Re: baclafen&amp;zanax questions

Date: Tuesday, June 29, 2004 21:30:25

Undisclosed-Recipient:,@...

Subject: [low dose naltrexone] MS crossroads

Here is a lot of information for your perusal. Joan http://mscrossroads.org/

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

July 1, 2004

, you could try Inosine first. We've discussed it on the forum a few times, email me off forum if you want a brief review.

----- Original Message -----

From:

Sent: Wednesday, June 30, 2004 7:59 PM

Subject: Re: [low dose naltrexone] baclafen & zanax questions

Does anyone out there have an opinion on baclafen and/or zanax?

I am experiencing strong spasticity and my doc wants me to take one or both of these.I don't like drugs(except ldn)and I'm nervous about taking these, but I'm unhappy about my lack of mobility due to spascity.HELP.

Any opinions out there?

-------Original Message-------

Date: Tuesday, June 29, 2004 21:30:25

Undisclosed-Recipient:,@...

Subject: [low dose naltrexone] MS crossroads

Here is a lot of information for your perusal. Joan http://mscrossroads.org/

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

July 1, 2004

Hi

Im spms and have quite bad spastisicty i take one 2mg tablet zanaflex before i go to bed so i can sleep ok and not get too stiff, i actually find it helps me to get to sleep because it makes me feel sleepy and then another 2mg tablet in the morning which helps me get mobile again,sleepy feeling wares off after a while i have been doing this for about 6 months and taking 4.5 mg ldn,it works for me.

July 1, 2004

Hi

I tried Baclafen two or three times. It didn't work for me. For me it zapped my strentgh. They kept on putting me on it to see if my body would eventually take to it. All I wanted to do was sleep. That was hard to do cause I was working (at that time) 40 hour weeks.

They put me on tegretol for my muscle spasms and that worked great. I have been on it since 1987 @ 100 mg 3 or 4 times per day. Then when I started LDN last year my spasms eased up quite a bit so now I am only taking 1 to 2 pills per day.

Hope this helps

Marie

----- Original Message -----

From:

Sent: Wednesday, June 30, 2004 10:59 PM

Subject: Re: [low dose naltrexone] baclafen & zanax questions

Does anyone out there have an opinion on baclafen and/or zanax?

I am experiencing strong spasticity and my doc wants me to take one or both of these.I don't like drugs(except ldn)and I'm nervous about taking these, but I'm unhappy about my lack of mobility due to spascity.HELP.

Any opinions out there?

-------Original Message-------

Date: Tuesday, June 29, 2004 21:30:25

Undisclosed-Recipient:,@...

Subject: [low dose naltrexone] MS crossroads

Here is a lot of information for your perusal. Joan http://mscrossroads.org/

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

July 1, 2004

Thank you

cindy

-------Original Message-------

Date: Thursday, July 01, 2004 03:07:53

Subject: Re: [low dose naltrexone] baclafen & zanax questions

Hi Im spms and have quite bad spastisicty i take one 2mg tablet zanaflex before i go to bed so i can sleep ok and not get too stiff, i actually find it helps me to get to sleep because it makes me feel sleepy and then another 2mg tablet in the morning which helps me get mobile again,sleepy feeling wares off after a while i have been doing this for about 6 months and taking 4.5 mg ldn,it works for me.

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

July 1, 2004

Thank you Marie,

I've never heard of tegretol!No other side effects?I've only been on ldn for 7 weeks so it hasn't done anything for spasms...in fact, I'm more stiff in the am. I'll check out tegretol.

-------Original Message-------

Date: Thursday, July 01, 2004 05:52:10

Subject: Re: [low dose naltrexone] baclafen & zanax questions

Hi

I tried Baclafen two or three times. It didn't work for me. For me it zapped my strentgh. They kept on putting me on it to see if my body would eventually take to it. All I wanted to do was sleep. That was hard to do cause I was working (at that time) 40 hour weeks.

They put me on tegretol for my muscle spasms and that worked great. I have been on it since 1987 @ 100 mg 3 or 4 times per day. Then when I started LDN last year my spasms eased up quite a bit so now I am only taking 1 to 2 pills per day.

