?????

[Guest guest]

Kathy,

Doesn't sound like you're eating much. You might try to drink some

protein shakes. They are liquid so they really just pass right

through the tummy and into the intestines to get absorbed. YOu

probably won't feel so full drinking them. Also, add some fruit

juices/Gatorade they might help to make you feel less fatigue. If

you don't feel good or are in pain, you should see your Dr. soon. If

not, it might just be a period where you're just not in the mood to

eat much. I think we all have those phases. Those phases never last

long for me. Hope you're feeling better.

Bernardine

TX

MGB 7/24/00

248/159

> Decided to ask the group bout this one!

>

> Recently I havent been able to eat much.......2/14/01 surgery date

so lil

> over 6 months out......When i say i havent been able to eat

much.....here

> is my intake today.......3 bites of mixed vegetables........4 bites

of

> salad.......2 cheese n wheat crackers........each time i was

full........it

> almost feels like my tummy is shrinkin or sumthing.......i know

this is not

> healthy for me.......i cannot get the protein in that i normally

> do........i dont eat meat so .......fish , shrimp, cottage cheese

is bout

> it........but they fill me up so quickly......ate 3 pieces of

shrimp

> cocktail the other day.............FULL..........had grilled

> halibut.......2 bites and one bite of slaw......the other

nite........i

> could eat more than this b4.........anyone have any similiar

experiences?

>

> i went from 270 to 260 in a week .......bout a week ago........im

feelin a

> lil fatique .....i have a drs appt next friday ....wonderin if i

should get

> in there sooner........was waitin till then bc it is a teacher

workday and

> i have used up all my sick leave days.......can take an annual

leave on

> that day........

>

>

> Any suggestions or experiences are appreciated, Thanks!

>

> Kathy

> 397/370/259/170

[Guest guest]

Bernardine,

Thanks for the advice ..........i cant drink the protein shakes........i

have spent hundreds of dollars tryin to find one i like.......i

cant.......is the only reason i eat fish, shrimp ........to get protein sum

how .... i use to be able to eat bout 13 shrimp which is bout 29 g of

protein at one meal.........BUT most i have eaten recently was 4......so my

protein intake has decreased substantially in last few weeks.....i will try

to increase my gatorade intake........willin to try anythin at this

point...........

thanks again !

At 03:10 AM 8/24/2001 +0000, you wrote:

>Kathy,

>Doesn't sound like you're eating much. You might try to drink some

>protein shakes. They are liquid so they really just pass right

>through the tummy and into the intestines to get absorbed. YOu

>probably won't feel so full drinking them. Also, add some fruit

>juices/Gatorade they might help to make you feel less fatigue. If

>you don't feel good or are in pain, you should see your Dr. soon. If

>not, it might just be a period where you're just not in the mood to

>eat much. I think we all have those phases. Those phases never last

>long for me. Hope you're feeling better.

>Bernardine

>TX

>MGB 7/24/00

>248/159

>

>

>

> > Decided to ask the group bout this one!

> >

> > Recently I havent been able to eat much.......2/14/01 surgery date

>so lil

> > over 6 months out......When i say i havent been able to eat

>much.....here

> > is my intake today.......3 bites of mixed vegetables........4 bites

>of

> > salad.......2 cheese n wheat crackers........each time i was

>full........it

> > almost feels like my tummy is shrinkin or sumthing.......i know

>this is not

> > healthy for me.......i cannot get the protein in that i normally

> > do........i dont eat meat so .......fish , shrimp, cottage cheese

>is bout

> > it........but they fill me up so quickly......ate 3 pieces of

>shrimp

> > cocktail the other day.............FULL..........had grilled

> > halibut.......2 bites and one bite of slaw......the other

>nite........i

> > could eat more than this b4.........anyone have any similiar

>experiences?

> >

> > i went from 270 to 260 in a week .......bout a week ago........im

>feelin a

> > lil fatique .....i have a drs appt next friday ....wonderin if i

>should get

> > in there sooner........was waitin till then bc it is a teacher

>workday and

> > i have used up all my sick leave days.......can take an annual

>leave on

> > that day........

> >

> >

> > Any suggestions or experiences are appreciated, Thanks!

