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Hi April

Estimates

----------

I have done some research on numbers and have discussed it with 3 doctors.

They all say that my estimate is " reasonable " . That doesn't mean that it is

correct - because none of them knew ... But I talked them thru my

calculations and they thought that the assumptions and final calculation was

reasonable.

I think it is around 1 in 150,000.

By the way - there is no race or geographical bias (ie - it is prevalent all

around the world). I know that in some cases it is so mild that it is

undiagnosed.

Ptosis

------

If you take a look at this article:

http://www.emedicine.com/ent/topic97.htm

You will see that that for Ptosis (the " P " part of B P E S) there are many

possible ways of getting ptosis.

Also - take a look at the section called " clinical " , you will see a

reference to " unilateral ptosis " .

Although I am not a medically trained person, based on what I have read, and

the photos I have seen, it is possible to have Ptosis in one eye.

If you are interested in seeing photos of somebody with just ptosis (ie not

BPES syndrome), then take a look here:

http://www.plasticsurgery4u.com/procedure_folder/eyelid_recon_folder/eyelid_

ptosis.html

Please note that this is not an endorsement in any way. It is simply an

apparently useful site.

However, I have never heard of anyone having BPES in just one eye. Has

anyone else?

I hope this helps April.

Regards

Shireen

> [mailto:blepharophimosis ] On Behalf Of april Eisele

> Sent: 18 October 2005 16:36

> blepharophimosis

> Subject: blepharophimosis Questions

>

> Does anyone know how many people (worldwide or

> otherwise) are estimated to have BPES? I know you can look

> up statistics on other things that say " incidence is 1 in

> every 1,000 live births " , etc. Is there a statistic like

> this for BPES? My husband asked me I have no idea.

>

> Also, this may sound a little crazy, but with BPES are both

> eyes always effected? Or is it possible that the ptosis

> would only effect one eye? Anyone know?

>

> Thanks! Have a great day!

> :) April

>

>

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Hi

If you go to Google and search on "Premature Ovarian Failure" you will see a whole bunch of sites.

This one seems to be informative:

http://www.pofsupport.org/

The information is supplied in a range of languages.

This site is pretty good too:

http://www.youngwomenshealth.org/pof.html

There is research taking place all the time. I would imagine that in the next couple of years there will be a lot more information about BPES and infertility.

Regards

Shireen

From: blepharophimosis [mailto:blepharophimosis ] On Behalf Of mieritz7@...Sent: 17 October 2005 22:28blepharophimosis Subject: Re: blepharophimosis Re: questions

Hi, I was wondering what POF was. Can you also tell me what kind of symptoms you have or had. Just wondering, Malenah is 2 and i was wondering what i can expect

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Yes it is possible to get it in only one eye. april Eisele <aprileisele@...> wrote:

Does anyone know how many people (worldwide orotherwise) are estimated to have BPES? I know you canlook up statistics on other things that say "incidenceis 1 in every 1,000 live births", etc. Is there astatistic like this for BPES? My husband asked me Ihave no idea.Also, this may sound a little crazy, but with BPES areboth eyes always effected? Or is it possible that theptosis would only effect one eye? Anyone know?Thanks! Have a great day!:) April __________________________________ Start your day with - Make it your home page! http://www./r/hs<a href="http://www.TickerFactory.com/"><img border="0" src="http://www.TickerFactory.com/ezt/d/1;14;11/st/20050609/k/3901/preg.png"></a>

Music Unlimited - Access over 1 million songs. Try it free.

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Thanks, Sharon!

:) April

--- Sharon A <besilly12000@...> wrote:

> Yes it is possible to get it in only one eye.

>

> april Eisele <aprileisele@...> wrote:Does

> anyone know how many people (worldwide or

> otherwise) are estimated to have BPES? I know you

> can

> look up statistics on other things that say

> " incidence

> is 1 in every 1,000 live births " , etc. Is there a

> statistic like this for BPES? My husband asked me I

> have no idea.