Hope this helps

Marie

----- Original Message -----

From:

Sent: Wednesday, June 30, 2004 10:59 PM

Subject: Re: [low dose naltrexone] baclafen & zanax questions

Does anyone out there have an opinion on baclafen and/or zanax?

I am experiencing strong spasticity and my doc wants me to take one or both of these.I don't like drugs(except ldn)and I'm nervous about taking these, but I'm unhappy about my lack of mobility due to spascity.HELP.

Any opinions out there?

-------Original Message-------

Date: Tuesday, June 29, 2004 21:30:25

Undisclosed-Recipient:,@...

Subject: [low dose naltrexone] MS crossroads

Here is a lot of information for your perusal. Joan http://mscrossroads.org/

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

July 1, 2004

,

The Baclophen will weaken your muscles and you certainly don't need that. The Zaneflex will definitely help with the spasms. There are very little negative side effects, I have been taking it for a year or so and it does help.

Regards,

Tom

----- Original Message -----

From:

Sent: Wednesday, June 30, 2004 10:59 PM

Subject: Re: [low dose naltrexone] baclafen & zanax questions

Does anyone out there have an opinion on baclafen and/or zanax?

I am experiencing strong spasticity and my doc wants me to take one or both of these.I don't like drugs(except ldn)and I'm nervous about taking these, but I'm unhappy about my lack of mobility due to spascity.HELP.

Any opinions out there?

-------Original Message-------

Date: Tuesday, June 29, 2004 21:30:25

Undisclosed-Recipient:,@...

Subject: [low dose naltrexone] MS crossroads

Here is a lot of information for your perusal. Joan http://mscrossroads.org/

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

July 1, 2004

Thank you Tom,

This site is so helpful!I may try the Zanaflex or as suggested , Inosine.

Thank you for your response.

-------Original Message-------

Date: Thursday, July 01, 2004 08:48:35

Subject: Re: [low dose naltrexone] baclafen & zanax questions

,

The Baclophen will weaken your muscles and you certainly don't need that. The Zaneflex will definitely help with the spasms. There are very little negative side effects, I have been taking it for a year or so and it does help.

Regards,

Tom

----- Original Message -----

From:

Sent: Wednesday, June 30, 2004 10:59 PM

Subject: Re: [low dose naltrexone] baclafen & zanax questions

Does anyone out there have an opinion on baclafen and/or zanax?

I am experiencing strong spasticity and my doc wants me to take one or both of these.I don't like drugs(except ldn)and I'm nervous about taking these, but I'm unhappy about my lack of mobility due to spascity.HELP.

Any opinions out there?

-------Original Message-------

Date: Tuesday, June 29, 2004 21:30:25

Undisclosed-Recipient:,@...

Subject: [low dose naltrexone] MS crossroads

Here is a lot of information for your perusal. Joan http://mscrossroads.org/

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

July 1, 2004

,

how exactly do I email you off forum?I am computer- challenged.I do remember some discussion re: inosine, but something that I can't recall, made me worry about it.Causing uric acid levels to go up perhaps?

Anyway, I would like to email you, so how do I do that?

-------Original Message-------

Date: Wednesday, June 30, 2004 23:01:32

Subject: Re: [low dose naltrexone] baclafen & zanax questions

, you could try Inosine first. We've discussed it on the forum a few times, email me off forum if you want a brief review.

----- Original Message -----

From:

Sent: Wednesday, June 30, 2004 7:59 PM

Subject: Re: [low dose naltrexone] baclafen & zanax questions

Does anyone out there have an opinion on baclafen and/or zanax?

I am experiencing strong spasticity and my doc wants me to take one or both of these.I don't like drugs(except ldn)and I'm nervous about taking these, but I'm unhappy about my lack of mobility due to spascity.HELP.

Any opinions out there?

-------Original Message-------

Date: Tuesday, June 29, 2004 21:30:25

Undisclosed-Recipient:,@...