> >

> > Kathy

> > 397/370/259/170

>

>

>

>

[Guest guest]

I would go to your pcp and get checked. This could be something serious like

scar tissue at the bottom opening of your stomach. If it lasts much longer, you

really will begin to get malnourished and you don't want that. Be safe. Good

vibes coming to you for it all to be all right.

Pat

Re: Re: ?????

Bernardine,

Thanks for the advice ..........i cant drink the protein shakes........i

have spent hundreds of dollars tryin to find one i like.......i

cant.......is the only reason i eat fish, shrimp ........to get protein sum

how .... i use to be able to eat bout 13 shrimp which is bout 29 g of

protein at one meal.........BUT most i have eaten recently was 4......so my

protein intake has decreased substantially in last few weeks.....i will try

to increase my gatorade intake........willin to try anythin at this

point...........

thanks again !

At 03:10 AM 8/24/2001 +0000, you wrote:

>Kathy,

>Doesn't sound like you're eating much. You might try to drink some

>protein shakes. They are liquid so they really just pass right

>through the tummy and into the intestines to get absorbed. YOu

>probably won't feel so full drinking them. Also, add some fruit

>juices/Gatorade they might help to make you feel less fatigue. If

>you don't feel good or are in pain, you should see your Dr. soon. If

>not, it might just be a period where you're just not in the mood to

>eat much. I think we all have those phases. Those phases never last

>long for me. Hope you're feeling better.

>Bernardine

>TX

>MGB 7/24/00

>248/159

>

>

>

> > Decided to ask the group bout this one!

> >

> > Recently I havent been able to eat much.......2/14/01 surgery date

>so lil

> > over 6 months out......When i say i havent been able to eat

>much.....here

> > is my intake today.......3 bites of mixed vegetables........4 bites

>of

> > salad.......2 cheese n wheat crackers........each time i was

>full........it

> > almost feels like my tummy is shrinkin or sumthing.......i know

>this is not

> > healthy for me.......i cannot get the protein in that i normally

> > do........i dont eat meat so .......fish , shrimp, cottage cheese

>is bout

> > it........but they fill me up so quickly......ate 3 pieces of

>shrimp

> > cocktail the other day.............FULL..........had grilled

> > halibut.......2 bites and one bite of slaw......the other

>nite........i

> > could eat more than this b4.........anyone have any similiar

>experiences?

> >

> > i went from 270 to 260 in a week .......bout a week ago........im

>feelin a

> > lil fatique .....i have a drs appt next friday ....wonderin if i

>should get

> > in there sooner........was waitin till then bc it is a teacher

>workday and

> > i have used up all my sick leave days.......can take an annual

>leave on

> > that day........

> >

> >

> > Any suggestions or experiences are appreciated, Thanks!

> >

> > Kathy

> > 397/370/259/170

>

>

>

>

[Guest guest]

Kathy,

I know that RNY patients sometimes get strictures (I think that's the

term...might be wrong) or a closing up of some kind. If this persists for a

while, I'd have a scope just to make sure everything is working okay.

That seems like such a small amount to me....like one month amount, ya know?

I'm about the same amount out as you are, and yesterday I had half an avocado

filled with crab and tomatoes for dinner...probably about 6-8 oz I'd guess.

Have you tried anything from Vitalady.com? She will let you try different

proteins.,,,keep us posted. I'm worried about you.

HUGS

in ARk

[Guest guest]

Kathy, How about some cottage cheese? That's really good protein and easy to

eat? A cup of it is about 28 grams. I know you're going to see your doctor.

Here's hoping all turns out well. We're all here for you. PhillyJude MGB

11-3-00 263/192

[Guest guest]

k,

Hope you feel better soon. I haven't experienced anything like

this.

manda

> Decided to ask the group bout this one!

>

> Recently I havent been able to eat much.......2/14/01 surgery date

so lil

> over 6 months out......When i say i havent been able to eat

much.....here

> is my intake today.......3 bites of mixed vegetables........4 bites

of

> salad.......2 cheese n wheat crackers........each time i was

full........it

> almost feels like my tummy is shrinkin or sumthing.......i know

this is not

> healthy for me.......i cannot get the protein in that i normally

> do........i dont eat meat so .......fish , shrimp, cottage cheese

is bout

> it........but they fill me up so quickly......ate 3 pieces of

shrimp

> cocktail the other day.............FULL..........had grilled

> halibut.......2 bites and one bite of slaw......the other

nite........i

> could eat more than this b4.........anyone have any similiar

experiences?

