Guest guest Posted March 31, 2007 Report Share Posted March 31, 2007 I echo Terri's view. Jan has had many many blood donations that kept her alive during and after chemo and after her bone marrow transplant. The screems in place are currently very good. There are enough other things to worry about without trying to focus on this one detail which seems to be in more control than other things. In this case the focus should be on na, her surgery, and her recovery. Hoping all goes well! Rick .. dad to Jan .. 34, post AML and healthy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2007 Report Share Posted March 31, 2007 I echo Terri's view. Jan has had many many blood donations that kept her alive during and after chemo and after her bone marrow transplant. The screems in place are currently very good. There are enough other things to worry about without trying to focus on this one detail which seems to be in more control than other things. In this case the focus should be on na, her surgery, and her recovery. Hoping all goes well! Rick .. dad to Jan .. 34, post AML and healthy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2009 Report Share Posted July 29, 2009 My husband was told No by his doctor.Mom, In Orlando, FL If the LORD delights in a man's way, he makes his steps firm;though hestumble,he will not fall,for the LORD upholds him with his hand.Psalm 37:23,24 NIV From: skiserdds@... <skiserdds@...>Subject: Blood donation Cc: Date: Wednesday, July 29, 2009, 10:32 AM Group,This may sound like a dumb question but are patients with CLL allowed to donate blood? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2009 Report Share Posted July 29, 2009 That is what I figured but I have O neg blood and I am asked all the time to donate. -s Blood donation Cc: Date: Wednesday, July 29, 2009, 10:32 AM Group,This may sound like a dumb question but are patients with CLL allowed to donate blood? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2009 Report Share Posted July 29, 2009 I mean you can check with your doctors and see what they say. Mom, In Orlando, FL If the LORD delights in a man's way, he makes his steps firm;though hestumble,he will not fall,for the LORD upholds him with his hand.Psalm 37:23,24 NIV From: "skiserdds@..." <skiserdds@...> Sent: Wednesday, July 29, 2009 10:40:13 AMSubject: Re: Blood donation That is what I figured but I have O neg blood and I am asked all the time to donate. -s Blood donationgroups (DOT) comCc: groups (DOT) comDate: Wednesday, July 29, 2009, 10:32 AM Group,This may sound like a dumb question but are patients with CLL allowed to donate blood? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2009 Report Share Posted July 29, 2009 There are no dumb questions and lots of us have asked this one. Between what my doctor said about this question and from what I've read on the discussion lists, I believe, no blood and no organ donations except corneas, as they have no blood supply. PatOn Wed, Jul 29, 2009 at 7:32 AM, <skiserdds@...> wrote:  Group,This may sound like a dumb question but are patients with CLL allowed to donate blood? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2009 Report Share Posted July 29, 2009 So, another question *you can decide if it is dumb or not...do you not want to donate because of the issue of cancer in the blood of a CLL patient or because of the possibility of a low rbc and clotting factor being compromised? I'm asking because in addition to CLL (stage 0 W & W currently) my husband has a condition called hemochromatosis which requires phlebotomy to reduce the iron in his blood. Currently, according to his last blood test, the RBC count is lower than normal and the doctor that is treating the hemachromatosis is wanting him to have a phlebotomy to treat that and has indicated that the rbc may come up after the phlebotomy. To me it would seem counter productive, but not being a medical person and very new to the CLL world, I'm not sure what to trust here. Thanks. Lori F & The Fur Kids ARFs German Shepherd Rescuewww.arfrescue.com2nd Chance Service Dogswww.secondchanceservicedogs.comFull member, Association of Pet Dog Trainerswww.apdt.com*do not forward or cross post anyinformation contained herein withoutpermission Become the person your dog thinks you are! Re: Blood donation There are no dumb questions and lots of us have asked this one. Between what my doctor said about this question and from what I've read on the discussion lists, I believe, no blood and no organ donations except corneas, as they have no blood supply.Pat On Wed, Jul 29, 2009 at 7:32 AM, <skiserddscomcast (DOT) net> wrote: Group,This may sound like a dumb question but are patients with CLL allowed to donate blood? I am using the Free version of SPAMfighter.We are a community of 6 million users fighting spam.SPAMfighter has removed 3509 of my spam emails to date.The Professional version does not have this message. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2009 Report Share Posted July 29, 2009 I actually gave blood this February and was diagnosed 6 weeks later - and I am sure I had it all of 2008 - and quite possibly the year before too. I was worried I made someone else sick but they said to not worry about it and that someone else's system would let my bad white blood cells die off. I sure hope that's true but obviously I have told them to take my name off the list. Ruth > > > > > > > Group, > > > > This may sound like a dumb question but are patients with CLL allowed to > > donate blood? > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2009 Report Share Posted July 29, 2009 Lori - Not a dumb question at all! I believe that the issue is the cancer. There have been posts from people (I don't remember which list as I follow 3) who are truly upset about not being able to donate blood or organs. I would like to be able to, but what is, is. I don't know enough to comment on your other issue. Someone with more knowledge or experience with hemachromatosis will have to help you with that one.I hope you are able to find an answer that gives you some level of comfort dealing with the question. PatOn Wed, Jul 29, 2009 at 1:56 PM, Lori Fowler <Kotie@...