Guest guest Posted September 17, 2002 Report Share Posted September 17, 2002 Hi Helge Congratulations on your movie debut - let's hope you never get to make the sequel. Could that plug also be some kind of temporary packing put in while the ear heals which would dissolve or fall out in the next few weeks? If your hearing is more or less working the packing would act as barrier to sound conduction. It's recognized that ears will always try to listen - and that if they aren't properly able to hear sounds from the outside world, they will listen to those going on inside your head. Your body reacts to surgery as just another injury and goes into shock - expect to feel rough for a while! Phil I had surgery one week ago and they cleaned up my ear. I dont think there > were cholestatom there where just deformations of the bones in the middle > ear from when i was a kid.> I got a video of the whole surgery from when i slept in til i woke up. I > tried to see the video yesterday but it was to nasty to look at the whole. I > saw my self lying on the operation bench asleep and it looked like they had > putted something to expand the ear-channel in my ear as i could nearly see > all things inside my head (read:ear) :=). It looked quit sceary. I am > thinking about getting the video on an electronic media on the net so other > people could see how a ear-surgery looks like. Is it common to get the whole > surgery on a video ?> > Now I have a plug in my ear that the doctor told me is going to fall out by > itself. Does anyone know when this will fall out ? Its quit annoying to have > it there.> I was in surgery for 4 1/2 hour and the doctor told me that the vein to the > head was lying open in my ear and that it started to leak blood. And that > they had to stop it quickley and was quit dramatic. I wonder how do they > stop a bleeding ear its not just to hold the thumb on it inside the ear?> > Now I can hear the bloodpressure pushing thru the ear just like psh-psh-psh > like the heartbeat I wonder will the noice from the heartbeat dissaper when > the ear heals ?> > After the surgery my mussels feels kind a weak its nearly like having a > flue-kind-a-thing. Is this common ? And when will I feel fine ?> > Hope anyone can answear my curiosity.> > Best regards> Helge Sverre Risan> > _________________________________________________________________> Join the world's largest e-mail service with MSN Hotmail. > http://www.hotmail.com> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2002 Report Share Posted September 17, 2002 At 07:52 PM 9/16/2002 -0400, you wrote: >Helge: > >I still get that swishing noise every once in a while. I even asked my >doctor what it was, and he couldn't tell me. I am a medical >transcriptionist and every once in a while I will type on a patient who >describes this feeling (and they've never had c-toma). I have been really >tempted to go and get my blood pressure checked at these times just to see >if it's high (it's normally around 100/70). Has anyone else had this? Me! (raises hand in air and waves wildly) You're listening to your carotid artery pulsing. I think it might be due to swelling or scar tissue causing conduction to your middle ear. I listen to mine sometimes at night and count them...better than counting sheep! Diane Brunet http://www.inetworld.net/dlb2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2002 Report Share Posted September 17, 2002 In a message dated 9/17/2002 10:54:41 AM Pacific Standard Time, diane@... writes: Me! (raises hand in air and waves wildly) You're listening to your carotid artery pulsing. I think it might be due to swelling or scar tissue causing conduction to your middle ear. I listen to mine sometimes at night and count them...better than counting sheep! Diane Brunet Diane: Doesn't it just drive you crazy, though? I remember going for a few days with that noise in there and just wanting to cut my HEAD off!!!!! I've had just a few pulsations recently and hoping that it won't last that long, and it hasn't yet. So glad someone could tell me what it was - thanks Diane. I. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2002 Report Share Posted September 20, 2002 Hi Jerry, Welcome to the group. In my opinion, you are going to want a surgeon who does cholesteatoma surgery on a weekly basis, not a yearly basis. My husbands doctor is a professor at OHSU and I emailed him not too long ago about what to look for when looking for a competent doctor for cholesteatoma. He said you would want to look for a doctor who has completed a full fellowship (one year) in otology. This doctor will generally only operate on ears and not do general ENT procedures. I am sure you will receive other replies because we do have a lot of members that are parents of children with c-toma. A doctor who only does about 6 per year would not make me comfortable. Believe me, if you have to travel to get a good surgeon, it is well worth the trip. Please keep us posted, we are a very caring group of people. Michele ijayess wrote: My son was advised by 2 OTs to have cholesteatoma surgery. His OT does about 6/yr. How many does a typical OT do to keep sharp. Hoping not go out of town to a clinic or University.Jerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2003 Report Share Posted January 31, 2003 I anticipate returning to work the Tuesday following the > Thursday surgery. Am I wishful thinking? Hi I tend to think that surgery is in reality a kind of head injury which can be a shock to the system and people will always react differently to it. Essentially you just have to allow your body whatever recovery time it needs. It's always possible to return to work too soon but never too late. Some people are little dizzy for a short while after the surgery, some may be very dizzy and some