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Hi!

Because of a law passed by Congress in (I think) 1996, Insurance companies

can no longer refuse to cover you due to pre-existing conditions as long as

you can show proof of continuing coverage with no lapse - so, you can find

a new insurance company, show them a certificate of insurance and as long as

your daughter has had continuous coverage since birth with no lapses greater

than 60 days, no insurance company can deny her coverage according to law.

President Clinton pushed this law through so parents would not feel trapped

in a job just to keep the insurance but believe me, insurance companies will

be real sticklers about it, so you need to make sure you do not have any

gaps and that you get the certificates from the current insurer. Now there

is no regulation concerning price, so insurance companies are free to charge

a big price but they cannot refuse to cover as long as you have had

continuous coverage. This came in handy since between my husband and I

switching roles as primary caregiver and switching jobs, we have changed

jobs and insurance companies 4 times.

Let me kinow if you have any questions.

Jodi

Health Insurance

>Our family is in a dilemma. My husband wants to quit his job with

ExxonMobil

>to start his own consulting company. I support him except that I am very

>concerned about health insurance for our family, or at least health

insurance

>my daughter . I was shocked to discover that insurance companies can

>simply refuse to cover simply because she has Down syndrome. We know

>that we can use COBRA coverage for 18 months and then pay full price for

>coverage with the same insurer for another 18 months, but then what? Does

>anyone have any suggestions for us to investigate? We found a

>hospitalization plan with ARC - but it is a bare minimum. The other

>alternative is that I go back to work full time - YUCK.

>Caio,

>Joan

>

>

>Click reply to all for messages to go to the list. Just hit reply for

messages to go to the sender of the message.

>

>

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Guest guest

Hi!

Because of a law passed by Congress in (I think) 1996, Insurance companies

can no longer refuse to cover you due to pre-existing conditions as long as

you can show proof of continuing coverage with no lapse - so, you can find

a new insurance company, show them a certificate of insurance and as long as

your daughter has had continuous coverage since birth with no lapses greater

than 60 days, no insurance company can deny her coverage according to law.

President Clinton pushed this law through so parents would not feel trapped

in a job just to keep the insurance but believe me, insurance companies will

be real sticklers about it, so you need to make sure you do not have any

gaps and that you get the certificates from the current insurer. Now there

is no regulation concerning price, so insurance companies are free to charge

a big price but they cannot refuse to cover as long as you have had

continuous coverage. This came in handy since between my husband and I

switching roles as primary caregiver and switching jobs, we have changed

jobs and insurance companies 4 times.

Let me kinow if you have any questions.

Jodi

Health Insurance

>Our family is in a dilemma. My husband wants to quit his job with

ExxonMobil

>to start his own consulting company. I support him except that I am very

>concerned about health insurance for our family, or at least health

insurance

>my daughter . I was shocked to discover that insurance companies can

>simply refuse to cover simply because she has Down syndrome. We know

>that we can use COBRA coverage for 18 months and then pay full price for

>coverage with the same insurer for another 18 months, but then what? Does

>anyone have any suggestions for us to investigate? We found a

>hospitalization plan with ARC - but it is a bare minimum. The other

>alternative is that I go back to work full time - YUCK.

>Caio,

>Joan

>

>

>Click reply to all for messages to go to the list. Just hit reply for

messages to go to the sender of the message.

>

>

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Guest guest

Joan;

It is my understanding that they cannot deny her coverage based on any

pre-existing condition- I would confront this agent and tell her that she

has had continuous coverage since birth and see what her response is. The

only thing different I can see is if these rules apply only for going from

group to group coverage whereas you would be going from group to individual

.. That might be why you are getting those responses.

Jodi

From: Joanson@... <Joanson@...>

< >

Date: Thursday, August 02, 2001 11:44 AM

Subject: Health insurance

>As I understand it (and my understanding is minimal), SSI/Medicaid has

income

>requirements. I believe that we would not qualify.

>As far as the law regarding pre-existing conditions go, I think that

someone

>failed to inform the insurance companies. I spoke with an agent who gave

me

>no hope of her being insured. I spoke with Trigon (Blue Cross), the

largest

>private insurer in the state, and they will give catastrophic

coverage

>only after she has been on the plan for a year. has no gaps since

>birth in her coverage. I have looked into a couple of association plans

and

>their costs are astronomical, let alone including a child with Down

syndrome

>on the plan. Will the insurance companies flat out lie to you about their

>obligation to honor the law! Can you tell that I am ranting and smoke is

>billowing out of my ears?

