Guest guest Posted December 6, 2009 Report Share Posted December 6, 2009 I believe that is the one they are putting in my right knee joint next week. My doc is with Triangle Orthopaedic Associates in Durham, NC and knee replacements are his specialty. I am hoping for the best outcome! Donna J s, RN, BA div " Something good always comes out of something bad! " " Life is a picnic! " www.redhatsociety.org Timberlake, NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2011 Report Share Posted August 23, 2011 This is SO AWESOME ! You are changing the world for our kiddos! ~ Mama to 20 months, in cast #4 from SLC, 24* in cast down from 60* > > I wanted everyone on CAST to know that we are so very close to the top of > the mountain!! ISOP will be headed to England the 1st wk. of Sept. to > accompany Dr. Mehta to Oxfords 1st Early Onset Scoliosis meeting. The > pioneer will lecture on Early Treatment w/ EDF/Mehta casting for PIS and > ISOP has been alotted 10 mins to discuss my experience as a parent of a > child w/ PIS (not treated early) as well as an overview of how we went > about getting a surgical establishment to adopt a non surgical > treatment/cure, effectively in the U.S. > I just got confirmation on everything this a.m. and am OVER THE MOON! We > (the pioneer, the docs, CAST parents & ISOP) have all worked so > dilligently in getting the word out on ET over the last decade and it > looks like we may be making a dent! > Thanks for always supporting ISOP & Dr. Mehtas ET work. I'll continue to > keep you posted! > Wish us luck... > HRH > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2011 Report Share Posted August 23, 2011 , I'll be interested to hear about what goes on at the conference. I had a chance to check out the Faculty list and it is very impressive. I have come in contact with two families from Britain with the same underlying genetic condition as Makenna. One of the families surgeons (2) are listed... both from Edinburgh. The oldest child had full spinal fusion - she's 12. Her curve reached 116. The younger boy has had growing rods, but currently they removed them and he's in a brace. So maybe they'll use some of this info I was also happy to see that Dr A from San Diego is attending. He's a very well respected spine surgeon - worldwide. While his focus is on surgical correction, he does give casting it's kudos...and he was once at Phili Shriners. Not sure if he was there after they were casting or not. Keep us posted on the consensus/debate! Good luck and safe travels! Amy > > > > I wanted everyone on CAST to know that we are so very close to the top of > > the mountain!! ISOP will be headed to England the 1st wk. of Sept. to > > accompany Dr. Mehta to Oxfords 1st Early Onset Scoliosis meeting. The > > pioneer will lecture on Early Treatment w/ EDF/Mehta casting for PIS and > > ISOP has been alotted 10 mins to discuss my experience as a parent of a > > child w/ PIS (not treated early) as well as an overview of how we went > > about getting a surgical establishment to adopt a non surgical > > treatment/cure, effectively in the U.S. > > I just got confirmation on everything this a.m. and am OVER THE MOON! We > > (the pioneer, the docs, CAST parents & ISOP) have all worked so > > dilligently in getting the word out on ET over the last decade and it > > looks like we may be making a dent! > > Thanks for always supporting ISOP & Dr. Mehtas ET work. I'll continue to > > keep you posted! > > Wish us luck... > > HRH > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2011 Report Share Posted August 24, 2011 Hi Good luck with this. We live in Oxford so if we can be of help please let us know. In case it is of use - Oxford's orthopaedic hospital (The Nuffield Orthopaedic) only has a 2d casting table. We beleive the only table for 3d correction in the UK is at the Royal National Orthopaedic Hospital Stanmore (approx 50 miles from Oxford) dating back to the days of Dr Mehta. Their casts look like the US ones,You can check out pics of Abi's casts in the photo gallery (only the 1st one was in Oxford) but are applied by plaster technicians rather than doctors. Any interest you can get in casting from UK surgeons would be fabulous. As one surgeon told us, you could get all of the top surgeons from the UK in one average sized living room so theoretically they could all influence each. If you are looking to get interest here the way forward is probably through NICE who make recommendations for health treatment here in the UK. In the unlikely event that Dr Mehta need a child with IS for demo etc Abi is now 4 yrs and in a brace so there is access to her spine. I hope you have a good journey and that your talk goes well. Sue (mum to Abi cast for 21 months and now 8 months in brace) > > I wanted everyone on CAST to know that we are so very close to the top of > the mountain!! ISOP will be headed to England the 1st wk. of Sept. to > accompany Dr. Mehta to Oxfords 1st Early Onset Scoliosis meeting. The > pioneer will lecture on Early Treatment w/ EDF/Mehta casting for PIS and > ISOP has been alotted 10 mins to discuss my experience as a parent of a > child w/ PIS (not treated early) as well as an overview of how we went > about getting a surgical establishment to adopt a non surgical > treatment/cure, effectively in the U.S. > I just got confirmation on everything this a.m. and am OVER THE MOON! We > (the pioneer, the docs, CAST parents & ISOP) have all worked so > dilligently in getting the word out on ET over the last decade and it > looks like we may be making a dent! > Thanks for always supporting ISOP & Dr. Mehtas ET work. I'll continue to > keep you posted! > Wish us luck... > HRH > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2011 Report Share Posted August 24, 2011 Hi Good luck with this. We live in Oxford so if we can be of help please let us know. In case it is of use - Oxford's orthopaedic hospital (The Nuffield Orthopaedic) only has