Re: Holding your head funny

[Guest guest]

Tonight I overheard my wife talking to my father in law on the phone and she said that my head was always leaning off to the side where my cholesteatoma is. This is news to me! So, I confronted her with it and she said I had been doing it for weeks, but that she just didn't have the heart to say anything about it. Now, I'm wondering if this is a sign of things to come. Does it mean that I'm experiencing the early stages of paralysis? Did anyone else have this problem? Does it go away after surgery? I'm a bit freaked out by it. I looked in the mirror and of course I can't tell that my head is leaning any. So, I asked my son and he said that yes I had been doing it for awhile. Why do loved ones keep things like this from us? GerryI think if you get a bad anything you tend to hold it funny. It may be displaces fluid or something or if you are deaf in one ear it would cause you to hold your head in a different way.

Do you have a stiff neck and/or shoulder and possibly problems with your jaw. They are symptoms of ctoma due primarily to pressure on the cranial nerves which would most affect the way you hold your head. The symptoms of ctoma are very numerous and you might get any or all of them, mild or severe. The longer you've had the ctoma the more likely you are to have symptoms. There is also earache, often a fullness, a stabbing pain in the ear and a dull ache in the mastoid area. severe headaches are also a fairly common symptom.

Face paralysis is relatively uncommon. It would probably start with a tingling numbness through your cheek and the inability to move your eye or mouth properly. One thing to note is whether your mouth is uneven ie both sides don't match. Evenso, those things don't necessarily lead to paralysis, more likely a facial weakness which is oten a part of ear disease.

Almost all symptoms will clear up once the ctoma is removed.

Phil

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[Guest guest]

I had the problem after surgery. My ctoma came on over a long period of time and apparently grew slowly allowing me to accommodate for it. The growth tends to distort the balance function, as does a middle or inner ear infection. When the growth was removed I felt "off balance" and tilted my head for a week or two while my body/brain readjusted to the new "settings". It wasn't something I could not do, it just happened. Mostly when I stood up and walked. I don't recall the problem when reclined or sitting. It's been quite a while and I've probably banished a few brain cells along the way.

What's your doc say?

Sandi

Lochner

[Guest guest]

Phil (Sorry Gerry to butt in )but do you get stabbing pains with a

pocket on the ear drum ? I've been diagnosed with this pocket on the

drum but that is about all I know . I flew back to China and the

pains appeared a day or 2 after the flight .

Thanks

Neil

>

> Tonight I overheard my wife talking to my father in law on the

phone

> and she said that my head was always leaning off to the side where

my

> cholesteatoma is. This is news to me! So, I confronted her with

it

> and she said I had been doing it for weeks, but that she just

didn't

> have the heart to say anything about it. Now, I'm wondering if

this

> is a sign of things to come. Does it mean that I'm experiencing

the

> early stages of paralysis? Did anyone else have this problem?

Does

> it go away after surgery? I'm a bit freaked out by it. I looked

in

> the mirror and of course I can't tell that my head is leaning

any.

> So, I asked my son and he said that yes I had been doing it for

> awhile. Why do loved ones keep things like this from us?

>

> Gerry

>

> I think if you get a bad anything you tend to hold it funny. It

may be displaces fluid or something or if you are deaf in one ear it

would cause you to hold your head in a different way.

>

> Do you have a stiff neck and/or shoulder and possibly problems

with your jaw. They are symptoms of ctoma due primarily to pressure

on the cranial nerves which would most affect the way you hold your

head. The symptoms of ctoma are very numerous and you might get any

or all of them, mild or severe. The longer you've had the ctoma the

more likely you are to have symptoms. There is also earache, often a

fullness, a stabbing pain in the ear and a dull ache in the mastoid

area. severe headaches are also a fairly common symptom.

>

> Face paralysis is relatively uncommon. It would probably start

with a tingling numbness through your cheek and the inability to

move your eye or mouth properly. One thing to note is whether your

mouth is uneven ie both sides don't match. Evenso, those things

don't necessarily lead to paralysis, more likely a facial weakness

which is oten a part of ear disease.

>

> Almost all symptoms will clear up once the ctoma is removed.

>

> Phil

>

>

>

>

>

>

>

> No virus found in this outgoing message.