>

>Joan

>

>

>Click reply to all for messages to go to the list. Just hit reply for

messages to go to the sender of the message.

>

>

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Guest guest

Joan;

It is my understanding that they cannot deny her coverage based on any

pre-existing condition- I would confront this agent and tell her that she

has had continuous coverage since birth and see what her response is. The

only thing different I can see is if these rules apply only for going from

group to group coverage whereas you would be going from group to individual

.. That might be why you are getting those responses.

Jodi

From: Joanson@... <Joanson@...>

< >

Date: Thursday, August 02, 2001 11:44 AM

Subject: Health insurance

>As I understand it (and my understanding is minimal), SSI/Medicaid has

income

>requirements. I believe that we would not qualify.

>As far as the law regarding pre-existing conditions go, I think that

someone

>failed to inform the insurance companies. I spoke with an agent who gave

me

>no hope of her being insured. I spoke with Trigon (Blue Cross), the

largest

>private insurer in the state, and they will give catastrophic

coverage

>only after she has been on the plan for a year. has no gaps since

>birth in her coverage. I have looked into a couple of association plans

and

>their costs are astronomical, let alone including a child with Down

syndrome

>on the plan. Will the insurance companies flat out lie to you about their

>obligation to honor the law! Can you tell that I am ranting and smoke is

>billowing out of my ears?

>

>Joan

>

>

>Click reply to all for messages to go to the list. Just hit reply for

messages to go to the sender of the message.

>

>

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Guest guest

Joan,

Yeah, those rules only apply if you are changing from group coverage through

your employer to different group coverage. I thought the one lady who is an

agent had a great idea in that if your husband can incorporate then obtain a

small business group plan or get on the plan through the chamber, that might

solve the problem. Good luck with everything.

I too have been lucky enough to always have primary health coverage for

that pays their portion of his expenses, then medicaid picks up the

remainder. also qualifies for the CHildren with Special Health

Care Needs program here in Indiana that would pick up as a third layer. I

will always try to retain s private insurance because I personally

believe that in Indiana, it makes a difference in the quality of care you

receive. If we just had medicaid coverage we would be limited in our choice

of providers, since so many providers here are now refusing to accept

medicaid patients because of the low reimbursement rate. Is it that way

everywhere? Just curious. is also on the waiting list for

medicaid waivered services which provides services regardless of income.

But here again, it is almost impossible to find quality service providers.

I wish you the best Joan, I know you are in a hard spot , but as an

ex-insurance agent I would definately pursue getting incorporated and

finding a group with the chamber of commerce, or getting a small business

plan.

Good luck

Jodi

Re: Health insurance

>In a message dated 8/2/2001 12:00:12 PM Central Daylight Time,

>rjprather@... writes:

>

>

>> It is my understanding that they cannot deny her coverage based on any

>> pre-existing condition- I would confront this agent and tell her that she

>> has had continuous coverage since birth and see what her response is.

The

>> only thing different I can see is if these rules apply only for going

from

>> group to group coverage whereas you would be going from group to

individual

>> . That might be why you are getting those responses.

>>

>>

>

>AH hem... as one who has always had private insurance, if you change

>providers the child with a disablity can indeed be denied coverage under

pre

>exsisting condition. And indeed according to what my sister said when she

>was expecting her 2nd child 14 yrs ago, some insurance companies do indeed

>deny coverage for 24 hrs after birth, (again private ins.)tho that may have

>changed. The world of private insurance is different then the employer

>provided kind. Course we also have more choice and can change providers if

>the current one is crappy and someone else offeres a better deal. But once

>you have a child with a pre exsisting condition (be it DS or diabetes or

>whatever) you don't change providers, tho you can roll over to different

>types (we went from Major medical to PPO) within the company without having

>the child (or even an adult with some condition) dropped.

>

>I would say check to see what the states plan for uninsured children is if

>you make to much money to get medicaid free or for a small fee. (all states

>are supposed to have implemented such programs by now) usually TEfra/kaite

>beckett does have a process where you can protest the fee if it's high. So

>just check into all aspects of the program before deciding you won't be

able

>to make the payments it never hurts to send in your information to see if

you

>would qualify. :-)

>

>Joy

>

>

>

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Guest guest

Joan,

Yeah, those rules only apply if you are changing from group coverage through

your employer to different group coverage. I thought the one lady who is an

agent had a great idea in that if your husband can incorporate then obtain a

small business group plan or get on the plan through the chamber, that might

solve the problem. Good luck with everything.