a 2d casting table. We beleive the only table for 3d correction in the UK is at the Royal National Orthopaedic Hospital Stanmore (approx 50 miles from Oxford) dating back to the days of Dr Mehta. Their casts look like the US ones,You can check out pics of Abi's casts in the photo gallery (only the 1st one was in Oxford) but are applied by plaster technicians rather than doctors. Any interest you can get in casting from UK surgeons would be fabulous. As one surgeon told us, you could get all of the top surgeons from the UK in one average sized living room so theoretically they could all influence each. If you are looking to get interest here the way forward is probably through NICE who make recommendations for health treatment here in the UK. In the unlikely event that Dr Mehta need a child with IS for demo etc Abi is now 4 yrs and in a brace so there is access to her spine. I hope you have a good journey and that your talk goes well. Sue (mum to Abi cast for 21 months and now 8 months in brace) > > I wanted everyone on CAST to know that we are so very close to the top of > the mountain!! ISOP will be headed to England the 1st wk. of Sept. to > accompany Dr. Mehta to Oxfords 1st Early Onset Scoliosis meeting. The > pioneer will lecture on Early Treatment w/ EDF/Mehta casting for PIS and > ISOP has been alotted 10 mins to discuss my experience as a parent of a > child w/ PIS (not treated early) as well as an overview of how we went > about getting a surgical establishment to adopt a non surgical > treatment/cure, effectively in the U.S. > I just got confirmation on everything this a.m. and am OVER THE MOON! We > (the pioneer, the docs, CAST parents & ISOP) have all worked so > dilligently in getting the word out on ET over the last decade and it > looks like we may be making a dent! > Thanks for always supporting ISOP & Dr. Mehtas ET work. I'll continue to > keep you posted! > Wish us luck... > HRH > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2011 Report Share Posted August 24, 2011 Hi Sue,I will have a couple of days of down time after the conf. and would love to meet you & Abi if you have any time. I know this is last minute and understand if you don’t…But, if you do perhaps we can meet for coffee or something? (I mean tea…) Please email me at isop06@... if you have any time available.~ And, thanks for the support Sue! Ill give everyone a full report when I return.HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of suzyinoxfordSent: Wednesday, August 24, 2011 7:45 AMinfantile scoliosis treatment Subject: Re: Oxford Hi Good luck with this. We live in Oxford so if we can be of help please let us know. In case it is of use - Oxford's orthopaedic hospital (The Nuffield Orthopaedic) only has a 2d casting table. We beleive the only table for 3d correction in the UK is at the Royal National Orthopaedic Hospital Stanmore (approx 50 miles from Oxford) dating back to the days of Dr Mehta. Their casts look like the US ones,You can check out pics of Abi's casts in the photo gallery (only the 1st one was in Oxford) but are applied by plaster technicians rather than doctors. Any interest you can get in casting from UK surgeons would be fabulous. As one surgeon told us, you could get all of the top surgeons from the UK in one average sized living room so theoretically they could all influence each. If you are looking to get interest here the way forward is probably through NICE who make recommendations for health treatment here in the UK. In the unlikely event that Dr Mehta need a child with IS for demo etc Abi is now 4 yrs and in a brace so there is access to her spine. I hope you have a good journey and that your talk goes well. Sue (mum to Abi cast for 21 months and now 8 months in brace)>> I wanted everyone on CAST to know that we are so very close to the top of> the mountain!! ISOP will be headed to England the 1st wk. of Sept. to> accompany Dr. Mehta to Oxfords 1st Early Onset Scoliosis meeting. The> pioneer will lecture on Early Treatment w/ EDF/Mehta casting for PIS and> ISOP has been alotted 10 mins to discuss my experience as a parent of a> child w/ PIS (not treated early) as well as an overview of how we went> about getting a surgical establishment to adopt a non surgical> treatment/cure, effectively in the U.S.> I just got confirmation on everything this a.m. and am OVER THE MOON! We> (the pioneer, the docs, CAST parents & ISOP) have all worked so> dilligently in getting the word out on ET over the last decade and it> looks like we may be making a dent!> Thanks for always supporting ISOP & Dr. Mehtas ET work. I'll continue to> keep you posted!> Wish us luck...> HRH> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2011 Report Share Posted August 24, 2011 Wow - this is so awesome!!!! Congratulations on making this world a better place! - > > > > > > I wanted everyone on CAST to know that we are so very close to the top of > > > the mountain!! ISOP will be headed to England the 1st wk. of Sept. to > > > accompany Dr. Mehta to Oxfords 1st Early Onset Scoliosis meeting. The > > > pioneer will lecture on Early Treatment w/ EDF/Mehta casting for PIS and > > > ISOP has been alotted 10 mins to discuss my experience as a parent of a > > > child w/ PIS (not treated early) as well as an overview of how we went > > > about getting a surgical establishment to adopt a non surgical > > > treatment/cure, effectively in the U.S. > > > I just got confirmation on everything this a.m. and am OVER THE MOON! We > > > (the pioneer, the docs, CAST parents & ISOP) have all worked so > > > dilligently in getting the word out on ET over the last decade and it > > > looks like we may be making a dent! > > > Thanks for always supporting ISOP & Dr. Mehtas ET work. I'll continue to > > > keep you posted! > > > Wish us luck... > > > HRH > > > > > > Quote Link to comment Share on other sites More sharing options...
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