Subject: [low dose naltrexone] MS crossroads

Here is a lot of information for your perusal. Joan http://mscrossroads.org/

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

July 1, 2004

In a message dated 01/07/04 04:17:29 GMT Daylight Time, cindyyoung@... writes:

Please stop sendinf messages my computer cannot take them all and neither can I Thanks

July 1, 2004

HI CINDY-

I TAKE BACLEFON AND IT WORKS WONDERS. START WITH A SMALL

DOES AND WORK YOUR WAY UP. I REMEMBER THE FIRST TIME I TOOK

IT, IT MADE ME DIZZY.

ALSO, TALK TO THE DR. ABOUT KEPPRA - BIOGEN SENT ME

INFORMATIONM THAT I WOULD GET GOOD RESULTS. KEPPRA HAS BEEN

HELPFUL.

GOOD LUCK.

BESTAUNT

July 1, 2004

I just read this and had to respond, yes the stiffness is bad in the A,M. but eases up in the evening usually.

Have you or anyone else noticed a very big difference in the late P.M.?

I stayed up quite late last night to watch the fireworks(yes we have them here in Canada too)and at about one o-clock I noticed that for the first time in years I was taking steps and raising my left leg! )What is with that?

It came very naturally, just like I had not spent the last five years dragging it when I walked.

Now it didn,t last very long, only like three minutes, but it was sure a treat!

This morning I am back to normal ,for me, but I am sure looking forward to more of this.

Is this what Relapsing Remitting M.S. is like?

Am I slowly going back to where I started with this M.S. trip?

I hope so.

Reg. S.P.M.S. since 1997 3.0mgs ldn for three months now.

-------Original Message-------

Date: 07/01/04 08:18:05

Subject: Re: [low dose naltrexone] baclafen & zanax questions

Thank you Marie,

I've never heard of tegretol!No other side effects?I've only been on ldn for 7 weeks so it hasn't done anything for spasms...in fact, I'm more stiff in the am. I'll check out tegretol.

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

July 1, 2004

I will say this again only because it is worth repeating as my brother hasn't walked ever since being put on baclofen.

Now that is a problem with communication between him and his Dr. and should have been resolved sooner but now they have accepted the fact that he can no longer support himself on his own two legs.

Of course this is my opinion only but I beleive that as soon as he couldn't stand, which just was days after the baclofen, maybe they should have researched other possibilities.

Sure he is not on baclofen any longer but then he is also seven months on ldn too.And that was the first thing the nurses commented on that his Spasticity was way less on ldn vs. the baclofen.

Reg.

-------Original Message-------

Date: 07/01/04 05:10:53

Subject: Re: [low dose naltrexone] baclafen & zanax questions

Hi

I tried Baclafen two or three times. It didn't work for me. For me it zapped my strentgh. They kept on putting me on it to see if my body would eventually take to it. All I wanted to do was sleep. That was hard to do cause I was working (at that time) 40 hour weeks.

They put me on tegretol for my muscle spasms and that worked great. I have been on it since 1987 @ 100 mg 3 or 4 times per day. Then when I started LDN last year my spasms eased up quite a bit so now I am only taking 1 to 2 pills per day.

Hope this helps

Marie

----- Original Message -----

From:

Sent: Wednesday, June 30, 2004 10:59 PM

Subject: Re: [low dose naltrexone] baclafen & zanax questions

Does anyone out there have an opinion on baclafen and/or zanax?

I am experiencing strong spasticity and my doc wants me to take one or both of these.I don't like drugs(except ldn)and I'm nervous about taking these, but I'm unhappy about my lack of mobility due to spascity.HELP.

Any opinions out there?

-------Original Message-------

Date: Tuesday, June 29, 2004 21:30:25

Undisclosed-Recipient:,@...

Subject: [low dose naltrexone] MS crossroads

Here is a lot of information for your perusal. Joan http://mscrossroads.org/

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

July 1, 2004

WHAT!!! I don't remember writing that. Whats going on here???

young

-------Original Message-------

Date: Thursday, July 01, 2004 14:10:35

Subject: Re: [low dose naltrexone] baclafen & zanax questions

In a message dated 01/07/04 04:17:29 GMT Daylight Time, cindyyoung@... writes:

low dose naltrexone Please stop sendinf messages my computer cannot take them all and neither can I Thanks

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

July 1, 2004

jatrac1@...