not at all. You can never tell but any dizziness is bound to make it difficult to rush back into things. All you can do is see how you feel at the time - play it by ear so to speak. Good Luck with the surgery Phil Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2003 Report Share Posted February 9, 2003 My daughter's last surgery started at 1:00 and lasted under 4 hours. She was in recovery for a couple of hours. She came home that night. Surgeon gave us the option of admitting her but she wanted to come home and was fine. I think the 4-6 hours is the " normal " duration time. I think most of the time the surgeon doesn't know 100% of what he is dealing with until he actually gets in and sees what is going on. Good luck and our prayers will be with you on Thursday. Candy > Going in for surgery this Thursday, 13 February. The duration of the > surgery is scheduled for 4-6 hours. Is this duration common? Also, > the surgery begins at 1:00pm on Thursday afternoon, so if I did the > math correctly, I would be in recovery between 5 - 7pm. My surgeon > classifys this surgery as " out-patient. " Has anyone in this group > ever heard of this surgery being an outpatient type? > > Mark Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2003 Report Share Posted February 10, 2003 Both of my daughters surgeries were "out patient". They did fine. I was upset at first thinking about them being put to sleep for that amount of time and then being sent home. My oldest daughter came home and slept the rest of the day. My younger daughter was a lot more active. It was hard keeping her down for the recovery period. Everybody I know personally who have had this procedure done was out patient. That's why I was shock when I read on this board where people stayed overnight following surgery. My insurance will not approve overnight stay because of the type of surgery. Good luck. My prayers are with you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2003 Report Share Posted February 10, 2003 At 07:48 AM 2/10/2003 -0500, you wrote: >Both of my daughters surgeries were " out patient " . They did fine. I was >upset at first thinking about them being put to sleep for that amount of >time and then being sent home. My oldest daughter came home and slept the >rest of the day. My younger daughter was a lot more active. It was hard >keeping her down for the recovery period. Everybody I know personally who >have had this procedure done was out patient. That's why I was shock when >I read on this board where people stayed overnight following surgery. My >insurance will not approve overnight stay because of the type of >surgery. Good luck. My prayers are with you. Technically, anything " outpatient " consists of a less than 24 hour stay. If a patient was admitted at say, 9:00 a.m. and went home at 8:30 the next morning, it would still be considered outpatient. Also, even though an insurance company authorizes an outpatient stay for a certain procedure, they have to approve a longer stay if medically necessary. This might be related to uncontrolled nausea and vomiting after surgery, excessive bleeding, dizziness, large amounts of wound discharge, nobody to help at home, uncontrollable pain, more extensive surgery than originally anticipated, etc. The hospital would be responsible for notifying the insurance company within 24 hours for a longer length of stay. Your insurance company generally doesn't want you to know that you and your doctor are the ones to decide how long you're in the hospital and that you have a right to have your length of stay reviewed. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2003 Report Share Posted March 8, 2003 Hi Colleen, Sounds like everything went great! I had no use for the pain meds either, and all I wanted to do was sleep for the first few days. I did have to take antibiotics and those made me nauseous but that was it. The swelling does go down. Looking forward to hookup! Nuked 9/28/00 Hooked 10/26/00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2003 Report Share Posted March 8, 2003 Hi Colleen Good news!!That is one of the benefits of spending the night..i was able to sleep if I could..i would just get to sleep and then had to go to the bathroom.I slept for several days after getting home..was so tired too!My guess is that your surgeon uded the new technique for implanting your N22 ..a smaller incision is needed because the implant is flexible.Thus little or no hair needs to be shaved. Yup..your elf ear will get back to normal..a friend of mine called it a Dumbo ear!! Love Dora Surgery Hey guys and gals...I am finally a little bit stronger to get back on the computer. Thanks to and all of your for the well wishes. Surgery went well and I just got sick after drinking my apple juice. After that I was finally able to get up and walk around. However, all I wanted to do was sleep and the nurse and my husband kept waking me up!! Boy was a mad, to say the least, I just got out of surgery and here they are trying to keep me awake. The reason being, that I had to stay awake to get up and walk before I left. Ohwell, I finally made it home and took my pain pills up until 7 P.M. last night. I was a bit weak and nauseated but was not able to throw up. I have barely eaten anything solid and figured that was the cause and stopped taking those darn pills. I really do not like to take medications and that is more than I have taken in a lifetime! I think I will stick with my Tylenol for now. I just slept for three days. The bandage came off yesterday. My head felt sooo huge, I almost ripped it off before the 48 hours were over!! I have to say that my surgeon did so well and heeded my threats, because I can't even tell you where he shaved my head!! I swear there is no bald spot (maybe like 1/8 of an inch above my ear )but that is it!!!! Wow, I had expected a 3-5 inch square of baldness! Other than that my head and ears feel really numb. Activation is on April 7th! Oh my ear is a bit swollen like an elf... will this go down?? ...How did you surgery go and how are you feeling? Let us know!! Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2003 Report Share Posted March 8, 2003 Ditto! This is so exciting. I am glad it's over for you Colleen and I too am really looking forward to your hook up. Alice --- CI92000@... wrote: > Hi Colleen, > Sounds like everything went great! I had no use > for the pain meds > either, and all I wanted to do was sleep for the > first few days. I did > have to take antibiotics and those made me nauseous > but that was it. > The swelling does go down. Looking forward to > hookup! > > > Nuked 9/28/00 > Hooked 10/26/00 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2003 Report Share Posted March 18, 2003 Sleep well tonight. May your surgery be easy. Hal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2003 Report Share Posted March 18, 2003 BILATERALICE Nuked 9/28/00 Hooked 10/26/00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2003 Report Share Posted March 18, 2003 Good luck Alice! Godspeed! ((((((hugs))))) Bridget Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2003 Report Share Posted March 20, 2003 They gave me an IV after I got " dressed up " for surgery and started pushing medicine into it and he would tell me what each shot was for. He put the stockings on me and I was worried about getting cold since I am cold natured. I didn't have but a few minutes after that to worry because the next thing I knew it was over. I didn't know when they wheeled me in or out of the surgery room. My youngest sister later told me she ask him if the medicine was working and I started laughing silly. He told her yep it was. Glad I don't remember that. She also told me the first thing I said to her after it was over was my " butt " (not the word I used at the time) was stuck to the bed (glad I don't remember that either!). I had bilateral (both ears) 6 hour surgery and went home that night. It was worth it. I do not want to know what else I said while I was in the " don't remember " stage. Sharon Myers Bilateral Surgery 12-09-02 Bilateral Hookup 1-09-03 (loving them) res0p3oa <res0p3oa@...> wrote:Hello everyone Sorry I havent' posted since my rant on sunday! (sigh) when it rains it pours! My 9 month old broke out with the chicken pox Monday morning and my 4 year old is sick again not sure if it is the pox or not. I am still having alittle sinus trouble. I haven't gotten the meningitus shot because I live in such a hick town! We called OHSU and they said it was alright that I could get the shot a month after the surgery. Did anybody else have this problem? Ok I have to confess I am glad that (by the way that's my 4 year old's name ) asked some of the same questions I was wondering. I am more of a wimp though and would rather be asleep before they wheel me into the room. The reason why is when I was 7 I snuck one of my older brother's weird stories comic book and read about a guy being awake during surgery and haven't been able to shake that fear even after having a breast reduciton 15 years ago! I am glad I get to keep my HA in though so I can let them know what a wimp I am about that. I will tell them make sure I am asleep ok? LOL! Sorry must be nerves starting to kick in I guess. God Bless everyone and have a great night! Bridget/a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2003 Report Share Posted May 9, 2003 Hello Heidi, Yes, another otologist would be your best bet. An otolgist is what we recommend for c-toma surgery in this group. They are more experienced with ears than a general ENT. Good luck and keep us posted. Micheleheidi6142000 <hjock@...> wrote: Thank you everyone for all your responses. It's greatly appreciated. Should i make another appointment with another Otologist first ? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2003 Report Share Posted May 9, 2003 Who only allows him two surgeries a month? >>> hjock@... 05/09/03 11:50AM >>> Hi, Thank you for your responses. Well, i called back again and she said that the otologist is only allowed 2 surgeries a month. Which i think is pretty stupid when it comes to things like this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2003 Report Share Posted May 9, 2003 OK---i feel stupid. My doctor who performed the surgery was an ENT who also dabbles in reconstructive and plastic surgery. NOBODY ever mentioned seeing an otologist in my MANY years of suffering! What is the difference???? --- Michele <iambored97601@...> wrote: > Hello Heidi, Yes, another otologist would be your best > bet. An otolgist is what we recommend for c-toma surgery > in this group. They are more experienced with ears than > a general ENT. Good luck and keep us posted. Michele > > heidi6142000 <hjock@...> wrote:Thank you everyone > for all your responses. It's greatly appreciated. > Should i make another appointment with another Otologist > first ? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2003 Report Share Posted May 9, 2003 Hi , Basically, an ENT does ears, nose and throat, while an otolgist has gone on to receive special education in the area of the ears only. The special education is called a fellowship. My hubbies first 2 ops on his left ear were done by an ENT. When he was dx in the right ear, the ENT referred him to an otolgist because it was his only hearing ear. I think maybe we would have been better off with an otolgist from the start, but there really wasn't time, the c-toma was very large. The ENT also said, if I understood him correctly, that his left ear could NOT be reconstructed but when we saw the otologist about the right ear, he also felt he could reconstruct the left ear. My husband has, so far, chosen not to. Hope this clears things up a bit. Sorry for the rambling. MicheleGEORGIE SANTUCCI <gvb73@...