New Member

[Guest guest]

>

> Hi, I just joined. My right eye has been very dark brown from birth

> and my left was initially blue, then quickly turned to a

> greenish/yellow/light brown. My great-grandmother had different

> coloured eyes, but no-one else in my family. I know that

heterochromia

> is an autosomal dominant trait, so why isn't present in all

> generations? I read about gene penetrance, is this the answer - does

> anyone know.

> Thanks.

>

Welcome to our ever expanding group. Through our many hundreds of

posts, you should be able to find any information there is related to

HC that so many of us have uncovered, some of which can be very

interesting. If you have time, visit the database and add your

details, so that we may keep a record of all of us that visit!

As for your question, I don't think (I'm not sure - nearly everybody

in my family has it, though nobody has it like mine) that it is

dominant. I've heard of some cases where it skips many generations, so

I think it's recessive and not dominant, like when parents are

surprised that their son/daughter has HC and discover that their great

great great grandparents both had it and had a very romantic life

because of it (just one case, but there would be more).

There's also a case where one of our own members has HC, but not her

daughter, and a case where it is the reverse!

There are different causes for HC, most of which are genetic. I think

it originally came from cross breeding (happens a lot in animals, even

today) in our ancestors, which led to a new mix of genes, which led to

certain special features. This is a theory, which I am still

investigating (in my sparse free time - college), though it is

supported by most of the fact that most of us have european ancestry.

Hope this helps in some way ^^

Angel

[Guest guest]

to st Pierre. My name is Donnie Pierre. i grew up getting teased

a lot too,but only when I got like in middle school. But you are right

now as we are grown it is awemazing to have eyes thst are really two

diff. colors. I cant believe how many people have it.

[Guest guest]

I saw your pic...your hot...I dont know why you got teased. J.

>

>

> to st Pierre. My name is Donnie Pierre. i grew up getting teased

> a lot too,but only when I got like in middle school. But you are

right

> now as we are grown it is awemazing to have eyes thst are really two

> diff. colors. I cant believe how many people have it.

>

[Guest guest]

> i grew up getting teased

> a lot too,but only when I got like in middle school.

It's my 9 yo daughter that his this, but she's never been teased,

thankfully. She does have her peers ask about it, but she is so confident

in her eyes (and her birthmark on her left cheek) that it doesn't bother her

in the least. I have blue eyes and my husband has brown eyes, so she thinks

of it as she got an eye from each parent! LOL. She knows that isn't the

case (my DH's grandmother had a brown spot in her blue eyes, whereas 's

eye is 1/2 blue, 1/2 brown -- her other eye is all blue), but she likes that

reasoning! SHe also sees her birthmark as a gift from God -- when I was

pregnant with her (she's my first), one of my irrational fears was that she

would get put in the nursery and I wouldn't be able to tell by looking which

baby was mine! Well, with that birthmark, there was never a question!

Heehee. Of course, she's in 3rd grade now, so we'll see what happens as she

grows up. But for now she's very proud of her eyes!

Jenn

[Guest guest]

Welcome, . I imagine that they *will* pay for it. Medicare does.

You're in for a great ride.

Lots of good wishes,

Virg

> Hi Everyone,

> I am new member in this group. I am getting me CI as soon as we hear

> from my insurance. I hope they pay for it.

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Congratulations on your decision, .

I hope everything happens speedily for you.

Happy hearing.

Ted F.

>

> Hi Everyone,

> I am new member in this group. I am getting me CI as soon as we hear

> from my insurance. I hope they pay for it.

>

>

[Guest guest]

Hi

Welcome to the forum. There are a lot of helpful people here. I

overlooked your post because I made a bad choise of words in a

previous post and kind of made a mess here - I'm going to try to no

longer do that. So I wanted to extend a big Texas HOWDY to you!

What's your hearing background? Have you had a long term deafness or

a pregressive loss overtime?

Once again welcome to the group

Smiles

Kim B

>

> Hi Everyone,

> I am new member in this group. I am getting me CI as soon as we

hear

> from my insurance. I hope they pay for it.

>

>

>

[Guest guest]

>

> Hi everyone,

> My name is Ellen and I read about EFT quite awhile ago and wrote it

> off as ridiculous.

Hi Ellen! Welcome to the board.

I know that EFT seems 'out there' from an allopathic and conventional

viewpoint, but believe me, it works in ways that are beyond compare.