I too have been lucky enough to always have primary health coverage for

that pays their portion of his expenses, then medicaid picks up the

remainder. also qualifies for the CHildren with Special Health

Care Needs program here in Indiana that would pick up as a third layer. I

will always try to retain s private insurance because I personally

believe that in Indiana, it makes a difference in the quality of care you

receive. If we just had medicaid coverage we would be limited in our choice

of providers, since so many providers here are now refusing to accept

medicaid patients because of the low reimbursement rate. Is it that way

everywhere? Just curious. is also on the waiting list for

medicaid waivered services which provides services regardless of income.

But here again, it is almost impossible to find quality service providers.

I wish you the best Joan, I know you are in a hard spot , but as an

ex-insurance agent I would definately pursue getting incorporated and

finding a group with the chamber of commerce, or getting a small business

plan.

Good luck

Jodi

Re: Health insurance

>In a message dated 8/2/2001 12:00:12 PM Central Daylight Time,

>rjprather@... writes:

>

>

>> It is my understanding that they cannot deny her coverage based on any

>> pre-existing condition- I would confront this agent and tell her that she

>> has had continuous coverage since birth and see what her response is.

The

>> only thing different I can see is if these rules apply only for going

from

>> group to group coverage whereas you would be going from group to

individual

>> . That might be why you are getting those responses.

>>

>>

>

>AH hem... as one who has always had private insurance, if you change

>providers the child with a disablity can indeed be denied coverage under

pre

>exsisting condition. And indeed according to what my sister said when she

>was expecting her 2nd child 14 yrs ago, some insurance companies do indeed

>deny coverage for 24 hrs after birth, (again private ins.)tho that may have

>changed. The world of private insurance is different then the employer

>provided kind. Course we also have more choice and can change providers if

>the current one is crappy and someone else offeres a better deal. But once

>you have a child with a pre exsisting condition (be it DS or diabetes or

>whatever) you don't change providers, tho you can roll over to different

>types (we went from Major medical to PPO) within the company without having

>the child (or even an adult with some condition) dropped.

>

>I would say check to see what the states plan for uninsured children is if

>you make to much money to get medicaid free or for a small fee. (all states

>are supposed to have implemented such programs by now) usually TEfra/kaite

>beckett does have a process where you can protest the fee if it's high. So

>just check into all aspects of the program before deciding you won't be

able

>to make the payments it never hurts to send in your information to see if

you

>would qualify. :-)

>

>Joy

>

>

>

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Guest guest

Hi Joan,

Does she receive SSI? If so, she is eligable for Medicaid.

Log on to- http://www.igive.com/lindseyrae. Each time you purchase from this

site, a percentage is donated to the Lindsey Rae Foundation(a non-profit

organization for children with Down Syndrome). Plus, your purchase maybe

tax deductible.

----Original Message Follows----

From: Joanson@...

Subject: Health Insurance

Date: Thu, 2 Aug 2001 08:40:39 EDT

Our family is in a dilemma. My husband wants to quit his job with

ExxonMobil

to start his own consulting company. I support him except that I am very

concerned about health insurance for our family, or at least health

insurance

my daughter . I was shocked to discover that insurance companies can

simply refuse to cover simply because she has Down syndrome. We know

that we can use COBRA coverage for 18 months and then pay full price for

coverage with the same insurer for another 18 months, but then what? Does

anyone have any suggestions for us to investigate? We found a

hospitalization plan with ARC - but it is a bare minimum. The other

alternative is that I go back to work full time - YUCK.

Caio,

Joan

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

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Guest guest

Hi Joan,

Does she receive SSI? If so, she is eligable for Medicaid.

Log on to- http://www.igive.com/lindseyrae. Each time you purchase from this

site, a percentage is donated to the Lindsey Rae Foundation(a non-profit

organization for children with Down Syndrome). Plus, your purchase maybe

tax deductible.

----Original Message Follows----

From: Joanson@...

Subject: Health Insurance

Date: Thu, 2 Aug 2001 08:40:39 EDT

Our family is in a dilemma. My husband wants to quit his job with

ExxonMobil

to start his own consulting company. I support him except that I am very

concerned about health insurance for our family, or at least health

insurance

my daughter . I was shocked to discover that insurance companies can

simply refuse to cover simply because she has Down syndrome. We know

that we can use COBRA coverage for 18 months and then pay full price for

coverage with the same insurer for another 18 months, but then what? Does

anyone have any suggestions for us to investigate? We found a

hospitalization plan with ARC - but it is a bare minimum. The other

alternative is that I go back to work full time - YUCK.

