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Just curious, do you use dandelion leaves or root?

Watermelon is certainly a good diuretic.

If that works then you might also try parsley/parsley tea.

Parsley leaves and root tea is commonly used for kidney cleanse

Parsley seeds are also diuretics, and are used for dissolving kidney stones

Celery seed tea is supposed to help with kidney disorders.

http://curezone.com/cleanse/kidney/default.asp

Don

Re: Edema

kathy matthews wrote:

> Have you tried potassium and Vit C?

Thank you - yes I use a lot of both. Potassium is especially necessary.

It's my crazy cortisol level that makes it hard to find enough things

to make progress. But now and then I have a good day and do not know why

- if I can figure why it would help!

And I am always on the lookout for more options :-))

Some that are supposed to help, don't - like dandelion makes me worse -

I wonder why? Maybe knowing why would tell me something useful.

But watermelon makes it better - LOTS of watermelon makes it a little

better :-)

Namaste,

Irene

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Irene, Is there some reason you cannot drink water?

I have always heard the best way to treat excess water IS with water.

I just put on 10 lbs in less than a week.. On monday my legs and feet

looked like tree stumps. I began drinking LOTS of water. Have removed 7

of those 10 lbs in the past 3 days. Wanda

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walou@... wrote:

> Irene, Is there some reason you cannot drink water?

Hi Wanda,

With the exception of times I work up a specific thirst like after a

bike ride and there is nothing else available, I would do a lot to avoid

having to swallow water - can't stand the stuff!

I like a flavour in it - so I add something whether it is juice or

green tea. I do have 10 cups of green tea a day and do not add sugar -

so it is essentially water. That's apart from other mixtures of water,

like 25% pineapple or prune juice/water or water with a bit of lemon

juice. I always have fluid with me and am sipping away.

> I have always heard the best way to treat excess water IS with water.

I do believe that and I do drink gallons of watery liquid - just not

plain water by choice. I can drink the Cape Town mountain spring water -

it tastes a little of palmiet reed and has a pH of 5.2. but I do not

live there any more :-) Here the water tastes toxic and the bottled

tastes too bland. Maybe I am a cat :-)) Cats have more water taste buds

than most animals and it really matters to them how their water tastes.

> I just put on 10 lbs in less than a week.. On monday my legs and feet

> looked like tree stumps. I began drinking LOTS of water. Have removed 7

> of those 10 lbs in the past 3 days.

I envy you - good work.

I can put on ten pounds in a single day and take 2 years to remove it.

I am fighting an uphill battle due to cortisol toxicity, so it is ways

to beat that which I am seeking rather than a normal situation.

I do use all the tricks I can find and afford (an issue unfortunately)

put together, and green tea is one of those and is part of why I use it

in my water. When I first changed from coffee to green tea I needed

sugar in it. It took me a couple months to wean off the sugar and take

it plain. Now I can't stand sugar in it!

One trick in doing that was to make sure the tea was very weak tea, so

it did not feel like it needed sugar. Once I was off sugar I could

gradually increase the tea strength, but I do not make it very strong -

green tea is not supposed to be strong. But it supposed to be diuretic

and it is supposed to reduce cortisol - another major reason I use it in

place of water.

So the edema war is on in earnest - and I am collecting the ways.

So far, my known edema friends are these - bearing in mind I have two

disease conditions to fight that cause increased cortisol and sodium,

and lack of potassium and magnesium:

Potassium supplements (I take huge amounts on prescription for the

kidney defect)

Magnesium supplements (ditto for kidney defect)

No sodium added to food (ditto for kidney defect)

No starchy foods

Bai Zhu (Chinese herb that is diuretic by helping to remove sodium)

Vit E (as it reduces cortisol)

Green tea (reduces cortisol, is diuretic)

Watermelon

BTD diet - this I can tell helps somewhat but there is as yet a hidden

thing I get right now and then with or without BTD - and dunno what is

is so as to repeat it.

Perricone rules of 5 meals/snacks per day and each must have: (plenty

protein, antioxidant item, 5g fiber, 1 teasp olive oil, green tea, no

added salt, no saturated fat or trans fat; salmon or oily fish daily.)

Ginkgo biloba - reduces cortisol

Chromium - reduces high blood sugar

Vit B6, Pantothenic acid and Vit C (adrenal support vits)

Bicycle riding

Sleeping enough.

That's my list at present - it's not enough yet.

Namaste,

Irene

--

Irene de Villiers, B.Sc; AASCA; MCSSA; D.I.Hom.

