Concerned

[Guest guest]

Hi. could I ask what meds she is on? My son ( 15) has OCD, bipolar, asperger's,

depression, anxiety, ADD. The OCD is really getting bad lately, to the point of

almost nonfunctional. we are seeing a specialist now to try to help. The most

frustrating part is that it is all 'trial and error' on the drugs. There doesn't

seem to be any real way the drs can help our kids. thank you in advance for any

suggestions. ~Kathy

Concerned

,

I would be very concerned about this phrase:

" She does not want to be herself any more. "

My daughter said this type of thing when her OCD hit

hard (before we had the diagnosis) and in a few days,

she was actively suicidal. Same thing, after five

years of nearly no symptoms, when the pdoc took her

off Prozac and she relapsed into severe OCD, she said

this phrase again and not long later, was hospitalized

under suicide watch. She's back on meds and doing very

well, now.

in VA

tic during well period

Posted by: " Ballard " hlballard@...

hetball

Date: Mon Jul 16, 2007 9:53 am ((PDT))

Hello,

My daughter (10 w/OCD, depression and mood disorder

NOS) has been

experiencing a well period for the last 3 weeks or so.

The curious

thing is

that although her anger, mood and OCD symptoms are

muted her tic has

become much more pronounced. She often complains and

gets very upset that she can't control the movement

of her arms. She woke me up last night and kept me up

saying over and over that she can't stand it any

longer. She says she

feels

so restless and jittery that she does not want to be

herself anymore.

My question is, have any of you seen a tic or general

restlessness in

your

child increase or materialize when they experience a

well period?

Thank you,

__________________________________________________________

Expecting? Get great news right away with email Auto-Check.

Try the Beta.

http://advision.webevents./mailbeta/newmail_tools.html

[Guest guest]

thank you for your thoughts. we just took my son off prozac. it didn't

seem to do anything for him. now we are trying cymbalta.he is also on seroquel

and lamictal. I know he needs something different. we are seeing the specialist

again. so hopefully we will have some more recommendations of what to try.

~Kathy

Concerned

Kathy,

Both of my daughters with OCD are on Prozac. The 19yo

takes 60mg three weeks out of a month, and 80mg during

her pre-menstrual and early menstrual days. She has to

take more during those days both because the bad

thoughts kick up, and because she has bad cramps

unless taking more Prozac. Prozac is prescribed to

people regularly to target menstrual cramps - apart

from depression or OCD. My younger daughter, 13yo,

also takes Prozac. She formerly took 40mg but for the

last several years has taken only 20mg per day. This

keeps nearly all her symptoms at bay. We were so lucky

to have the first med we tried, " work " and we have

stayed with this.

I am so sorry about all that you are going through

with your son's conditions, treatment resistance, and

the confusion about which meds will do what.

in VA

__________________________________________________________

oneSearch: Finally, mobile search

that gives answers, not web links.

http://mobile./mobileweb/onesearch?refer=1ONXIC

[Guest guest]

Point taken. No pouncing.

Roni

venizia1948 <nelsonck@...> wrote:

Hello to all,

I am concerned that we are getting off topic far to frequently. Do not

take me the wrong way. I do not have a problem with going off topic.

We are all interested in many things and topics and I enjoy learning

about you and new things. However, if we look at how many posts

lately have not been about hypothyroidism, I fear we will not be

accomplishing what this group is all about...helping people that need

help.

Just my two cents. Please don't pounce on me.

Venizia

---------------------------------

Never miss a thing. Make your homepage.

[Guest guest]

That's another great issue about being sleeved. Let's say you did have a problem, you could go to any general surgeon, GI surgeon, or bariatric doctor. It's just the band surgeons that are angry that they are losing business to Mexico. They claim that their medical malpractice insurance does not permit them to take care of someone who had surgery in Mexico. Do you have any idea how many people live in the US that are from Mexico? Since when are they refused medical care in the US because they are from Mexico? They are not refused care. Medical malpractice doesn't give a rip where you were banded, it's all political. Doctors are losing business to Mexico and they don't like it so their way of fighting back is to not provide follow up care for banded folks from Mexico.