Caio,

Joan

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

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Guest guest

Your husband may be able to keep the insurance he already has, but it will

cost a lot. Also, he may be able to join an association that offers group

insurance. SSI/Medicaid will not help the rest of your family!

This is a crying shame. The US is the ONLY industrialized nation without

National Health. We should be ashamed of ourselves!

granny

---

" Setting a good example for your children

takes all the fun out of middle age. "

-- Feather

http://www.bspyle.com/granny.html

Health Insurance

> Our family is in a dilemma. My husband wants to quit his job with

ExxonMobil

> to start his own consulting company. I support him except that I am very

> concerned about health insurance for our family, or at least health

insurance

> my daughter . I was shocked to discover that insurance companies can

> simply refuse to cover simply because she has Down syndrome. We

know

> that we can use COBRA coverage for 18 months and then pay full price for

> coverage with the same insurer for another 18 months, but then what? Does

> anyone have any suggestions for us to investigate? We found a

> hospitalization plan with ARC - but it is a bare minimum. The other

> alternative is that I go back to work full time - YUCK.

> Caio,

> Joan

>

> Click reply to all for messages to go to the list. Just hit reply for

messages to go to the sender of the message.

>

>

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Guest guest

Your husband may be able to keep the insurance he already has, but it will

cost a lot. Also, he may be able to join an association that offers group

insurance. SSI/Medicaid will not help the rest of your family!

This is a crying shame. The US is the ONLY industrialized nation without

National Health. We should be ashamed of ourselves!

granny

---

" Setting a good example for your children

takes all the fun out of middle age. "

-- Feather

http://www.bspyle.com/granny.html

Health Insurance

> Our family is in a dilemma. My husband wants to quit his job with

ExxonMobil

> to start his own consulting company. I support him except that I am very

> concerned about health insurance for our family, or at least health

insurance

> my daughter . I was shocked to discover that insurance companies can

> simply refuse to cover simply because she has Down syndrome. We

know

> that we can use COBRA coverage for 18 months and then pay full price for

> coverage with the same insurer for another 18 months, but then what? Does

> anyone have any suggestions for us to investigate? We found a

> hospitalization plan with ARC - but it is a bare minimum. The other

> alternative is that I go back to work full time - YUCK.

> Caio,

> Joan

>

> Click reply to all for messages to go to the list. Just hit reply for

messages to go to the sender of the message.

>

>

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In a message dated 8/2/01 9:13:10 AM, writes:

<< As I understand it (and my understanding is minimal), SSI/Medicaid has

income

requirements. I believe that we would not qualify. >>

You may want to check into the the Cap waiver program in your state. (called

Beckett in some) I believe they base the income on the CHILDS income,

not the parents to qualify for Medicaid. (For children with DD only) There

is often a waiting list, and other hoops to jump through, but it is well

worth it!

Another option may be the CHIP program (Children's health insurance program)

I believe every state has this now. It does have income limits, but at least

in our state they are pretty liberal. (Well above the limits for medicaid) It

is available to all children not just DD. The upper income limits pay a

premium (very resonable) and the lower ones are free.

Hope this helps,

M.

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In a message dated 8/2/01 9:13:10 AM, writes:

<< As I understand it (and my understanding is minimal), SSI/Medicaid has

income

requirements. I believe that we would not qualify. >>

You may want to check into the the Cap waiver program in your state. (called

Beckett in some) I believe they base the income on the CHILDS income,

not the parents to qualify for Medicaid. (For children with DD only) There

is often a waiting list, and other hoops to jump through, but it is well

worth it!

Another option may be the CHIP program (Children's health insurance program)

I believe every state has this now. It does have income limits, but at least

in our state they are pretty liberal. (Well above the limits for medicaid) It

is available to all children not just DD. The upper income limits pay a

premium (very resonable) and the lower ones are free.

Hope this helps,

M.

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Guest guest

Joan,

Can you apply for Medicaid for your daughter? maybe now that your husband

wont have any insurance it will be easy to get then. We have GHI as our

primary and I have a medicaid waiver for . Find out what you have to

do in your state to apply for the waiver.

Good luck!

