Guest guest Posted February 5, 2001 Report Share Posted February 5, 2001 Hi ; They have a web site - http://www.chestsurg.org where you can find out a little more. I forgot to mention the other nice touch - they had flavored coffee available in the waiting room, and then someone came in with a tray of muffins, cookies and pastries, and some cold orange juice. It's nice to have a doctor's office that pampers you! I'll be sure to post after the surgery to let everyone know how it's going. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2001 Report Share Posted February 5, 2001 Hi Everyone-- I'm curious about what medications other folks who are post-myotomy are taking for any remaining GI problems. Anything you have found to be particularly helpful? Vicki in NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2001 Report Share Posted February 7, 2001 Vicki - I was given the prescription-strength Zantac, which I took for a few weeks post-myotomy until I found out I didn't need it anymore. I also took something call " Prelief " , which was available OTC, that helped quite a bit. I've heard that there is a new Alka-Seltzer product - Alka-Seltzer for Heartburn - that works very well. Good luck! Carol Re: Re:Clair > Hi Everyone-- > I'm curious about what medications other folks who are post-myotomy are > taking for any remaining GI problems. Anything you have found to be > particularly helpful? > > Vicki in NY > > > > > > > Shop online without a credit card http://www.rocketcash.com RocketCash, a NetZero subsidiary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2001 Report Share Posted February 7, 2001 Thanks for the Rx advice, Carol. Just got back from my first visit in along while to the physical therapy office. I'm feeling pretty hopeful about this, because there is a therapist in this office who specializes in treating people with soft tissue problems. We're going to work on the secondary problems related to achalasia, i.e., the lousy posture people with chronic disorders often develop over time due to internal scar tissue, pain, and the like. Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2001 Report Share Posted February 7, 2001 I didn't know that you can get physical therapy for achalasia! I have developed terrible posture and am going to chiropractor but would like more information re: what type physical therapy you are getting. Thank you! Elena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2001 Report Share Posted February 7, 2001 Hi Elena-- Just to clarify, I'm not in physical therapy for the achalasia itself. It's just that I've accumulated a lot of aches and pains that I think are secondary to having this chronic, not very pleasant condition. So I asked my primary care physician to support an insurance referral to a physical therapy office, which he was willing to do. Once I arrived there, they told me that they had someone on staff who was a specialist in soft tissue problems. I don't know how much this will help, but it certainly was nice to hear that I have someone else to work with. Hope you can find the same sort of help, Vicki >I didn't know that you can get physical therapy for achalasia! I have >developed terrible posture and am going to chiropractor but would like more >information re: what type physical therapy you are getting. Thank you! Elena > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2001 Report Share Posted February 7, 2001 Dear Vicki: Thank you for answering my question. Please keep everyone abreast of your progress. I'm going to look into a physical therapist myself. Warmest regards, Elena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2005 Report Share Posted March 18, 2005 Hi Clair, I was curious if your doctor said anything about ctoma's being hereditary? My husbands family has chronic ear problems, but no one except our son has been diagnosed with a ctoma. All of our nephews have had tubes, adnoids removed and even one mastoidectomy, due to infection I guess. Our doc firmly believes there is not a hereditary link. I wonder about that, especially after seeing both of your children have had ctoma's. Barbara >From: Clair Sayer <clairsayer@...