P.O.Box 4703, Spokane, WA 99220-0703.

http://www.angelfire.com/fl/furryboots/clickhere.html

Veterinary Homeopath and Feline Information Counsellor.

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Belinda wrote:

> Try Bromlein (sp?). I know you can get the pills from Dr

> D'Adamo's website. It's the pineapple proteins without the juice

> and sugar.

Thanks for the idea - I know you meant pineapple proteolytic enzymes

not the proteins. Also not the taste :-)))) Wish there was pineapple

juice minus the sugar - I find it too sweet but love the rest of the taste.

I'm always a little reluctant to take enzymes all by themseleves - there

is so much they can do in the body and there are no balancing factors as

nature always tends to supply with them.

But I could start with a little and work up perhaps.

Namaste,

IRene

>

>

>

>

>

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Don St. wrote:

> Just curious, do you use dandelion leaves or root?

I've tried dandelion leaves and dandelion whole plant but both made me

worse. I did not try root alone.

> Watermelon is certainly a good diuretic.

> If that works then you might also try parsley/parsley tea.

I do use a lot of parsley in cooking- either fresh or dried.

Never thought of tea :-))

Thanks,

Irene

--

Irene de Villiers, B.Sc; AASCA; MCSSA; D.I.Hom.

P.O.Box 4703, Spokane, WA 99220-0703.

http://www.angelfire.com/fl/furryboots/clickhere.html

Veterinary Homeopath and Feline Information Counsellor.

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> Belinda wrote:

> > Try Bromlein (sp?). I know you can get the pills from Dr

> > D'Adamo's website. It's the pineapple proteins without the

juice

> > and sugar.

>

>

> Thanks for the idea - I know you meant pineapple proteolytic

enzymes

> not the proteins. Also not the taste :-)))) Wish there was

pineapple

Oops! Yep, that's why I meant. Having a blonde moment.

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What effect does the caffeine in the green tea have on the cortisol?

Re: Edema

walou@... wrote:

> Irene, Is there some reason you cannot drink water?

Hi Wanda,

With the exception of times I work up a specific thirst like after a

bike ride and there is nothing else available, I would do a lot to avoid

having to swallow water - can't stand the stuff!

I like a flavour in it - so I add something whether it is juice or

green tea. I do have 10 cups of green tea a day and do not add sugar -

so it is essentially water. That's apart from other mixtures of water,

like 25% pineapple or prune juice/water or water with a bit of lemon

juice. I always have fluid with me and am sipping away.

> I have always heard the best way to treat excess water IS with water.

I do believe that and I do drink gallons of watery liquid - just not

plain water by choice. I can drink the Cape Town mountain spring water -

it tastes a little of palmiet reed and has a pH of 5.2. but I do not

live there any more :-) Here the water tastes toxic and the bottled

tastes too bland. Maybe I am a cat :-)) Cats have more water taste buds

than most animals and it really matters to them how their water tastes.

> I just put on 10 lbs in less than a week.. On monday my legs and feet

> looked like tree stumps. I began drinking LOTS of water. Have removed 7

> of those 10 lbs in the past 3 days.

I envy you - good work.

I can put on ten pounds in a single day and take 2 years to remove it.

I am fighting an uphill battle due to cortisol toxicity, so it is ways

to beat that which I am seeking rather than a normal situation.

I do use all the tricks I can find and afford (an issue unfortunately)

put together, and green tea is one of those and is part of why I use it

in my water. When I first changed from coffee to green tea I needed

sugar in it. It took me a couple months to wean off the sugar and take

it plain. Now I can't stand sugar in it!

One trick in doing that was to make sure the tea was very weak tea, so

it did not feel like it needed sugar. Once I was off sugar I could

gradually increase the tea strength, but I do not make it very strong -

green tea is not supposed to be strong. But it supposed to be diuretic

and it is supposed to reduce cortisol - another major reason I use it in

place of water.

So the edema war is on in earnest - and I am collecting the ways.

So far, my known edema friends are these - bearing in mind I have two

disease conditions to fight that cause increased cortisol and sodium,

and lack of potassium and magnesium:

Potassium supplements (I take huge amounts on prescription for the

kidney defect)

Magnesium supplements (ditto for kidney defect)

No sodium added to food (ditto for kidney defect)

No starchy foods

Bai Zhu (Chinese herb that is diuretic by helping to remove sodium)

Vit E (as it reduces cortisol)

Green tea (reduces cortisol, is diuretic)

Watermelon

BTD diet - this I can tell helps somewhat but there is as yet a hidden

thing I get right now and then with or without BTD - and dunno what is

is so as to repeat it.