But general surgeons and GI surgeons don't give a rip about the politics of banding in Mexico so they'll see anyone. They don't even know about the politics of losing business to Mexico because they are not losing business.

Dr. Aceves won't discharge you until you have had three leak tests and he's positive there is no leak so the risk is minimal. But if you did have a problem any ER, GI surgeon, or general surgeon could take care of you with no problem.

On Mon, Jul 14, 2008 at 5:28 AM, castloyale <roboothe@...> wrote:

I am about to be sleeved on Aug 5th.

My concern is that I do not have health insurance and live out in BFE and our bandaid center *hospital* does not rank very highly *in my mind*. So should complications occur after being sleeved.... what does one do? The nearest good ER's is over 100 miles. Or do you go to a Barriatric Center? And won't they tell you well since you were did not have the surgery in the US or from us, we cannot help you! I just do not want to be turned away should anything happen. Hey here's a thought I know there are fill dr's in the US that treat bandsters from Mexico, but would they treat sleevesters as well?

Just some thoughts I have running round in my head.

Robyn in BFE Colorado

[Guest guest]

Hi Robyn

I'm not sure Where BFE is in CO but I thought you mentioned Sterling

once. If so, there is a really good bariatric surgeon in sbluff,

NE who accepts Mexico banded patients. His name is Dr. Holloway and

he does travel around a little (Alliance one day a week I think) so

you would need to find out when he is around if you needed him.

Anyway he is familiar with Dr. A patients so I think he would sure be

able to check you out if you needed to. Maybe you could call him

ahead of time to be sure. Just my thoughts.

Penny in Colorado

>

>

> I am about to be sleeved on Aug 5th.

>

> My concern is that I do not have health insurance and live out in BFE

> and our bandaid center *hospital* does not rank very highly *in my

> mind*. So should complications occur after being sleeved.... what does

> one do? The nearest good ER's is over 100 miles. Or do you go to a

> Barriatric Center? And won't they tell you well since you were did not

> have the surgery in the US or from us, we cannot help you! I just do

> not want to be turned away should anything happen. Hey here's a thought

> I know there are fill dr's in the US that treat bandsters from Mexico,

> but would they treat sleevesters as well?

>

> Just some thoughts I have running round in my head.

>

> Robyn in BFE Colorado

>

[Guest guest]

Thank you Penny...

BFE was a joke.. I do live in Sterling. lol

BFE = Bum F"c*ed Egypt..... you know out in the middle of no where.

I have heard a lot of praise about Dr. Holloway, from the folks who work at Cabela's.

I'll have to check into that.

I have options living on the border of Wyo and Neb ... but the downfalll is they require quite a drive. But hey what do ya do?!

Robyn in Sterling CO

Re: Concerned

Hi RobynI'm not sure Where BFE is in CO but I thought you mentioned Sterlingonce. If so, there is a really good bariatric surgeon in sbluff,NE who accepts Mexico banded patients. His name is Dr. Holloway andhe does travel around a little (Alliance one day a week I think) soyou would need to find out when he is around if you needed him. Anyway he is familiar with Dr. A patients so I think he would sure beable to check you out if you needed to. Maybe you could call himahead of time to be sure. Just my thoughts.Penny in Colorado>> > I am about to be sleeved on Aug 5th.> > My concern is that I do not have health insurance and live out in BFE> and our bandaid center *hospital* does not rank very highly *in my> mind*. So should complications occur after being sleeved.... what does> one do? The nearest good ER's is over 100 miles. Or do you go to a> Barriatric Center? And won't they tell you well since you were did not> have the surgery in the US or from us, we cannot help you! I just do> not want to be turned away should anything happen. Hey here's a thought> I know there are fill dr's in the US that treat bandsters from Mexico,> but would they treat sleevesters as well?> > Just some thoughts I have running round in my head.> > Robyn in BFE Colorado>

[Guest guest]