> wrote: OK---i feel stupid. My doctor who performed the surgery wasan ENT who also dabbles in reconstructive and plasticsurgery. NOBODY ever mentioned seeing an otologist in myMANY years of suffering! What is the difference????--- Michele <iambored97601@...> wrote:> Hello Heidi, Yes, another otologist would be your best> bet. An otolgist is what we recommend for c-toma surgery> in this group. They are more experienced with ears than> a general ENT. Good luck and keep us posted. Michele> > heidi6142000 <hjock@...> wrote:Thank you everyone> for all your responses. It's greatly appreciated. > Should i make another appointment with another Otologist> first ? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2003 Report Share Posted May 15, 2003 Hi Heidi, I hope you get this message considering your email account has been bouncing for some time. I'm not sure 2 surgeries per month sounds like enough experience and why is he only allowed to do 2 surgeries per month? Micheleheidi6142000 <hjock@...> wrote: Hi,Thank you for your responses. Well, i called back again and she said that the otologist is only allowed 2 surgeries a month. Which i think is pretty stupid when it comes to things like this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2003 Report Share Posted May 16, 2003 Apparently, There's a waiting list of 43 people ahead of me. as for only 2 surgeries amonth i don't know. I have another appointment on the 13th of June. I will find out more then. Thanks Re: surgery Hi Heidi, I hope you get this message considering your email account has been bouncing for some time. I'm not sure 2 surgeries per month sounds like enough experience and why is he only allowed to do 2 surgeries per month? Micheleheidi6142000 <hjock@...> wrote: Hi,Thank you for your responses. Well, i called back again and she said that the otologist is only allowed 2 surgeries a month. Which i think is pretty stupid when it comes to things like this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2003 Report Share Posted July 4, 2003 > From: squeakieschubert@... > Reply-samters > Date: Fri, 4 Jul 2003 12:35:36 EDT > > *Dawn, I will be desensatized at the University of Michigan. Thanks for this. I want to add more desensitization venues to the " primer " . > > *I Got an A on my I Search Samter's Triad Paper. You deserved an A+. It is the best summary of the condition that I have seen. > > *I will be having surgery on July 7'th for my polyps. I will be desentized 3 > weeks after. (3-4 weeks after is the recommend time after surgery.) Both > through the University of Michigan. Hopefully you can give us ongoing monthly updates on the polyps NOT returning while you're on desensitization. Ken West Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2003 Report Share Posted July 7, 2003 Dear Staphie, Congradulations on your A! I think you really did great on your paper! surgery *Dawn, I will be desensatized at the University of Michigan. *I Got an A on my I Search Samter's Triad Paper. *I will be having surgery on July 7'th for my polyps. I will be desentized 3 weeks after. (3-4 weeks after is the recommend time after surgery.) Both through the University of Michigan. K, Michigan << File: ATT00018.htm >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2003 Report Share Posted August 3, 2003 I don't believe it's possible. I think they destroy the facet joints that connect each level during fusion surgery. surgery I had a fusion and harrington rod in 1975 only leaving L5 unfused. I get some low pain but not really bad at this point. I was left with a 55 upper and 45 lower curve of which are both fused. Do anyone have any experience on removal of the rods and to unfuse the lower fusion to "save" the only moving L5 and distribute movement in the currently fused spine?Support for scoliosis-surgery veterans with Harrington Rod Malalignment Syndrome. Not medical advice. Group does not control ads or endorse any advertised products. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2003 Report Share Posted August 4, 2003 Gosh, My story sounds very similar to yours except my fusion was done in 1969. Also my 2 rods were taken out in 1971. The curves I had remaining weren't quite as severe but over the years are about like yours. I was amazed at the x-rays. I mean I can see my ribs are all screwed up but it just didn't feel like my back was that curved when I ran my hand down the scar. Anyway now that I'm approaching 50 this leaning forward thing is a pain. I'm supposed to sit with a small rolled up towel right along the iliac crest & then lean back but it's not always convenient. But when I do it while driving I'm amazed at how much better it feels. But its not how my body wants to naturally go. But its always had a mind of it's own (haha) as evidenced with scoli. Back to being flexible. The docs always tell me I'm more flexible then I should be but then they don't see me trying to get out of bed either! I'm not to lean forward due to 2 bulging discs at L4 & 5 but that is hard to remember. I don't do any exercises where I deliberately bend forward. Joyce, Atlanta DRDOUB wrote: I had a fusion and harrington rod in 1975 only leaving L5 unfused. I get some low pain but not really bad at this point. I was left with a 55 upper and 45 lower curve of which are both fused. Do anyone have any experience on removal of the rods and to unfuse the lower fusion to "save" the only moving L5 and distribute movement in the currently fused spine? Quote Link to comment Share on other sites More sharing options...
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