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Hi Kathy, I'm Kathy too, also the mother of a five-year-old girl who will

start Kindergarten this fall, my daughter was diagnosed with ocd a few

months ago after a sudden onset of obsessions. Welcome, I'm sure you will

find this list as helpful as I have in navigating the ins and outs of ocd.

The problems you mention may lessen as you find the right dose of medication

for your girl, and with time at the correct dose. Does she do cbt? We

haven't had much success in this area yet because of problems finding a

therapist in this area who believes she is old enough to benefit. We see a

new therapist on Thursday.

After my daughter's ocd started she began to have compulsions about

urinating and defecating. She has " bad thoughts " (obsessions) that the

pee-pee and poopie coming out were knives, so she would refuse to do either

because if she did her " bad feelings " got " worser. " Do you know if your

daughter has these types of thoughts, or perhaps she thinks the toilet is

contaminated? Might she use a potty chair for bms instead of the pull-up?

Sit on the toilet wearing a pull up to have a bm as an interim step? I

found when my daughter would use the toilet to urinate, but she was

unwilling to sit long enough to have a bm (and I suspected she needed to), I

would read a book or otherwise distract her until sometimes nature would

take its course. The key was to not mention her need to have a bm directly,

just distract her for no apparent reason so she wouldn't pop right off the

toilet after urinating. If I mentioned poopie outright, the deal was off!

My daughter also went through a couple of weeks recently when she would

shout at strangers when we were in public, she would also shout at neighbors

out of the windows of our home. I don't have any ideas for this one, it

just passed and so far hasn't come back. My daughter's explaination was

just that it was a bad thing she had to do.

Sorry so long,

Kathy R. in Indiana

I'm new!

> From: Kathy <khietala@...>

>

> Hi:

>

> My name is Kathy and my daughter was diagnosed with OCD 3 months ago. She

has had

> developmental problems since she was 2 yrs old. She started with a label

of " autism "

> that has now progressed into OCD. We finally believe that we have the

correct

> diagnosis for her. We started her on medication since she spent most of

her nights

> screaming. There has been allot of improvement. She will be entering

Kindergarten in

> the fall and I think we were able to select a good teacher for her.

>

> I joined the list for support and ideas when I run out of them.

is still not

> completely potty trained. She refuses to have a BM in the toilet. She

will go get a

> pull-up as she needs to and even changer herself. When we have tried

taking the

> pull-ups away she would hold her BMs to the point of making herself sick.

Any idea?

>

> My other question is that she finds someone to single out to yell at. She

will yell at

> complete strangers saying that they are mean. It makes for very difficult

outings. We

> were recently at a rest area and she started yelling at an older girl in

the bathroom.

> I briefly explained to the mother and she was very nice about it. What

gives? Any

> ideas what this is all about?

>

> Thank you

> Kathy H.

>

>

>

>

> ------------------------------------------------------------------------

> With more than 17 million e-mails exchanged daily...

>

> ...ONElist is THE place where the world talks!

> ------------------------------------------------------------------------

> The is sponsored by the OCSDA. You may visit

their web site at http://www.ocdhelp.org/ and view schedules for chatroom

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  • 2 weeks later...
Guest guest

Sorry it took so long to reply. started with a dx of autism, but it

wasn't a good fit. She has a language processing problem and is about 2 years

behind in speech. It makes it

very hard to find out what the fear is when she is upset. Lately, she has been

hitting other children, that she doesn't know. I think I have finally gotten

enough information out of her to

understand that she fears the other children will take something from her.

The good news is that she is finally having her BM's in the toliet. (sorry to

the weak of stomach) She is 5 years 8 months and I was beginning to think that

I would never see this day.

How do you find a therapist for a 5 year old with limited language? Any ideas

where I start?

Thanks

Kathy Hietala

Phoenix, AZ

W. Birk wrote:

> From: " W. Birk " <wb4@...>

>

> Wow another KATHY H.!!

>

> Welcome to your support group. We are all very creative and

> understanding.

> To help with less confusion, perhaps you could add the state that you live

> in or other identifiying signature??!!!

>

> Is ocd s only diagnosis?

>

>

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  • 1 year later...