Hello Robyn My name is Poss I drive a 6hr driver to see Dr Holloway because he is the best!! He is very affordable!! He is understanding and listens to all my concerns. I had my one year anniversary and have lost only 60 pounds in that time and I look at this board and people have lost that since January I suppose that's my fault food once an addiction always an addiction!! But Dr Holloway has never condemned me he is very supportive and I enjoy my appointments! If you have any questions you can call me (308)571-0365 hope this helps!! possSent from my BlackBerry Smartphone provided by AlltelFrom: "Robyn Boothe" <roboothe@...>Date: Fri, 18 Jul 2008 07:14:44 -0600< >Subject: Re: Re: Concerned Thank you Penny... BFE was a joke.. I do live in Sterling. lol BFE = Bum F"c*ed Egypt..... you know out in the middle of no where. I have heard a lot of praise about Dr. Holloway, from the folks who work at Cabela's.I'll have to check into that. I have options living on the border of Wyo and Neb ... but the downfalll is they require quite a drive. But hey what do ya do?! Robyn in Sterling CO Re: Concerned Hi RobynI'm not sure Where BFE is in CO but I thought you mentioned Sterlingonce. If so, there is a really good bariatric surgeon in sbluff,NE who accepts Mexico banded patients. His name is Dr. Holloway andhe does travel around a little (Alliance one day a week I think) soyou would need to find out when he is around if you needed him. Anyway he is familiar with Dr. A patients so I think he would sure beable to check you out if you needed to. Maybe you could call himahead of time to be sure. Just my thoughts.Penny in Colorado>> > I am about to be sleeved on Aug 5th.> > My concern is that I do not have health insurance and live out in BFE> and our bandaid center *hospital* does not rank very highly *in my> mind*. So should complications occur after being sleeved.... what does> one do? The nearest good ER's is over 100 miles. Or do you go to a> Barriatric Center? And won't they tell you well since you were did not> have the surgery in the US or from us, we cannot help you! I just do> not want to be turned away should anything happen. Hey here's a thought> I know there are fill dr's in the US that treat bandsters from Mexico,> but would they treat sleevesters as well?> > Just some thoughts I have running round in my head.> > Robyn in BFE Colorado>

[Guest guest]



... did you ahve the band or the sleeve....

Is Dr. Holloway a GI Dr... or...?

Thanks

Robyn in Colorado

Re: Concerned

Hi RobynI'm not sure Where BFE is in CO but I thought you mentioned Sterlingonce. If so, there is a really good bariatric surgeon in sbluff,NE who accepts Mexico banded patients. His name is Dr. Holloway andhe does travel around a little (Alliance one day a week I think) soyou would need to find out when he is around if you needed him. Anyway he is familiar with Dr. A patients so I think he would sure beable to check you out if you needed to. Maybe you could call himahead of time to be sure. Just my thoughts.Penny in Colorado>> > I am about to be sleeved on Aug 5th.> > My concern is that I do not have health insurance and live out in BFE> and our bandaid center *hospital* does not rank very highly *in my> mind*. So should complications occur after being sleeved.... what does> one do? The nearest good ER's is over 100 miles. Or do you go to a> Barriatric Center? And won't they tell you well since you were did not> have the surgery in the US or from us, we cannot help you! I just do> not want to be turned away should anything happen. Hey here's a thought> I know there are fill dr's in the US that treat bandsters from Mexico,> but would they treat sleevesters as well?> > Just some thoughts I have running round in my head.> > Robyn in BFE Colorado>

[Guest guest]

Robyn

Hey, it's a 5 hour drive for me! But my son lives near sbluff so

we visit him when we go. My daughter goes from Casper, WY, too.

Well...actually she is Carla the one who had the revision from lapband

to sleeve. That is the glory of the sleeve--you don't have to worry

about finding Drs. What is wrong with this picture? I live in God's

country up near Steamboat Springs. The name of the town is Walden and

it is definitely BFE! I have spent most of my summer near sbluff

and in Mexicali for a week. I thought everyone wanted to be in the

mountains in summer where it is cool!!!! We have been helping my son

butcher his pastured poultry and it has been HOT there. But Mexicali

takes the prize at about 115 degrees when we were there! It is in the

70's up here so I hope I can stay here for awhile before another

chicken episode!

I will be thinking of you in August when you get your sleeve--it

should be hot there but the hospital is actually quite cold and I wore

sweaters and a jacket all the time I was in the hospital. Some rooms

are hotter than others but I always seem to be in one that is cold.

You can ask for a fan if you get too hot in your room.

