Guest guest Posted May 31, 2000 Report Share Posted May 31, 2000 Kathy, dont believe everything you read!! seriously, they are far behind on everything. The registration packages have not been mailed out. I heard that the cost is $125US but I'm not sure if its accurate. as far as presenters go, there is a list on the site which is pretty vague. I know that Kathy h. and I are presenting our workshop on Friday night (good thing there is a time change or Kathy would fall asleep!). I'll post as soon as I hear anything concrete. take care, wendy, in canada ============================ >Hi list, has anyone received the conference registration materials from the >Foundation yet? I haven't, their site says they were to be mailed out in >April. > >Kathy R. in Indiana ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2000 Report Share Posted May 31, 2000 oops, I didn't register, didn't even occur to me -duh! do ya hafta? Dana in NC Kathy wrote: > Hi list, has anyone received the conference registration materials from the > Foundation yet? I haven't, their site says they were to be mailed out in > April. > > Kathy R. in Indiana > > ------------------------------------------------------------------------ > Hot off the press- summer's here! > School's out and it's sizzling hot. Whether you're planning a > graduation party, a summer brunch, or simple birthday party, > shop GreatEntertaining.com before your next celebration. > 1/4473/5/_/531051/_/959744317/ > ------------------------------------------------------------------------ > > You may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. The Archives, Files, and Features List for the may be accessed by going to , enter your email address and password, then point and click. Subscription issues, problems, or suggestions may be addressed to Louis Harkins, list owner, at harkins@... . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2000 Report Share Posted May 31, 2000 In a message dated 5/31/00 7:19:42 AM Eastern Daylight Time, clayvon@... writes: << oops, I didn't register, didn't even occur to me -duh! do ya hafta? Dana in NC >> Dana, Same here...Do you know if there is a set fee for the whole conference or do you have to pay for specific days and lectures? I've never been to one of these before and I'm going on my own so I'm a little nervous. I don't want to get there and then find out I can't even attend the conference! Help!! Any information would be very much appreciated and would greatly decrease my already high anxiety levels about going. Noelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2000 Report Share Posted May 31, 2000 Hi Kathy, Thank you for your words of encouragement. I am determined to go even if my son doesn't. I will not give up trying to get him to change his mind. I don't know why he is so resistant. I'm thinking maybe it's because he thinks it is cutting into his summer " free time " or now that he is so much better OCD wise, it seems as though he doesn't want to linger on the subject....is it denial or is this normal?? I can't figure it out yet. His doctor, Lee Fitzgibbons, has encouraged him to go because she will be there and will be running a children/teens group and she thought he would be inspirational to some of the children because of how much progress he has made and how his life has changed. Maybe that's it...I don't know at this point. I'm just trying to get him through the end of the school year right now and out of his freshman year. We had our CSE meeting last Friday and it lasted 3 hours but we came out getting what we asked for. The two things that helped most were a great book titled slaw and meeting with an advocate before the CSE to make sure I was within my rights legally to ask for the supports my son needed. That's one hurdle down, one to go and then I can start planning for the conference in August. I'm looking forward to meeting you there too. Noelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2000 Report Share Posted May 31, 2000 HI: There is typically a set fee for the entire conference. I know I felt anxious when I went to my first OCF conference, mostly about how Steve would handle the trip as he was so very sick then. ly it was a measure of my desperation to find treatment for him that I was flying him thousands of miles even though air travel triggered his OCD very badly. It was incredibly freeing for him to meet so many other OCDers and I felt a wash of tremendous relief at the first session I attended with Steve. Just sitting there with hundreds of people with OCD around us felt cathartic as I had promised him I would find another person with OCD for him to meet so he didn't have to feel so odd. He also got to see Mark McGwire hit a home run. The hotel bedding was mega-contaminated but he really enjoyed meeting other kids with OCD. I also was able to observe some knowledgeable docs treating contamination OCD in the women's bathroom and got some very good CBT tips. Noelle, I am looking forward to meeting you in Schaumburg. Just let