Welcome Beverley. That was a pretty broad question you asked. I have a 14

year old son with DS and I can tell you that infant stimulation does help.

I can also tell you to expect as much from the child with DS as you do from

any child. I have to push a lot because he thinks that reading and

math are the ultimate bore. He loves basketball, swimming, and pizza. You

will enjoy the list.

Elaine Mom to 17 and 14 (DS)

I'm new!

> Hi, I am the foster mom to a one month old ds baby...I picked him up from

> the hospital yesterday!

> His heart and hips are good, he passed the hearing test and he has

> hypothyroidism, corrected with meds.

>

> I have other foster children (8yob and 10yob) and have an adopted child

> (17 yob) in an RTC and 3 bio children(15yob, 14yob, 12yog). We have

> always had special needs children but ususally focus on ED/RAD issues. So

> I am wondering what you experts would want to tell me. I have the Early

> Intervention folks coming out on Tuesday 28th.

>

> I am the moderator on a parents of bipolar children list and am on other

> adoption/RAD lists too!!

>

> Looking forward to getting to know you....Iam in VA...where is the store

> to bu English things/food?? I am English too!...married to an American,

> and just loving it (20 years in 2001!)

>

>

> Beverley, Moderator bp7. Mom to , 17 in RTC, BP?, RAD, ODD, ADD,

> OCD, Antisocial Personality. Wellbutrin, Seroquel, 3 inhalers and

> Singulair.

> Mom to S 15, W14, V12,

> Wife to Jim, ever loving and helpful.

> mom to T 10, and A 8. Also to A 1 month old, Down Syndrome.

> ________________________________________________________________

> GET INTERNET ACCESS FROM JUNO!

> Juno offers FREE or PREMIUM Internet access for less!

> Join Juno today! For your FREE software, visit:

> http://dl.www.juno.com/get/tagj.

>

>

>

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  • 1 month later...

Hi

You will find a lot of support in this group and it is run very well--always

kind words and you can vent any time for as long as you like. I feel

relieved that there is a place like this to post where there is concerned

feedback. I hope you find a way to manage the pain in your back and Im glad

you found the group

Hugs

Colleen

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WELCOME!I am in Chronic Pain from my cervical dystonia. I belong to a Chronic Pain support group in my town, affiliated with the American Chronic Pain Assocation (www.theacpa.org). We have members of all ages and different conditions. It has been a wonderful support for me.

Love and blessings to you,

Lee

Czarnecki <kiddoc82@...> wrote:

My name is , and I am 18. I was born with cerebral palsy, and have developed many medical problems throughout my life that kinda cramp my style. I have depression, Raynaud's disease, ADD, adrenilin hypersensitivity (which causes tachycardia at times), anxiety, debilitating migraines, and chronic pain. Right now, I am having a very rough time because I have this terrible pain in my back...and can hardly move. I am really down in the dumps, which is pretty unusual for me since my depression is controlled by taking Zoloft, but I guess that when ANYONE is in pain, they will at some point, experience some emmotional turmoil. I belong to the illkids egroup, but I found this one through websurfing and decided to join.

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Hi ,

I'm on the illkids group too! You will like this group a lot, everyone here is wonderful and caring! How have you been? Well, I have to go It's great to see you here!

Jessi () 16 y/o

I'm new!

My name is , and I am 18. I was born with cerebral palsy, and

have developed many medical problems throughout my life that kinda

cramp my style. I have depression, Raynaud's disease, ADD, adrenilin

hypersensitivity (which causes tachycardia at times), anxiety,

debilitating migraines, and chronic pain. Right now, I am having a

very rough time because I have this terrible pain in my back...and

can hardly move. I am really down in the dumps, which is pretty

unusual for me since my depression is controlled by taking Zoloft,

but I guess that when ANYONE is in pain, they will at some point,

experience some emmotional turmoil. I belong to the illkids egroup,

but I found this one through websurfing and decided to join. I look

forward to meeting you all really soon. I will introduce myself in

more detail later.

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~~~~~~~~~~~~~~~

“Hold on to what is good, even if it's a handful of earth. Hold on to what you believe, even if it's a tree that stands by itself. Hold on to what you must do even, if it's a long way from here. Hold on to your life, even if it's easier to let go." - Pueblo Prayer

--- Dorothy Rush

--- jmducky@...