Well, my prayers will be with you on August 5 and I hope you have a

great weight loss journey!

Penny in Colorado

> >

> >

> > I am about to be sleeved on Aug 5th.

> >

> > My concern is that I do not have health insurance and live out

in BFE

> > and our bandaid center *hospital* does not rank very highly *in my

> > mind*. So should complications occur after being sleeved....

what does

> > one do? The nearest good ER's is over 100 miles. Or do you go to a

> > Barriatric Center? And won't they tell you well since you were

did not

> > have the surgery in the US or from us, we cannot help you! I just do

> > not want to be turned away should anything happen. Hey here's a

thought

> > I know there are fill dr's in the US that treat bandsters from

Mexico,

> > but would they treat sleevesters as well?

> >

> > Just some thoughts I have running round in my head.

> >

> > Robyn in BFE Colorado

> >

>

[Guest guest]

I have a band 10cc I've had several fills and unfills. Not sure what kid of Dr he is. Do u want his office phone number? Sent from my BlackBerry Smartphone provided by AlltelFrom: "Robyn Boothe" <roboothe@...>Date: Fri, 18 Jul 2008 13:42:31 -0600< >Subject: Re: Re: Concerned  ... did you ahve the band or the sleeve....Is Dr. Holloway a GI Dr... or...? ThanksRobyn in Colorado Re: Concerned Hi RobynI'm not sure Where BFE is in CO but I thought you mentioned Sterlingonce. If so, there is a really good bariatric surgeon in sbluff,NE who accepts Mexico banded patients. His name is Dr. Holloway andhe does travel around a little (Alliance one day a week I think) soyou would need to find out when he is around if you needed him. Anyway he is familiar with Dr. A patients so I think he would sure beable to check you out if you needed to. Maybe you could call himahead of time to be sure. Just my thoughts.Penny in Colorado>> > I am about to be sleeved on Aug 5th.> > My concern is that I do not have health insurance and live out in BFE> and our bandaid center *hospital* does not rank very highly *in my> mind*. So should complications occur after being sleeved.... what does> one do? The nearest good ER's is over 100 miles. Or do you go to a> Barriatric Center? And won't they tell you well since you were did not> have the surgery in the US or from us, we cannot help you! I just do> not want to be turned away should anything happen. Hey here's a thought> I know there are fill dr's in the US that treat bandsters from Mexico,> but would they treat sleevesters as well?> > Just some thoughts I have running round in my head.> > Robyn in BFE Colorado>

[Guest guest]

Penny,

Thanks for the confidence..... It helps meeting peeps *people* from home. *COLORADO*

Robyn

Re: Concerned

RobynHey, it's a 5 hour drive for me! But my son lives near sbluff sowe visit him when we go. My daughter goes from Casper, WY, too.Well...actually she is Carla the one who had the revision from lapbandto sleeve. That is the glory of the sleeve--you don't have to worryabout finding Drs. What is wrong with this picture? I live in God'scountry up near Steamboat Springs. The name of the town is Walden andit is definitely BFE! I have spent most of my summer near sbluffand in Mexicali for a week. I thought everyone wanted to be in themountains in summer where it is cool!!!! We have been helping my sonbutcher his pastured poultry and it has been HOT there. But Mexicalitakes the prize at about 115 degrees when we were there! It is in the70's up here so I hope I can stay here for awhile before anotherchicken episode!I will be thinking of you in August when you get your sleeve--itshould be hot there but the hospital is actually quite cold and I woresweaters and a jacket all the time I was in the hospital. Some roomsare hotter than others but I always seem to be in one that is cold. You can ask for a fan if you get too hot in your room.Well, my prayers will be with you on August 5 and I hope you have agreat weight loss journey!Penny in Colorado> >> > > > I am about to be sleeved on Aug 5th.> > > > My concern is that I do not have health insurance and live outin BFE> > and our bandaid center *hospital* does not rank very highly *in my> > mind*. So should complications occur after being sleeved....what does> > one do? The nearest good ER's is over 100 miles. Or do you go to a> > Barriatric Center? And won't they tell you well since you weredid not> > have the surgery in the US or from us, we cannot help you! I just do> > not want to be turned away should anything happen. Hey here's athought> > I know there are fill dr's in the US that treat bandsters fromMexico,> > but would they treat sleevesters as well?> > > > Just some thoughts I have running round in my head.> > > > Robyn in BFE Colorado> >>

[Guest guest]



Yes please.