I've been using it for about a year now and I can't begin to describe

how it's changed my life. Like you, I had the same reluctance to try

it but one day I figured what the heck, I'll give it a try and see

what happens. I was blown away.

> I have a weight problem that I have been battling for approximately

> half my life now, and I would like to put it to rest. I am

> considering using EFT.

Here's some questions to ask yourself to find out where your heart is:

Do you want to lose weight because others say you 'should' or do you

want to lose weight because YOU 'want' to?

What would be the consequences if you were to lose weight?

What would be the gains if you were to lose weight?

The reason I failed in my last diet was ____________.

While it sounds like a bunch of silly questions, if you're basing you

decision to lose weight upon the comments of others, odds are you

won't succeed. You have to want it for yourself and no one else. Also,

if you come up with any consequences to losing weight, tap on 'em to

neutralize 'em. Here's an example:

" The consequences of me losing weight would be that I now have to

spend the money on a new wardrobe. "

In this case, you could tap on:

" Even though I'd have to buy a new wardrobe if I lost weight, I deeply

and completely love and accept myself. "

With a reminder phrase of:

" This weight loss wardrobe expense. "

Now, the above scenario may or may not apply to you personally, but

it'll give you an idea on how to handle any consequences that may pop up.

Anyway, I hope this helps you get started...

-Jef

[Guest guest]

Hi Debbie, You have come to the right place for support and comfort. Be aware that we tell it straight. No sugar coating here. Canal wall up CWU or Canal wall down CWD depends on the extensiveness of the Cholesteatoma- CTOMA. That is why you were scheduled for a CT scan. Ctomas take a long time to develop and can occur from birth so, damage results from them. You may go for a second surgery to repair the hearing bone chain. As for the pain, well it is due to the tumor pushing on things as well as the swelling that you have and the irritation of the infection. Can you try Migraine aspirin? Regaining your hearing is second objective for the surgeon. He is after getting your ear dry and clean. On this site many of us encourage one to go to an Otolarynologist as they are experienced in skull and neck surgeries. They have a skill set above

the ENT in the intensity/severity situations. I have photos of my surgeries on the photo section of the website. Keep in mind that lots of us have had multiple surgeries and you may too. The good thing is this isn't terminal it just takes an awareness and an acceptance that you will need your ears monitored alot. debbie7105 <dalme53654@...> wrote: Hi my name is Debbie and I'm 48 years old. I had a chest cold a few months ago

and a persistent earache which my dr said was an ear infection and now I've been told I have a cholesteotma in my left ear.Some ddays the pain and pressure are quite bad and my hearing has decreased as well. I am having a Ct on thursday nad I made an appt at Mass eye and ear as I live south of Boston for next week.Nothing helps the pain- I've taken Alleeve and Motrin - any suggestions?What about the surgury- I've done research and there seems to be 2 types- up and down- what do you reccomend?Any other helpful info would be greatly appreciated.Not sure how I developed this as I have never had any problems with my ears before-Also have a pulseating throb in my ear as well-Thank you again and looking forward to getting some answers-Debbie

Sneak preview the all-new .com. It's not radically different. Just radically better.

[Guest guest]

Hi Debbie, You are going to the best place in the northeast for

ctoma. From what I've learned MEEI's first objective is to maintain or

restore hearing. It is amazing how skilled surgeons are at repairing

or making new hearing bones and removing ctoma.

Hang in there, Jen.

[Guest guest]

Hi Debbie,

I am 28 years old and just had surgery May 30th to remove cholesteatoma and

mastoidectomy and tympanoplasty. I would suggest reading up online about it.

That's where I got a lot of information. I have cholesteatomas in both ears.

As far as canal wall up or down I was told that usually depends on what they

find when they go into your ear as to what they will do. I had a ton of ear

infections when I was younger and have had ringing in my ear most of my

life. The pulsating (whooshing) sound I also had/have whenever I get sick or

have an ear infection and have it now after the surgery sometimes. Just be

prepared if you have surgery to have someone there to help you out. I had a

terrible experience but don't want to freak you out because everyone is

different. I didn't turn a corner until about a week and a half after

surgery.

What made the ENT finally suspicious of C-toma was because I had a severe

ear infection back before Christmas and no antiobiotics would clear it up,

ended up admitted to the hospital for IV antiobiotics that finally helped

but the fluid in my ear wouldn't clear up.

I hope this helps a little. Keep us updated on your CT scan and what not.