Perricone rules of 5 meals/snacks per day and each must have: (plenty

protein, antioxidant item, 5g fiber, 1 teasp olive oil, green tea, no

added salt, no saturated fat or trans fat; salmon or oily fish daily.)

Ginkgo biloba - reduces cortisol

Chromium - reduces high blood sugar

Vit B6, Pantothenic acid and Vit C (adrenal support vits)

Bicycle riding

Sleeping enough.

That's my list at present - it's not enough yet.

Namaste,

Irene

--

Irene de Villiers, B.Sc; AASCA; MCSSA; D.I.Hom.

P.O.Box 4703, Spokane, WA 99220-0703.

http://www.angelfire.com/fl/furryboots/clickhere.html

Veterinary Homeopath and Feline Information Counsellor.

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This is a little off topic in case you want to skip this.

In a message dated 8/21/2004 8:37:38 PM Eastern Daylight Time,

furryboots@... writes:

I would not call that an active immune system so much as a skewed one -

which is worse.

Just to clarify, my BP (120/70) is normal when I don't take a BP med. My BP

med ( standard treatment for CHF) opens the veins and arteries so my heart

will work easier. Unfortunately, it drops my BP to 110/60 and makes me tired.

Exercise works me out of it but it's hard to initially get up and do it. The

Doc also wanted me to take a beta blocker that blocks the immune system

response to my " wounded " heart but they make me too sick and really lower my BP.

I

stopped taking them when my BP dropped to 90/54 and I went numb. I still think

my heart can heal itself and I'll eventually get off of all meds even if the

doc doesn't believe it. Just recently they found new growth within old hearts

so the heart does generate new cells. I am living proof that the BTD works.

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Bumpas wrote:

> What effect does the caffeine in the green tea have on the cortisol?

There is a componenet of green tea that actually cancels out caffeine,

so it is not a problem in green tea.

(good question!)

Can't remember the component (I have a good forgettery thanks to

cortisol) but that's in addition to the theonine that helps cancel

cortisol directly.

Namaste,

Irene

--

Irene de Villiers, B.Sc; AASCA; MCSSA; D.I.Hom.

P.O.Box 4703, Spokane, WA 99220-0703.

http://www.angelfire.com/fl/furryboots/clickhere.html

Veterinary Homeopath and Feline Information Counsellor.

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This is from my Herbs & Spices card on Parsley:

" Therapeutic Effect: Parsley is a diureic that purifies the blood and

accelerates the excretion of toxins. It stimulates appetite and aids

digestion and metabolism. The herb can also ease bloating, stomach

cramps and nausea as well as relieve arthritis symptoms. Eaten

regularly, it reduces heart rate and lowers blood pressure. To keep

your breath fresh, chew on fresh parsley leaves. And for treatment of

kidney stones, brew up some parsley tea. "

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I have it too at a lower price!!!!!!

ABO Specifics Inc. - http://www.foodforyourblood.com

Re: Edema

> Belinda wrote:

> > Try Bromlein (sp?). I know you can get the pills from Dr

> > D'Adamo's website. It's the pineapple proteins without the

juice

> > and sugar.

>

>

> Thanks for the idea - I know you meant pineapple proteolytic

enzymes

> not the proteins. Also not the taste :-)))) Wish there was

pineapple

Oops! Yep, that's why I meant. Having a blonde moment.

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Maddviking@... wrote:

> Just to clarify, my BP (120/70) is normal when I don't take a BP med. My BP

> med ( standard treatment for CHF) opens the veins and arteries so my heart

> will work easier. Unfortunately, it drops my BP to 110/60 and makes me tired.

Gee that's not great, if you went much lower you could be comatose.

I had a school friend whose normal BP was lower than 60 diastolic and

they always asked her how she felt - fine she said- but it is not normal

for most people to feel fine at such a low BP.

When I had heart damage - thickened ventricle, enlarged size, high

systolic blood pressure trying to compensate, and a right to left shunt,

I was offered the usual meds... not okay for me - and I used Hawthorne

berry herbally. I started with 2 caps a day and worked up to 8 a day.

I mention it as Hawthorn berry is a very well known herb over

centuries for heart problems, and it is used for low or high blood

pressure issues.

Here's a website I googled just now, I am sure there are others too:

http://www.viable-herbal.com/singles/herbs/s350.htm

You'd not want to have too much additive effect though between

allopathic and herbal meds since both work at the chemical level.