Robyn in Colorado

Re: Concerned

Hi RobynI'm not sure Where BFE is in CO but I thought you mentioned Sterlingonce. If so, there is a really good bariatric surgeon in sbluff,NE who accepts Mexico banded patients. His name is Dr. Holloway andhe does travel around a little (Alliance one day a week I think) soyou would need to find out when he is around if you needed him. Anyway he is familiar with Dr. A patients so I think he would sure beable to check you out if you needed to. Maybe you could call himahead of time to be sure. Just my thoughts.Penny in Colorado>> > I am about to be sleeved on Aug 5th.> > My concern is that I do not have health insurance and live out in BFE> and our bandaid center *hospital* does not rank very highly *in my> mind*. So should complications occur after being sleeved.... what does> one do? The nearest good ER's is over 100 miles. Or do you go to a> Barriatric Center? And won't they tell you well since you were did not> have the surgery in the US or from us, we cannot help you! I just do> not want to be turned away should anything happen. Hey here's a thought> I know there are fill dr's in the US that treat bandsters from Mexico,> but would they treat sleevesters as well?> > Just some thoughts I have running round in my head.> > Robyn in BFE Colorado>

[Guest guest]

Kim, this is one of those "go figure" situations. You are right to go back on liquids for a day. From time to time we all relapse into the old habits of eating too fast, not chewing well, taking too large of a bite. And it only takes a "get stuck" moment to remind us that our band is a fickle lady who is totally in charge of our stomas. It will forgive one time and punish us the next. Go figure!

C

Tampa

> > From: kcgirl559@...> Date: Mon, 18 Aug 2008 17:22:13 +0000> Subject: Concerned> > I was banded in January 2008 and have had no problems since, weight is> slowly coming off, but...Last night we had steak for dinner (which> I've eaten with no problems before) and I ate a piece that I swallowed> before chewing it really well. I have been spitting up ever since, I> can only keep liquids down, couldn't even eat my oatmeal this morning.> I'm putting myself on pure liquids for a couple days, has anyone else> had this happen and did it pass, I really can't afford to run to> Mexico to have an unfill, then run back later to have a fill again. > I'm hoping it's just irritated. Let me know. THANKS!!!! Kim> > Kim Day> myspace id: cando559> DOB 1/12/08> 275/223/165> > > ------------------------------------> >

[Guest guest]

Wow Ken, You are doing excellent.

I've had 2 fills so far. When I am on my back, the doc has me push my

belly out. He is able to find the port then really fast. It was a

breeze. I can't wait for my next fill, 2 weeks from today. I haven't

hit restriction yet and loss has come to a standstill.

At 06:42 AM 11/4/2008, you wrote:

>Well I am coming up to my First adjustment (Nov.18) and going to

>Spokane Wa to have it done, which is a 4 hour return drive vs. 20 hour

>drive to Everett Wa. where I had the surgery.

>

>They say if they can find the Port it should be no problem otherwise I

>have to make the 20 hour drive.....

>

>Anything I can do to make it easier for them to find the port?

>

>Right now I am eating what I can put on a saucer and I know Im loosing

>but I wish it was faster.....guess Im impatient.

>

>I lost 40 lbs. prior to surgery and was asked to loose 25 so I am so

>proud of myself for that.

>

>I will feel alot better when I can get this first adjustment under my

>belt!!

>

>Ken from Canada

>

>

[Guest guest]

Hi, Ken - there are several fill documents in the files here that

should be useful for you - " Fills - when do I need the first fill? "

" Fills - how to help get a good one. "

Generally, if we are losing, we do NOT need a fill. be sure to call

them and check to see their guidelines. We are never trying to loase

as fats as possible, but slowly and safely, and in a way hat can last

this time.