----- Original Message -----

From:

Sent: Thursday, July 01, 2004 7:02 AM

Subject: Re: [low dose naltrexone] baclafen & zanax questions

,

how exactly do I email you off forum?I am computer- challenged.I do remember some discussion re: inosine, but something that I can't recall, made me worry about it.Causing uric acid levels to go up perhaps?

Anyway, I would like to email you, so how do I do that?

-------Original Message-------

Date: Wednesday, June 30, 2004 23:01:32

Subject: Re: [low dose naltrexone] baclafen & zanax questions

, you could try Inosine first. We've discussed it on the forum a few times, email me off forum if you want a brief review.

----- Original Message -----

From:

Sent: Wednesday, June 30, 2004 7:59 PM

Subject: Re: [low dose naltrexone] baclafen & zanax questions

Does anyone out there have an opinion on baclafen and/or zanax?

I am experiencing strong spasticity and my doc wants me to take one or both of these.I don't like drugs(except ldn)and I'm nervous about taking these, but I'm unhappy about my lack of mobility due to spascity.HELP.

Any opinions out there?

-------Original Message-------

Date: Tuesday, June 29, 2004 21:30:25

Undisclosed-Recipient:,@...

Subject: [low dose naltrexone] MS crossroads

Here is a lot of information for your perusal. Joan http://mscrossroads.org/

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

July 1, 2004

I always feel much better in the evening, beginning around 9.

----- Original Message -----

From: Reg Kreil

Sent: Thursday, July 01, 2004 9:19 AM

Subject: Re: [low dose naltrexone] baclafen & zanax questions

I just read this and had to respond, yes the stiffness is bad in the A,M. but eases up in the evening usually.

Have you or anyone else noticed a very big difference in the late P.M.?

I stayed up quite late last night to watch the fireworks(yes we have them here in Canada too)and at about one o-clock I noticed that for the first time in years I was taking steps and raising my left leg! )What is with that?

It came very naturally, just like I had not spent the last five years dragging it when I walked.

Now it didn,t last very long, only like three minutes, but it was sure a treat!

This morning I am back to normal ,for me, but I am sure looking forward to more of this.

Is this what Relapsing Remitting M.S. is like?

Am I slowly going back to where I started with this M.S. trip?

I hope so.

Reg. S.P.M.S. since 1997 3.0mgs ldn for three months now.

-------Original Message-------

Date: 07/01/04 08:18:05

Subject: Re: [low dose naltrexone] baclafen & zanax questions

Thank you Marie,

I've never heard of tegretol!No other side effects?I've only been on ldn for 7 weeks so it hasn't done anything for spasms...in fact, I'm more stiff in the am. I'll check out tegretol.

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

July 1, 2004

Hi

Tegretol is actually a medication used for seizures. But it worked for me for spasms.

Marie

----- Original Message -----

From:

Sent: Thursday, July 01, 2004 9:45 AM

Subject: Re: [low dose naltrexone] baclafen & zanax questions

Thank you Marie,

I've never heard of tegretol!No other side effects?I've only been on ldn for 7 weeks so it hasn't done anything for spasms...in fact, I'm more stiff in the am. I'll check out tegretol.

-------Original Message-------

Date: Thursday, July 01, 2004 05:52:10

Subject: Re: [low dose naltrexone] baclafen & zanax questions

Hi

I tried Baclafen two or three times. It didn't work for me. For me it zapped my strentgh. They kept on putting me on it to see if my body would eventually take to it. All I wanted to do was sleep. That was hard to do cause I was working (at that time) 40 hour weeks.

They put me on tegretol for my muscle spasms and that worked great. I have been on it since 1987 @ 100 mg 3 or 4 times per day. Then when I started LDN last year my spasms eased up quite a bit so now I am only taking 1 to 2 pills per day.

