Re: Re: Waiting for improvement. Any advice?

[Guest guest]

Hi Sally,

I have had progressive ms ever since being diagnosed in 1984. Thankfully, I

have done quite well all these years.

I started LDN last July ( 2003 ) and for the first time in 20 yrs. I have

not gotten any worse since that time. Doctors have never, I repeat never

done anything to help other than to prescribe " Pills " that I have always

shunned and thrown into the garbage.

Two yrs. ago I had to start using a wheelchair, I am used to it now and it

does not bother me any longer. I go and do whatever I want. I know how

you might be feeling and you can do what you must. Bite the bullet as I

know you can and will. You will beat ms with your mind, and you will beat

it.

Regards,

Tom

----- Original Message -----

From: " Bren " <TwisterAlley2@...>

<low dose naltrexone >

Sent: Tuesday, June 01, 2004 9:02 AM

Subject: [low dose naltrexone] Re: Waiting for improvement. Any advice?

> --- In low dose naltrexone , " Reg Kreil " <regkreil@h...>

wrote:

> > Good morning Sally

> > It's been a long time since I heard from you and I am not happy at all

to

> > hear about your problems. it sounds to me like you have just entered the

> > world of progressive m.s.

> > Now I am no Dr. but this is how my progressive stage came on back in 96

and

> > only until I started on ldn did the symptoms let up.

> > Now I am kind of filling in the blanks here cause when you say you are

six

> > months into an exacerbation you say it as if you had one before .

> > I never did as my symptoms always came on quickly and stayed for months

and

> > months

> > until I got used to them.

> > Anyway did you ever increase your dose to 4.5 and find out what would

> > happen? Some even claim that cutting back helps, just a thought Sally, I

> > wouldn't have been as patient as you and would have been changing as

much as

> > I could sooner.

> > Good Luck with what ever you do.

> > Reg.

> >

> > -------Original Message-------

> >

> > From: low dose naltrexone

> > Date: 06/01/04 05:56:06

> > low dose naltrexone

> > Subject: [low dose naltrexone] Waiting for improvement. Any advice?

> >

> > As I write this, I am nearly six months into LDN and six months into an

> > exacerbation. I imagine this one may be a permanent change for me by

now.

> >

> > I am numb on the left side with numbness in both feet. I feel mentally

foggy

> > quite often. I am taking 3-mg LDN. I have missed a few doses, but

basically

> > have taken this since Dec.19. The exacerbation started on Dec. 17.

> >

> > I am doing the supplements that Dr. Lawrence recommends. With those, as

> > well, I have missed a few days. I am going to start BBD. Earlier in my

> > diagnosis, this plus juicing improved the symptoms.

> >

> > I am getting weary of feeling so nasty. I am still walking, but feels as

if

> > I am walking on stilts (and, at 5'11 " , that can be a bit intimidating!

> > LOL!). I feel I am short-changing my kids. I wonder if by my starting

this

> > during an exacerbation it is taking longer to help? I also notice that

> > if/when I wake up around 3 in the morning, things feel normal with no

> > numbness at all. Anyone else do this? Weird! I does encourage me,

though, to

> > know that the nerves are not " dead. "

> >

> > Thoughts? Thanks for listening to yet another whine!

> >

> > Sally in Indiana

> >

> -------------------

>

> Sally,

>

> Go up to 4.5mg to LDN for 6 months. Are you using capsule or liquid LDN?

If capsule, what is your filler? Liquid LDN at 4.5mg might be your best

choice.

>

>

>

>

>

>