Guest guest Posted June 1, 2004 Report Share Posted June 1, 2004 Dr. Sager: In reading your post, I have a some thoughts for you: First of all, I have fibromyalgia and have been on LDN for 2 months now. I began on 4.5 mg, experimented with lower doses and now am back on 4.5. Just this week I have noticed a surge in daytime energy. I am sleeping well at night due to a bedtime dose of Topamax. My doctor is a physiatrist here in the Atlanta area who has treated me with medications, as well as natural approaches. When I have had an exacerbation of symptoms, I have gone in for an injection of mag. sulfate/B-12/steroid which really helps. If I am in a really difficult cycle, I go back weekly for the injection until the cycle is broken (once it was 6 weeks). She also has told me to take a gram of Flax Seed Oil per day (omega 3 & 6), and up to 6 grams of Vitamin C per day--because this is the dosage required to affect modulation of substance P. I have to be careful not to take the Vit C with the other meds because it is acidic and may affect absorption of the other meds. I also take Calcium/Magnesium/Zinc supplements twice a day. My doctor definitely likes to think outside the box like you do and is open to treatments that work, like LDN. When I told her about it, she was happy to prescribe it for me. We discussed the problems with a lactose filler since I am, of course, lactose intolerant. She suggested that I use magnesium as a filler, so I will be picking up that prescription today. I will post my results next week. You inquired about a forum for docs using LDN to share clinical ideas and I don't think there is one or we would probably know about it! But that is a terrific idea, and one that could be easily implemented. If you, or someone, created a group or site for that purpose, those of us receiving LDN could refer our doctors to the site. Write back if you are interested in this proposal. Redtruck?? How about a site for the docs? Dr. Sager, thank you for your input into this forum. It is validating and reassuring that a professional like yourself is communicating with us and involved in this grassroots effort to better understand and make available this amazing treatment. Best regards, Vicki Quote Link to comment Share on other sites More sharing options...
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