--- EarthLink: It's your Internet.

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Jessi, I am ok. Kind of depressed still because my therapist says my pain has seemed to increase, which is weird, because it was an 8 on friday on a scale of 1-10...I'm sure you're familar with that. Anyway, she is making me go back to see the doctor. I have an appointment on Friday. When I called to schedule it, they couldn't understand why I would need to see the doctor again.....Like I would know...I am just following the instructions of the PT. And that's what she told me to do. Doctor's offices cofuse me sometimes.

Kell

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Hi ,

Welcome to our family! This group will help you and are very caring

amongst each other. I am glad you found us.

Love,

Leigh

>From: " Czarnecki " <kiddoc82@...>

>Reply-egroups

>egroups

>Subject: I'm new!

>Date: Sun, 21 Jan 2001 21:42:01 -0000

>

>My name is , and I am 18. I was born with cerebral palsy, and

>have developed many medical problems throughout my life that kinda

>cramp my style. I have depression, Raynaud's disease, ADD, adrenilin

>hypersensitivity (which causes tachycardia at times), anxiety,

>debilitating migraines, and chronic pain. Right now, I am having a

>very rough time because I have this terrible pain in my back...and

>can hardly move. I am really down in the dumps, which is pretty

>unusual for me since my depression is controlled by taking Zoloft,

>but I guess that when ANYONE is in pain, they will at some point,

>experience some emmotional turmoil. I belong to the illkids egroup,

>but I found this one through websurfing and decided to join. I look

>forward to meeting you all really soon. I will introduce myself in

>more detail later.

>

>

>

>

>The Being Sick Community

>

>Visual problems with colors?

>Click the link below and select the modify link to your right. Then select

>the **Send Plain Text Email** option. This will stop you receiving emails

>with colored or enlarged fonts.

>

>

>Members Lounge:-

>Photo Album, memorial page, members profiles, birthdays, locations, medical

>resources, counselling via email and a whole bunch of free things.

>http://www.elderwyn.com/members

>

>Message Archives and Digest Attachment Pictures:-

>messages/

>

>Chat:-

>Scheduled Daily Chats at # on IRC DALnet.

>/chat.htm

>

>Sharing our resources:-

>Add a website URL you have found useful.

>

>

>Personal Complaints or problems:-

>Please contact a moderator either via email <-owneregroups>

>or visit:-

>/Moderators.htm

>

>Subscription Details:-

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>2) Daily Digest - sends you 25 messages in one single email for you to

>browse. This is an excellent option if you receive alot of email.

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>convenience and receive no email.

>To modify your subscription settings please visit

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>

>To subscribe or unsubscribe

>subscribe/

>

>~~~~~~~~~~~~~~~

>

>“Hold on to what is good, even if it's a handful of earth. Hold on to what

>you believe, even if it's a tree that stands by itself. Hold on to what you

>must do even, if it's a long way from here. Hold on to your life, even if

>it's easier to let go. " - Pueblo Prayer

>

_________________________________________________________________

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Colleen,

I want to thank you for the welcome. I went to PT again today, as I have been doing for the past week and a half, 3 times a week. My pain seems to be increasing again, whereas I felt as though I was on the mend until last Thursday. Now, it's real bad again. I feel like I should be getting better, but I'm not, which is very frustrating for me. I mean, it's my senior year of high school. I should be enjoying myself, but between my migraines and now this, it's been a rough 6 months for me. I have to go back to the doctor on Friday. They couldn't figure out why I need to see the doctor again. They are great there, but sometimes lately I've wondered about them. I mean, wouldn't common sense tell you that increased pain warrants a trip to the doctor?! Geez!

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,

How did you sleep last nite? I hope ok. As for me, my day

started out ok but then the pain that I'm having came back.

Thankfully I have a week and a half to go before I have

the biopsy to check for endometriosis in my vaginal area.

I will let everyone know how that goes.

=====

Kristy :)

http://www.geocities.com/HotSprings/Falls/4659/kristyspage.html

__________________________________________________

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I wake up a lot of times in the night lately, because a certian position is not comfotable for me because of my back pain. Once I get to sleep though I do fine. When I first hurt it, that was a problem, but I am kind of getting used to being in excrutiating pain at this point.

