Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 Hi, guys. Just wanted to update everyone on my 16 year old son. He's been taking LDN at 3 mg for 2 weeks, and we are just thrilled with the results. He says his energy level is much better, and his heat sensitivity is almost non-existent. (As non-existent as it can be in the Kentucky heat...Hmmmm...Maybe you should be started on LDN at birth there...) He is tolerating it extremely well, no insomnia or stiffness. I have to call Dr. next week for a progress report, so I am wondering if he will increase him to 4.5 or not, but I guess I will soon find out. Just wanted to keep all you wonderful people who helped me so much informed. I know I'm still gonna need your " counselling " now and then, but you just have no idea how it feels not to be sticking a needle in that child every time I turn around. Hope you're having a great week! Take care... Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 Kim, if he's doing well on 3 mg why not just keep him there for an extended time period? Many of us didn't encounter problems until we tried to increase the dosage, perhaps too soon because we become so impatient... ----- Original Message ----- From: petessweetheart low dose naltrexone Sent: Wednesday, July 07, 2004 5:17 AM Subject: [low dose naltrexone] Update on Colby Hi, guys. Just wanted to update everyone on my 16 year old son. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 Best News EVER - and I really needed some today. Thanks for reporting - here's to Colby's continued success. Cinders Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 Hey Kim!!! That's Great News about Colby! Thanks for keeping us updated. Jim(ms) ----- Original Message ----- From: petessweetheart low dose naltrexone Sent: Wednesday, July 07, 2004 5:17 AM Subject: [low dose naltrexone] Update on Colby Hi, guys. Just wanted to update everyone on my 16 year old son. He's been taking LDN at 3 mg for 2 weeks, and we are just thrilled with the results. He says his energy level is much better, and his heat sensitivity is almost non-existent. (As non-existent as it can be in the Kentucky heat...Hmmmm...Maybe you should be started on LDN at birth there...) He is tolerating it extremely well, no insomnia or stiffness. I have to call Dr. next week for a progress report, so I am wondering if he will increase him to 4.5 or not, but I guess I will soon find out.Just wanted to keep all you wonderful people who helped me so much informed. I know I'm still gonna need your "counselling" now and then, but you just have no idea how it feels not to be sticking a needle in that child every time I turn around. Hope you're having a great week! Take care...Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2005 Report Share Posted June 2, 2005 Hi Kim, Watch your son on the Copaxone. I was on it for four months and was loosing my upper body strength. I was getting very weak and was also having shooting pains in my head and ears. Something that the doctors told me had nothing to do with the Copaxone. But as soon as I stopped using the Copaxone all my pains went away and my upper body strength came back thank God. I don't think that any medication works for everyone. I just want to keep you aware that Copaxone can have side effects. I wish you and your son good luck Marie [low dose naltrexone] Update on Colby I haven't posted here in quite some time, but I do occasionally come back and read and try to keep up with everyone. I just wanted to let you all know what was going on with my son.For those of you who don't know me, he is 17 years old and was diagnosed with MS 4 years ago. We tried Avonex and Rebif, and his condition worsened. He was on LDN for 9 months, and doing wonderfully. In his teenage mind, he decided he was "cured" and stopped taking the LDN regularly, and he also had to have gallbladder surgery and experienced a mild increase of symptoms after that. We saw a new neuro, and he insisted that we take him off the LDN for awhile and try Copaxone alone. He has done fairly well with the Copaxone, and has been using it for 3 months, but we have noticed huge differences in him without the LDN. His cognitive skills and memory have declined, as well as a return of heat intolerance and fatigue. Now whether this is because of the absence of LDN or the introduction of the copaxone remains to be seen. Regardless, he saw the neuro again yesterday and will be going back on the LDN.The neuro said he has several patients on it seeing great results. He also noted several differences in Colby regarding his usual reflex neurological testing, and determined that he DID need the LDN. So, we are anxiously awaiting our script to arrive from good old Skip. We plan to reduce the copaxone to every other day, rather than daily for a bit. TEVA did trials at this dosage the same time they did the other trials and the results were just as good at this dosage, so that is what we have decided to do for now. (Not sure exactly what all this means, but I think you get my drift...) Eventually, we will probably leave off the Copaxone all together, but for now, we are so excited to have a neuro without blinders on that we are doing as he asks us to do!Just wanted to fill you all in and let you know what was going on. Alot of people here helped me tremendously in the past, and I made some very dear friends. Take care, and I hope this finds you all doing well!Kim Quote Link to comment Share on other sites More sharing options...
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