Guest guest Posted October 13, 2004 Report Share Posted October 13, 2004 Well I have gotten to the point where I am not to concerned anymore how I come across. That sounds really bad but it has gone beyond ridiculous at times. Actually, many of the doctors that I do inform seem to appreciate it because they realize they know little or nothing about different forms of dwarfism. And then there are the others who think they know everything and I know nothing. Every doctors appointment I go to I treat as a consultation and I am the one who makes the decision about what they will or will not do. I do not look at doctors any more as people who listen and will be my friend. They are giving me their OPINION and then I need to be the one to make the decision. Best of luck to you Fred Danette (who has a doctors appointment scheduled for two weeks from now with a doctor who doesn't listen very well -- How does one 'inform' without appearing to 'tell' ? As you will appreciate from my last post, I just LOVE hospital visits! One problem which keeps occurring is how to TELL a doctor/nurse/specialist something, without appearing to be either a smart ass, or appearing to attack his own knowledge? How does one 'proffer information about ones 'condition' when one thinks the person doesn't know? Several times, actually quite a few times, lately, because of spinal problems, I've had occasion to 'supplement's a persons knowledge. HOWEVER, I find no matter how hard I try to be tactful, I always run the risk of either being accused of being a smart ass, or worse, insinuating the recipient of this information is thick! i.e., like today, when the girl went to take blood out of my arm. HOW should I have 'explained' to her past experience and practice? Do I go all round the blocks by saying " Actually, I've found in the past that it has been easier to take the blood by.......................... " Rather than, as I am apt to do, say " You will have to get it out of the back of my hand. " Also, how does one attempt to 'bring up to speed' a specialist in his own field, who it is very apparent knows little, (if anything) about ones dwarfism or its inherent problems? Again, without appearing to wish to be more knowledgeable than he/she? Do we bluff it and preface everything with " As you know..................... ...... " One specialist floored me totally, after I had 'explained' a point, by saying " Are you telling me or asking me? " He had me by the short and curly's! Because, if I said " I am telling you " I am laying myself open to a very nasty retort from him! If I said " I am asking you " then that is daft, because it is something I have just told him! In the end I said, " I am informing you " . Again he shocked me by saying " How do you know this? " I was struck dumb! I mean, hell, if I listed all the sources of research and reference I have ever used to add to my own knowledge of my own condition, I would be there all day! The list of scenarios is endless, and I'm sure you have your own. So yer, how DOES one 'share' information, and still do so tactfully, and in an acceptable way to the recipient who inevitably thinks himself/herself God of all knowledge? Fred, who is renowned for never being tactful:-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2004 Report Share Posted October 13, 2004 This is when you say...... " I am PAYING you for your services, therefore, I expect you to LISTEN TO ME! period end of sentence! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2004 Report Share Posted October 13, 2004 Say, " BOTH " " One specialist floored me totally, after I had 'explained' a point, by saying " Are you telling me or asking me? " " If this doctor cannot figure out how or why you might know this, I'd say that his powers of perception were WAY OFF. To assume that a person would not know anything about a medical condition that affects them or a family member is either arrogance or stupidity, I don't know which " In the end I said, " I am informing you " . Again he shocked me by saying " How do you know this? " " I would RUN from anyone who has this sort of bedside manner.. Just my two cents (or pence, or what have you...) in San Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2004 Report Share Posted October 13, 2004 I'm in the same boat with Danette. If a doctor isn't up to speed on my condition, I will " inform " him/her in the most efficient manner possible; their emotions be damned. I don't know how the healthcare system in England works, but here in the states (at least with my current health plan) I can choose from a list of medical providers. If the doctor I see is an ass, or doesn't listen, I just pull out the list and try another until I find one I like. Also, on my first visit to a new doctor, I give them a " homework " assignment. I have a packet of information I've downloaded and printed from the internet regarding my type of dwarfism (most doctors, unless affiliated with LPA or familiar with skeletal dysplasia, only know about Achondroplasia). The good doctors appreciate the information, read it, and compliment me on being a well-informed patient. The bad doctors assume they know everything, and expect each word that flows from their lips to be treated as if uttered from the Lord on High. Too bad for them, I take my business elsewhere. There is one type of doctor I don't know how to deal with, and they drive me crazy. Those are the ones that are geniunely intrested in you, concerned, caring, listen well; but talk