>

> Also, this may sound a little crazy, but with BPES

> are

> both eyes always effected? Or is it possible that

> the

> ptosis would only effect one eye? Anyone know?

>

> Thanks! Have a great day!

> :) April

>

>

>

>

> __________________________________

> Start your day with - Make it your home page!

>

> http://www./r/hs

>

>

>

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Hi April.. In answer to your second question... i know of a little girl here

in NZ, in Palmerston who has ptosis of one eye and not the other. I actually

met her Mum through the Little Treasures magazine before Ethan had his

surgery. She has had a few surgeries to correct the one eye but mostly have

been unsuccessful as it it pretty hard to match it up to the other eye.

I was told when Ethan was diagnosed with BPES that it was very rare but it

seems our group is growing all the time. and i wonder too.. just what the

stats are.. will be interested to hear more....

Take Care

Leah (Ethans Mum)

blepharophimosis Questions

> Does anyone know how many people (worldwide or

> otherwise) are estimated to have BPES? I know you can

> look up statistics on other things that say " incidence

> is 1 in every 1,000 live births " , etc. Is there a

> statistic like this for BPES? My husband asked me I

> have no idea.

>

> Also, this may sound a little crazy, but with BPES are

> both eyes always effected? Or is it possible that the

> ptosis would only effect one eye? Anyone know?

>

> Thanks! Have a great day!

> :) April

>

>

>

>

> __________________________________

> Start your day with - Make it your home page!

> http://www./r/hs

>

>

>

>

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  • 1 month later...

My busy time of year so no real time for a meaningful response.

Sounds like my symptoms to a " T " and I've had them for close to 30 years

(all due to constantly being misdiagnosed and written off as a hysterical

female who can't handle a little " muscle spasm " although it was obvious I

was in intense agony during these attacks). I've been doing the herbs from

sensiblehealth.com, liver flushes via s Moritz's book, now trying the

Cabot liver cleansing diet, have had a successful flush in the middle

of one of those attacks (not something I would normally recommend, just to

letting you know that I survived the worst and I still have my gallbladder).

However, I generally have my worst attack every March so I'm looking forward

to seeing how this next spring plays out.

Lori

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, I think I speak for the group when I say

1) Your symptoms sound spot-on for GB problems (each person IS different though)

2) Get the ultrasound on schedule, it's non-toxic and can be helpful

3) Prepare to get a diatribe about how you MUST have a cholecystectomy asap

4) Make the decision surgery vs. changing your life forever

5) If the latter, you came to the right place (start reading everything!)

Incidentally, the ultrasound may or may not diagnose " stones' as all the

cholesterol-based

stones pretty much look like bile under non-contrast media investigation (it IS

bile, just

hardened). The ultrasound can also see distended ducts and thickened GB walls

which also

tell a story.

Good luck and welcome,

Will in Minnesota

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  • 2 weeks later...

Hey April,

Thanks friend! You sure answered all my questions, and so thoroughly!

Malenah has been with us a year, (almost to the day!) We had our "gotcha day" on November 30th of last year, she was 16 mths, and we returned home December 9th.

I taught Kindergarten for five years, homeschool the older ones now. Anyways, I took ASL about two years ago. Isn't it funny how God totally makes things happen ahead of time, little did I know I was going to need that skill for Malenah!

I guess I didn't realize Micah is a year ahead of Malenah, for some reason I was thinking they were the same age.

I'm defiantly checking out the gymborie pants!

thanks again,

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  • 3 months later...
Guest guest

In a message dated 4/6/2006 9:36:47 AM Central Standard Time,

pastame1947@... writes:

I am from Illinois .. I am 58 years old and am married…

I joined the group last year and have been reading the post … I finally have

a appointment with a Rheumatologist on Monday … what is the first thing he

is going to do? I complained to my GP and he ran blood test and said he

thinks I have RA… I am wondering if I really do … Are there different

stages of

RA?