>

> i went from 270 to 260 in a week .......bout a week ago........im

feelin a

> lil fatique .....i have a drs appt next friday ....wonderin if i

should get

> in there sooner........was waitin till then bc it is a teacher

workday and

> i have used up all my sick leave days.......can take an annual

leave on

> that day........

>

>

> Any suggestions or experiences are appreciated, Thanks!

>

> Kathy

> 397/370/259/170

[Guest guest]

>

i cant drink the protein shakes........i

> have spent hundreds of dollars tryin to find one i like..

Hey K,

Try the Designer Protein with crushed ice, one scoop of vanilla

frozen yogurt and soy chocolate milk....Blend it and yum....I love it!

Or Designer Protein, vanilla frozen yogurt, a package of no sugar

added Swiss Miss cocoa, shaved ice and skim milk.....tastes like

a frosty!

Beth

[Guest guest]

i can get in bout 3 bites of cottage cheese also but i do eat

it........Thanks PJ

At 10:13 AM 8/24/2001 -0400, you wrote:

>Kathy, How about some cottage cheese? That's really good protein and easy to

>eat? A cup of it is about 28 grams. I know you're going to see your doctor.

> Here's hoping all turns out well. We're all here for you. PhillyJude MGB

>11-3-00 263/192

>

>

>

[Guest guest]

,

I have heard yall talkin bout vitalady but i have never tried it.....will

go there later on 2nite and look at the website, thanks 4 the tip.....at

first i wasnt worried bout this but its been going on for bout 2 weeks

now..........so its got me a lil worried now and it even feels like i can

take in even less then when it started............i had 3 bites of a salad

today at lunch a cheese and wheat cracker for a snack b4 lunch and just a

few minutes ago i had 3 bites of ricotta cheese that was a fillin for a

fresh cheese filled manicotta i bought from the s. walmart ......i have

been eatin on that manicotta.(one servin size) since monday and my

daughter even ate some of it.....she finally finished it off

today.......thanks for the concern....i will post what i find out ....

Hope things are going well with you!

Kathy

At 07:59 AM 8/24/2001 -0400, you wrote:

>Kathy,

>

>I know that RNY patients sometimes get strictures (I think that's the

>term...might be wrong) or a closing up of some kind. If this persists for a

>while, I'd have a scope just to make sure everything is working okay.

>

>That seems like such a small amount to me....like one month amount, ya know?

>I'm about the same amount out as you are, and yesterday I had half an avocado

>filled with crab and tomatoes for dinner...probably about 6-8 oz I'd guess.

>

>Have you tried anything from Vitalady.com? She will let you try different

>proteins.,,,keep us posted. I'm worried about you.

>

>HUGS

> in ARk

>

>

>

[Guest guest]

Kathy,

I have spells like that where I can't hardly eat a thing. It passes in a

few days and comes and goes. Make sure you force in a protein shake and your

vitamins.

[Guest guest]

THANKS!! that reassures me ......got in contact with dr r and he told me to

go to the ER room and get checked out.......guess im stubborn but i know

how the peeps work at my local hospital.....im waitin to see if this

continues......if it does or i start feeling Bad i will go ...

At 08:56 PM 8/25/2001 -0400, you wrote:

>Kathy,

> I have spells like that where I can't hardly eat a thing. It passes in a

>few days and comes and goes. Make sure you force in a protein shake and your

>vitamins.

>

>

>

>

[Guest guest]

we're all Gail. I think everyone is doing their taxes. TURK

?????

Just checking to see if the e-mail is working. Seems awful quiet.

GailPlease visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

Kathy B. Not Me !!!!!!!!

[Guest guest]

Not me!!!!!! Texas hold'em is enough for me, when I have the

time.

Dick

At 02:29 PM 12/1/04, you wrote:

Who's

big idea was this jewel quest that has me by the mouse?