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Aisha, Well, I have been medicated, but nothing is really helping much......I am uncomfortable whatever I do. I have been going to school despite it (I am a high school senior), but the pain got so bad this morning, that I had to lie on my teacher's floor. Then, when I had to leave for my next class, She had to practically pick me up. I couldn't stand up. I am getting so tired of my "friends" telling me to quit talking about my back hurting!!!!!!!!!!! I am pretty upset right now, because for the past 2 years that I have been real sick and had to miss a lot of school, they have kind of excluded me. I wish they would just have to spend one day in my shoes...Then they'd stop complaining about a stupid routine problem such as menstrual cramps. This one friend in particular acts like she's dying whenever she gets her period, and it drives me crazy....I feel so isolated. No one understands...and its like no one trys which is worse. I wish I had one friend locally who was sick who wouldn't mind if I was having a bad day and needed to vent!

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Hi

Welcome to the group, I am sorry to hear you are feeling rotten but am glad you have found this group.

Just wanted to say hello and welcome, i am a carer for my hubby in australia.

Take care

Lots of love

nerys

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Hi , Welcome to our warm family! I am 22 and have chronic pain [occipital neuralgia] and non insulin diabetes.

i am glad that you found us! Please feel free to talk whenever you want to, for as long as you want!

Ling

Czarnecki <kiddoc82@...> wrote:

My name is , and I am 18. I was born with cerebral palsy, and have developed many medical problems throughout my life that kinda cramp my style. I have depression, Raynaud's disease, ADD, adrenilin hypersensitivity (which causes tachycardia at times), anxiety, debilitating migraines, and chronic pain. Right now, I am having a very rough time because I have this terrible pain in my back...and can hardly move. I am really down in the dumps, which is pretty unusual for me since my depression is controlled by taking Zoloft, but I guess that when ANYONE is in pain, they will at some point, experience some emmotional turmoil. I belong to the illkids egroup, but I found this one through websurfing and decided to join.

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Ling, First of all, Hi! Nice to meet you! Thanks for the welcome! :-)

How do you deal with your chronic pain? Because I am about to go banannas with mine, between migraines and now my back problems. It is depressing me. I have done the depression song and dance for long enough, and I am better because of Zoloft, but I fear if this keeps up that I am headed in the same direction as before!

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Chronic pain is exhausting and depressing. It is important to find some regimen that helps you. It has to be individualized. It took me 4 different physical therapist to find one who could work with my neck. She helped me set up a stretching program that helps. It took me zillions of pillows to find one that worked. When my neurologist suggested yet another pillow I resisted but am I glad I tried it. I actually sleep through the night many times now!! I also find acupuncture to be very helpful but I can seldom afford it.

It took quite awhile to find a pain medication regimen that worked for me. My doc would give me about 4 pills of something to try. If they didn't work, I'd try something else. Finally, I have it pretty much under control.

The other thing I've had to learn is how to pace myself. That was tough for me. But I've learned that if I do too much, I will pay dearly. I have ended up flat on my back for weeks. That is not worth it. I have also learned how to ask for help.

Lee

kiddoc82@... wrote:

Ling, First of all, Hi! Nice to meet you! Thanks for the welcome! :-) How do you deal with your chronic pain? Because I am about to go banannas with mine, between migraines and now my back problems. It is depressing me. I have done the depression song and dance for long enough, and I am better because of Zoloft, but I fear if this keeps up that I am headed in the same direction as before!

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Hi !

The neuralgia I have causes me to have really bad headches everyday. Sometimes it gets real bad until I practically cannot function. Have seen so many docs and tried lots of treatments such as medications, physical therapy, acupuncture, pschologist visits, etc, etc.

So finally the neuro said that since these do not work, I may as well see a pain management specialist and get a nerve block. Well, I did, and the pain doc gave me a occipital nerve block, which really did wonders for me, well, at least for a month. When the pain came back, he tried other types of blocks on me, but the best one is still the occipital block. However, the block only stops the pain totally for a week now.