> Checked by AVG Free Edition.

> Version: 7.1.375 / Virus Database: 268.0.0/266 - Release Date:

21/02/06

>

[Guest guest]

Never heard if it, I have been a survivor for 30

years...

tom hansen

--- Gerry <gerrydel@...> wrote:

> Tonight I overheard my wife talking to my father in

> law on the phone

> and she said that my head was always leaning off to

> the side where my

> cholesteatoma is. This is news to me! So, I

> confronted her with it

> and she said I had been doing it for weeks, but that

> she just didn't

> have the heart to say anything about it. Now, I'm

> wondering if this

> is a sign of things to come. Does it mean that I'm

> experiencing the

> early stages of paralysis? Did anyone else have

> this problem? Does

> it go away after surgery? I'm a bit freaked out by

> it. I looked in

> the mirror and of course I can't tell that my head

> is leaning any.

> So, I asked my son and he said that yes I had been

> doing it for

> awhile. Why do loved ones keep things like this

> from us?

>

> Gerry

>

>

>

>

__________________________________________________

[Guest guest]

This is what I call shooting pains, I still get them

25 years after my cwd. This is your nerve ends waking

up which could be a never ending thing to deal with.

For me it does not happen much any more but they still

happen from time to time. Don't know if flying has

anything to do with it, never drew that on my

expernaces and I fly a few times a year....

tom hansen

--- neilxiansheng <neilxiansheng@...> wrote:

>

> Phil (Sorry Gerry to butt in )but do you get

> stabbing pains with a

> pocket on the ear drum ? I've been diagnosed with

> this pocket on the

> drum but that is about all I know . I flew back to

> China and the

> pains appeared a day or 2 after the flight .

>

> Thanks

> Neil

>

>

> >

> > Tonight I overheard my wife talking to my father

> in law on the

> phone

> > and she said that my head was always leaning off

> to the side where

> my

> > cholesteatoma is. This is news to me! So, I

> confronted her with

> it

> > and she said I had been doing it for weeks, but

> that she just

> didn't

> > have the heart to say anything about it. Now, I'm

> wondering if

> this

> > is a sign of things to come. Does it mean that

> I'm experiencing

> the

> > early stages of paralysis? Did anyone else have

> this problem?

> Does

> > it go away after surgery? I'm a bit freaked out

> by it. I looked

> in

> > the mirror and of course I can't tell that my head

> is leaning

> any.

> > So, I asked my son and he said that yes I had been

> doing it for

> > awhile. Why do loved ones keep things like this

> from us?

> >

> > Gerry

> >

> > I think if you get a bad anything you tend to hold

> it funny. It

> may be displaces fluid or something or if you are

> deaf in one ear it

> would cause you to hold your head in a different

> way.

> >

> > Do you have a stiff neck and/or shoulder and

> possibly problems

> with your jaw. They are symptoms of ctoma due

> primarily to pressure

> on the cranial nerves which would most affect the

> way you hold your

> head. The symptoms of ctoma are very numerous and

> you might get any

> or all of them, mild or severe. The longer you've

> had the ctoma the

> more likely you are to have symptoms. There is also

> earache, often a

> fullness, a stabbing pain in the ear and a dull ache

> in the mastoid

> area. severe headaches are also a fairly common

> symptom.

> >

> > Face paralysis is relatively uncommon. It would

> probably start

> with a tingling numbness through your cheek and the

> inability to

> move your eye or mouth properly. One thing to note

> is whether your

> mouth is uneven ie both sides don't match. Evenso,

> those things

> don't necessarily lead to paralysis, more likely a

> facial weakness

> which is oten a part of ear disease.

> >

> > Almost all symptoms will clear up once the ctoma

> is removed.

> >

> > Phil

> >

> >

> >

> >

> >

> >

> >

> > No virus found in this outgoing message.

> > Checked by AVG Free Edition.

> > Version: 7.1.375 / Virus Database: 268.0.0/266 -

> Release Date:

> 21/02/06

> >

>

>

>

>

>

>

>

__________________________________________________

[Guest guest]

I also tilted my head a bit before my first c'toma surgery. A nurse

pointed it out to me. She remarked I was probably doing it because I'd

lost so much hearing in that ear I was tilting my head to aid the other

ear. For me, that made perfect sense.

