Re: MS seminar I attended today (a bit OT, some relevant)

[Guest guest]

Friday,

What a wonderful rundown on the lecture that some of us pwms could not attend! The response from the MS Society was predictable and the litigation thing taking priority not surprising. Its at the base of all their reticence.

To all our LDN friends, Friday, Graham and Jim (if here)

I am now on my 6th day and really starting to feel the effects ( in a negative way!) which everyone says to just hang on in with......

My legs are stiff, my balance is worse, bad fatigue and staying at home today.

After a bad bout with the flu I"ve picked up a UTI which is devastating with MS and have started antibiotics (ural and drinking heaps of water was not enough!!!

So, if anyone would like to comment, I'd be open to encouragement. Thanks.

Epousebar

-------Original Message-------

From: low dose naltrexone

Date: Thursday, 10 June 2004 12:49:05 AM

low dose naltrexone

Subject: [low dose naltrexone] MS seminar I attended today (a bit OT, some relevant)

A wonderfully mannered neurologist from America was the key speaker today at MS seminar here in Sydney, Australia. I arrived late (about half way through) and I am very bad with names, but I think it was Bob Burke of NMSS in America. Graham?? can you help with his name?Although I missed alot, what I DID get out of the seminar today was the fact that no matter what medications, CRAB or Complimentary alternatives, we are all going to react differently. This goes for all other conditions of course.The Neurologist divided the patient's reactions to any medication into groups.ETC

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[Guest guest]

Epousebar,

So early yet, and just be re-assured that LDN doesnt harm you. Your

body has a few things to deal with all at once too with the end of

the flu symptoms and now the UTI.

There was talk of anti-biotics a while ago, maybe someone can refresh

how that goes with LDN?

If anything, you will get over things quicker than before, as i did,

and bare in mind you are now taking the opposite to the Avonex

effect. I cant comment on that other than what I've read others

say. As you know, i've never taken any injectables.

It could also be the 'response' thing the neuro talked about with

any medication - you may be a minimum responder or non-responder to

LDN, but you dont know until all the other ailments are eliminated

and you've given LDN and your body alot more time to adjust.

See how you go, but remember - no harm. As for Jim, I dont think he

has ever visited this site or taken the time to investigate things

and he has taken that many different drugs for MS, and with no break

in between, I dont think the poor LDN knows which end's up with him.

He needs to be consistent. Just my thoughts on what i know about him

so far.

Friday - thinking of you

> Friday,

> What a wonderful rundown on the lecture that some of us pwms could

not

> attend! The response from the MS Society was predictable and the

> litigation thing taking priority not surprising. Its at the base

of all

> their reticence.

>

> To all our LDN friends, Friday, Graham and Jim (if here)

>

> I am now on my 6th day and really starting to feel the effects ( in

a

> negative way!) which everyone says to just hang on in with......

> My legs are stiff, my balance is worse, bad fatigue and staying at

home

> today.

> After a bad bout with the flu I " ve picked up a UTI which is

devastating with

> MS and have started antibiotics (ural and drinking heaps of water

was not

> enough!!!

> So, if anyone would like to comment, I'd be open to encouragement.

Thanks.

>

> Epousebar

>