Now my present arrangement is to bear with the pain, and if it gets bad, I take a painkiller, such as Indomethacin. Have tried most classes of medications from NSAIDS to anti-depressants, and so on, but none really worked for me actually. It the headaches get really bad, I go back to the pain doc, and then he gives me another nerve block.

HAve you seen a pain doc? Sometimes if the docs cannot do much for the pain, a pain doc may just make you feel better. I have tried a sphenopalatine ganglion block that the doc told me was supposed to work great for headaches, especially migraines. Well, it did not work for me, but perhaps you might consider trying it yourself? It might work.

Hugs, Ling

Re: I'm new!

Ling, First of all, Hi! Nice to meet you! Thanks for the welcome! :-) How do you deal with your chronic pain? Because I am about to go banannas with mine, between migraines and now my back problems. It is depressing me. I have done the depression song and dance for long enough, and I am better because of Zoloft, but I fear if this keeps up that I am headed in the same direction as before!

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Hi , and welcome!!

I'm terribly, horribly behind on my email, so I apologize for taking so long to

welcome you.

I'm , momma to Adrienne, Gracie, ^^ and ^^. I joined this

group as a caregiver to my son, Matty, and have just tagged along now that he

has passed away.

I hope you come to like this group as much as I have. :-)

*hugs*

Czarnecki wrote:

> My name is , and I am 18. I was born with cerebral palsy, and

> have developed many medical problems throughout my life that kinda

> cramp my style. I have depression, Raynaud's disease, ADD, adrenilin

> hypersensitivity (which causes tachycardia at times), anxiety,

> debilitating migraines, and chronic pain. Right now, I am having a

> very rough time because I have this terrible pain in my back...and

> can hardly move. I am really down in the dumps, which is pretty

> unusual for me since my depression is controlled by taking Zoloft,

> but I guess that when ANYONE is in pain, they will at some point,

> experience some emmotional turmoil. I belong to the illkids egroup,

> but I found this one through websurfing and decided to join. I look

> forward to meeting you all really soon. I will introduce myself in

> more detail later.

>

>

>

> The Being Sick Community

>

> Visual problems with colors?

> Click the link below and select the modify link to your right. Then select the

**Send Plain Text Email** option. This will stop you receiving emails with

colored or enlarged fonts.

>

>

> Members Lounge:-

> Photo Album, memorial page, members profiles, birthdays, locations, medical

resources, counselling via email and a whole bunch of free things.

> http://www.elderwyn.com/members

>

> Message Archives and Digest Attachment Pictures:-

> messages/

>

> Chat:-

> Scheduled Daily Chats at # on IRC DALnet.

> /chat.htm

>

> Sharing our resources:-

> Add a website URL you have found useful.

>

>

> Personal Complaints or problems:-

> Please contact a moderator either via email <-owneregroups> or

visit:-

> /Moderators.htm

>

> Subscription Details:-

> 1) Individual email - means that every email sent to the list you receive.

> 2) Daily Digest - sends you 25 messages in one single email for you to browse.

This is an excellent option if you receive alot of email.

> 3) Web only/No mail - means that you can pop into eGroups at your convenience

and receive no email.

> To modify your subscription settings please visit

mygroups

>

> To subscribe or unsubscribe

> subscribe/

>

> ~~~~~~~~~~~~~~~

>

> “Hold on to what is good, even if it's a handful of earth. Hold on to what you

believe, even if it's a tree that stands by itself. Hold on to what you must do

even, if it's a long way from here. Hold on to your life, even if it's easier to

let go. " - Pueblo Prayer

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  • 9 months later...

I found it!. 2 actually. I recently got 250 bath and body recipes in a dutch

auction on E-bay for $2.00! Anything from soap crayons to suntan lotion!

Here are the 2 recipes you might be interested in.

Suzanne

14. BATH BOMBS / BATH FIZZIES

2 tbs. citric acid (you can get this at a pharmacy)

2 tbs. cornstarch

1/4 cup baking soda

3 tbs. coconut oil (or any other emollient oil like almond, avocado or

apricot kernel oil)

1/4 tsp. fragrance oil

3-6 drops of food coloring (if desired)

Paper candy cups

Place all of the dry ingredients (first 3) into a bowl and mix well. Place

coconut oil into a small glass bowl and add fragrance and food coloring.

