Guest guest Posted June 7, 2004 Report Share Posted June 7, 2004 LOL I hear you Amen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2004 Report Share Posted June 7, 2004 So I'm not alone in my reaction, and perhaps it is good for anyone considering steroids who has not already been through a round of IV treatment to be aware of the possibility of reactions like ours. My doctor gave me no hint of what the side effects could be, nor was she concerned that I felt like I was coming down with a chest cold. So along with the side effects from the steroid I also had the worst chest cold, maybe pneumonia, that I had ever had. And she never expressed concern over it. At the very least anyone considering a round of IV steroids should mention any chronic infection or condition to the doctor first and demand they address that issue. Where I live nearly everyone has chronic sinus infections, and we all share a concern about bladder infections due to our less than perfect bladder function. Depressing your immune system when it is fighting a challenge should be a very carefully examined decision. Unfortunately when our symptoms are on the rise it's hard to be patient. ----- Original Message ----- From: Louise de la Lande low dose naltrexone Sent: Monday, June 07, 2004 12:53 AM Subject: [low dose naltrexone] re Steroids...juliiespost Hi , I also was first put on IV steroids for a week when i was in hopital for diagnosis and to get back the use of my hands. It was terrible I got every 'side effect" in the book.Also I came home and my hands were totally unusable. It made every thing worse. Never Again!!! It took me ages to get over. That was 8 years ago and LDN is the first pharmaceutical drug I have taken since. Also im the same re MRI .Ive only ever had one in my life.That was depressing enough. .. Besides as I keep on saying ,lesions on your MRI is not specific for MS and they they are not specifically symptom related.. There is alot unknown about MS. Except the evidence is mounting that it is NOT an autoimmune disease. This is the cracked record from Australia talking..... Louise (OZ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2004 Report Share Posted June 7, 2004 Wow! It must be a guy thing? Hey, wait a minute... doesn't everything make the average guy: 1. hungry 2. happy 3. horny? I thought that was a side effect of oxygen for you guys. ----- Original Message ----- From: Fayers low dose naltrexone Sent: Sunday, June 06, 2004 10:17 PM Subject: Re: [low dose naltrexone] re Steroids...juliiespost I took solumetrol in 2/2001 I had a ms flared up..and I took it,at home,for one week. I had 3 positive side effects. 1.hungry 2.happy 3.horny ----- Or3i ginal Message ----- From: low dose naltrexone Sent: Monday, June 07, 2004 12:57 AM Subject: Re: [low dose naltrexone] re Steroids...juliiespost So I'm not alone in my reaction, and perhaps it is good for anyone considering steroids who has not already been through a round of IV treatment to be aware of the possibility of reactions like ours. My doctor gave me no hint of what the side effects could be, nor was she concerned that I felt like I was coming down with a chest cold. So along with the side effects from the steroid I also had the worst chest cold, maybe pneumonia, that I had ever had. And she never expressed concern over it. At the very least anyone considering a round of IV steroids should mention any chronic infection or condition to the doctor first and demand they address that issue. Where I live nearly everyone has chronic sinus infections, and we all share a concern about bladder infections due to our less than perfect bladder function. Depressing your immune system when it is fighting a challenge should be a very carefully examined decision. Unfortunately when our symptoms are on the rise it's hard to be patient. ----- Original Message ----- From: Louise de la Lande low dose naltrexone Sent: Monday, June 07, 2004 12:53 AM Subject: [low dose naltrexone] re Steroids...juliiespost Hi , I also was first put on IV steroids for a week when i was in hopital for diagnosis and to get back the use of my hands. It was terrible I got every 'side effect" in the book.Also I came home and my hands were totally unusable. It made every thing worse. Never Again!!! It took me ages to get over. That was 8 years ago and LDN is the first pharmaceutical drug I have taken since. Also im the same re MRI .Ive only ever had one in my life.That was depressing enough. .. Besides as I keep on saying ,lesions on your MRI is not specific for MS and they they are not specifically symptom related.. There is alot unknown about MS. Except the evidence is mounting that it is NOT an autoimmune disease. This is the cracked record from Australia talking..... Louise (OZ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2004 Report Share Posted June 7, 2004 very true..i had energy too!! ----- Original Message ----- From: low dose naltrexone Sent: Monday, June 07, 2004 1:26 AM Subject: Re: [low dose naltrexone] re Steroids...juliiespost Wow! It must be a guy thing? Hey, wait a minute... doesn't everything make the average guy: 1. hungry 2. happy 3. horny? I thought that was a side effect of oxygen for you guys. ----- Original Message ----- From: Fayers low dose naltrexone Sent: Sunday, June 06, 2004 10:17 PM Subject: Re: [low dose naltrexone] re Steroids...juliiespost I took solumetrol in 2/2001 I had a ms flared up..and I took it,at home,for one week. I had 3 positive side effects. 