>

> Tonight I overheard my wife talking to my father in law on the phone

> and she said that my head was always leaning off to the side where my

> cholesteatoma is. This is news to me! So, I confronted her with it

> and she said I had been doing it for weeks, but that she just didn't

> have the heart to say anything about it. Now, I'm wondering if this

> is a sign of things to come. Does it mean that I'm experiencing the

> early stages of paralysis? Did anyone else have this problem? Does

> it go away after surgery? I'm a bit freaked out by it. I looked in

> the mirror and of course I can't tell that my head is leaning any.

> So, I asked my son and he said that yes I had been doing it for

> awhile. Why do loved ones keep things like this from us?

>

> Gerry

>

[Guest guest]

Phil,

Yes, I've had the severe headaches and stiff neck. I have a lot of

sinus problems, so I had always just put it down to sinuses, until I

recently found out that I had the c-toma. Thanks for all the

information. A lot of things are beginning to make sense now.

Gerry

>

> Tonight I overheard my wife talking to my father in law on the

phone

> and she said that my head was always leaning off to the side where

my

> cholesteatoma is. This is news to me! So, I confronted her with

it

> and she said I had been doing it for weeks, but that she just

didn't

> have the heart to say anything about it. Now, I'm wondering if

this

> is a sign of things to come. Does it mean that I'm experiencing

the

> early stages of paralysis? Did anyone else have this problem?

Does

> it go away after surgery? I'm a bit freaked out by it. I looked

in

> the mirror and of course I can't tell that my head is leaning

any.

> So, I asked my son and he said that yes I had been doing it for

> awhile. Why do loved ones keep things like this from us?

>

> Gerry

>

> I think if you get a bad anything you tend to hold it funny. It

may be displaces fluid or something or if you are deaf in one ear it

would cause you to hold your head in a different way.

>

> Do you have a stiff neck and/or shoulder and possibly problems

with your jaw. They are symptoms of ctoma due primarily to pressure

on the cranial nerves which would most affect the way you hold your

head. The symptoms of ctoma are very numerous and you might get any

or all of them, mild or severe. The longer you've had the ctoma the

more likely you are to have symptoms. There is also earache, often a

fullness, a stabbing pain in the ear and a dull ache in the mastoid

area. severe headaches are also a fairly common symptom.

>

> Face paralysis is relatively uncommon. It would probably start

with a tingling numbness through your cheek and the inability to

move your eye or mouth properly. One thing to note is whether your

mouth is uneven ie both sides don't match. Evenso, those things

don't necessarily lead to paralysis, more likely a facial weakness

which is oten a part of ear disease.

>

> Almost all symptoms will clear up once the ctoma is removed.

>

> Phil

>

>

>

>

>

>

>

> No virus found in this outgoing message.

> Checked by AVG Free Edition.

> Version: 7.1.375 / Virus Database: 268.0.0/266 - Release Date:

21/02/06

>

[Guest guest]

Sandi,

I haven't talked to my doctor about it because I just found out I

was doing it. I wasn't aware I was holding my head funny at all,

and I still don't feel like I am, but everyone tells me that I am.

I do have the off balance feeling, so I imagine I will go through

the post surgery adjustment period too, when I get myself centered

again. I guess my gyroscope is just out. No wonder I don't like

spinning rides. I get sick just watching them.

Gerry

>

> I had the problem after surgery. My ctoma came on over a long

period of

> time and apparently grew slowly allowing me to accommodate for

it. The growth

> tends to distort the balance function, as does a middle or inner

ear

> infection. When the growth was removed I felt " off balance " and

tilted my head for a

> week or two while my body/brain readjusted to the

new " settings " . It wasn't

> something I could not do, it just happened. Mostly when I stood

up and

> walked. I don't recall the problem when reclined or sitting.

It's been quite a

> while and I've probably banished a few brain cells along the way.

> What's your doc say?

> Sandi

>

> Lochner

>

[Guest guest]

Gerry,

Ah yes. the spinning ride syndrome! I would wager that all of us "earmiesters" have similar problems. Hope you get relief soon!

Sandi

Lochner