Take care of yourself,

Liz

[Guest guest]

Ok I confess. all I did was mention the game and how it baffled me..Kathy BDick Southern <southern@...> wrote:

Not me!!!!!! Texas hold'em is enough for me, when I have the time.DickAt 02:29 PM 12/1/04, you wrote:

Who's big idea was this jewel quest that has me by the mouse? Take care of yourself,LizKathy Brunow

[Guest guest]

Hi Patty,

I'm exactly sure what you mean about floundering. The group focuses on autism

spectrum disorders and chronic illness, so you are probably in a good place.

Tell us more about our child's specific symptoms and we'll chime in with

suggestions as

people relate with your situation.

- Stan

> >>

> >> Dear Stan and/or collective wisdom -- we haven't yet started Valtrex

> >> (hope to sometime soon), but our DAN doctor put our daughter

> >> (PDD-NOS, 5 yo) on Diflucan for a 21-day stint to clear up a

> >> long-standing fungal infestation. By about day 2, she developed a

> >> fever, and it stayed low-grade for a couple of days (100-101) and

> >> then spiked up to 104 on day 5; took her to the pediatrician, who

> >> diagnosed coxsackie (which is an enterovirus, distantly related to

> >> oral herpes, as I understand it). We're off the Diflucan for now

> >> while the coxsackie runs its course, so as not to tax her system...

> >> do you all think the Diflucan might have " flushed out " the virus, or

> >> is it a coincidence (she does go to a summer school where other kids

> >> may have had the virus), or perhaps the fungal die-off might have

> >> weakened her system enough for the coxsackie to pounce? Just

> >> curious...

> >>

> >> Thanks to all in advance,

> >>

> >>

> >> --

> >> ------

> >> Dell'

> > > Austin, TX

> >>

>

>

>

>

>

> ---------------------------------

> Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates

starting at

1¢/min.

>

[Guest guest]

Hi Patty,

I'm exactly sure what you mean about floundering. The group focuses on autism

spectrum disorders and chronic illness, so you are probably in a good place.

Tell us more about our child's specific symptoms and we'll chime in with

suggestions as

people relate with your situation.

- Stan

> >>

> >> Dear Stan and/or collective wisdom -- we haven't yet started Valtrex

> >> (hope to sometime soon), but our DAN doctor put our daughter

> >> (PDD-NOS, 5 yo) on Diflucan for a 21-day stint to clear up a

> >> long-standing fungal infestation. By about day 2, she developed a

> >> fever, and it stayed low-grade for a couple of days (100-101) and

> >> then spiked up to 104 on day 5; took her to the pediatrician, who

> >> diagnosed coxsackie (which is an enterovirus, distantly related to

> >> oral herpes, as I understand it). We're off the Diflucan for now

> >> while the coxsackie runs its course, so as not to tax her system...

> >> do you all think the Diflucan might have " flushed out " the virus, or

> >> is it a coincidence (she does go to a summer school where other kids

> >> may have had the virus), or perhaps the fungal die-off might have

> >> weakened her system enough for the coxsackie to pounce? Just

> >> curious...

> >>

> >> Thanks to all in advance,

> >>

> >>

> >> --

> >> ------

> >> Dell'

> > > Austin, TX

> >>

>

>

>

>

>

> ---------------------------------

> Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates

starting at

1¢/min.

>

[Guest guest]

Hi Patty,

I'm exactly sure what you mean about floundering. The group focuses on autism

spectrum disorders and chronic illness, so you are probably in a good place.

Tell us more about our child's specific symptoms and we'll chime in with

suggestions as

people relate with your situation.

- Stan

> >>

> >> Dear Stan and/or collective wisdom -- we haven't yet started Valtrex

> >> (hope to sometime soon), but our DAN doctor put our daughter

> >> (PDD-NOS, 5 yo) on Diflucan for a 21-day stint to clear up a

> >> long-standing fungal infestation. By about day 2, she developed a

> >> fever, and it stayed low-grade for a couple of days (100-101) and

> >> then spiked up to 104 on day 5; took her to the pediatrician, who

> >> diagnosed coxsackie (which is an enterovirus, distantly related to

> >> oral herpes, as I understand it). We're off the Diflucan for now

> >> while the coxsackie runs its course, so as not to tax her system...