Thank you

D

Hello :) The Rheumatologist may order x-rays,run some blood tests, do

a physical exam of the joints... which joints do you have problems with? In

my case the doc took some fluid from my knee to have it tested as well. its

nothnig to be nervous about really. Keep us posted on how it goes. HUGS

http://www1.myspace.com/julz2kidz

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Guest guest

Hi ,

My elbows hurt my fingers hurt and my knees hurt ... but the knees is not as

bad as the elbows and fingers ...

Thank you

N2kids@... wrote:

In a message dated 4/6/2006 9:36:47 AM Central Standard Time,

pastame1947@... writes:

I am from Illinois .. I am 58 years old and am married…

I joined the group last year and have been reading the post … I finally have

a appointment with a Rheumatologist on Monday … what is the first thing he

is going to do? I complained to my GP and he ran blood test and said he

thinks I have RA… I am wondering if I really do … Are there different

stages of

RA?

Thank you

D

Hello :) The Rheumatologist may order x-rays,run some blood tests, do

a physical exam of the joints... which joints do you have problems with? In

my case the doc took some fluid from my knee to have it tested as well. its

nothnig to be nervous about really. Keep us posted on how it goes. HUGS

http://www1.myspace.com/julz2kidz

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  • 4 months later...

Hi Meredith I am from Georgia,

No sweetie you are not alone I was dx with RA and DJD in October of 2005.And

I know the kinda pain you feel. Lot of sleepness nites,crying,not be able to

walk or use your arm and hands. I was started on MTX, and Predisone, went

from those to Doxycycline and Hydroxychloroquine, and enbrel know. I have

even screamed in pillows, been to er so many times until my Dr. said that

the enbrel was the next step. The only pain med. that helped me is the

endocet,tried others but did not work even the morphine did not work. Keep

your head High and Pray this how I get through even though the pain makes

you wish you were dead. Hope you have a few pain free days soon, you will

love them. I will pray for you.

Rhonda

[ ] Questions

> Hi I'm Meredith from Canada,

>

> I was dx with RA and possibly Lupus on October 28, 2005. I am really

> struggling with pain especially in my middle back, shoulders, neck and

> chest. I am currently on Methatrexate and Hydroxychloroquine. When my

> back acts up, I find it so hard to sleep. I get worried that I will have

> a bad set back because it seems to take forever to feel better. I have

> three young children at home. Does anyone else have pain in back,

> shoulders and chest? Am I alone? I know that I'm not dying, but

> sometimes the pain is intolerable. I wish to go back to the life I had

> when I never had to think about pain or what to do to stop the pain....

> Sometimes, I can do all the right stuff and still have pain. I'm tired of

> pain.

> Thanks for listening,

> Meredith

>

>

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> Hi Meredith My name is Janet In am in IL. and yes I have alot of

back pain low all most to my sit down, shoulders hurt and sometimes I

have like a sore chest like between my brest. and I am sure others

have the same pain so no you are not alone, and welcome to the group

everyone is very helpful

Janet IN IL

> Hi I'm Meredith from Canada,

>

> I was dx with RA and possibly Lupus on October 28, 2005. I am

really struggling with pain especially in my middle back, shoulders,

neck and chest.

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Meredith,

I'm sorry to hear that you are suffering so. Have you told your

rheumatologist, in detail, about the nature and extent of your pain? Are you

taking anything else in addition to methotrexate and hydroxychloroquine?

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Questions

> Hi I'm Meredith from Canada,

>

> I was dx with RA and possibly Lupus on October 28, 2005. I am really

> struggling with pain especially in my middle back, shoulders, neck and

> chest. I am currently on Methatrexate and Hydroxychloroquine. When my

> back acts up, I find it so hard to sleep. I get worried that I will have

> a bad set back because it seems to take forever to feel better. I have

> three young children at home. Does anyone else have pain in back,

> shoulders and chest? Am I alone? I know that I'm not dying, but

> sometimes the pain is intolerable. I wish to go back to the life I had

> when I never had to think about pain or what to do to stop the pain....

> Sometimes, I can do all the right stuff and still have pain. I'm tired of

> pain.