> Exercise works me out of it but it's hard to initially get up and do it. The

> Doc also wanted me to take a beta blocker

I confess I do not like beta blockers. They are vaso-dilators to slow

the pulse to supposedly reduce the work done by the heart - I'm not

convinced - but they have far reaching effects including

broncho-constriction, and raising blood sugar so you put on weight more

easily and tend to diabetic charatceristics. Supposedly they help reduce

water retention - but for me the " price " is way too high.

Other possible side effects:

Fatigue,

lightheadedness

shortness of breath

Dizziness

Chest pain

Diarrhea

High blood sugar

Impotence

Nausea,

vomiting,

back pain,

insomnia

headache

Eh it's a long list of risks.

Risks from hawthorne herb are negligible.

> I still think

> my heart can heal itself and I'll eventually get off of all meds even if the

> doc doesn't believe it. Just recently they found new growth within old hearts

> so the heart does generate new cells.

Oh I know it does - you can compare my before and after xrays and EKGs

any day :-))

I've had doctors tell me I must have the before and after back to front

but then they see I am not collapsing all over the place.

At the start of that I could not walk across a room without collapsing,

nor sit in a chair without my head propped against the back or a wall.

Now I can ride my bicycle about 5 miles including mild hills and a short

moderate hill. It is not like the 110 mile cycle races I did in 1997

over mountain passes - but it sure is big progress compared with having

difficulty getting from the bedroom to the bathroom.

> I am living proof that the BTD works.

I still hope to benefit from it - well I did somewhat so far.

My heart recovery came from homeopathy and Hawthorn berry. The hawthorn

berry kept it okay while I used the homeopathy to heal it (like a crutch

while a broken leg heals) so then I did not need the hawthorn berry to

maintain it, and I weaned off.

Doctors will always tell you stuff like this or that is

" impossible " . All it means is THEY do not know how to make it work

(hence look at alternatives) - not that nobody can make it work.

You have to translate into the unblinkered version :-)) they all have

been specifically trained to have tunnel vision :-)

You don't have to take on that restriction.

Namaste,

Irene

--

Irene de Villiers, B.Sc; AASCA; MCSSA; D.I.Hom.

P.O.Box 4703, Spokane, WA 99220-0703.

http://www.angelfire.com/fl/furryboots/clickhere.html

Veterinary Homeopath and Feline Information Counsellor.

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  • 4 years later...
Guest guest

Hi,

I am also 46y/o (SMA II). I used to have significant feet swelling. My doctor

suggested high-top sneakers. I usually wear just regular running sneakers that

give me good support and tie the laces snug. Problem solved!

Good luck at the doctor!

Sent from my Verizon Wireless BlackBerry

edema

Has anybody on this list had problems (and preferably solutions) with edema?

I'm a 46-year-old woman with SMA. For the past 12 years I've used

noninvasive ventilation to support my breathing, and have been pretty

healthy throughout that time. Just recently, like within the last couple of

months, I've been experiencing more difficulty breathing, especially when

I'm off the ventilator, such as to change clothes, shower, eat, etc. Then,

about a week ago, I started noticing a lot of swelling in my feet and

ankles. Now the swelling has spread to my forearms and torso. It's kind of

freaking me out! I have a cardiology appointment today, and I hope I'll get

some answers. Just wondering about the experiences of other SMA folks.

Thanks for any information...

Hershey in Colorado

__________ Information from ESET Smart Security, version of virus signature

database 4043 (20090429) __________

The message was checked by ESET Smart Security.

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  • 1 year later...
Guest guest

My knee and feet have really puffed up. I can't even put on old slippers

which was one size to big before TKR 9 days ago. I started making sure that I

was drinking 8 cups of water, added milk of magnesium/seltzer mix, and

bought a lift chair. I used 3 pillows to try to elevate my fee plus ice. DR

Becker said the cause is excess sodium most likely IV's at the Hospital. Any

other things to try?

I understand a little more why my RN got so mad over trying to find

cinnamon. She first was cursing her pharmacy for not blessing cinnamon with my

other vitamins which I guess the Hospital was supposed to supply. When i told

her I had my own COSTCO blessed pills she got even madder. I have known her

at least 15 years. My wife also an RN said she always tried to go right by

the book.

I went from the Hospital home as the Re-Hab was filled and my DR knew my

wife was an RN. By so doing I missed PT and can't start until this Wed.

Brickey

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