> >> do you all think the Diflucan might have " flushed out " the virus, or

> >> is it a coincidence (she does go to a summer school where other kids

> >> may have had the virus), or perhaps the fungal die-off might have

> >> weakened her system enough for the coxsackie to pounce? Just

> >> curious...

> >>

> >> Thanks to all in advance,

> >>

> >>

> >> --

> >> ------

> >> Dell'

> > > Austin, TX

> >>

>

>

>

>

>

> ---------------------------------

> Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates

starting at

1¢/min.

>

[Guest guest]

Stan and everyone, I guess I am a little overwhelmed by all this info (and all the other info I read on the internet regarding treatment/therapies and how to sort it out. My Aspie son has socialization problems and sensory integration issues...ie, he does not like to be touch...regarding social issues, he has trouble initiating conversations, being polite (sometimes) What I am wondering about is/are there any biomedical/other therapies that have been found effective with teenage Aspies to help with their socialization issues, etc. I am very concerned about my son's transition into adulthood and how I can best serve him. Does anyone here relate to my situation or have any suggestions? PattyStan Kurtz <stankurtz@...> wrote: Hi Patty, I'm exactly sure what you mean about floundering. The group focuses on autism spectrum disorders and chronic illness, so you are probably in a good place. Tell us more about our child's specific symptoms and we'll chime in with suggestions as people relate with your situation. - Stan > >> > >> Dear Stan and/or collective wisdom -- we haven't yet started Valtrex > >> (hope to sometime soon), but our DAN doctor put our daughter > >> (PDD-NOS, 5 yo) on Diflucan for a 21-day stint to clear up a > >> long-standing fungal infestation. By about day 2, she developed a > >> fever, and it stayed low-grade for a couple of days (100-101) and > >> then spiked up to 104

on day 5; took her to the pediatrician, who > >> diagnosed coxsackie (which is an enterovirus, distantly related to > >> oral herpes, as I understand it). We're off the Diflucan for now > >> while the coxsackie runs its course, so as not to tax her system... > >> do you all think the Diflucan might have "flushed out" the virus, or > >> is it a coincidence (she does go to a summer school where other kids > >> may have had the virus), or perhaps the fungal die-off might have > >> weakened her system enough for the coxsackie to pounce? Just > >> curious... > >> > >> Thanks to all in advance, > >> > >> > >> -- > >> ------ > >> Dell' > > > Austin, TX > >> > > > > > > --------------------------------- > Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. >

Music Unlimited - Access over 1 million songs.

Try it free.

[Guest guest]

Stan and everyone, I guess I am a little overwhelmed by all this info (and all the other info I read on the internet regarding treatment/therapies and how to sort it out. My Aspie son has socialization problems and sensory integration issues...ie, he does not like to be touch...regarding social issues, he has trouble initiating conversations, being polite (sometimes) What I am wondering about is/are there any biomedical/other therapies that have been found effective with teenage Aspies to help with their socialization issues, etc. I am very concerned about my son's transition into adulthood and how I can best serve him. Does anyone here relate to my situation or have any suggestions? PattyStan Kurtz <stankurtz@...> wrote: Hi Patty, I'm exactly sure what you mean about floundering. The group focuses on autism spectrum disorders and chronic illness, so you are probably in a good place. Tell us more about our child's specific symptoms and we'll chime in with suggestions as people relate with your situation. - Stan > >> > >> Dear Stan and/or collective wisdom -- we haven't yet started Valtrex > >> (hope to sometime soon), but our DAN doctor put our daughter > >> (PDD-NOS, 5 yo) on Diflucan for a 21-day stint to clear up a > >> long-standing fungal infestation. By about day 2, she developed a > >> fever, and it stayed low-grade for a couple of days (100-101) and > >> then spiked up to 104

on day 5; took her to the pediatrician, who > >> diagnosed coxsackie (which is an enterovirus, distantly related to > >> oral herpes, as I understand it). We're off the Diflucan for now > >> while the coxsackie runs its course, so as not to tax her system... > >> do you all think the Diflucan might have "flushed out" the virus, or > >> is it a coincidence (she does go to a summer school where other kids > >> may have had the virus), or perhaps the fungal die-off might have > >> weakened her system enough for the coxsackie to pounce? Just > >> curious... > >> > >> Thanks to all in advance, > >> > >> > >> -- > >> ------ > >> Dell' > > > Austin, TX > >> > > > > > > --------------------------------- > Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. >

Music Unlimited - Access over 1 million songs.

