we read here. The vast majority

> of

> c-toma's will invade the mastiod, I think I read

> some

> where that it's about a 85% chance that it will get

> into the mastoid. Yes you need to start out on the

> conserative side of things if the situation warrents

> it, but there comes a time when treating c-toma the

> Doc has to become agressive. This is way I try to

> get

> those new in the group to see a Otologist for a

> second

> opinion. Most GP's will send people to a ENT over a

> Otologist as they don't know or realise that impact

> that c-toma cause's....

>

> tom hansen

>

>

>

> --- PETER LARSSON <.larsson.867@...>

> wrote:

> > Hi Vince

> >

> > I have always have pulsating tinnitus whenever

> > having a ear infection of any kind due either due

> to

> > cholesteatoma or as in my last case for a month

> ago

> > before my latest surgery, ear infection up in the

> > whole aricellsystem. I guess fluid or

> cholesteatoma

> > that connects to the hearing bones gives the sound

> > of pulsating.

> >

> > I have had pulsating for two years before my last

> > surgery and it was hell.

> > Cause they surgeon I went to, argue for that the

> > infection in my aircells would heal on its own

> (but

> > I did not know that because he never said

> something

> > about that). It was first after having seen

> another

> > surgeon that I got the explanation. He then

> drilled

> > the whole cellsystem out and that made a

> difference.

> >

> > Well this was a long story for a short question.

> > Hope you sign up quick for surgery now.

> >

> > My regards

> >

>

> > ATTACHMENT part 2 message/rfc822

> > Date: Wed, 25 Feb 2004 06:38:25 +0000

> > From: <purr_30@...>

> > Subject: Re: Pulsatile Tinnitus

> > cholesteatoma

> >

>

> ---------------------------------

> Hey Vince,

> OMG, I thought I was CRAZY so I never said a word to

> my Dr.

> Although, now that I read others have had it I might

> not be crazy

> afterall. (some would beg to differ on this one)

> My Ctoma was VERY LARGE as well and since the

> surgery

> (feb 4) It

> hasn't happened since.

>

>

>

> PS, Are you scheduled for surgery soon?

>

>

>

>

>

>

> > I wondered if anyone if anyone has had a symptom

> called " Pulsatile

> > Tinnitus " . It's where you can hear a pulsing

> sound

> in the ear of

> the

> > side which has c-toma. I was told that as the

> c-toma grows and

> > presses against the bones of hearing. It is the

> actual pulsation

> of

> > blood which distorts the movement of the bones of

> hearing.

> >

> > My recent CT scan showed significant bulging of

> the

> tympanic

> membrane

> > which may reflect an acute process.

> >

> > I guess that means the c-toma is rather large. I

> wondered if

> anyone

> > had the experience and what the outcome was in

> their

> case.

> >

> > Thanks

> > Vince

>

>

>

>

[Guest guest]

An Otologist is a ENT that specializes in ears only,

extra Education is required for this title as well.

In todays world I would suggest that you go to a

Otologist over a ENT, 30 years ago when I started to

have c-toma issues Otologists where few and far

between. ENT's back then also specialized in Ears

(mine did) but where not full blown Otologist's,

however most of them know what they where doing back

then. In todays world I would never send a person

with on-going ear problems to a ENT as there are to

many out there that couldn't find there way out of a

paper bag. I've seen too many horror stories in this

group with those who have just gone to ENT's.

Otologists are your best bet........

tom hansen

--- Tabaruk Chowdhury <puran_pagol@...> wrote:

> Tom,

>

> I heard the term " Otologist " before. What is the

> difference between ENT doctor and Otologist? Could

> you

> please clarify it for the group.

>

> Thank you for your help.

>

> Lincoln

>

>

>

> --- Tom Hansen <pingmn123@...> wrote:

> > Not getting to the mastiod is a common error that

> > inexpernaced ENT's make, you can tell that by alot

> > of

> > the posts that the we read here. The vast

> majority

> > of

> > c-toma's will invade the mastiod, I think I read

> > some

> > where that it's about a 85% chance that it will

> get

> > into the mastoid. Yes you need to start out on

> the

> > conserative side of things if the situation

> warrents

> > it, but there comes a time when treating c-toma

> the

> > Doc has to become agressive. This is way I try to

> > get

> > those new in the group to see a Otologist for a

> > second

> > opinion. Most GP's will send people to a ENT over

> a

> > Otologist as they don't know or realise that

> impact

> > that c-toma cause's....

> >

> > tom hansen

> >

> >

> >

> > --- PETER LARSSON

> <.larsson.867@...>

> > wrote:

> > > Hi Vince

> > >

> > > I have always have pulsating tinnitus whenever

> > > having a ear infection of any kind due either

> due

> > to

> > > cholesteatoma or as in my last case for a month

> > ago

> > > before my latest surgery, ear infection up in

> the

> > > whole aricellsystem. I guess fluid or

> > cholesteatoma

> > > that connects to the hearing bones gives the

> sound

> > > of pulsating.

> > >

> > > I have had pulsating for two years before my

> last

> > > surgery and it was hell.

> > > Cause they surgeon I went to, argue for that the

> > > infection in my aircells would heal on its own

> > (but

> > > I did not know that because he never said

> > something

> > > about that). It was first after having seen

> > another

> > > surgeon that I got the explanation. He then

> > drilled

> > > the whole cellsystem out and that made a

> > difference.

> > >

> > > Well this was a long story for a short question.

> > > Hope you sign up quick for surgery now.

> > >

> > > My regards

> > >

> >

> > > ATTACHMENT part 2 message/rfc822

> > > Date: Wed, 25 Feb 2004 06:38:25 +0000

> > > From: <purr_30@...>

> > > Subject: Re: Pulsatile Tinnitus

> > > cholesteatoma

> > >

> >

> > ---------------------------------

> > Hey Vince,

> > OMG, I thought I was CRAZY so I never said a word

> to

> > my Dr.

> > Although, now that I read others have had it I

> might

> > not be crazy

> > afterall. (some would beg to differ on this one)

> > My Ctoma was VERY LARGE as well and since the

> > surgery

> > (feb 4) It

> > hasn't happened since.

> >

> >

> >

> > PS, Are you scheduled for surgery soon?

> >

> >

> >

> >

> >

> >

> > > I wondered if anyone if anyone has had a symptom

> > called " Pulsatile

> > > Tinnitus " . It's where you can hear a pulsing

> > sound

> > in the ear of

> > the

> > > side which has c-toma. I was told that as the

> > c-toma grows and

> > > presses against the bones of hearing. It is the

> > actual pulsation

> > of

> > > blood which distorts the movement of the bones

> of

> > hearing.

> > >

> > > My recent CT scan showed significant bulging of

> > the

> > tympanic

> > membrane

> > > which may reflect an acute process.

> > >

> > > I guess that means the c-toma is rather large.

> I

> > wondered if

> > anyone

> > > had the experience and what the outcome was in

> > their

> > case.

> > >

> > > Thanks

> > > Vince

> >

> >

> >

> >