Hope this helps

Marie

----- Original Message -----

From:

Sent: Wednesday, June 30, 2004 10:59 PM

Subject: Re: [low dose naltrexone] baclafen & zanax questions

Does anyone out there have an opinion on baclafen and/or zanax?

I am experiencing strong spasticity and my doc wants me to take one or both of these.I don't like drugs(except ldn)and I'm nervous about taking these, but I'm unhappy about my lack of mobility due to spascity.HELP.

Any opinions out there?

-------Original Message-------

Date: Tuesday, June 29, 2004 21:30:25

Undisclosed-Recipient:,@...

Subject: [low dose naltrexone] MS crossroads

Here is a lot of information for your perusal. Joan http://mscrossroads.org/

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

July 1, 2004

Hi

Everyone is different and what works for one may not work for another. There is also a medication called Norflex. I tried norflex and zanaflex and they both worked in reverse of the way that they were suppose to. They both stiffened me up. The doctor told me that only about 10% of the people have this problem and I had it. I was walking like a scissors, I was so stiff.

You need to find one that works for you. Good Luck

Marie

----- Original Message -----

From:

Sent: Thursday, July 01, 2004 9:53 AM

Subject: Re: [low dose naltrexone] baclafen & zanax questions

Thank you Tom,

This site is so helpful!I may try the Zanaflex or as suggested , Inosine.

Thank you for your response.

-------Original Message-------

Date: Thursday, July 01, 2004 08:48:35

Subject: Re: [low dose naltrexone] baclafen & zanax questions

,

The Baclophen will weaken your muscles and you certainly don't need that. The Zaneflex will definitely help with the spasms. There are very little negative side effects, I have been taking it for a year or so and it does help.

Regards,

Tom

----- Original Message -----

From:

Sent: Wednesday, June 30, 2004 10:59 PM

Subject: Re: [low dose naltrexone] baclafen & zanax questions

Does anyone out there have an opinion on baclafen and/or zanax?

I am experiencing strong spasticity and my doc wants me to take one or both of these.I don't like drugs(except ldn)and I'm nervous about taking these, but I'm unhappy about my lack of mobility due to spascity.HELP.

Any opinions out there?

-------Original Message-------

Date: Tuesday, June 29, 2004 21:30:25

Undisclosed-Recipient:,@...

Subject: [low dose naltrexone] MS crossroads

Here is a lot of information for your perusal. Joan http://mscrossroads.org/

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

July 2, 2004

Reg,

I've had that exact same experience...always at night.But lately, is so much less obvious and less often. It's kind of a tease, isn't it?I could almost dance thru the room at about 10pm and then in the am, it's the same old same old.

My theory is that it's endorfins poppin' in to say hi.

I drag my left leg and often it gets locked up and almost bends backwards... so I have to go very slowly, so that doesn't happen. That hurts like hell when it hyperextends back.

Do you think any of these anti-spasticity meds help this condtion?

I'm on week 6 of ldn.

Since starting the ldn, I've unfortunately NOT gone backwards at all. But I'm going to persevere.(I also take copaxone..week 3)

-------Original Message-------

Date: Thursday, July 01, 2004 15:13:27

Subject: Re: [low dose naltrexone] baclafen & zanax questions

I just read this and had to respond, yes the stiffness is bad in the A,M. but eases up in the evening usually.

Have you or anyone else noticed a very big difference in the late P.M.?

I stayed up quite late last night to watch the fireworks(yes we have them here in Canada too)and at about one o-clock I noticed that for the first time in years I was taking steps and raising my left leg! )What is with that?

It came very naturally, just like I had not spent the last five years dragging it when I walked.

Now it didn,t last very long, only like three minutes, but it was sure a treat!

This morning I am back to normal ,for me, but I am sure looking forward to more of this.

Is this what Relapsing Remitting M.S. is like?

Am I slowly going back to where I started with this M.S. trip?

I hope so.

Reg. S.P.M.S. since 1997 3.0mgs ldn for three months now.