If the fill place is not the same practice where you had surgery, be

sure you take a surgical report and the info on the size band you

have. This will determine partially the amount of fill that is

considered. very important.

for ports that are very deep, a fluoro to locate it is very useful

and reduces chances of tubing punctures. You might want to be sure

one is available. The first fill rarely makes much difference (the

first few are not even meant to be enough, but only meant as a small,

gentle introduction to stomach presure). but with later fills, it

might be wise to stay locally overnight to be sure the fill is not

too much. Otherwise, you'd have to come right back, and need someone

to drive you.

Be sure that someone is available to unfill you , if needed, 7 days a

week. if they are gone on weekends, get a fill only on a mon or

tuesday, so there are plenty of days left in their workweek to get

back if needed. Just some ideas - fills are usually fine, but you

know 's law - if one is not prepared, the possible problems

seem to arise more often.

They should be giving or sending you written info on all ofthis, as

each doc may do things a bit diffeerently.

good luck with the fill! Let us know how it was..

Sandy

>

> Well I am coming up to my First adjustment (Nov.18) and going to

> Spokane Wa to have it done, which is a 4 hour return drive vs. 20

hour

> drive to Everett Wa. where I had the surgery.

>

> They say if they can find the Port it should be no problem

otherwise I

> have to make the 20 hour drive.....

>

> Anything I can do to make it easier for them to find the port?

>

> Right now I am eating what I can put on a saucer and I know Im

loosing

> but I wish it was faster.....guess Im impatient.

>

> I lost 40 lbs. prior to surgery and was asked to loose 25 so I am

so

> proud of myself for that.

>

> I will feel alot better when I can get this first adjustment under

my

> belt!!

>

> Ken from Canada

>

[Guest guest]

I had my port and tubing replaced on Oct 8. They said I had a leak or whole in

my tubing. I had a good fill for several months when the leak happened so I know

it was not poked by the Dr. Sandy have you seen this happen very often it is the

pits when it seems I am always try to get a good fill. I have had 3 fills (once

a week) and now I am at 3 cc in a 4cc band, it is working pretty good. I go back

on the 20th for a check-up this fill may be good maybe just a tiny bit more.

Ales

RNY 7/11/02

Revision Banded 10/27/06

Re: Concerned

Hi, Ken - there are several fill documents in the files here that

should be useful for you - " Fills - when do I need the first fill? "

" Fills - how to help get a good one. "

Generally, if we are losing, we do NOT need a fill. be sure to call

them and check to see their guidelines. We are never trying to loase

as fats as possible, but slowly and safely, and in a way hat can last

this time.

If the fill place is not the same practice where you had surgery, be

sure you take a surgical report and the info on the size band you

have. This will determine partially the amount of fill that is

considered. very important.

for ports that are very deep, a fluoro to locate it is very useful

and reduces chances of tubing punctures. You might want to be sure

one is available. The first fill rarely makes much difference (the

first few are not even meant to be enough, but only meant as a small,

gentle introduction to stomach presure). but with later fills, it

might be wise to stay locally overnight to be sure the fill is not

too much. Otherwise, you'd have to come right back, and need someone

to drive you.

Be sure that someone is available to unfill you , if needed, 7 days a

week. if they are gone on weekends, get a fill only on a mon or

tuesday, so there are plenty of days left in their workweek to get

back if needed. Just some ideas - fills are usually fine, but you

know 's law - if one is not prepared, the possible problems

seem to arise more often.

They should be giving or sending you written info on all ofthis, as

each doc may do things a bit diffeerently.

good luck with the fill! Let us know how it was..

Sandy

>

> Well I am coming up to my First adjustment (Nov.18) and going to

> Spokane Wa to have it done, which is a 4 hour return drive vs. 20

hour

> drive to Everett Wa. where I had the surgery.

>

> They say if they can find the Port it should be no problem

otherwise I

> have to make the 20 hour drive.....

>

> Anything I can do to make it easier for them to find the port?

>

> Right now I am eating what I can put on a saucer and I know Im

loosing

> but I wish it was faster.....guess Im impatient.

>

> I lost 40 lbs. prior to surgery and was asked to loose 25 so I am

so

> proud of myself for that.

>

> I will feel alot better when I can get this first adjustment under

my

> belt!!

>

> Ken from Canada

>

[Guest guest]

Ken, are you going to see Lee Trotter? Just wanted to let you know,

there is also Pennings in Post Falls, ID, which is only 30

minutes from Spokane, in case you have any trouble.