> Thanks for listening,

> Meredith

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  • 4 months later...

Lyndsay,

Sorry about your diagnosis. What medications did your GP prescribe for you?

Fatigue is a big part of RA. It can improve with the right treatment.

The popping/cracking/creaking of joints is not exclusive to RA, but do ask

your rheumatologist about it.

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Questions

>I was diagnosed about two weeks ago by my GP with Rheumatoid

> Arthritis. He is sending me to a rheumatologist but I cannot get an

> appointment until January 17th. I have a lot of questions and I know

> some of you here can answer them. I started feeling poorly last May

> right after I turned 20. Then in August things have really gone

> downhill. The meds my GP has me on have stopped me from feeling worse,

> but I certainly don't feel better yet. One of my questions is this:

> are popping/cracking joints common with RA? I have always been able to

> pop my joints, especially my fingers, but now they crackle constantly

> and almost every time I move. It doesn't cause a great deal of pain,

> but it is NOT comfortable. I am praying to make it until the 17th and

> to get some answers from the rheumatologist at that point. Another one

> of my questions is, can RA be responsable for fatigue? I am contantly

> getting in trouble where I work for a transportation company for not

> being peppy enough and lagging behind. Any and all answers will be

> greatly appreciated.

>

> Thanks!

> Lyndsay in Houston

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  • 8 months later...

You may benefit by eating more protein and less carbs. My mother recently had

H. Pylori and I bought something from a health food store specifically for that

(can't remember the name now, but any good health food store should be able to

help you) and she's over it and feeling much better now. Her Dr. had put her on

antibiotics which was making the situation worse. Also sounds like you have a

pretty good fungal infection going on. You might want to consider taking

probiotics, and antifungals, e.g. apple cider vinegar, garlic, oregano oil (not

what you put on pizza) - like OregaMax, Caprylic acid, etc.

Amber

I have difficult time digestion

nuts and seeds, grains and some other foods. I was diagnosed with

chronic reflux for a long time and I thought it is because of reflux

and my allergies and food intolerances.

Now I got also gastritis and duodenitis from H. Pylori and Candida

infection from antibiotics I used to treat h. Pylori infection.

What would you recommend me to do

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Almost for sure you have a glitch in the production of HCL. since it would be

under not over acid you will not break down your proteins properly and would be

susceptible to yeast, fungal, bacterial infections, allergies, etc. within the

digestive tract. The gastritis and reflux being from improper opening of the

pyloric valve (sphincter). The treatment by your medical practitioner if you

are on antacids or protein pump inhibitors would help the symptom while further

creating the problem. If so, this is a very serious and difficult situation

considering the treatments up until now will have taken you farther down the

rabbit hole. Finding someone in your area that understands the digestive

process would be very important.

----- Original Message -----

From: imsinfo<mailto:imsinfo@...>

gallstones <mailto:gallstones >

Sent: Saturday, August 25, 2007 7:35 AM

Subject: Questions

Hi, everybody,

I am new to this group and have new diagnosis- cholycistitis and

deskinesia of gallbladder ducts. ( I am not sure, probably it is

obstruction). They did not find stones on ultrasound exam but I am

belching and bloated for a long time. I have difficult time digestion

nuts and seeds, grains and some other foods. I was diagnosed with

chronic reflux for a long time and I thought it is because of reflux

and my allergies and food intolerances.

Now I got also gastritis and duodenitis from H. Pylori and Candida

infection from antibiotics I used to treat h. Pylori infection.

I had few coffer enemas but I really didn't feel well after that. I

was trembling and weak so I stopped to do it. I have many herbs to

flush gallbladder but I am afraid to take it because I am afraid that

my gastritis will get worse after that. I am using liver massage only.

What would you recommend me to do

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I find that lemon is one of the best gallbladder, candida, aches and

pains, etc. helper. I have releived all of those symproms during a few

months of performing the master cleanse in combination with several

lever cleanses. It alkalizes the body as well which helps with so many

distresses. Lemon seems to be something that really helps the

liver/gallbladder as well. Candida is also causes by a ph imbalance

which the lemon seems to take care of. Apple cider vinegar and

blackstrap molasses are other alkalizing

foods as well.