me know what else is worrying you and I will try not to be too reassuring. Good luck, happy travels, aloha, Kathy (H) kathyh@... At 11:55 AM 05/31/2000 -0400, you wrote: >In a message dated 5/31/00 7:19:42 AM Eastern Daylight Time, >clayvon@... writes: > ><< > oops, I didn't register, didn't even occur to me -duh! do ya hafta? > Dana in NC >> > >Dana, >Same here...Do you know if there is a set fee for the whole conference or do >you have to pay for specific days and lectures? I've never been to one of >these before and I'm going on my own so I'm a little nervous. I don't want >to get there and then find out I can't even attend the conference! Help!! >Any information would be very much appreciated and would greatly decrease my >already high anxiety levels about going. >Noelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2000 Report Share Posted May 31, 2000 HI: There is typically a set fee for the entire conference. I know I felt anxious when I went to my first OCF conference, mostly about how Steve would handle the trip as he was so very sick then. ly it was a measure of my desperation to find treatment for him that I was flying him thousands of miles even though air travel triggered his OCD very badly. It was incredibly freeing for him to meet so many other OCDers and I felt a wash of tremendous relief at the first session I attended with Steve. Just sitting there with hundreds of people with OCD around us felt cathartic as I had promised him I would find another person with OCD for him to meet so he didn't have to feel so odd. He also got to see Mark McGwire hit a home run. The hotel bedding was mega-contaminated but he really enjoyed meeting other kids with OCD. I also was able to observe some knowledgeable docs treating contamination OCD in the women's bathroom and got some very good CBT tips. Noelle, I am looking forward to meeting you in Schaumburg. Just let me know what else is worrying you and I will try not to be too reassuring. Good luck, happy travels, aloha, Kathy (H) kathyh@... At 11:55 AM 05/31/2000 -0400, you wrote: >In a message dated 5/31/00 7:19:42 AM Eastern Daylight Time, >clayvon@... writes: > ><< > oops, I didn't register, didn't even occur to me -duh! do ya hafta? > Dana in NC >> > >Dana, >Same here...Do you know if there is a set fee for the whole conference or do >you have to pay for specific days and lectures? I've never been to one of >these before and I'm going on my own so I'm a little nervous. I don't want >to get there and then find out I can't even attend the conference! Help!! >Any information would be very much appreciated and would greatly decrease my >already high anxiety levels about going. >Noelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2000 Report Share Posted June 2, 2000 HI Noelle: What you describe about not being interested in doing things related to OCD is very familiar to me. Perhaps by focusing on the fun to be had, e.g. swimming in the hotel pool, socializing, playing tourist, or whateve your son likes to do might change his focus. It is very hard for them to think of standing out in public about their OCD. However I do think it is a very powerful experience. Sometimes when I want Steve to reflect on something and reconsider I have to back off completely and act as if I don't have any feelings one way or another. Please tell your son there will be other kids there that he can hang with. Also there are lots of fun things to do in Chicago. We always combine conferences with visit to Science centers and museums, things which are few and far between in our rural backwater. I am sure you have lots of ideas of making the trip seem like a fun prospect without dwelling on OCD issues. Good job on the CSE meeting. Soon you will know more than the school administrators and can be a resource for them at these meetings :-)) Take care, aloha, kathy (H) kathyh@... You wrote: >>Hi Kathy, >>>Thank you for your words of encouragement. I am determined to go even if >my >>>son doesn't. I will not give up trying to get him to change his mind. I >>>don't know why he is so resistant. I'm thinking maybe it's because he >>thinks >>>it is cutting into his summer " free time " or now that he is so much better >>>OCD wise, it seems as though he doesn't want to linger on the subject....is >>>it denial or is this normal?? I can't figure it out yet. His doctor, Lee >>>Fitzgibbons, has encouraged him to go because she will be there and will be >>>running a children/teens group and she thought he would be inspirational to >>>some of the children because of how much progress he has made and how his >>>life has changed. Maybe that's it...I don't know at this point. I'm just >>>trying to get him through the end of the school year right now and out of >>his >>>freshman year. We had our CSE meeting last Friday and it lasted 3 hours >but >>>we came out getting what we asked for. The two things that helped most >were >>>a great book titled slaw and meeting with an advocate before the CSE >>to >>>make sure I was within my rights legally to ask for the supports my son >>>needed. >>>That's one hurdle down, one to go and then I can start planning for the >>>conference in August. I'm looking forward to meeting you there too. >>>Noelle > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2000 Report Share Posted June 2, 2000 ----- Original Message ----- From: " Kathy Hammes " <kathyh@...