-------Original Message-------

Date: 07/01/04 08:18:05

Subject: Re: [low dose naltrexone] baclafen & zanax questions

Thank you Marie,

I've never heard of tegretol!No other side effects?I've only been on ldn for 7 weeks so it hasn't done anything for spasms...in fact, I'm more stiff in the am. I'll check out tegretol.

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

July 2, 2004

I asked my neuro about the tegretol today and he said it calls for a lot of monitoring with blood tests and all, so he said he wants me to try Keppra.

Anybody know anything ?positive? negetive?

-------Original Message-------

Date: Thursday, July 01, 2004 16:44:27

Subject: Re: [low dose naltrexone] baclafen & zanax questions

Hi

Tegretol is actually a medication used for seizures. But it worked for me for spasms.

Marie

----- Original Message -----

From:

Sent: Thursday, July 01, 2004 9:45 AM

Subject: Re: [low dose naltrexone] baclafen & zanax questions

Thank you Marie,

I've never heard of tegretol!No other side effects?I've only been on ldn for 7 weeks so it hasn't done anything for spasms...in fact, I'm more stiff in the am. I'll check out tegretol.

-------Original Message-------

Date: Thursday, July 01, 2004 05:52:10

Subject: Re: [low dose naltrexone] baclafen & zanax questions

Hi

I tried Baclafen two or three times. It didn't work for me. For me it zapped my strentgh. They kept on putting me on it to see if my body would eventually take to it. All I wanted to do was sleep. That was hard to do cause I was working (at that time) 40 hour weeks.

They put me on tegretol for my muscle spasms and that worked great. I have been on it since 1987 @ 100 mg 3 or 4 times per day. Then when I started LDN last year my spasms eased up quite a bit so now I am only taking 1 to 2 pills per day.

Hope this helps

Marie

----- Original Message -----

From:

Sent: Wednesday, June 30, 2004 10:59 PM

Subject: Re: [low dose naltrexone] baclafen & zanax questions

Does anyone out there have an opinion on baclafen and/or zanax?

I am experiencing strong spasticity and my doc wants me to take one or both of these.I don't like drugs(except ldn)and I'm nervous about taking these, but I'm unhappy about my lack of mobility due to spascity.HELP.

Any opinions out there?

-------Original Message-------

Date: Tuesday, June 29, 2004 21:30:25

Undisclosed-Recipient:,@...

Subject: [low dose naltrexone] MS crossroads

Here is a lot of information for your perusal. Joan http://mscrossroads.org/

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

July 2, 2004

,

I've been on baclofen for three years and :LDN for about six months,, I tried to go off baclofen once established on LDN but the spasms were still a problem, so I went back on baclofen with the LDN .... I have no problems takling them together. If you decide to go off baclofen to try LDN alone make sure to taper off the baclofen or you can get withdrawal symptoms (extreme spasms)

Nicky

---- Original Message -----

From:

Sent: Wednesday, June 30, 2004 7:59 PM

Subject: Re: [low dose naltrexone] baclafen & zanax questions

Does anyone out there have an opinion on baclafen and/or zanax?

I am experiencing strong spasticity and my doc wants me to take one or both of these.I don't like drugs(except ldn)and I'm nervous about taking these, but I'm unhappy about my lack of mobility due to spascity.HELP.

Any opinions out there?

-------Original Message-------

Date: Tuesday, June 29, 2004 21:30:25

Undisclosed-Recipient:,@...

Subject: [low dose naltrexone] MS crossroads

Here is a lot of information for your perusal. Joan http://mscrossroads.org/

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

July 2, 2004

I take no other drugs and last night was no repeat, so no tease here, I wish

I knew if a small amount of baclofen would help but I don't have to see my

Dr. again till Sept.

Still it is encouraging to know that all the old moves are still there and

just waiting to reappear.

Reg.

>From: " " <cindyyoung@...>

>Reply-low dose naltrexone

><low dose naltrexone >

>Subject: Re: [low dose naltrexone] baclafen & zanax questions

>Date: Thu, 1 Jul 2004 21:23:35 -0500 (Central Daylight Time)

>

> Reg,

>I've had that exact same experience...always at night.But lately, is so

>much

>less obvious and less often. It's kind of a tease, isn't it?I could almost

>dance thru the room at about 10pm and then in the am, it's the same old

>same

>old.