I would also use milk thistle and other gallbladder herbs aw well. If

you have an obstruction. maybe try epsom salts(magnesium sulfate) to

relax the bile dust and see if the obstruction will pass. I would be

not inclined to try the cleanse to force the obstruction out until I new

what the obstruction was.

Like Dave said The Gerd is likely a problem of too little acid as

compared with too much acid. I take betain Hydrochloride and digestive

enzymes to help with the GERD problem as it is too little acid causing

the food to not dump properly and backup into the esophogus. Some of

the duodenitis problem could also be caused by the gallbladder dumping

bile and burning a hole as that happened to me as well.

G Murray

imsinfo wrote:

> Hi, everybody,

>

> I am new to this group and have new diagnosis- cholycistitis and

> deskinesia of gallbladder ducts. ( I am not sure, probably it is

> obstruction). They did not find stones on ultrasound exam but I am

> belching and bloated for a long time. I have difficult time digestion

> nuts and seeds, grains and some other foods. I was diagnosed with

> chronic reflux for a long time and I thought it is because of reflux

> and my allergies and food intolerances.

> Now I got also gastritis and duodenitis from H. Pylori and Candida

> infection from antibiotics I used to treat h. Pylori infection.

> I had few coffer enemas but I really didn't feel well after that. I

> was trembling and weak so I stopped to do it. I have many herbs to

> flush gallbladder but I am afraid to take it because I am afraid that

> my gastritis will get worse after that. I am using liver massage only.

>

> What would you recommend me to do

>

>

>

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In a message dated 8/27/2007 5:48:22 P.M. Eastern Daylight Time,

kgtnm@... writes:

I do this for a 6-8 weeks

during the summer .

Thanks, but do you still have stones lodged in your gall bladder... or is

your recipe/ routine simply for maintenance purposes while existing with stone?

I have a stone or, perhaps, stone(s) now and dietary changes have curtailed

my mild attacks. I haven't had the opportunity to flush again in a while. God

bless those who discipline themselves like you yourself describe.

Regards,

-Fran

************************************** Get a sneak peek of the all-new AOL at

http://discover.aol.com/memed/aolcom30tour

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Master cleanse (mastercleanse.com) is the good way to clean our body but it

also need big willpower and self - control, try to search more information on

this one, I like it, it can detox our body very well, but we have to be careful

about the detox symptom (look at the site or the book from library or buy it on

line) which can make us give up after doing it a little while. (Min is 10 days

to see the result!!) Then, liver flush to help clean our liver and keep doing

that every two week, seach the website of curezone.com. They have many methods

and we can choose the best one we like. Eat clean food, fruits and veggies,

omega 3, flax seed, no junk food or white, wheat product, etc. no fast food, I

also have a very serious of leaky gut symptom and no one can help me figure out

(I mean MD doctors, they just want me to take ibuprophin for one months with

very high dose, I couldn't believe it and I did fall into it and nothing was

happened except my i hurt my liver more, I

still had pain all over and the shot of cortisone, wasn't work!). I almost gave

up and just accept my destiny to be in pain for the rest of my life. Anyway, I

went to church and pray to God. God helps me (by Holy Spirit) to seach for the

alternative treatment and I found lot of good website from internet to cure my

pain body -hands. Now, I am pain freel with no cost of doctors visit. Thanks

and praise GOD. It is tough to not be able to eat the (junk) food you love,

but if you can avoid all transfats, sugar, white or wheat, etc. and keep

exercise your body, mind, and spirit, (walking is the best way, praying, or

meditation also good for mind), we can have good health by taking care of our

own body without paying the money to the doctors who just use only medicine to

treat patients. If you can practice self discipline - you can do everything.

