Re: Waiting for improvement. Any advice?

[Guest guest]

Sally, have you tried 4.5mg?

[Guest guest]

Good morning Sally

It's been a long time since I heard from you and I am not happy at all to hear about your problems. it sounds to me like you have just entered the world of progressive m.s.

Now I am no Dr. but this is how my progressive stage came on back in 96 and only until I started on ldn did the symptoms let up.

Now I am kind of filling in the blanks here cause when you say you are six months into an exacerbation you say it as if you had one before .

I never did as my symptoms always came on quickly and stayed for months and months

until I got used to them.

Anyway did you ever increase your dose to 4.5 and find out what would happen? Some even claim that cutting back helps, just a thought Sally, I wouldn't have been as patient as you and would have been changing as much as I could sooner.

Good Luck with what ever you do.

Reg.

-------Original Message-------

From: low dose naltrexone

Date: 06/01/04 05:56:06

low dose naltrexone

Subject: [low dose naltrexone] Waiting for improvement. Any advice?

As I write this, I am nearly six months into LDN and six months into anexacerbation. I imagine this one may be a permanent change for me by now.I am numb on the left side with numbness in both feet. I feel mentally foggyquite often. I am taking 3-mg LDN. I have missed a few doses, but basicallyhave taken this since Dec.19. The exacerbation started on Dec. 17.I am doing the supplements that Dr. Lawrence recommends. With those, aswell, I have missed a few days. I am going to start BBD. Earlier in mydiagnosis, this plus juicing improved the symptoms.I am getting weary of feeling so nasty. I am still walking, but feels as ifI am walking on stilts (and, at 5'11", that can be a bit intimidating!LOL!). I feel I am short-changing my kids. I wonder if by my starting thisduring an exacerbation it is taking longer to help? I also notice thatif/when I wake up around 3 in the morning, things feel normal with nonumbness at all. Anyone else do this? Weird! I does encourage me, though, toknow that the nerves are not "dead."Thoughts? Thanks for listening to yet another whine!Sally in Indiana

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