Take care,

>From: " debbie7105 " <dalme53654@...>

>Reply-cholesteatoma

>cholesteatoma

>Subject: New Member

>Date: Mon, 26 Jun 2006 16:19:10 -0000

>

>Hi my name is Debbie and I'm 48 years old. I had a chest cold a few

>months ago and a persistent earache which my dr said was an ear

>infection and now I've been told I have a cholesteotma in my left ear.

>

>Some ddays the pain and pressure are quite bad and my hearing has

>decreased as well. I am having a Ct on thursday nad I made an appt at

>Mass eye and ear as I live south of Boston for next week.

>

>Nothing helps the pain- I've taken Alleeve and Motrin - any suggestions?

>

>What about the surgury- I've done research and there seems to be 2

>types- up and down- what do you reccomend?

>

>Any other helpful info would be greatly appreciated.

>

>Not sure how I developed this as I have never had any problems with my

>ears before-

>

>Also have a pulseating throb in my ear as well-

>

>Thank you again and looking forward to getting some answers-

>

>Debbie

>

>

>

>

>

>

>

>

>

[Guest guest]

tahnk you for the info you providec- I've still been sick so I will

write soon- tomorrow is my Ct scan-

thanks-

Debbie-- In cholesteatoma , " ph "

<faithfuljsj778@...> wrote:

>

> Hi Debbie,

>

> I am 28 years old and just had surgery May 30th to remove

cholesteatoma and

> mastoidectomy and tympanoplasty. I would suggest reading up online

about it.

> That's where I got a lot of information. I have cholesteatomas in

both ears.

> As far as canal wall up or down I was told that usually depends on

what they

> find when they go into your ear as to what they will do. I had a

ton of ear

> infections when I was younger and have had ringing in my ear most

of my

> life. The pulsating (whooshing) sound I also had/have whenever I

get sick or

> have an ear infection and have it now after the surgery sometimes.

Just be

> prepared if you have surgery to have someone there to help you out.

I had a

> terrible experience but don't want to freak you out because

everyone is

> different. I didn't turn a corner until about a week and a half

after

> surgery.

>

> What made the ENT finally suspicious of C-toma was because I had a

severe

> ear infection back before Christmas and no antiobiotics would clear

it up,

> ended up admitted to the hospital for IV antiobiotics that finally

helped

> but the fluid in my ear wouldn't clear up.

>

> I hope this helps a little. Keep us updated on your CT scan and

what not.

>

> Take care,

>

>

> >From: " debbie7105 " <dalme53654@...>

> >Reply-cholesteatoma

> >cholesteatoma

> >Subject: New Member

> >Date: Mon, 26 Jun 2006 16:19:10 -0000

> >

> >Hi my name is Debbie and I'm 48 years old. I had a chest cold a

few

> >months ago and a persistent earache which my dr said was an ear

> >infection and now I've been told I have a cholesteotma in my left

ear.

> >

> >Some ddays the pain and pressure are quite bad and my hearing has

> >decreased as well. I am having a Ct on thursday nad I made an

appt at

> >Mass eye and ear as I live south of Boston for next week.

> >

> >Nothing helps the pain- I've taken Alleeve and Motrin - any

suggestions?

> >

> >What about the surgury- I've done research and there seems to be 2

> >types- up and down- what do you reccomend?

> >

> >Any other helpful info would be greatly appreciated.

> >

> >Not sure how I developed this as I have never had any problems

with my

> >ears before-

> >

> >Also have a pulseating throb in my ear as well-

> >

> >Thank you again and looking forward to getting some answers-

> >

> >Debbie

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

-Dear ,

Thank you for your reply and I appreciate your info. I live near

Boston and have an appt next Friday at Mass Eye and Ear so I will get

my results then. again thank you and will keep in touch-

Debbie-- In cholesteatoma , " gxm002 " <gxm001@...>

wrote:

>

> Hello,

>

>

>

> My name is . I have a 5 year old girl that has been diagnosed

> with congenital cholesteatoma. I have done quite a bit of research

> on the subject and have been to see a number of different

> otologists. I live in the New York City area and have been to see

> the following doctors:

>

>

>

> Dr. Jed Kwartler Ear Specialty Group Springfield NJ

>

> Dr. Potsic Children's Hospital of Philadelphia

>

> Dr. Simon Parisier Manhattan Eye Ear Nose & Throat Hospital

>

>

>

> One of these doctors is a pediatric ENT, the other two are

> otologists. The pediatric ENT appears to prefer the staged approach

> with CWU. One of the otologits was leaning towards CWD. Dr.