I've worked with Dr Trotter in the OR, he seems pretty good. (I'm in

school at Gonzaga/Sacred Heart in Spokane, becoming a nurse

anesthetist right now. He operates in our hospital.)

Congrats to you and your early success. Sandy makes an excellent

point about bringing your records with you. The (new) surgeon really

needs to see the operative report and exactly what band is in you

before they will touch you.

As far as finding your port, they have lots of little tricks to help

find your port (having you do an abdominal crunch, or lift your head

or knees, pushing out with your stomach, etc.). On the vast majority

of patients it is not difficult, especially now that surgeons have so

much more experience with band patients. And if you were at NWWLS

for your surgery, my sense is that they are pretty experienced and

have a pretty good reputation, meaning that the port is more likely

to be placed in an accessible place by your surgeon.

Good luck to you!

Gwen

>

> Well I am coming up to my First adjustment (Nov.18) and going to

> Spokane Wa to have it done, which is a 4 hour return drive vs. 20

hour

> drive to Everett Wa. where I had the surgery.

>

> They say if they can find the Port it should be no problem

otherwise I

> have to make the 20 hour drive.....

>

> Anything I can do to make it easier for them to find the port?

>

> Right now I am eating what I can put on a saucer and I know Im

loosing

> but I wish it was faster.....guess Im impatient.

>

> I lost 40 lbs. prior to surgery and was asked to loose 25 so I am

so

> proud of myself for that.

>

> I will feel alot better when I can get this first adjustment under

my

> belt!!

>

> Ken from Canada

>

[Guest guest]

Thank you Gwen:

I have no idea who I am seeing, it will be in Spokane on Nov.18 and

your words are very encouraging. I just want to get the first

adjustment over and done with. Driving to Everett Wa is a very very

long drive for a 5 min. procedure!

I live on the Canadian side just at the end of Hwy.395 north of

Spokane.

Thanks again!!

Ken

-- In , " Gwen " <gkeyt@...> wrote:

>

> Ken, are you going to see Lee Trotter? Just wanted to let you

know,

> there is also Pennings in Post Falls, ID, which is only 30

> minutes from Spokane, in case you have any trouble.

>

> I've worked with Dr Trotter in the OR, he seems pretty good. (I'm

in

> school at Gonzaga/Sacred Heart in Spokane, becoming a nurse

> anesthetist right now. He operates in our hospital.)

>

> Congrats to you and your early success. Sandy makes an excellent

> point about bringing your records with you. The (new) surgeon

really

> needs to see the operative report and exactly what band is in you

> before they will touch you.

>

> As far as finding your port, they have lots of little tricks to

help

> find your port (having you do an abdominal crunch, or lift your

head

> or knees, pushing out with your stomach, etc.). On the vast

majority

> of patients it is not difficult, especially now that surgeons have

so

> much more experience with band patients. And if you were at NWWLS

> for your surgery, my sense is that they are pretty experienced and

> have a pretty good reputation, meaning that the port is more likely

> to be placed in an accessible place by your surgeon.

> Good luck to you!

> Gwen

>

> >

> > Well I am coming up to my First adjustment (Nov.18) and going to

> > Spokane Wa to have it done, which is a 4 hour return drive vs. 20

> hour

> > drive to Everett Wa. where I had the surgery.

> >

> > They say if they can find the Port it should be no problem

> otherwise I

> > have to make the 20 hour drive.....

> >

> > Anything I can do to make it easier for them to find the port?

> >

> > Right now I am eating what I can put on a saucer and I know Im

> loosing

> > but I wish it was faster.....guess Im impatient.

> >

> > I lost 40 lbs. prior to surgery and was asked to loose 25 so I am

> so

> > proud of myself for that.

> >

> > I will feel alot better when I can get this first adjustment

under

> my

> > belt!!

> >

> > Ken from Canada

> >

>

[Guest guest]

I'm so worried right now that something is wrong with one or both of my

CIs. For now I've decided to stop wearing my processors and try again

later to see if the dizziness goes away. It's only been 5 minutes since

I removed my processors and the silence is driving me nuts. I'm so

frustrated!!!