~Mom to almost 11DS and 7

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Guest guest

Joan,

Can you apply for Medicaid for your daughter? maybe now that your husband

wont have any insurance it will be easy to get then. We have GHI as our

primary and I have a medicaid waiver for . Find out what you have to

do in your state to apply for the waiver.

Good luck!

~Mom to almost 11DS and 7

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Guest guest

In PA. Nic qualifies for MA (Medical Assistance) just because he has DS. He

doesn't get SSI, just medical coverage.

Di, mom to Jake(18,nda) and 4 (DS)

Pennsylvania

Re: Health Insurance

Hi Joan,

Does she receive SSI? If so, she is eligable for Medicaid.

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Guest guest

In PA. Nic qualifies for MA (Medical Assistance) just because he has DS. He

doesn't get SSI, just medical coverage.

Di, mom to Jake(18,nda) and 4 (DS)

Pennsylvania

Re: Health Insurance

Hi Joan,

Does she receive SSI? If so, she is eligable for Medicaid.

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Guest guest

There is an organization, can't remember the name and there may be

more than one, for self employed people, and they offer insurance. However,

any time you make a change you can run into them not accepting . Used

to be on a family policy they had to accept the whole family but I understand

it is not that way any more. So even if you went to work full time they

might not cover her. You need to be sure of this before you make any

changes. Jessie

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Guest guest

There is an organization, can't remember the name and there may be

more than one, for self employed people, and they offer insurance. However,

any time you make a change you can run into them not accepting . Used

to be on a family policy they had to accept the whole family but I understand

it is not that way any more. So even if you went to work full time they

might not cover her. You need to be sure of this before you make any

changes. Jessie

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Guest guest

Here in PA you don't have to qualify for SSI to be given medical assistance.

I just applied and got approved for to receive medical assistance, so I

know this to be true.

Jackie, Mom to 13ds, 10, and Bradley 7

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Here in PA you don't have to qualify for SSI to be given medical assistance.

I just applied and got approved for to receive medical assistance, so I

know this to be true.

Jackie, Mom to 13ds, 10, and Bradley 7

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In a message dated 8/2/01 11:50:39 AM Central Daylight Time,

Joanson@... writes:

> Can you tell that I am ranting and smoke is

> billowing out of my ears?

>

> Yes, I see it going over. I don't blame you. I haven't had to deal

> with this for a long time, thank goodness.

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In a message dated 8/2/01 11:50:39 AM Central Daylight Time,

Joanson@... writes:

> Can you tell that I am ranting and smoke is

> billowing out of my ears?

>

> Yes, I see it going over. I don't blame you. I haven't had to deal

> with this for a long time, thank goodness.

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In a message dated 8/2/2001 11:50:30 AM Central Daylight Time,

Joanson@... writes:

> I spoke with Trigon (Blue Cross), the largest

> private insurer in the state, and they will give catastrophic

> coverage

> only after she has been on the plan for a year. has no gaps since

>

So what type of plan has your state implemented to insure children. Here

it's MN Care. covers 100%. I would imagine it covers disabled children if

they can't get private insurance.....oh in fact I know that they do, since

everytime we've been called in the last few yrs by insurance agents (trying

to give us a better deal, lol) they've always said they could put her on MN

Care, that makes it sound like the state plan for children does cover the

disabled kids to. are there still states that cant get it right? :-)

Joy

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In a message dated 8/2/2001 11:50:30 AM Central Daylight Time,

Joanson@... writes:

> I spoke with Trigon (Blue Cross), the largest

> private insurer in the state, and they will give catastrophic

> coverage

> only after she has been on the plan for a year. has no gaps since

>

So what type of plan has your state implemented to insure children. Here

it's MN Care. covers 100%. I would imagine it covers disabled children if

they can't get private insurance.....oh in fact I know that they do, since

everytime we've been called in the last few yrs by insurance agents (trying

to give us a better deal, lol) they've always said they could put her on MN

Care, that makes it sound like the state plan for children does cover the

disabled kids to. are there still states that cant get it right? :-)

Joy

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Hello:

>From what I understand about the law Clinton pushed through it only works with

group health insurance - that is, moving from one group to another group - which

basically means moving from one fairly large company to another. If you're

switching to insurance that is not a group plan it all is still totally up to

the insurance company.

This also has been a dilemma for us also so I'm really interested in this

thread. How does the SSI work, is it based on the family's income at all?

Thanks and plmk.

Mommy to - 3 and Noah - 21 mos.

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