Try it free.

[Guest guest]

Ok, I understand better where you are coming from. My first suggestion is to

filter how

you take information in.

For example, when I started researching I decided to only accept information

people who

have recovered children. That means doctors, researchers, or parents credited

with truly

bringing children off the spectrum. To me, those are the real experts.

Next I decided to start with the LEAST INVASIVE and MOST PRODUCTIVE therapies.

In my opinion, I would start with diet... it seems that digestion and gut

function are the

two things that are at the foundation of recovery.

I would start by watching the diet oriented videos at www.recoveryvideos.com and

start

with our starter diet at:

www.childrenscornerschool.com/diet.htm

1. I would purchase the book " Breaking the Vicious Cycle " by Elaine

Gottschall...

2. I would get an IGG Food Allergy Panel and an Organic Acid Test by urine from

Great

Plains Laboratories (you can get the test kits by calling them directly and get

a local doc to

draw blood for you).

3. I would start with the diet at the link above.

4. I would keep reporting into the group.

5. I would start looking at doing a trial of methylcobalamin either by spray or

shot.

Take it one step at a time.

That's where I would begin.

- Stan

> > >>

> > >> Dear Stan and/or collective wisdom -- we haven't yet started Valtrex

> > >> (hope to sometime soon), but our DAN doctor put our daughter

> > >> (PDD-NOS, 5 yo) on Diflucan for a 21-day stint to clear up a

> > >> long-standing fungal infestation. By about day 2, she developed a

> > >> fever, and it stayed low-grade for a couple of days (100-101) and

> > >> then spiked up to 104 on day 5; took her to the pediatrician, who

> > >> diagnosed coxsackie (which is an enterovirus, distantly related to

> > >> oral herpes, as I understand it). We're off the Diflucan for now

> > >> while the coxsackie runs its course, so as not to tax her system...

> > >> do you all think the Diflucan might have " flushed out " the virus, or

> > >> is it a coincidence (she does go to a summer school where other kids

> > >> may have had the virus), or perhaps the fungal die-off might have

> > >> weakened her system enough for the coxsackie to pounce? Just

> > >> curious...

> > >>

> > >> Thanks to all in advance,

> > >>

> > >>

> > >> --

> > >> ------

> > >> Dell'

> > > > Austin, TX

> > >>

> >

> >

> >

> >

> >

> > ---------------------------------

> > Talk is cheap. Use Messenger to make PC-to-Phone calls. Great

rates

starting at

> 1¢/min.

> >

>

>

>

>

>

>

> ---------------------------------

> Music Unlimited - Access over 1 million songs.Try it free.

>

[Guest guest]

Ok, I understand better where you are coming from. My first suggestion is to

filter how

you take information in.

For example, when I started researching I decided to only accept information

people who

have recovered children. That means doctors, researchers, or parents credited

with truly

bringing children off the spectrum. To me, those are the real experts.

Next I decided to start with the LEAST INVASIVE and MOST PRODUCTIVE therapies.

In my opinion, I would start with diet... it seems that digestion and gut

function are the

two things that are at the foundation of recovery.

I would start by watching the diet oriented videos at www.recoveryvideos.com and

start

with our starter diet at:

www.childrenscornerschool.com/diet.htm

1. I would purchase the book " Breaking the Vicious Cycle " by Elaine

Gottschall...

2. I would get an IGG Food Allergy Panel and an Organic Acid Test by urine from

Great

Plains Laboratories (you can get the test kits by calling them directly and get

a local doc to

draw blood for you).

3. I would start with the diet at the link above.

4. I would keep reporting into the group.

5. I would start looking at doing a trial of methylcobalamin either by spray or

shot.

Take it one step at a time.

That's where I would begin.

