Re: Just an idea guys? MRI images - from kellie .. LDNers /Aegis's Suggestion

[Guest guest]

hey fellow LDNer's

just an idea - don't know if possible - what if we got MRI actual images -

before and after LDN and time scale noted(dated) up on Bihari's site -

photographic proof speaks volumes - here's the visual evidence! - we would

need LDNers with positive improvement over a period of enough time to agree

to this - some of Bihari's longer term patient's MRI image results to be

posted to site -

any thoughts guys?

kellie from sydney

----- Original Message -----

From: " Friday " <paraschick@...>

<low dose naltrexone >

Sent: Thursday, June 03, 2004 9:32 PM

Subject: [low dose naltrexone] LDNers /Aegis's Suggestion

> Hi all LDNers, Hi Aegis, I agree that Dr Bihari's site needs to have

> more weight in regards to proof and results of patients using LDN and

> might I add, I'm sure he has colleages in the neuro world who could

> also endorse his site and back up the results of their own patients -

> along with all general practitioners who are prescribing LDN around

> the world. Ok, How do we start? Who do we contact regarding

> improving the 'evidence' content, etc on the website?

>

> Friday

>

>

>

>

>

>

[Guest guest]

Kellie, you suggestions are great, we just have to wait for Aegis to

wake up (Americans being behind in time) to catch up with us racing

females. hehehe. Stay tuned next post of mine coming up re: 4 WEEKS

ON LDN PROGRESS.

Friday

> hey fellow LDNer's

> just an idea - don't know if possible - what if we got MRI actual

images -

> before and after LDN and time scale noted(dated) up on Bihari's

site -

> photographic proof speaks volumes - here's the visual evidence! -

we would

> need LDNers with positive improvement over a period of enough time

to agree

> to this - some of Bihari's longer term patient's MRI image results

to be

> posted to site -

> any thoughts guys?

> kellie from sydney

>

[Guest guest]

First of all Kelli, Aegis does not sleep, only rests while the sun

rises down under.

1. However, Kelli's idea is good. If the low dose naltrexone.org site

moderator would allow posting of patient's MRI's that would be good.

It would achieve our goal to bring objectivity to the LDN story.

This can be done easily by covering up the patient's names on the

MRI film. Whatever, one may say about MRI's, if there is no increase

in lesions, thats a good sign.

2. Aegis has be advised that the low dose naltrexone.org site may not

be maintained by Dr.Bihari. Can anyone clarify ?

3. Does anyone know Dr.Bihari's e-mail ?.

Thanks for keeping your thoughts flowing.

Aegis

> > hey fellow LDNer's

> > just an idea - don't know if possible - what if we got MRI

actual

> images -

> > before and after LDN and time scale noted(dated) up on Bihari's

> site -

> > photographic proof speaks volumes - here's the visual evidence! -

> we would

> > need LDNers with positive improvement over a period of enough

time

> to agree

> > to this - some of Bihari's longer term patient's MRI image

results

> to be

> > posted to site -

> > any thoughts guys?

> > kellie from sydney

> >

[Guest guest]

I told that to my neuro (he does ms research) and he said that it is

difficult to get the 2 (before n after) images exactly at the same

level to be compared. He said it must be with the same mri machine

and even then it is difficlut. This was a few years ago so maybe

it's changed now.

> > hey fellow LDNer's

> > just an idea - don't know if possible - what if we got MRI

actual

> images -

> > before and after LDN and time scale noted(dated) up on Bihari's

> site -

> > photographic proof speaks volumes - here's the visual evidence! -

[Guest guest]

Am I missing something....I was under the impression that an MRI was the endall when it came to a positive diagnoses of M.S.and how to judge the value of the interferon or what ever drug they have you on. It sounds to me like the Dr.s are guessing at what the treatments that they have authorized for you have actually done for you as far as stopping the disease, after all if they can't get a good enuf comparison for Kellie then who is to say they can give me an idea that my MS has stopped or is progressing yet. I am just about fedup with the "hell if I know" attitude when it comes to MS!

Sorry guys but I just had to let it all out

I am getting antsy as it is only six days till I go to the M.S. clinic to get an assessment for a legbrace, I don't want one but then again I didn't want M.S. either.

Reg.

-------Original Message-------

From: low dose naltrexone

Date: 06/03/04 11:26:57

low dose naltrexone

Subject: Re: Just an idea guys? MRI images - from kellie ..[low dose naltrexone] LDNers /Aegis's Suggestion

I told that to my neuro (he does ms research) and he said that it is difficult to get the 2 (before n after) images exactly at the same level to be compared. He said it must be with the same mri machine and even then it is difficlut. This was a few years ago so maybe it's changed now.> > hey fellow LDNer's> > just an idea - don't know if possible - what if we got MRI actual > images -> > before and after LDN and time scale noted(dated) up on Bihari's > site -> > photographic proof speaks volumes - here's the visual evidence! -

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

[Guest guest]

Well, MRI's may be the end all for most, but for me, my MRI was

completely clear - no leisons or damage showing. I had to have a

spinal tap for my dx. So, even if the LDN works mircles for me (and

I am so hopeful it will) there will never be any way for any doctor

to prove it by me. I am sad about that, but since most of the

doctors are so closed minded, I guess it will just have to be what

it is.

Cinders

[Guest guest]

Cinders, did your MRI include your spine as well as your brain?

----- Original Message -----

From: " Cinders " <allentownusa@...>

<low dose naltrexone >

Sent: Thursday, June 03, 2004 4:28 PM

Subject: Re: Just an idea guys? MRI images - from kellie

...[low dose naltrexone] LDNers /Aegis's Suggestion

> Well, MRI's may be the end all for most, but for me, my MRI was

> completely clear - no leisons or damage showing. I had to have a

> spinal tap for my dx. So, even if the LDN works mircles for me (and

> I am so hopeful it will) there will never be any way for any doctor

> to prove it by me. I am sad about that, but since most of the

> doctors are so closed minded, I guess it will just have to be what

> it is.

>

> Cinders

>

>

>

>

>

>

>

[Guest guest]

Aegis thinks, normal MRI is unlikely in MS (but can happen). Did

your MRI include gadolinium injection ?.

> Well, MRI's may be the end all for most, but for me, my MRI was

> completely clear - no leisons or damage showing. I had to have a

> spinal tap for my dx. So, even if the LDN works mircles for me

(and

> I am so hopeful it will) there will never be any way for any

doctor

> to prove it by me. I am sad about that, but since most of the

> doctors are so closed minded, I guess it will just have to be what

> it is.

>

> Cinders

[Guest guest]

Yes that is exactly where I am comeing from I refused to let them stick me with a big needle, ( I saw what my brother went thru after his) and the M.R.I. didn't tell my Dr. anything either. So therefore I might have this all in my head as far as they are concerned when it comes to what LDN has done for me. There are no before or after pics showing lesions.So therefore no M.S. and no improvments on film.

Reg.

-------Original Message-------

From: low dose naltrexone

Date: 06/03/04 17:29:13

low dose naltrexone

Subject: Re: Just an idea guys? MRI images - from kellie ..[low dose naltrexone] LDNers /Aegis's Suggestion

Well, MRI's may be the end all for most, but for me, my MRI was completely clear - no leisons or damage showing. I had to have a spinal tap for my dx. So, even if the LDN works mircles for me (and I am so hopeful it will) there will never be any way for any doctor to prove it by me. I am sad about that, but since most of the doctors are so closed minded, I guess it will just have to be what it is.Cinders

____________________________________________________ IncrediMail - Email has finally evolved - Click Here