Guest guest Posted October 20, 2004 Report Share Posted October 20, 2004 I can only speak on recovery for a child. But if you have a ctoma there is no other option but surgery. It will not go away and will only get worse. Candy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2004 Report Share Posted October 20, 2004 > > > I am new to the group. My name is Debra and I will be having the > surgery in the very near future (I think!!) > From everything that I am reading here it must be a very painful > experience. i must admit that I am feeling a bit reluctant to call > and schedule the procedure. My husband and I have an appointment on > the 25th so that he can meet the Dr and surgeon and ask any questions > that he may have. > I'm not at all happy with everything that I am hearing. I may never > fully recover my hearing? I may never get rid of the " woooosh " sound > in my ear? The high pitched tone?? > Has anyone experienced the facial paralysis? What can i look forward > to the first two or three days after the surgery? How long were some > of you out of work? hey this is david here and i have been battling c-toma for 3-years and i can tell from the worst case possible that not having the surgury is not an option it can go through the mastiod wall and into inner ear and cause menegitis and is fatel if happens the surgury is nothing to worry about after a couple days pain goes away in most cases of course for me i have tmj in right jaw and after surgury is very painful for me becouse jaw dislocates and swells and can not move mouth. but for the most part its ok as far as surgury goes but take it from me get the surgury and fast becouse you dont want to mess with c-toma and no antibiotics in the world will help it will only fester. ive had 2 surg and have to have 3rd in 2 weeks but its better than letting c-toma win. facial paralyses is very rare but it could happen to anyone and letting the c-toma stay in your ear it will eventually attack and distroy the facial nerve anyway. hope i helped and believe me everything will work out it always does Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2004 Report Share Posted October 20, 2004 > > > I am new to the group. My name is Debra and I will be having the > surgery in the very near future (I think!!) > From everything that I am reading here it must be a very painful > experience. i must admit that I am feeling a bit reluctant to call > and schedule the procedure. My husband and I have an appointment on > the 25th so that he can meet the Dr and surgeon and ask any questions > that he may have. > I'm not at all happy with everything that I am hearing. I may never > fully recover my hearing? I may never get rid of the " woooosh " sound > in my ear? The high pitched tone?? > Has anyone experienced the facial paralysis? What can i look forward > to the first two or three days after the surgery? How long were some > of you out of work? Hi, I had surgery Sept.27th, I had never heard of cholesteatoma before that. I was nervous of course. I can tell you that it wasn't that painful to me, I only took 5 pain pills. I was a little dizzy for maybe 2 days, no headache,I had some numbing on one side of my tongue for maybe 2 weeks. I felt pretty good (almost normal) 6 days later, and completely normal a week later. I hope this gives you some incouragement. God Bless, Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2004 Report Share Posted October 20, 2004 Hi Debra The worst part of this the dread of waiting around for it and the anticipation of how it will turn out. You will probably feel a little dizzy and sore afterwards -your ear will bleed and discharge and your sense of taste may be disturbed for a while. But it is always a great relief to get the surgery over with. Bear in mind that a lot of the posts you read on this board are from people who have recurrent or complicated ctomas because they're are the people most likely to stick around a group like this. It isn't necessarily how your case will turn out, there are others for whom ctoma is going to be a once only thing. Tinnitus is usually to the hearing loss that comes with ctoma and it is impossible to say whether that will be permanent. It may improve with surgery or if offered a hearing reconstruction surgery (which is fairly usual) in a year or so's time. Otherwise - it may seem impossible right now - it is something you will learn to live with eventually. The secret is to relax, don't pit yourself against and learn to forget about it. Face paralysis isn't common. Those who do get it, get it before the surgery as one the nasty symptoms that occurs with advanced ctoma. In theory it is possible that facial nerve damage can occur during the operation - and the medics are obliged to warn you about the risk. Still, I can't recall that happening to anyone. The surgery requires delicate microsurgery and it will last for several hours. Good luck. Phil I am new to the group. My name is Debra and I will be having the surgery in the very near future (I think!!) From everything that I am reading here it must be a very painful experience. i must admit that I am feeling a bit reluctant to call and schedule the procedure. My husband and I have an appointment on the 25th so that he can meet the Dr and surgeon and ask any questions that he may have.I'm not at all happy with everything that I am hearing. I may never fully recover my hearing? I may never get rid of the "woooosh" sound in my ear? The high pitched tone??Has anyone experienced the facial paralysis? What can i look forward to the first two or three days after the surgery? How long were some of you out of work? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2004 Report Share Posted October 21, 2004 Hi Debra. Each person is different in there recovery, pain and symptoms. My removal surgeries actually did not cause me a lot of pain - mostly discomfort. In August I had a tympanoplasty done to fix my ear drum which leads to reconstruction next(YEAH!!). The tympanoplasty was my most painful recovery. I'm not really sure that I would call it painful - more annoying and discomforting than anything. Naturally there was some pain but it was controlled pretty much by the pain medication. The first few days were the most painful. Some sharp, stabbing pains that ran along where the procedure was done. They only lasted a few seconds so it wasn't that bad. The packing in my middle ear caused the majority of my problems as it put on additional pressure on my head and made it very difficutl to lie flat. It was self-dissolving packing so I didn't have to go through the removal procedure which seems to cause quite a bit of pain to most. And just so you know - I have ZERO pain tolerance. I am a big weenie when it comes to pain - just take the pain meds and you should be fine. hollomandebra <hollomandebra@...> wrote: I am new to the group. My name is Debra and I will be having the surgery in the very near future (I think!!) From everything that I am reading here it must be a very painful experience. i must admit that I am feeling a bit reluctant to call and schedule the procedure. My husband and I have an appointment on the 25th so that he can meet the Dr and surgeon and ask any questions that he may have.I'm not at all happy with everything that I am hearing. I may never fully recover my hearing? I may never get rid of the "woooosh" sound in my ear? The high pitched tone??Has anyone experienced the facial paralysis? What can i look forward to the first two or three days after the surgery? How long were some of you out of work? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 I am currently in Ms. Jeanetta Mastron's Pharmacy Technician class. She has required me to investigate this website/group but we are not required to stay a member of it, though, I will stay one. I will be taking the PTCB examination in late July after I have taken an externship at a hospital, maybe before, who knows. Jerome Branson Pharm Tech Student Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2009 Report Share Posted November 19, 2009 I’m glad that you’re feeling sort of better Cyn. The no energy part is bad, but hopefully as the bronchitis clears up that will get better. Sherry in PA (where it is very dreary outside too) From: [mailto: ] On Behalf Of Cyn Boyd Sent: Thursday, November 19, 2009 11:20 AM undisclosed-recipients Subject: Good Morning. I hope everyone had a restful, and peaceful sleep last night. It is another dreary rainy day here. My bronchitis is much better, and since I am not taking the predisone any longer I have no energy. That's ok, I just have to push myself a little harder. I am getting better restful sleep also. And that is good. I hope everyone's day is peaceful, and full filling. You are all in my prayers to the Creator. Love & Hugs Cyn Boyd Blue Lark Sakima Iowa Created by Sandy Farris 12/20/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2009 Report Share Posted November 19, 2009 Good Morning cyn and sherry! and who eva I missed. ------ I downloaded incredimail, but I can't find it on my computer to run and save it?/ gone llol trying to be like Cyn lolThat's what I get for trying to be like you! lol but I just love yer stuff! It makes me so happy to see you buttterfly ********************************* karen ************************************** From: Cyn Boyd <cynboyd_60@...>Subject: Good Morning.undisclosed-recipients@...Date: Thursday, November 19, 2009, 4:19 PM I hope everyone had a restful, and peaceful sleep last night. It is another dreary rainy day here. My bronchitis is much better, and since I am not taking the predisone any longer I have no energy. That's ok, I just have to push myself a little harder. I am getting better restful sleep also. And that is good. I hope everyone's day is peaceful, and full filling. You are all in my prayers to the Creator. Love & Hugs Cyn Boyd Blue Lark Sakima Iowa Created by Sandy Farris 12/20/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2009 Report Share Posted November 19, 2009 Yeah - Me Too! - yr pictures & butterfly Cyn, definitely cheer me up Pru From: m W Sent: Friday, November 20, 2009 3:49 AM Subject: Re: Good Morning. Good Morning cyn and sherry! and who eva I missed. ------ I downloaded incredimail, but I can't find it on my computer to run and save it?/ gone llol trying to be like Cyn lolThat's what I get for trying to be like you! lol but I just love yer stuff! It makes me so happy to see you buttterfly ********************************* karen ************************************** From: Cyn Boyd <cynboyd_60@...>Subject: Good Morning.undisclosed-recipients@...Date: Thursday, November 19, 2009, 4:19 PM I hope everyone had a restful, and peaceful sleep last night. It is another dreary rainy day here. My bronchitis is much better, and since I am not taking the predisone any longer I have no energy. That's ok, I just have to push myself a little harder. I am getting better restful sleep also. And that is good. I hope everyone's day is peaceful, and full filling. You are all in my prayers to the Creator. Love & Hugs Cyn Boyd Blue Lark Sakima Iowa Created by Sandy Farris 12/20/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2009 Report Share Posted November 19, 2009 Praise The Lord Cyn. It is good to know that prayers are answered. I hope others will also have good positive results and that their healing will begin to take place. Clare Quote Link to comment Share on other sites More sharing options...
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