to you as if you were a child. My sleep studies doctor is this way. She is very nice, knowlegeable and attentive, however, before becoming a sleep specialist, she was a pediatrician. I had a large bruise on my hand from a botched blood draw (like Fred, butterfly on back of hand), and she looked at my hand and said " Ohhh. Do we have a boo-boo? Poor widdle hand. " For a moment, I thought she was going to try to kiss it and make it better (however, she is pretty cute, so that might not have been a bad thing ;-) -Bill --------- How does one 'inform' without appearing to 'tell' ? As you will appreciate from my last post, I just LOVE hospital visits! One problem which keeps occurring is how to TELL a doctor/nurse/specialist something, without appearing to be either a smart ass, or appearing to attack his own knowledge? How does one 'proffer information about ones 'condition' when one thinks the person doesn't know? Several times, actually quite a few times, lately, because of spinal problems, I've had occasion to 'supplement's a persons knowledge. HOWEVER, I find no matter how hard I try to be tactful, I always run the risk of either being accused of being a smart ass, or worse, insinuating the recipient of this information is thick! i.e., like today, when the girl went to take blood out of my arm. HOW should I have 'explained' to her past experience and practice? Do I go all round the blocks by saying " Actually, I've found in the past that it has been easier to take the blood by.......................... " Rather than, as I am apt to do, say " You will have to get it out of the back of my hand. " Also, how does one attempt to 'bring up to speed' a specialist in his own field, who it is very apparent knows little, (if anything) about ones dwarfism or its inherent problems? Again, without appearing to wish to be more knowledgeable than he/she? Do we bluff it and preface everything with " As you know..................... ...... " One specialist floored me totally, after I had 'explained' a point, by saying " Are you telling me or asking me? " He had me by the short and curly's! Because, if I said " I am telling you " I am laying myself open to a very nasty retort from him! If I said " I am asking you " then that is daft, because it is something I have just told him! In the end I said, " I am informing you " . Again he shocked me by saying " How do you know this? " I was struck dumb! I mean, hell, if I listed all the sources of research and reference I have ever used to add to my own knowledge of my own condition, I would be there all day! The list of scenarios is endless, and I'm sure you have your own. So yer, how DOES one 'share' information, and still do so tactfully, and in an acceptable way to the recipient who inevitably thinks himself/herself God of all knowledge? Fred, who is renowned for never being tactful:-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2004 Report Share Posted October 13, 2004 I just know to speak up without acting like I'm Dr. Quinn.;-) Regarding taking any blood from me I tell them to take it from the top of my hand. I don't want to be poked and prodded and feel like I just came from Dracula's Blood Bank. lol When they need to take a Urine sample from me I ask for a hat since it is much easier than releasing my Urine in a Dixie Cup. lol Sometimes one has to speak up or forever hold their Peace or whatever else they may need to hold. lol Helen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 It jsut isnt the medical community that has a problem with education...its the EDUCATORS themselves. So far we have had good fortune witht he doctors we deal with re: dwarfism. Its the education community that angers me. I " educate them witht he stats and figures and facts, usually getting a condescending attidue. Once it was actually said that I was an ignorant non professional....My mama bear personna takes over almost automatically now. BTW, for those who responded to my inquiry about the latest gym teacher, a bit of good news. We have a meeting Monday morning to discuss and implement an appropriate PE plan. In thsi case it truly was a fist experience with skeletal dysplasi and its ramifications and she is at thsi point being open to our kid's differences. Apryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Remember, your 'MOM' beats ANY MD, M. Ed., D Ed., etc... in San Re: How does one 'inform' without appearing to 'tell' ? It jsut isnt the medical community that has a problem with education...its the EDUCATORS themselves. So far we have had good fortune witht he doctors we deal with re: dwarfism. Its the education community that angers me. I " educate them witht he stats and figures and facts, usually getting a condescending attidue. Once it was actually said that I was an ignorant non professional....My mama bear personna takes over almost automatically now. BTW, for those who responded to my inquiry about the latest gym teacher, a bit of good news. We have a meeting Monday morning to discuss and implement an appropriate PE plan. In thsi case it truly was a fist experience with skeletal dysplasi and its ramifications and she is at thsi point being open to our kid's differences. Apryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 That is sooo right. No one beats Dr. Mom. ;-) Helen In a message dated 10/14/04 12:27:48 PM Eastern Daylight Time, eeladnil@... writes: > Remember, your 'MOM' beats ANY MD, M. Ed., D Ed., etc... > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.