>> > What you describe about not being interested in doing things related to OCD > is very familiar to me. When my daughter's symptoms are low she wants nothing to do with anything related to OCD--doctor's visits, talking about it, CBT, etc. It seems she just wants to " forget " about OCD and take advantage of the respite. > Sometimes when I want Steve to reflect on something and reconsider I have > to back off completely and act as if I don't have any feelings one way or > another. My daughter tells me OCD " wants her to be confusing " or that it " wants her to frustrate and upset people. " When I make it plain that something is important to me, I often end up triggering this part of her OCD. Usually, the more I care about something the less I act as if it matters. I don't know how common compulsions to frustrate or confuse are (I haven't noticed others describing them) but these have been with Kel since her OCD onset. BTW, E & RP suggestions for these would be very welcome! These are the symptoms that probably cause her the most trouble in school--which is over as of yesterday YEAH! Kathy R. in Indiana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2000 Report Share Posted June 2, 2000 Hi Kathy: You are making a very important point. We need to ensure our kids realize that to us they are way, way, way more than their OCD dx. I know my obsession to know about how to cope with OCD does annoy Steve a bit, although he is pleased and sometimes relieved that I have learned enough to help him navigate with docs and be his case manager. One way we can connect together well is to talk about Science which is a love of both of ours and since he is doing a lot of dissection at school right now, it is related to OCD but not discussed in that context. One thing that has been working well that I got from another parent on the list - sorry I have forgotten who, please remind me - is to just say " Hello OCD " . It is done with humor and surprise and seems to work reasonably well with many varieties of OCD symptoms. Steve also says " Hello OC " to me when he thinks I am going over the top about things. The rest of the family has followed suit and we are often in stitches about it. It really does help OCD be a separate thing in our lives. Perhaps you can use this for the frustrating and confusing rituals, that way you can develop the same reputation I have in my family of having a terribly poor sense of humor :-)) Take care, aloha, Kathy (H) kathyh@... At 09:37 AM 06/02/2000 -0500, you wrote: > >----- Original Message ----- >From: " Kathy Hammes " <kathyh@...>> > >> What you describe about not being interested in doing things related to >OCD >> is very familiar to me. > >When my daughter's symptoms are low she wants nothing to do with anything >related to OCD--doctor's visits, talking about it, CBT, etc. It seems she >just wants to " forget " about OCD and take advantage of the respite. > >> Sometimes when I want Steve to reflect on something and reconsider I have >> to back off completely and act as if I don't have any feelings one way or >> another. > >My daughter tells me OCD " wants her to be confusing " or that it " wants her >to frustrate and upset people. " When I make it plain that something is >important to me, I often end up triggering this part of her OCD. Usually, >the more I care about something the less I act as if it matters. I don't >know how common compulsions to frustrate or confuse are (I haven't noticed >others describing them) but these have been with Kel since her OCD onset. >BTW, E & RP suggestions for these would be very welcome! These are the >symptoms that probably cause her the most trouble in school--which is over >as of yesterday YEAH! > >Kathy R. in Indiana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2003 Report Share Posted June 6, 2003 i was wondering if we are to still mail our registration form out or if we have to doit on site? so if any one could give me an idea as to what to do now that would be great! thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2003 Report Share Posted June 7, 2003 , At this point, it would be better to register on-site at the Boston Conference, rather than risking that your registration gets through the mail to Texas, then processed and back to Boston before the conference begins. Ron Piro Boston Conference Committee > i was wondering if we are to still mail our registration form out or > if we have to doit on site? so if any one could give me an idea as > to what to do now that would be great! thanks. > > Quote Link to comment Share on other sites More sharing options...
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