Parisier

> believes in an individualized approach to the operation. That means

> deciding CWU/CWD based on the individual situation minimizing the

> percentage of reoccurrences from the beginning. Has far as I can

> tell, it appears that Dr. Parisier is my best bet. He has written

> many papers on the subject. I have read a few and what he says

makes

> sense to me. I think I would prefer a CWD (if necessary) rather

than

> CWU multiple times. I understand, of course, that CWD does not

> guarantee that there will be no reoccurrences.

>

>

>

> Has anyone had any experience with him or the other two doctors?

Any

> information would be greatly appreciated.

>

>

>

> Many Regards

>

>

>

[Guest guest]

Sheila,

Welcome to CI Hear!

We would be very glad to help you. Why don't you send us some

specific questions and let us do our part here in providing you with

support.

In the meantime - please search thru the website at

http://www..com where you may find lots of answers to your

questions. Within the website, you will find this link which may

give you exactly what you need - http://www.listen-

up.org/ci/mapping.htm so be sure to take a look at this great piece

of information.

By the way - congratulations on becoming a candidate for a CI. You

are about to do something wonderful for yourself. When is your

surgery?

Alice

http://www..com

>

> Hi everyone I recently joined the group. I am researching, have

agreed

> to have a CI soon. I have to admit my ignorance, mapping, etc,

etc,

> you all have kinda lost me. Just wondering if someone can give me

some

> basic (smile) information? Such as what to expect? Any help

> appreciated, Thanks, Sheila in MI

>

[Guest guest]

Hi Sheila!

Welcome to the group! I see Alice has already sent you a

wonderful reply and I hope you do check out the CI Hear Website.

It's loaded with useful information. I know I would not know half

of what I know today, about implants, without CI Hear and Hearing

Exchange.com.

This is an exciting time for you and your family! I also

remember it being an overwhelming time. I didn't know about CI

Hear at the time I became a candidate so did all my research and

asked all my questions at Hearing Exchange. www.HearingExchange.com

In simple terms, mapping means to get your processor programmed

or tweaked by your audiologist. As to what to expect; I am not sure

how to answer this as everyone's experience is different and there

are no guarantees in how well anyone will hear with the implant. I

actually went through the whole process not expecting anything. I

was muffled for so long that I didn't know what clear hearing was.

I went in with high hopes and no expectations. And today I have

the best hearing I have ever had in my whole life! I am in awe with

what my CI has given me in just 3 1/2 years of being hooked up!

Sorry I can't help you more with what to expect. Nothing would have

prepared me for my own experience so I am glad no one told me to

expect this or that or I probably would have been greatly

dissappointed with my recovery time. But, if you have any specific

questions to ask feel free to ask away any and all of them.

Good luck to you on your journey out of muffleness.

Patti

Surgery Day 11/25/02 (What A Day!)

Hook Up Day BWP 1/2/03 (A Happy Day!)

3G 1/31/03 (An Even Happier Day!)

[Guest guest]

Hi Sheila. I see other group members have given you the basics. I am going to

tell you about my actual surgery and activation. Remember, this is ME only. On

surgery day, I arrived at the hospital with my sister(Kaiser in Santa Clara,

Ca.) After the checking in formalities, I was taken up to the pre-op area where

I got into my hospital gown and had an IV inserted by a nurse. After about 20

minutes, my surgeon came in and asked me if I had any questions. I couldn't

think of any, so I asked her if she brought her drill. She smiled. Soon

thereafter, I was wheeled onto the Operating Room. A nurse gave me an oxygen

mask and said to take a few breaths. The next thing I new I was waking up after

the surgery. What a breeze. I had no pain. I stayed with the nurse who was

sitting with me for maybe a half hour, and then I was ready to dress and leave

which I did The whole thing lasted from about 9 AM to 3PM. At my daughter.s

where I recouperated, I sat and slept in a recliner as

advised by this group. On the 3rd day, we removed the bandage. For the first

few days, I ate soft foods like jello. apple sauce, etc. About 3 1/2 weeks

later, I was turned on. My problem had been clarity, but I could IMMEDIATELY

hear clearly though somewhat high pitched. Three days later, I was hearing on my

speakerphone! I have gone through maybe 4 mappimg sessions with my Audie since,

and am extremely happy with the results. I know it is normal to be a little

nervous. I am 70, so I had some original reservations. After doing my research,

I decided it couldn't get any worse and a CI would only improve my hearing. IT

SURE HAS!!! Hope thec above helps.

hugnrn333 <hugnrn123@...> wrote: Hi everyone I recently

joined the group. I am researching, have agreed

to have a CI soon. I have to admit my ignorance, mapping, etc, etc,

you all have kinda lost me. Just wondering if someone can give me some

basic (smile) information? Such as what to expect? Any help

appreciated, Thanks, Sheila in MI

Irv in Ca.