> wrote:  So, another question *you can decide if it is dumb or not...do you not want to donate because of the issue of cancer in the blood of a CLL patient or because of the possibility of a low rbc and clotting factor being compromised?  I'm asking because in addition to CLL (stage 0 W & W currently) my husband has a condition called hemochromatosis which requires phlebotomy to reduce the iron in his blood. Currently, according to his last blood test, the RBC count is lower than normal and the doctor that is treating the hemachromatosis is wanting him to have a phlebotomy to treat that and has indicated that the rbc may come up after the phlebotomy. To me it would seem counter productive, but not being a medical person and very new to the CLL world, I'm not sure what to trust here.  Thanks. Lori F & The Fur Kids  ARFs German Shepherd Rescuewww.arfrescue.com2nd Chance Service Dogswww.secondchanceservicedogs.comFull member, Association of Pet Dog Trainerswww.apdt.com*do not forward or cross post anyinformation contained herein withoutpermission  Become the person your dog thinks you are! Re: Blood donation  There are no dumb questions and lots of us have asked this one. Between what my doctor said about this question and from what I've read on the discussion lists, I believe, no blood and no organ donations except corneas, as they have no blood supply.Pat On Wed, Jul 29, 2009 at 7:32 AM, <skiserdds@...> wrote:  Group,This may sound like a dumb question but are patients with CLL allowed to donate blood? I am using the Free version of SPAMfighter.We are a community of 6 million users fighting spam.SPAMfighter has removed 3509 of my spam emails to date. The Professional version does not have this message. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2009 Report Share Posted July 30, 2009 Thanks, my main concern is that the phlebotomy leaves such a huge 'hole' in his arm when they do it and his rbc is lower at this point so my question is whether or not it is more advantageous to do it or not do it? The doctor advocating it be done said that it could have the effect of having him produce more rbc's afterward. I'm concerned regarding the clotting factor etc and want to wait until he sees the oncologist in September for the second blood test for the CLL levels. Lori F & The Fur Kids ARFs German Shepherd Rescuewww.arfrescue.com2nd Chance Service Dogswww.secondchanceservicedogs.comFull member, Association of Pet Dog Trainerswww.apdt.com*do not forward or cross post anyinformation contained herein withoutpermission Become the person your dog thinks you are! Re: Blood donation There are no dumb questions and lots of us have asked this one. Between what my doctor said about this question and from what I've read on the discussion lists, I believe, no blood and no organ donations except corneas, as they have no blood supply.Pat On Wed, Jul 29, 2009 at 7:32 AM, <skiserddscomcast (DOT) net> wrote: Group,This may sound like a dumb question but are patients with CLL allowed to donate blood? I am using the Free version of SPAMfighter.We are a community of 6 million users fighting spam.SPAMfighter has removed 3509 of my spam emails to date.The Professional version does not have this message. I am using the Free version of SPAMfighter.We are a community of 6 million users fighting spam.SPAMfighter has removed 3519 of my spam emails to date.The Professional version does not have this message. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2009 Report Share Posted July 30, 2009 This is a difficult situation. If the anemia is the result of the CLL, then it will not improve with further phlebotomy. In cases where you need to remove iron but cannot use phlebotomy, there is the possibility of oral and injectable iron chelators (binders) that will remove the iron. It will be important to distinguish the etiology of each and to keep his ferritin controlled. The pills (Exjade) are very well tolerated and a very new addition to our treatment options for patients with hemochromatosis. Rick Furman > > > > Group, > > This may sound like a dumb question but are patients with CLL allowed to donate blood? > > > > > > > > > -- > I am using the free version of SPAMfighter. > We are a community of 6 million users fighting spam. > SPAMfighter has removed 3509 of my spam emails to date. > Get the free SPAMfighter here: http://www.spamfighter.com/len > > The Professional version does not have this message > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2009 Report Share Posted July 31, 2009 Thank you so much Dr. Furman! I am nervous about him having any phlebotomy at this point. Lori F & The Fur Kids ARFs German Shepherd Rescuewww.arfrescue.com2nd Chance Service Dogswww.secondchanceservicedogs.comFull member, Association of Pet Dog Trainerswww.apdt.com*do not forward or cross post anyinformation contained herein withoutpermission Become the person your dog thinks you are! Re: Blood donation This is a difficult situation. If the anemia is the result of the CLL, then it will not improve with further phlebotomy. In cases where you need to remove iron but cannot use phlebotomy, there is the possibility of oral and injectable iron chelators (binders) that will remove the iron. It will be important to distinguish the etiology of each and to keep his ferritin controlled. The pills (Exjade) are very well tolerated and a very new addition to our treatment options for patients with hemochromatosis.Rick Furman> > > > Group,> > This may sound like a dumb question but are patients with CLL allowed to donate blood?