>My theory is that it's endorfins poppin' in to say hi.

> I drag my left leg and often it gets locked up and almost bends

>backwards..

> so I have to go very slowly, so that doesn't happen. That hurts like hell

>when it hyperextends back.

>Do you think any of these anti-spasticity meds help this condtion?

>I'm on week 6 of ldn.

>Since starting the ldn, I've unfortunately NOT gone backwards at all. But I

>m going to persevere.(I also take copaxone..week 3)

>

>-------Original Message-------

>

>Date: Thursday, July 01, 2004 15:13:27

>Subject: Re: [low dose naltrexone] baclafen & zanax questions

>

> I just read this and had to respond, yes the stiffness is bad in the

>A

>M. but eases up in the evening usually.

>Have you or anyone else noticed a very big difference in the late P.M.?

>I stayed up quite late last night to watch the fireworks(yes we have them

>here in Canada too)and at about one o-clock I noticed that for the first

>time in years I was taking steps and raising my left leg! )

>What is with that?

>It came very naturally, just like I had not spent the last five years

>dragging it when I walked.

>Now it didn,t last very long, only like three minutes, but it was sure a

>treat!

>This morning I am back to normal ,for me, but I am sure looking forward to

>more of this.

>Is this what Relapsing Remitting M.S. is like?

>Am I slowly going back to where I started with this M.S. trip?

>I hope so.

>Reg. S.P.M.S. since 1997 3.0mgs ldn for three months now.

>

>-------Original Message-------

>

>Date: 07/01/04 08:18:05

http://join.msn.com/?pgmarket=en-ca & page=byoa/prem & xAPID=1994 & DI=1034 & SU=http://\

>Subject: Re: [low dose naltrexone] baclafen & zanax questions

>

>Thank you Marie,

>I've never heard of tegretol!No other side effects?I've only been on ldn

>for

>7 weeks so it hasn't done anything for spasms...in fact, I'm more stiff in

>the am. I'll check out tegretol.

>

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July 3, 2004

--- In low dose naltrexone , " Reg Kreil " <regkreil@h...>

wrote:

> I just read this and had to respond, yes the stiffness is bad

>in the AM. but eases up in the evening usually.

> Have you or anyone else noticed a very big difference in the late P.M.?

Heh.. it seems that's when I get the most done these days <grin>

> I stayed up quite late last night to watch the fireworks(yes we have

them

> here in Canada too)and at about one o-clock I noticed that for the first

> time in years I was taking steps and raising my left leg! )

> What is with that?

The time of day/night may be coincindental.. but I'll tell you, I

haven't had to sit down every 5 minutes since I started LDN in August

of last year. On most days I can even go up the stairs with no

problem (this is a 3 story house ). Before LDN it was a _real_ pia...

> It came very naturally, just like I had not spent the last five years

> dragging it when I walked.

> Now it didn,t last very long, only like three minutes, but it was sure a

> treat!

That's great I get those days pretty often now.. wasn't the case

before.

> This morning I am back to normal ,for me, but I am sure looking

forward to

> more of this.

> Is this what Relapsing Remitting M.S. is like?

Hmm.. I've had RRMS for about 29-30 years (lost count, sorry <grin>).

I've always had an attack or exacerbation and then either after

some prednisone or whatever, it would go away and I'd be mostly my old

self.. there was always some residual damage so to speak.. nothing

huge, but I could feel it. The worst was the first time I got

vertigo.. the damage there lasted quite a while but that was before I

was seeing a good neuro..Eventually (when I could be brave enough to

trust what the heck I was seeing <grin>) things returned to normal ..

and vertigo when I get it now is more like a sinus headache to me

these days.. The pills work.. it doesn't stick around long.

> Am I slowly going back to where I started with this M.S. trip?

> I hope so.

> Reg. S.P.M.S. since 1997 3.0mgs ldn for three months now.