Bilateral Cochlear CIs

December, 2004 and February, 2006

[Guest guest]

,

My suggestion which I'm sure you've already thought of is to call your

audiologist tomorrow and get in for a mapping as soon as possible. I

fully understand the silence and how maddening it can be but coupled

with your visual issues, I cannot imagine how hard that is. I know

that when I try to walk into darkness, I have a very difficult time

when there is no sound as well.

Alice

http://www..com

>

> I'm so worried right now that something is wrong with one or both of my

> CIs. For now I've decided to stop wearing my processors and try again

> later to see if the dizziness goes away. It's only been 5 minutes since

> I removed my processors and the silence is driving me nuts. I'm so

> frustrated!!!

>

>

> Bilateral Cochlear CIs

> December, 2004 and February, 2006

>

[Guest guest]

Hi Alice,

I just sent my audi an e-mail, but will also call her tomorrow.

I thought about turing down sensitivity, but I can't because of the CTS in my

hands.

Oh well. I think I'm going to go take a nap so I can avoid the silence for

awhile.

Thanks,

Bilateral Cochlear CIs

December, 2004 and February, 2006

---- Alice <alice@...> wrote:

> ,

>

> My suggestion which I'm sure you've already thought of is to call your

> audiologist tomorrow and get in for a mapping as soon as possible. I

> fully understand the silence and how maddening it can be but coupled

> with your visual issues, I cannot imagine how hard that is. I know

> that when I try to walk into darkness, I have a very difficult time

> when there is no sound as well.

>

> Alice

> http://www..com

[Guest guest]

,

dizziness could be migraine related. Take your wrist, and go about 2

fingers width below your palm and press hard. This is an acupressure

point to relieve dizziness.

____________________________________________________________

Start your medical billing career! Click here for more information.

http://thirdpartyoffers.juno.com/TGL2141/fc/PnY6rw38dqPzPoQN9HjB02S9BKvRPGMY1fjb\

i0FRNSVraD4sqvHBR/

[Guest guest]

,

I do experience migraines, but do not have one at the moment.

By the way, I'm still dizzy. I took a nap earlier thinking that would

help, but it didn't.

Tomorrow I'm going to ask a neighbor of mine (if I can't get in to

see my audi instead) to lower the sensitivity on my processors

because I can't stand the silence.

Bilateral Cochlear CIs

December, 2004 and February, 2006

>

> ,

> dizziness could be migraine related. Take your wrist, and go

about 2

> fingers width below your palm and press hard. This is an

acupressure

> point to relieve dizziness.

>

> ____________________________________________________________

> Start your medical billing career! Click here for more information.

>

http://thirdpartyoffers.juno.com/TGL2141/fc/PnY6rw38dqPzPoQN9HjB02S9BK

vRPGMY1fjbi0FRNSVraD4sqvHBR/

>

[Guest guest]

,

Try to keep in mind that you only heard from a very small number of

people about their experiences with Orencia.

You can always ask your rheumatologist for reassurance.

Not an MD

On Wed, May 27, 2009 at 2:30 PM, Hill <www.alicia_aaron@...> wrote:

>

>

> Just wanting to know if orencia is a good treatment seems like everyone is

> saying that it only lasted for about 3-4months then it seems to wear off.

> Do I need to ask my rhuemy to try a different med before I even get started.

>

>

>

[Guest guest]

I was just wondering because I have been having so many flare ups lately till I

just want to give up.  I just want to be without pain for a little while, that

the reason I was just concerned about starting the orencia.

 

From: <Rheumatoid.Arthritis.Support@...>

Subject: Re: [ ] Concerned

Date: Wednesday, May 27, 2009, 8:51 PM

,

Try to keep in mind that you only heard from a very small number of

people about their experiences with Orencia.

You can always ask your rheumatologist for reassurance.

Not an MD

On Wed, May 27, 2009 at 2:30 PM, Hill <www.alicia_aaron@ >

wrote:

>

>

> Just wanting to know if orencia is a good treatment seems like everyone is

> saying that it only lasted for about 3-4months then it seems to wear off.

> Do I need to ask my rhuemy to try a different med before I even get started.

>

>

>