Slowly add oil mixture into dry ingredients and mix well. Scoop up small

amounts of the mixture and shape into 1 " balls. Let the balls rest on a

sheet of waxed paper for about 2 to 3 hours, then place each ball into a

candy cup to let dry and harden for 24 to 48 hours. Store bombs in a

closed, air-tight container. To use, drop 1 to 3 bombs into warm bath

water.

97. FOAMING BATH OIL BALLS

1/4 cup baking soda

2 tbs. citric acid or ascorbic acid (powdered vitamin C)

1 tbs. borax powder (for softening)

2 tbs. powdered sugar (for binding)

2 tbs. sweet almond oil

1 tsp. vitamin E oil (preservative)

1/4 tsp. fragrance or essential oil

Combine the dry ingredients in a bowl and stir until well blended. Drizzle

in almond oil and stir until mixture is moistened. Add vitamin E oil and

fragrance and stir until well mixed. Take teaspoon size globs of mixture

and form into ball shapes with fingers. (Mixture will be VERY crumbly and

fragile, so do the best you can. Add a little bit more of the vitamin E

oil... I find that helps.) Place the balls on a sheet of wax paper and

leave alone for 2 to 3 hours. After 2 to 3 hours, reshape balls. Let the

balls air-dry and harden for 10 days. Store balls in a closed container to

protect from moisture. To use, plop a ball into your bathtub in warm water!

I'm New!

Hi everybody, I'm new here. I originally found this group while

seaching for recpies on how to make bath bombs (which I absolutly

adore) which I'm going to try either today or tomorrow. Anyway, I

was wondering if anyone has a recipe for solid bubble bath (If

anybody has been inside a Lush store, they'll know what I'm talking

about). It's a lot more crumbly than soap (sort of cookie dough

consistancy... but not as sticky) and you curmble a piece into some

running water and if foams like crazy. Does anybody have a recipe for

this, or know where I can get a recipe?

Amy

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  • 6 months later...
Guest guest

I have noises when not eating, maybe the saliva going down. There

are different noises, probably because the food is stuck. I can have

releases of air stuck in the esophagus, I guess like a burp, that

sounds like a gurgle but uncontrollable. That happens without food.

Can't burp anymore, don't remember what a real burp is.

Sandy

> Hi,

> My name is Christy. I am 21 years old and I started having sings of

> achalasia about a year ago. I am nearly positive that I have

> alchalisia but the doctors are still doing tests. My insurance is

> awful and they are taking forever... I think they just don't want

to

> deal with me because they can't figure out what is wrong with me. I

> was just wondering if any of you experience any sort of noise from

> the throat area when you eat or drink anything. It sounds silly but

> anytime I swallow anything there is a growling/gurggling noise...

it

> is really embarrassing... other people can hear it. I was just

> wondering if I was alone on this one.

> Christy

> San Diego, CA

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Guest guest

Welcome to the group Christy.

I hope you soon get an accurate diagnosis as so many things can go wrong with our bodies can't they.

I presume, however, that achalasia has been considered or you wouldn't have found us as a support group?

As for the gurgling I expect many of us will be able to tell you you are not alone on this one. I certainly experience it.

Keep in touch and make sure they complete the relevant investigations for you soon so you can be certain this is what you have and get the treatment you need.

Chris

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Guest guest

Dear Christy,

Welcome to the group. One of the first signs I had was a bizarre gurgling

in my throat. Mine was particularly noticeable when I would lay down at night

to go to sleep. I could always produce that noise when I swallowed, but also

sometimes it did it on it's own. I can certainly empathize with bad insurance.

I had it once when I desperately needed a hysterectomy. It's so frustrating.

Just hang in there and lay down kicking and screaming on the doorstep if you

have to. Where do you live? Many of us around the country can recommend

excellent places for diagnosis and treatment of " A " . We have lots of tips for

spasms and pain, eating, foods, and so on. I had a successful myotemy/partial

wrap in December. I feel very lucky to have had the option to have the surgery,

as I am now fine. I DO still have the gurgling sometimes, though! But I have

no reflux at all, and I can swallow and eat anything. I will always know I have

" A " , but it is very manageable, and nobody else needs to know if I don't tell

them!

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