Best of luck on your journey :)

Take care,

Janis

July 3, 2004

Hi Nicky,

Thanks for the words of wisdom re:baclefen.I haven't started it and don't ptan to. I'm trying a sample of Keppra (levetiracetam) I'm on my 7th week of ldn, and plan to stay on it indefinately!

thanks again

-------Original Message-------

Date: Friday, July 02, 2004 08:44:15

Subject: Re: [low dose naltrexone] baclafen & zanax questions

,

I've been on baclofen for three years and :LDN for about six months,, I tried to go off baclofen once established on LDN but the spasms were still a problem, so I went back on baclofen with the LDN .... I have no problems takling them together. If you decide to go off baclofen to try LDN alone make sure to taper off the baclofen or you can get withdrawal symptoms (extreme spasms)

Nicky

---- Original Message -----

From:

Sent: Wednesday, June 30, 2004 7:59 PM

Subject: Re: [low dose naltrexone] baclafen & zanax questions

Does anyone out there have an opinion on baclafen and/or zanax?

I am experiencing strong spasticity and my doc wants me to take one or both of these.I don't like drugs(except ldn)and I'm nervous about taking these, but I'm unhappy about my lack of mobility due to spascity.HELP.

Any opinions out there?

-------Original Message-------

Date: Tuesday, June 29, 2004 21:30:25

Undisclosed-Recipient:,@...

Subject: [low dose naltrexone] MS crossroads

Here is a lot of information for your perusal. Joan http://mscrossroads.org/

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

July 3, 2004

Reg,

My doc gave me some samples of Keppra(levetiracetam). I'll let you know if I get some spasm relief from this. Everyones comments on baclefen made me decide to skip it. I hope this stuff is ok.

-------Original Message-------

Date: Friday, July 02, 2004 10:23:28

Subject: Re: [low dose naltrexone] baclafen & zanax questions

I take no other drugs and last night was no repeat, so no tease here, I wish

I knew if a small amount of baclofen would help but I don't have to see my

Dr. again till Sept.

Still it is encouraging to know that all the old moves are still there and

just waiting to reappear.

Reg.

>From: "" <cindyyoung@...>

>Reply-low dose naltrexone

><low dose naltrexone >

>Subject: Re: [low dose naltrexone] baclafen & zanax questions

>Date: Thu, 1 Jul 2004 21:23:35 -0500 (Central Daylight Time)

>

> Reg,

>I've had that exact same experience...always at night.But lately, is so

>much

>less obvious and less often. It's kind of a tease, isn't it?I could almost

>dance thru the room at about 10pm and then in the am, it's the same old

>same

>old.

>My theory is that it's endorfins poppin' in to say hi.

> I drag my left leg and often it gets locked up and almost bends

>backwards..

> so I have to go very slowly, so that doesn't happen. That hurts like hell

>when it hyperextends back.

>Do you think any of these anti-spasticity meds help this condtion?

>I'm on week 6 of ldn.

>Since starting the ldn, I've unfortunately NOT gone backwards at all. But I

>m going to persevere.(I also take copaxone..week 3)

>

>-------Original Message-------

>

>Date: Thursday, July 01, 2004 15:13:27

>Subject: Re: [low dose naltrexone] baclafen & zanax questions

>

> I just read this and had to respond, yes the stiffness is bad in the

>A

>M. but eases up in the evening usually.

>Have you or anyone else noticed a very big difference in the late P.M.?

>I stayed up quite late last night to watch the fireworks(yes we have them

>here in Canada too)and at about one o-clock I noticed that for the first

>time in years I was taking steps and raising my left leg! )

>What is with that?

>It came very naturally, just like I had not spent the last five years

>dragging it when I walked.

>Now it didn,t last very long, only like three minutes, but it was sure a

>treat!

>This morning I am back to normal ,for me, but I am sure looking forward to

>more of this.

>Is this what Relapsing Remitting M.S. is like?

>Am I slowly going back to where I started with this M.S. trip?

>I hope so.

>Reg. S.P.M.S. since 1997 3.0mgs ldn for three months now.

>

>-------Original Message-------

>

>Date: 07/01/04 08:18:05