With encouragement and God bless you. Good luck.From: imsinfo

[mailto: imsinfo@...]gallstones@...: Sat, 25 Aug 2007

14:35:50 -0000Subject: Questions

Hi, everybody,I am new to this group and have new diagnosis- cholycistitis and

deskinesia of gallbladder ducts. ( I am not sure, probably it is obstruction).

They did not find stones on ultrasound exam but I am belching and bloated for a

long time. I have difficult time digestion nuts and seeds, grains and some other

foods. I was diagnosed with chronic reflux for a long time and I thought it is

because of reflux and my allergies and food intolerances.Now I got also

gastritis and duodenitis from H. Pylori and Candida infection from antibiotics I

used to treat h. Pylori infection.I had few coffer enemas but I really didn't

feel well after that. I was trembling and weak so I stopped to do it. I have

many herbs to flush gallbladder but I am afraid to take it because I am afraid

that my gastritis will get worse after that. I am using liver massage only.What

would you recommend me to do

_______________________________________________

No banners. No pop-ups. No kidding.

Make My Way your home on the Web - http://www.myway.com

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Hi

I do the master cleanse but I start it with a liver cleanse and end it

with a liver cleanse and then every two weeks after that I doa mini 4-5

day cleanse ending with a liver cleanse. I do this for a 6-8 weeks

during the summer . I try to stay away from wheat, potato(nightshade),

dairy and coffee during that time and see amazing results. Then the

rest of the time I slowly give in and go back to my bad ways until I

feel lethargic and ill feeling again and then I start over. When I

start to feel liver issues I know I have to go back to the lemonade again.

G Murray

Follower wrote:

> Master cleanse (mastercleanse.com) is the good way to clean our body

> but it also need big willpower and self - control, try to search more

> information on this one, I like it, it can detox our body very well,

> but we have to be careful about the detox symptom (look at the site or

> the book from library or buy it on line) which can make us give up

> after doing it a little while. (Min is 10 days to see the result!!)

> Then, liver flush to help clean our liver and keep doing that every

> two week, seach the website of curezone.com. They have many methods

> and we can choose the best one we like. Eat clean food, fruits and

> veggies, omega 3, flax seed, no junk food or white, wheat product,

> etc. no fast food, I also have a very serious of leaky gut symptom and

> no one can help me figure out (I mean MD doctors, they just want me to

> take ibuprophin for one months with very high dose, I couldn't believe

> it and I did fall into it and nothing was happened except my i hurt my

> li still had pain all over and the shot of cortisone, wasn't work!). I

> almost gave up and just accept my destiny to be in pain for the rest

> of my life. Anyway, I went to church and pray to God. God helps me (by

> Holy Spirit) to seach for the alternative treatment and I found lot of

> good website from internet to cure my pain body -hands. Now, I am pain

> freel with no cost of doctors visit. Thanks and praise GOD. It is

> tough to not be able to eat the (junk) food you love, but if you can

> avoid all transfats, sugar, white or wheat, etc. and keep exercise

> your body, mind, and spirit, (walking is the best way, praying, or

> meditation also good for mind), we can have good health by taking care

> of our own body without paying the money to the doctors who just use

> only medicine to treat patients. If you can practice self discipline -

> you can do everything. With encouragement and God bless you. Good luck.---

>

> On Sat 08/25,

>

> imsinfo & lt; imsinfo@ [mailto:

> <mailto:imsinfo%40>imsinfo@...

> <mailto:imsinfo%40>]

>

> gallstones <mailto:gallstones%40Date>

>

> Date <mailto:gallstones%40Date>: Sat, 25 Aug 2007

> 14:35:50 -0000

>

> Subject: Questions

>

>

>

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Hi Fran,

Thanks, but do you still have stones lodged in your gall bladder... or is

your recipe/ routine simply for maintenance purposes while existing with

stone?

As you can see, I call it a liver cleanse as I dont have a gallbladder

any more. I do have crud lodged in my liver that accumulates and is

expelled during my series of liver cleansing. I have on many occasions

experienced pain which quite resembled stuck stones in the bile ducts

and I have assumed stones are then stuck in the bile ducts as when I

start the liver cleansing this pain goes away. The first time I

followed this routine it took at least 6-7 cleanses for the bile which

was a very bright thick orange to change to the normal darker pea

green. I scared me as just before I started, my bowel movements went to

white which means that bile was not flowing through at that time.

