Re: Pregnancy/OB Issues in LPs Study

[Guest guest]

Dee,

Hi my name is Sara Willis. I am an Lp Mom of our wonderful boy .

is an achon like me. His father is an AP. If you are still looking for people

for your study, please let me know if I can help.

Best wishes,

Sara Willis - TX

Dee <spirit.miller@...> wrote:

Hello,

I wanted to drop in here and ask the lp moms to please consider joining the

Pregnancy/OB/Anesthesia Study that is currently underway. We hope to have

at least 50 studies returned by Milwaukee. If you are an lp and over the

age of 18 you would have received the information in the mail. We are

gathering information on anesthesia versus epidural for delivery in

c-section of dwarf women. It you have had at least one pregnancy, no matter

the outcome, your information may be helpful for those planning future

pregnancies. The LPA/MAB has approved this study and Drs.Hoover-Fong,

Krakow and Rossiter are part of it. If you are interested in taking part

in our study, or, would like more information, please do not hesitate to

contact me. Thank you, Dee

[Guest guest]

Hello,

My name is I am a lp mom to 2 great kids, who are cross dominant,

i am Achon, and their dad is SED-C and the kiddos have both, also have trachs,

my son was on the Vent for 3 years of his life and we're looking at a great life

ahead for both...if you need some more ppl for your study, I would be glad to

talk to you..

Abilene, Texas

sara willis <bluemommy74@...> wrote:

Dee,

Hi my name is Sara Willis. I am an Lp Mom of our wonderful boy .

is an achon like me. His father is an AP. If you are still looking for people

for your study, please let me know if I can help.

Best wishes,

Sara Willis - TX

Dee <spirit.miller@...> wrote:

Hello,

I wanted to drop in here and ask the lp moms to please consider joining the

Pregnancy/OB/Anesthesia Study that is currently underway. We hope to have

at least 50 studies returned by Milwaukee. If you are an lp and over the

age of 18 you would have received the information in the mail. We are

gathering information on anesthesia versus epidural for delivery in

c-section of dwarf women. It you have had at least one pregnancy, no matter

the outcome, your information may be helpful for those planning future

pregnancies. The LPA/MAB has approved this study and Drs.Hoover-Fong,

Krakow and Rossiter are part of it. If you are interested in taking part

in our study, or, would like more information, please do not hesitate to

contact me. Thank you, Dee

[Guest guest]

Hi Dee,

I am also a lp Mom. I'll do your survey. Send me you're survey and

I'll be happy to answer your questions. I had anesthesia when I had

my c-section. The hospital wanted to give me a spinal and I

refused, I told them my spine was too narrow, they agreed.

Good to see you on here.

Sincerely,

Patti

In dwarfism , " Dee " <spirit.miller@...> wrote:

>

> Hello,

>

> I wanted to drop in here and ask the lp moms to please consider

joining the

> Pregnancy/OB/Anesthesia Study that is currently underway. We hope

to have

> at least 50 studies returned by Milwaukee. If you are an lp and

over the

> age of 18 you would have received the information in the mail.

We are

> gathering information on anesthesia versus epidural for delivery in

> c-section of dwarf women. It you have had at least one pregnancy,

no matter

> the outcome, your information may be helpful for those planning

future

> pregnancies. The LPA/MAB has approved this study and Drs.Hoover-

Fong,

> Krakow and Rossiter are part of it. If you are interested in

taking part

> in our study, or, would like more information, please do not

hesitate to

> contact me. Thank you, Dee

>

>

>

[Guest guest]

Dee,

My name is Lizzie and I am 3' 7 " I had a baby girl last may and am interested

in the study. I am interested in your study.

Thanks,

Lizzie

sara willis <bluemommy74@...> wrote:

Dee,

Hi my name is Sara Willis. I am an Lp Mom of our wonderful boy .

is an achon like me. His father is an AP. If you are still looking for people

for your study, please let me know if I can help.

Best wishes,

Sara Willis - TX

Dee <spirit.miller@...> wrote:

Hello,

I wanted to drop in here and ask the lp moms to please consider joining the

Pregnancy/OB/Anesthesia Study that is currently underway. We hope to have

at least 50 studies returned by Milwaukee. If you are an lp and over the

age of 18 you would have received the information in the mail. We are

gathering information on anesthesia versus epidural for delivery in

c-section of dwarf women. It you have had at least one pregnancy, no matter

the outcome, your information may be helpful for those planning future

pregnancies. The LPA/MAB has approved this study and Drs.Hoover-Fong,

Krakow and Rossiter are part of it. If you are interested in taking part

in our study, or, would like more information, please do not hesitate to

contact me. Thank you, Dee

[Guest guest]

Hello Dee,

I am 4'4 " had my son whom will be 20 in November by C-Section. I had a

epidural if you would like any more information in my delivery in which I

would be glad to participate in your survey. Please contact me.