Implanted(Freedom) - Sept. 13, 2005

Activated - Oct. 7, 2005

[Guest guest]

Hello Sheila, welcome to the group. What you can expect to hear with a

cochlear implant and how soon you hear it, depends very much on your

hearing background. What is you history?

Myself, for the first 34 years of my life I had " normal " hearing. I was

exposed to loud noises in an underground coal mine over many years,

this plus some hereditary deafness in our family, led to me wearing

hearing aids. I wore two hearing aids for 28 years, power aids for the

past 8-10 years. I thought I was " getting by " OK with my hearing aids,

until my audiologist introduced me to someone who had received a C.I. a

few months before. When she told me about what she could hear and what

she had been able to do since getting her implant, that was what made

my mind up to accept the offer of a C.I. for myself.

As our audiologists tell us, we are all different with our hearing.

When all the tests have been done, the implant team, consisting of the

surgeon, audiologists, counsellers etc, sat down to discuss my case.

Their prognosis was that they expected a good outcome for me. They take

into account your hearing history and things like that.

I also expected a good outcome because I was told that because I had

worn my hearing aids all the time, I had kept my brain and my hearing

stimulated. I know now from reading this group, that many people are

getting excellent results even with no stimulation in the implanted

ear, for many years.

I was extremely fortunate, that I could hear right from when I was

activated. I just got the cartoony sounding voice for about 2 minutes

and then my brain must have adjusted, because I was able to have a

conversation with the audiologist. From that initial activation, I was

able to recognise sentences and single words within a month, to the

extent of 90-100%.

I have purposely avoided the phone except when I have to, because I

wanted most of my efforts to go into understanding speech. Music sounds

good to me and the times I have had to use the phone, I handled it OK.

I received my implant on April 5th 2006 and was switched on/activated

on April 26th and 27th. So, I have been 'on the air' for just over 11

weeks. I didnt expect too much, too soon, I made some tentative goals

to try and be using the phone and listening to music by Christmas

2006 :-)

I received the Nucleus Freedom implant from Cochlear.

I wish you well in your research and choice.

Ted F.

>

> Hi everyone I recently joined the group. I am researching, have

> agreed to have a CI soon. I have to admit my ignorance, mapping, etc,

> etc, you all have kinda lost me. Just wondering if someone can give

> me some basic (smile) information? Such as what to expect? Any help

> appreciated, Thanks, Sheila in MI

>

[Guest guest]

Hello Sheila, welcome to the group. What you can expect to hear with a

cochlear implant and how soon you hear it, depends very much on your

hearing background. What is you history?

Hi, Ted. I'm 39, have been wearing aids for about 14 yrs. My loss started

during my pregnancies, I think it's autoimmune, though the cause has never been

determined. It's been progressive. I have been really struggling for a long

time, woke up the other day and noticed a drastic reduction in the little

hearing I had left. Enough to make my go to doc, enough to not be able to work

(I'm a nurse). I'm told I'm a good candidate because I still have some hearing

and " my brains never been without it " It was mentioned to me 4 yrs ago by my

ENT, I don't know why I never seriously considered before (denial?) My fondest

hope is that when it's over I say- why didn't I do this 4 yrs ago? I'm concerned

about how quickly I can get back to work, at my current job it's imperative that

I hear well. I am considering a job (not career) change. I guess I just need

info from people who've been there. Interested in any info anyone has, Thanks,

Sheila in MI

[Guest guest]

Hi Sheila,

Welcome to the group, and I hope we can be of great help to you. I wish I'd had

been here before my implant, but, at least I had my sister to go through it all

with me, and I'd seen how the process was with my mom 15 years ago, so I kind of

knew what to expect already.