- Stan

> > >>

> > >> Dear Stan and/or collective wisdom -- we haven't yet started Valtrex

> > >> (hope to sometime soon), but our DAN doctor put our daughter

> > >> (PDD-NOS, 5 yo) on Diflucan for a 21-day stint to clear up a

> > >> long-standing fungal infestation. By about day 2, she developed a

> > >> fever, and it stayed low-grade for a couple of days (100-101) and

> > >> then spiked up to 104 on day 5; took her to the pediatrician, who

> > >> diagnosed coxsackie (which is an enterovirus, distantly related to

> > >> oral herpes, as I understand it). We're off the Diflucan for now

> > >> while the coxsackie runs its course, so as not to tax her system...

> > >> do you all think the Diflucan might have " flushed out " the virus, or

> > >> is it a coincidence (she does go to a summer school where other kids

> > >> may have had the virus), or perhaps the fungal die-off might have

> > >> weakened her system enough for the coxsackie to pounce? Just

> > >> curious...

> > >>

> > >> Thanks to all in advance,

> > >>

> > >>

> > >> --

> > >> ------

> > >> Dell'

> > > > Austin, TX

> > >>

> >

> >

> >

> >

> >

> > ---------------------------------

> > Talk is cheap. Use Messenger to make PC-to-Phone calls. Great

rates

starting at

> 1¢/min.

> >

>

>

>

>

>

>

> ---------------------------------

> Music Unlimited - Access over 1 million songs.Try it free.

>

[Guest guest]

Hi deska....

I am fairly new here myself!

I totally hear you on the Dr's not wanting to do anything, especially since my

kids are not in " dire " need.... and it is frustrating and upsetting when you

have to fight for everything!!

i have 4 kids and both of the boys seem to be my biggest medical issues. I

have one son, my youngest, that was just Dx'd with SDS...but he also has low IgG

levels and with both things manages to stay sick alot! His levels are not so

low that anyone else seems too worried about it...I made an appt to have him see

my other sons allergy/immun dr..

my oldest son has and has had since 1 yrs old low IgG levels and now low

subclass levels as well. The only reason I got our allert/immun dr to retest

was because I found his test from when he was 1 yr and it was 1/2 what it

should've been... before that she didnt feel the need to test! we are now on

track....

I am glad you posted today, because sometimes everyone needs a reminder.. mild

kids are improtant too...and for new to this parents, we need support...

April

Deska <deska66@...> wrote:

I joined this group thinking it was supposed to be for support. I have

posted a few times and gotten no reply. I realize that my kids aren't

as sick as some of the others, but none the less, do have similar things.

We have had difficulties with stuff their whole lives, and it has been

frustrating trying to get the Dr's here in GA to listen to our

concerns. No one would test them, even after me asking them to, for

any kind of immune deficiency. I have asked them a few times over the

years and they never would. So once we got our diagnosis last month,

and I found this group, I thought it would be a good release. And then

when I never get any replies, it is just discouraging. Like I said, I

know my kids aren't as sick as some of your kids are, but they do have

a PID, and it is all new and scary for us still. It seems that not

many people in GA even know about this, and we are the first in our

school to have this. I am having to walk the school system through

everything and school them about it all. My kids have missed a lot of

school, my 6yr old 31 days, my 10 yr old 20 days, and we are trying to

get 504's.

If you guys don't think I need to be a part of your group, then I

understand, but can you direct me to another board? I do need a

support group where I can vent and talk and learn about this stuff. I

have questions and concerns and fears like everyone else with a new

diagnosis does. Through all of our stuff, tracheomalacia, heart

murmur, reflux, recurrent croup that is now asthma, recurrent ear

infections, etc I have had to learn about stuff and cope, and I just

need a place where I can find some support.

When everything seems to be going against you, remember the airplane takes off

against the wind, not with it.

--Henry Ford

---------------------------------

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

April,

Right! I hate having to fight for everything! my 6yr old Jayden has

low IGA/IGG levels and 3 subclass def the other one is tinkering on

being low, he has one t-cell level that is low, and 2 others that on

on the border of being low, so the only official diagnosis she has

given him is Hypogammaglobulinemia. My oldest son, Phoenix 10yrs old,

just has the IGA/IGG def. no subclass, no t-cell, but he has all fo

the allergies. They both have chronic sinus infections, and according

to the ct-scans, they need sinus surgery, but we're not doing that

right now with all of this staph that is running rampant in GA. (I'm

sure it's just as bad everywhere else too)

We went to the ENT Friday and my youngest has lost even more hearing

since 2yrs ago, I don't know if anything ties into that with all of

this. And yesterday to the GI dr and they are now testing for Celiac

disease too b/c of the low IGA and how bad his reflux still is and his

picky eating habits and being on the lower end of the growth charts,

even though he's not super small, he is on the lower side.