Thanks,

Pregnancy/OB Issues in LPs Study

> Hello,

>

> I wanted to drop in here and ask the lp moms to please consider joining

> the

> Pregnancy/OB/Anesthesia Study that is currently underway. We hope to have

> at least 50 studies returned by Milwaukee. If you are an lp and over the

> age of 18 you would have received the information in the mail. We are

> gathering information on anesthesia versus epidural for delivery in

> c-section of dwarf women. It you have had at least one pregnancy, no

> matter

> the outcome, your information may be helpful for those planning future

> pregnancies. The LPA/MAB has approved this study and Drs.Hoover-Fong,

> Krakow and Rossiter are part of it. If you are interested in taking part

> in our study, or, would like more information, please do not hesitate to

> contact me. Thank you, Dee

>

>

>

[Guest guest]

I am an Little person mom. I have had 4 pregnancies. I have 3 children, one

is AH and the other two are LPs. I misscarried my first.. My husband is an LP.

Be glad to help. Marilyn Artran

[Guest guest]

I am an LP and am Mom to Drake who is AH as is his dad...let me know

if I can help!

> Hello,

>

> I wanted to drop in here and ask the lp moms to please consider

joining the

> Pregnancy/OB/Anesthesia Study that is currently underway. We hope

to have

> at least 50 studies returned by Milwaukee. If you are an lp and

over the

> age of 18 you would have received the information in the mail.

We are

> gathering information on anesthesia versus epidural for delivery in

> c-section of dwarf women. It you have had at least one pregnancy,

no matter

> the outcome, your information may be helpful for those planning

future

> pregnancies. The LPA/MAB has approved this study and Drs.Hoover-

Fong,

> Krakow and Rossiter are part of it. If you are interested in

taking part

> in our study, or, would like more information, please do not

hesitate to

> contact me. Thank you, Dee

>

>

>

[Guest guest]

Marilyn,

How are you? So glad you are willing to do our study. I just need to know

the basics so I can send you our study.

Full Name:

Address

Phone

I will send you 4 sets, one for each pregnancy. I am ready for another

cruise!!!!

Dee

# of pregnancies you have had no matter the outcome.

On 3/15/06, EMANEE@... <EMANEE@...> wrote:

>

> I am an Little person mom. I have had 4 pregnancies. I have 3 children,

> one

> is AH and the other two are LPs. I misscarried my first.. My husband is an

> LP.

> Be glad to help. Marilyn Artran

>

>

>

[Guest guest]

I am a 46 year old LP and I have been pregnant twice. One resulted in a pre

mature birth where the baby lived for only an hour. She was found to be

born with a chromosome disorder called Trisomy 13 which is almost always

fatal. The other resulted in a normal healthy son who is now just turned

thirteen. I would be happy to be on your study if you want to contact me.

Sabrena

[Guest guest]

--

Hi,

I would be happy to participate in the study. I am an LP mom. I

have hypochondroplasia. My kids are 14 and 13 years old. My

daughter is average height and my son has an undiagnosed skeletal

dysplasia. I live in Canada.

- Marjorie

- In dwarfism , " Dee " <spirit.miller@...>

wrote:

>

> Hello,

>

> I wanted to drop in here and ask the lp moms to please consider

joining the

> Pregnancy/OB/Anesthesia Study that is currently underway. We hope

to have

> at least 50 studies returned by Milwaukee. If you are an lp and

over the

> age of 18 you would have received the information in the mail.

We are

> gathering information on anesthesia versus epidural for delivery in

> c-section of dwarf women. It you have had at least one pregnancy,

no matter

> the outcome, your information may be helpful for those planning

future

> pregnancies. The LPA/MAB has approved this study and Drs.Hoover-

Fong,

> Krakow and Rossiter are part of it. If you are interested in

taking part

> in our study, or, would like more information, please do not

hesitate to

> contact me. Thank you, Dee

>

>

>

[Guest guest]

Hi Marj. I didn't know you were on the dwarfism list! I thought you were just

on the sed list. We got a mailing offering for Jarrod to go to camp for a week

in California courtesy of LPA. He is really excited. Guess they are grouping

the kids according to dwarfism type so the playing field is leveled. I don't

think it covers the kids out of district 12 but it would be nice if your

was there. I think the ages are from 15 down.

Have you received anything about this yet?