I'm Silly 's sister, and I think she already told you, there are four of us

in our family with the CI's. Besides Silly, my mom, and me, we have another sis

that has the implant, too. Jul and I were implanted at the University of

Michigan, on the same day. It will be 5 years in October for us. Our mom was

implanted at the U of M, as was our other sis, Deb. Deb got hers about six

months after Jul and I did.

Mappings are just the term they use to say that your processor has been

programmed for you. If you haven't visited an ENT or audiologist yet, you will

be given tests to see if you qualify for the CI... these include an audiological

exam, cat scan, sometimes they test to see if the auditory nerve is functioning,

etc. If you go to the U of M, you can expect a lot of waiting, of course LOL.

I really like going there for a lot of health care needs, because they do have

the top technology, even if it means a little bit of a wait at the appointment

time. I also go there to see a neurologist, as we have very little here in the

northern woods of Michigan . Silly and I live in Big Rapids, well, actually

so does our mom and other sis, too. That's about 3 and a half hours from Ann

Arbor. I know you have a lot of options as for what Dr., hospital, clinic, etc.

to use down that way, so you are a bit more lucky than we are up here in that

aspect.

If you have any specific questions, just ask away. And, no question is too

silly or unimportant to be asked. That's what we're here for, and we were all

in the same place as you are now, at one time, so we had the very same

questions.

Take care,

Cin

new member

Hi everyone I recently joined the group. I am researching, have agreed

to have a CI soon. I have to admit my ignorance, mapping, etc, etc,

you all have kinda lost me. Just wondering if someone can give me some

basic (smile) information? Such as what to expect? Any help

appreciated, Thanks, Sheila in MI

[Guest guest]

>I'm told I'm a good candidate because I still have some hearing

>and " my brains never been without it " It was mentioned to me 4 yrs

>ago by my ENT, I don't know why I never seriously considered before

>(denial?) My fondest hope is that when it's over I say- why didn't I

>do this 4 yrs ago?

When my audi first broached the subject of C.I.'s, I didnt know

anything about them, apart from hearing that you almost certainly lost

any residual hearing on the implanted side. I went to the doctors and

got the referral, but I didnt do anything with it for 8 months. Then I

started the ball rolling. I'm in Australia and my implant was paid for

by the government and I was told originally that there would be a 4 yr

waiting list, so it was best to at least get on the list and then make

up my mind whether I wanted to go ahead with it, when and if I knew I

would be accepted. It took less than 2 yrs to get to the top of the

list. I was told later by my audi, that dithering for 8 months was

pretty good, because some people dither for 5 yrs :-)

>I'm concerned about how quickly I can get back to work, at my current

>job it's imperative that I hear well. I am considering a job (not

>career) change. I guess I just need info from people who've been

>there. Interested in any info anyone has, Thanks, Sheila in MI

All we can talk about is our own experiences and in my case I was able

to hear most of what my dentist said, when he was standing behind me

and wearing a mask. That was just 4-5 weeks after activation. Before

that, with hearing aids, they used to have to write stuff down for me.

One thing you can be pretty sure about and that is that you will hear

better than you could with hearing aids.

Your hearing isnt going to get any better, so what have you got to

lose? I still wear the hearing aid in my other ear and even though the

aid on its own isnt much good to me, coupled with the C.I. I am hearing

very well. I cant comment on how soon you can get back to work and to

what effect the C.I. will work for you. But if you read this group,

another lady has recently been activated and gone straight back to work.

Just remember that no two peoples hearing is the same, but we all seem

to adapt to the C.I. at varying speeds, some quicker, some slower. You

very rarely read of failures. Personally I think that anyone who has an

implant and expects to go back to work straight away and function with

it 100% isnt being very realistic and possibly being very hard on

themselves. I'm sure a lot of the adaption is a state of mind as well

and a positive state of mind, will produce better results than a

negative one. I wish you well, when is the operation date?

Ted F.

[Guest guest]

Ted,

Letting you know I have deleted a number of your email without reading them

because you did not start the email with your own message, a previous

request I have made for us who are blind and use speech screen reader.

y

[Guest guest]

If you mean me, . Apologies.

I'll try to remember, but I'm far from perfect.

Ted F.

>

> Ted,

> Letting you know I have deleted a number of your email without

> reading them because you did not start the email with your own

> message, a previous request I have made for us who are blind and use

> speech screen reader.