> >Reply-cholesteatoma >cholesteatoma >Subject: Re: I'm new, too >Date: Thu, 17 Mar 2005 13:14:21 -0800 (PST) > > >n, >I know it's easy for us all to say not to worry, but I >think when my children were going through their 1st >C-toma surgeries (my daughter then 4 and my son then 7 >they are now 12 and 8) I was a nervous wreck. The not >knowing what to expect with my daughter's was the >hardest (since she was the first diagnosed) and >knowing what to expect (long-run) with my son was the >worst. The surgery itself wasn't so bad (except for >the waiting - my daugter's took about 5 hours and my >son's took about 4 1/2 hours) and the post-op was a >breeze - it's just the rest of our lives that can >sometimes be difficult. The most important thing is to >make sure that you keep and teach your son to keep his >ear dry and clean! I have found that the molded >ear-plugs (made in the Dr.'s office) are a god-send. >My children both use them for showers, swimming, and >just for the neighborhood water figts. We now go to >the ear Dr. about every 6 months for check-ups and >cleanings. It took a while for my daughter to work her >way up to the 6 month check -up, but I guess with my >son (since I had an idea of what I was doing) it >didn't take so long. I can honestly say that it does >get easier. Good luck to you and your son. > >Clair Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2005 Report Share Posted March 20, 2005 Clair, I guess the shape of the ear is what is hereditary, so I suppose that is what could encourage the ctoma if they are acquired. I'm thinking that must be what is happening in our family, they all just have weird shaped ears that encourage infection.....I read your post to n, I'm in the process of finding someone to do custom ear plugs for my son. We live in Alabama and go to the beach all summer. The doc told us that the sand is a bigger problem than the water and together they are an infection concoction. I'm also considering a neoprene band to help keep the sand out. We love the beach and hate to miss out on it, but if it is going to be a real problem for his ears, then we'll have to start spending our weekends somewhere else! Good luck on the lotto! >From: Clair Sayer <clairsayer@...> >Reply-cholesteatoma >cholesteatoma >Subject: Re: clair >Date: Fri, 18 Mar 2005 06:47:53 -0800 (PST) > > >The Dr. says that ctoma is not hereditary, that my >kids are just weird No one in my family or my >husband's really had any sort of ear stuff until them. >The guy who made their ear molds suggested I play the >lottery! I hope that your son is doing well. >Clair >--- Barbara Hatch <rdnckgypc@...> wrote: > > Hi Clair, > > I was curious if your doctor said anything about > > ctoma's being hereditary? > > My husbands family has chronic ear problems, but no > > one except our son has > > been diagnosed with a ctoma. All of our nephews have > > had tubes, adnoids > > removed and even one mastoidectomy, due to infection > > I guess. Our doc firmly > > believes there is not a hereditary link. I wonder > > about that, especially > > after seeing both of your children have had ctoma's. > > Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2006 Report Share Posted March 17, 2006 , How could that Gluc. help replacement joints? They are not real bone. There are too many pills out there and vitamins. Sometimes it is better just to take care of your body naturaly. Eat a well balanced diet, be happy AND we ALL need to get off the couch and live. I had 7 knee surgeries which packed about 40 more pounds on me. *not good* I was feeling sorry for myself and layed around alot watching TV. I am only 48, I am not dead yet. If a person takes care of themselves, eats right and lives a happy, active life, you don't need so much drugs/vitamins. I am on 8-9 different prescriptions and am tired of it. Having a strong, healthy body and good outlook on life will help you heal after knee surgery. One thing that DID help me was having super upper body strength and good muscle in my legs. It makes recovery a little easier. The muscles in your legs make an easier surgery too according to my OS. You can listen to all of our experiences here in this group (sometimes it helps to connect to others in the same situation) BUT, the most important thing for you to do is have a great open relationship with your OS. No, I don't mean what some of you are thinking. LOL I am saying TALK TALK and more TALK to him/her and get the facts. Discuss your options and let your OS know all your fears of the surgery. If he/she is a good one then they will take the time to discuss things with you. Mine did! If he got busy during the day if I had a question, he would call me later that night. This is major surgery. You deserve to have all your questions answered but don't rely on the group for all the answers because even thou some of us have experienced surgery, our book is not complete. We are still learning things ourselves. This group is a very caring group of guys/gals but we support each other emotionally. We don't know all the answers to the medical procedures. We will be happy to welcome you and will be able to sympathize with your pain and emotions because we have been there but remember that we all live in different bodies and our experiences and healing differ from one to another. If you are scared we understand because we were all there but save the medical questions for someone with the answers...Your OS... Best wishes, Salem Quote Link to comment Share on other sites More sharing options...
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