Can I email you directly? my email is deska66@... ...

> I joined this group thinking it was supposed to be for

support. I have

> posted a few times and gotten no reply. I realize that my kids aren't

> as sick as some of the others, but none the less, do have similar

things.

> We have had difficulties with stuff their whole lives, and it has been

> frustrating trying to get the Dr's here in GA to listen to our

> concerns. No one would test them, even after me asking them to, for

> any kind of immune deficiency. I have asked them a few times over the

> years and they never would. So once we got our diagnosis last month,

> and I found this group, I thought it would be a good release. And then

> when I never get any replies, it is just discouraging. Like I said, I

> know my kids aren't as sick as some of your kids are, but they do have

> a PID, and it is all new and scary for us still. It seems that not

> many people in GA even know about this, and we are the first in our

> school to have this. I am having to walk the school system through

> everything and school them about it all. My kids have missed a lot of

> school, my 6yr old 31 days, my 10 yr old 20 days, and we are trying to

> get 504's.

>

> If you guys don't think I need to be a part of your group, then I

> understand, but can you direct me to another board? I do need a

> support group where I can vent and talk and learn about this stuff. I

> have questions and concerns and fears like everyone else with a new

> diagnosis does. Through all of our stuff, tracheomalacia, heart

> murmur, reflux, recurrent croup that is now asthma, recurrent ear

> infections, etc I have had to learn about stuff and cope, and I just

> need a place where I can find some support.

>

>

>

>

>

>

> When everything seems to be going against you, remember the airplane

takes off against the wind, not with it.

> --Henry Ford

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with Mobile.

Try it now.

>

>

[Guest guest]

I apologize if I did not respond to you. I usually say welcome to new

members..but don't; always respond to everyone's questions. I usually only

respond to questions that I can answer :-) or know something about. I have

two boys with Shwachman-Diamond Syndrome. You can meet my family at

www.shwachman.50megs.com <http://www.shwachman.50megs.com/>

You definitely need to be part of the group! I don't think anyone was doing

anything intentionally-I ask questions sometimes and don't get replies..and

then others I ask get a ton of replies. I think it varies---- sometimes I

don't get a chance to even read all of the emails-I scan the subject line

and if I can help, then I will reply...

Peace of Christ be with you,

Pattie

" I don't claim anything of the work. It is His work. I am like a little

pencil in His hand. That is all. He does the thinking. He does the writing.

The pencil has nothing to do with it. The pencil has only to be allowed to

be used. " ~Mother

I joined this group thinking it was supposed to be for support. I have

posted a few times and gotten no reply. I realize that my kids aren't

as sick as some of the others, but none the less, do have similar things.

We have had difficulties with stuff their whole lives, and it has been

frustrating trying to get the Dr's here in GA to listen to our

concerns. No one would test them, even after me asking them to, for

any kind of immune deficiency. I have asked them a few times over the

years and they never would. So once we got our diagnosis last month,

and I found this group, I thought it would be a good release. And then

when I never get any replies, it is just discouraging. Like I said, I

know my kids aren't as sick as some of your kids are, but they do have

a PID, and it is all new and scary for us still. It seems that not

many people in GA even know about this, and we are the first in our

school to have this. I am having to walk the school system through

everything and school them about it all. My kids have missed a lot of

school, my 6yr old 31 days, my 10 yr old 20 days, and we are trying to

get 504's.

If you guys don't think I need to be a part of your group, then I

understand, but can you direct me to another board? I do need a

support group where I can vent and talk and learn about this stuff. I

have questions and concerns and fears like everyone else with a new

diagnosis does. Through all of our stuff, tracheomalacia, heart

murmur, reflux, recurrent croup that is now asthma, recurrent ear

infections, etc I have had to learn about stuff and cope, and I just

need a place where I can find some support.