Something was stuck in the bile duct. The sludge is just the beggining

stages of stones, so I can only imagine what is lurking deep down in the

biliary tubing that has not been pushed out yet.

I have a stone or, perhaps, stone(s) now and dietary changes have

curtailed my mild attacks. I haven't had the opportunity to flush again

in a while

I would still drink the lemon even though you may not beable to fast.

drinking the lemon alone can do great changes for the body even if you

are not following the MC or the Liver flushes.

Also, olive oil, cocnut oil and flax oil will be another of your choices

for good gallbladder health. Check out changs dissolving herbs

and milk thistle as well.

I strongly believe in the e style flushing but I must say that if

there is any problems like growths or cancers that it be done with a

natural path or other physicians ok. I do have yearly imaging done

because of my enlarged spleen so I do know what my liver is doing.

I was not in the know at the time of losing my gallbladder that there

was alternatives to the surgery. The surgery took place just before I

was starting to surf the internet for health related issues. I found

Dusan, the creator of Curezone, and he helped me through some tough

spots recuperating from gall bladder issues that followed.

God bless those who discipline themselves like you yourself describe.

When you get sick enough you will comply or die!

G Murray

franniboy@... wrote:

>

> In a message dated 8/27/2007 5:48:22 P.M. Eastern Daylight Time,

> kgtnm@... <mailto:kgtnm%40sasktel.net> writes:

>

> I do this for a 6-8 weeks

> during the summer .

>

>

>

>

> __,_._,_

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someone has posted and not put their name at the end of the letter, but someone

called follower?

I agree its very difficult giving up junk foods, and to think that these foods

are useless to us, and yet we get addicted to them!

I think its important to go back to old community ways of food preparation where

possible..such as making home made cultured foods..

these are good for the whole digestion and taste very nice too. One can add in

herbs and garlic too..and all so cheap to make. I bought a pickling jar..but

people can probably make their own..take a look at www.perfectpickler.com no

I am not affiliated with them..just promoting what I think is a brilliant

product.

anne

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  • 3 weeks later...

Hi Friends,

Wondering if a child can be on more than one ssri at a time or is that a no no.

Are the antifungals are switched yearly or every 6 months. When we talk of

titers going up or is it specifically hhv or cbc in general. Wondering out loud.

thks Kavita

________________________________________________________________________________\

____

Moody friends. Drama queens. Your life? Nope! - their life, your story. Play

Sims Stories at Games.

http://sims./

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We have discussed with Dr G 2 ssri's at a time, becauue some things

were better on one ssri, some better on another. He said he had no

data to base it on, and asked us to inquire within the medical

research groups we have some connection with on if theoretically this

is OK. We have found no confirmation that this is known or has been

studied in depth, so right now I think it is no. (someone please

correct me if you are doing this!) We do however have our son on an

ssri and an snri. (prozac and wellbutrin) This is an OK combination.

Antifungals are switched 6 months - a year depending on how child is

doing.

My son's HHV6 titer has been good for a long time, but his ebv and

cmv are slightly high. Also, when on lower doses of antiviral, my

son starts to go downhill and his SGOT goes up (liver enzyme).

Increasing the antiviral brings this back in range. EOS and ANA

are closely monitored too.

Hope this helps

--- In , kavita mallik <kavita_d_mallik@...>

wrote:

>

> Hi Friends,

>

> Wondering if a child can be on more than one ssri at a time or is

that a no no. Are the antifungals are switched yearly or every 6

months. When we talk of titers going up or is it specifically hhv or

cbc in general. Wondering out loud. thks Kavita

>

>

>

>

______________________________________________________________________

______________

> Moody friends. Drama queens. Your life? Nope! - their life, your

story. Play Sims Stories at Games.

> http://sims./

>

>

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