> > > > > > > > > -- > I am using the free version of SPAMfighter.> We are a community of 6 million users fighting spam.> SPAMfighter has removed 3509 of my spam emails to date.> Get the free SPAMfighter here: http://www.spamfighter.com/len> > The Professional version does not have this message>I am using the Free version of SPAMfighter.We are a community of 6 million users fighting spam.SPAMfighter has removed 3538 of my spam emails to date.The Professional version does not have this message. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2009 Report Share Posted July 31, 2009 For a more natural approach to iron chelation a patient might try curcumin, which has been documented to be a powerful chelator of iron. See the BLOOD citation below. For CLL patients with normal iron levels this is problematic, because it can tip the patient into a more anemic state from which there's no easy return. I write from experience on this point. adam Blood, 8 January 2009, Vol. 113, No. 2, pp. 462-469. Prepublished online as a Blood First Edition Paper on September 24, 2008; DOI 10.1182/blood-2008-05-155952. Previous Article | Table of Contents | Next Article RED CELLS, IRON, AND ERYTHROPOIESIS Curcumin, a cancer chemopreventive and chemotherapeutic agent, is a biologically active iron chelator Yan Jiao1, Wilkinson, IV1,2, Xiumin Di1, Wei Wang1, Hatcher1, D. Kock3, Ralph D'Agostino, Jr2,4, Ann Knovich5, M. Torti1,2, and Suzy V. Torti2,6 1 Department of Cancer Biology, 2 Comprehensive Cancer Center, 3 Department of Pathology, 4 Department of Public Health Sciences, 5 Section of Hematology/Oncology, and 6 Department of Biochemistry, > > > > > > > > Group, > > > > This may sound like a dumb question but are patients with CLL allowed to donate blood? > > > > > > > > > > > > > > > > > > -- > > I am using the free version of SPAMfighter. > > We are a community of 6 million users fighting spam. > > SPAMfighter has removed 3509 of my spam emails to date. > > Get the free SPAMfighter here: http://www.spamfighter.com/len > > > > The Professional version does not have this message > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2010 Report Share Posted October 24, 2010 Hi Barb, They stick a swab up your nose. You can't miss this one if they do it. Joan ________________________________ From: BARB <barbmch@...> Joint Replacement Sent: Sun, October 24, 2010 12:34:30 PM Subject: Re: Blood donation It sounds like a good test to do......haven't heard of it here in my area but that does not mean they don't do it because they do NOT list what they are testing for. Guess I will find out if I am positive.....BARB in Florida Re: blood drawing today Mustafa, It is great to have kids who readily jump in and help us......it pleased my motherly heart that she offered so quickly to help me. I love her dearly........BARB in Florida ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2010 Report Share Posted October 24, 2010 Joan its ridiculous they keep crying out for blood donors Surly 21 years would be sufficient time to find out if you Have the disease or not. My daughter is a nurse and she wanted to donate blood she Is A neg which is not common, and they won't let her either. Oh well. Can't do anything about it.  mary.waspe@... OSA member since 04/2002 OSA SAM 01/2004 & 10/10 photo's at jessoph0309.myphotoalbum.com blog:- http://mary-museum.blogspot.com/ design for www.aboutartaccents.com www.artneko.com -- Re: blood drawing today Mustafa, It is great to have kids who readily jump in and help us......it pleased my motherly heart that she offered so quickly to help me. I love her dearly........BARB in Florida ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 I've had both hips replaced this year, right side on March 2nd and the left on Oct 4th. I was never swabbed anywhere for MRSA (or anything else), nor did I donate my own blood before hand. Wasn't asked about it either. I was cross typed as a precaution, but did not receive any transfusions. I was given 2 bags of IV antibiotics post-op, though. As soon as these were done the IV came out. I guess everything depends on the hospital and the preferences of the doctor. Best of luck to everyone with your surgeries and recoveries. Janet B. from Mass. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 We kind of have to do what our surgeon wants...... and hope it is the best for us as an individual....... I head off now to the hospital to have my pre-op joint conference.......BARB in Florida Re: Blood donation I've had both hips replaced this year, right side on March 2nd and the left on Oct 4th. I was never swabbed anywhere for MRSA (or anything else), nor did I donate my own blood before hand. Wasn't asked about it either. I was cross typed as a precaution, but did not receive any transfusions. I was given 2 bags of IV antibiotics post-op, though. As soon as these were done the IV came out. I guess everything depends on the hospital and the preferences of the doctor. Best of luck to everyone with your surgeries and recoveries. Janet B. from Mass. Quote Link to comment Share on other sites More sharing options...
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