Willow

-------------- Original message from " mjm582002 " <marjiemurray@...>:

--------------

> --

> Hi,

>

> I would be happy to participate in the study. I am an LP mom. I

> have hypochondroplasia. My kids are 14 and 13 years old. My

> daughter is average height and my son has an undiagnosed skeletal

> dysplasia. I live in Canada.

>

> - Marjorie

> - In dwarfism , " Dee "

> wrote:

> >

> > Hello,

> >

> > I wanted to drop in here and ask the lp moms to please consider

> joining the

> > Pregnancy/OB/Anesthesia Study that is currently underway. We hope

> to have

> > at least 50 studies returned by Milwaukee. If you are an lp and

> over the

> > age of 18 you would have received the information in the mail.

> We are

> > gathering information on anesthesia versus epidural for delivery in

> > c-section of dwarf women. It you have had at least one pregnancy,

> no matter

> > the outcome, your information may be helpful for those planning

> future

> > pregnancies. The LPA/MAB has approved this study and Drs.Hoover-

> Fong,

> > Krakow and Rossiter are part of it. If you are interested in

> taking part

> > in our study, or, would like more information, please do not

> hesitate to

> > contact me. Thank you, Dee

> >

> >

> >

[Guest guest]

-

Hi Willow,

I just recently joined the group.

That is wonderful that Jarrod is going to camp. He will have so

much fun. I wish we lived in the United States. Little People of

America is such an amazing group.

I would have loved it if could have gone also. It would be

so great for Jarrod and to get to know each another.

Marjorie

was home from school today because of hip pain. Somedays are

so much worse than others.

-- In dwarfism , willow.snow@... wrote:

>

> Hi Marj. I didn't know you were on the dwarfism list! I thought

you were just on the sed list. We got a mailing offering for Jarrod

to go to camp for a week in California courtesy of LPA. He is

really excited. Guess they are grouping the kids according to

dwarfism type so the playing field is leveled. I don't think it

covers the kids out of district 12 but it would be nice if your

was there. I think the ages are from 15 down.

> Have you received anything about this yet?

> Willow

[Guest guest]

Dear Dee,

It's been a while since I've seen or visited with you. I would be more that

happy to be a part of your Pregnancy/Ob study. Send me whatever info I need to

fill out, and I will be glad to send it in....

Until then, I remain

Barbara Ann Stidman

[Guest guest]

Hello

I had a baby 7 months ago by C-section. I had an epidural, my

anesthesiologist said that it was safer than going under. I had a wonderful

experience I can help you with the study. I am an acon dwarf. Let me know what

all I need to do

Diane

Dee <spirit.miller@...> wrote:

Hello,

I wanted to drop in here and ask the lp moms to please consider joining the

Pregnancy/OB/Anesthesia Study that is currently underway. We hope to have

at least 50 studies returned by Milwaukee. If you are an lp and over the

age of 18 you would have received the information in the mail. We are

gathering information on anesthesia versus epidural for delivery in

c-section of dwarf women. It you have had at least one pregnancy, no matter

the outcome, your information may be helpful for those planning future

pregnancies. The LPA/MAB has approved this study and Drs.Hoover-Fong,

Krakow and Rossiter are part of it. If you are interested in taking part

in our study, or, would like more information, please do not hesitate to

contact me. Thank you, Dee

[Guest guest]

Hello,

I am achon, and i have a 6 year old and a 3 1/2 month old. I had a C-Section

with both of them, the first one I had epidural and the second one they tried

the epidural but couldnt get it, so i was put to sleep.. I will be glad to

help with the study.

Thanks,

[Guest guest]

Marilyn,

Hope all is well with you and your family. Seasons are changing here now,

leaves are just about through their color display. Just wanted to drop you

another line and say how important your numbers are to our study. I can

send you another set if you would like? Your input is also important

because you successfully delivered 3 children and what that affect may have

had on your back. There are still some out there who feel carrying a

pregnancy would give them an early onset of back problems.

My friend and I have signed on for the Alaska cruise. I would guess you

have already been there since you are on the West Coast?

Take care,

Dee

On 3/15/06, EMANEE@... <EMANEE@...> wrote:

>

> I am an Little person mom. I have had 4 pregnancies. I have 3 children,

> one

> is AH and the other two are LPs. I misscarried my first.. My husband is an

> LP.

> Be glad to help. Marilyn Artran

>

>

>

[Guest guest]

Does anyone know if Dr. Krakow is still doing this study? I dropped by

Cedars this week and just thought about it during a check-up. I

haven't done it yet.

Thank you!

-Ellen