> y

>

[Guest guest]

na, I love you bubbly humor. Reading your email was entertaining. What is your major? You sound like a trooper, you'll do fine. Sounds like you have a good husband too. I am your age so I know what you're feeling. My ear problems started when I was younger. This last tumor taken out was 2 1/2 inches. The reconstruction and hearing that I had gained was ruined this time. Who knows I might have another surgery and he will try again and maybe do something different. Welcome to the group. susanna <shale@...> wrote: hi everyone - i am very glad to have found this group... i will soon be undergoing surgery to remove a cholestatoma in my left ear. unfortunately, this is just one of many medical problems that seem to be cropping up for me at the ripe old age of 30. ) according to my CT scan, i have a decent sized (visible) cholesteatoma in the attic. it appears that my semi circular canals have thankfully been spared (lets hope this is accurate!) but pretty much everything else in my left ear has been eaten away, including my entire ossicular chain. the doc feels that it is probably a bit larger than what they are able to see on the scan. i have a decent amount of conductive hearing loss, and i am hoping to get some of it back (is it too much to ask that it happens before school starts up

in the fall? LOL! i'll be taking classes at night towards my undergraduate degree! yay!!!). however, both audiologists and even the doctor have not given such a good prognosis. i am fully prepared to do the hearing aid thing should that be a solution. i suppose i'm not even all that afraid of the post surgery pain - i have a genetic collagen disorder that makes it difficult for me to heal, so i'm a bit apprehensive about that. my c-section incision took a while and having my poor husband doing wet to dry packings a few times a day. i'm terrified of how close this surgery is to my brain. i don't have talent, i don't have looks, i don't have a model body... my brains are pretty much all i've got going for me! LOL! well, i'm not really sure what i was even hoping to accomplish with this post. no questions, really, i guess i just wanted to announce myself and say hi. i'm actually quite anxious to get on with

the surgery, and be done with this... at least for a while, anyway!many thanks if you read this far!susanna

Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min.

[Guest guest]

hi sjawn! glad you found my humor amusing... i tend towards humor as

a way to get me through all the fun things that seem to be cropping

up. who knew that 30 was over the hill?!?!

school. my favorite subject! i will be majoring in bioscience. i am

a real geek at heart - i just can't wait to get back into a

classroom. i am positively giddy, and have been acting like a crazy

fool since the stores are starting to fill up with all those school

supplies like notebooks, folders, binders, etc. yes. i am a geek and

proud of it! )

yeah, my husband is great (he even puts up well with the

aforementioned geekiness!) he is terribly worried about this surgery,

and i'm not so sure my flip attitude is helping any - on the contrary,

i think its actually making him more nervous. i tend to get a bit

cheeky when it comes to big things, so i think it makes him more

nervous. he knows that humor is my avoidance tactic! LOL i'm sure

it will all go well, right? i think my biggest concern is how the

recovery is going to affect my 3 year old.

wow. 2.5 inches??? holy cow, thats huge! i mean, the whole of the

inside of your ear is like what...the size of a dime??? wow... strong

work, getting through that (for the most part) intact!!! this was not

your first tumor? and i am assuming this one was bigger than the

original one? yikes. i have so much to learn about these things.

i'm actually quite fascinated by all things medical - did always want

to be a doctor! (there's queen geek making an appearance again!)

hoping my doc will at least oblige me and get me some photos of the

surgery! LOL... i figure since i never became the doctor i wanted to

be, i'd just have to live vicariously... ;o) that MUST be the reason

for all these medical mysteries popping up lately, right? the newest

thing is that my optic nerve is not quite right in my left eye. this

wouldn't be a result of the cholesteatoma, would it???

well, at any rate, thank you for responding and making me feel

welcome! i hope you are doing well after your latest surgery, despite

the hearing loss. i look forward to being on the board as i plan my

surgery, so i i'll see ya around!

kindly,

susanna

>

> na,

>

> I love you bubbly humor. Reading your email was entertaining.

What is your major?

> You sound like a trooper, you'll do fine. Sounds like you have a

good husband too. I am your age so I know what you're feeling. My

ear problems started when I was younger. This last tumor taken out

was 2 1/2 inches. The reconstruction and hearing that I had gained was

ruined this time. Who knows I might have another surgery and he will

try again and maybe do something different. Welcome to the group.

>

>

>

[Guest guest]

Hi Toft,

Please read this message to get you started on EFT:

LiveInTheCurrentMoment11-

11/message/16986

Warmly,

Dayu

Moderator

>

> I am a new member-I am not really used to this environment.