1.hungry 2.happy 3.horny ----- Or3i ginal Message ----- From: low dose naltrexone Sent: Monday, June 07, 2004 12:57 AM Subject: Re: [low dose naltrexone] re Steroids...juliiespost So I'm not alone in my reaction, and perhaps it is good for anyone considering steroids who has not already been through a round of IV treatment to be aware of the possibility of reactions like ours. My doctor gave me no hint of what the side effects could be, nor was she concerned that I felt like I was coming down with a chest cold. So along with the side effects from the steroid I also had the worst chest cold, maybe pneumonia, that I had ever had. And she never expressed concern over it. At the very least anyone considering a round of IV steroids should mention any chronic infection or condition to the doctor first and demand they address that issue. Where I live nearly everyone has chronic sinus infections, and we all share a concern about bladder infections due to our less than perfect bladder function. Depressing your immune system when it is fighting a challenge should be a very carefully examined decision. Unfortunately when our symptoms are on the rise it's hard to be patient. ----- Original Message ----- From: Louise de la Lande low dose naltrexone Sent: Monday, June 07, 2004 12:53 AM Subject: [low dose naltrexone] re Steroids...juliiespost Hi , I also was first put on IV steroids for a week when i was in hopital for diagnosis and to get back the use of my hands. It was terrible I got every 'side effect" in the book.Also I came home and my hands were totally unusable. It made every thing worse. Never Again!!! It took me ages to get over. That was 8 years ago and LDN is the first pharmaceutical drug I have taken since. Also im the same re MRI .Ive only ever had one in my life.That was depressing enough. .. Besides as I keep on saying ,lesions on your MRI is not specific for MS and they they are not specifically symptom related.. There is alot unknown about MS. Except the evidence is mounting that it is NOT an autoimmune disease. This is the cracked record from Australia talking..... Louise (OZ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2004 Report Share Posted June 7, 2004 Now that must have been the steroid! ----- Original Message ----- From: Fayers low dose naltrexone Sent: Sunday, June 06, 2004 10:32 PM Subject: Re: [low dose naltrexone] re Steroids...juliiespost very true..i had energy too!! ----- Original Message ----- From: low dose naltrexone Sent: Monday, June 07, 2004 1:26 AM Subject: Re: [low dose naltrexone] re Steroids...juliiespost Wow! It must be a guy thing? Hey, wait a minute... doesn't everything make the average guy: 1. hungry 2. happy 3. horny? I thought that was a side effect of oxygen for you guys. ----- Original Message ----- From: Fayers low dose naltrexone Sent: Sunday, June 06, 2004 10:17 PM Subject: Re: [low dose naltrexone] re Steroids...juliiespost I took solumetrol in 2/2001 I had a ms flared up..and I took it,at home,for one week. I had 3 positive side effects. 1.hungry 2.happy 3.horny ----- Or3i ginal Message ----- From: low dose naltrexone Sent: Monday, June 07, 2004 12:57 AM Subject: Re: [low dose naltrexone] re Steroids...juliiespost So I'm not alone in my reaction, and perhaps it is good for anyone considering steroids who has not already been through a round of IV treatment to be aware of the possibility of reactions like ours. My doctor gave me no hint of what the side effects could be, nor was she concerned that I felt like I was coming down with a chest cold. So along with the side effects from the steroid I also had the worst chest cold, maybe pneumonia, that I had ever had. And she never expressed concern over it. At the very least anyone considering a round of IV steroids should mention any chronic infection or condition to the doctor first and demand they address that issue. Where I live nearly everyone has chronic sinus infections, and we all share a concern about bladder infections due to our less than perfect bladder function. Depressing your immune system when it is fighting a challenge should be a very carefully examined decision. Unfortunately when our symptoms are on the rise it's hard to be patient. ----- Original Message ----- From: Louise de la Lande low dose naltrexone Sent: Monday, June 07, 2004 12:53 AM Subject: [low dose naltrexone] re Steroids...juliiespost Hi , I also was first put on IV steroids for a week when i was in hopital for diagnosis and to get back the use of my hands. It was terrible I got every 'side effect" in the book.Also I came home and my hands were totally unusable. It made every thing worse. Never Again!!! It took me ages to get over. That was 8 years ago and LDN is the first pharmaceutical drug I have taken since. Also im the same re MRI .Ive only ever had one in my life.That was depressing enough. .. Besides as I keep on saying ,lesions on your MRI is not specific for MS and they they are not specifically symptom related.. There is alot unknown about MS. Except the evidence is mounting that it is NOT an autoimmune disease. This is the cracked record from Australia talking..... Louise (OZ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2004 Report Share Posted June 7, 2004 Hi , I also was first put on IV steroids for a week when i was in hopital for diagnosis and to get back the use of my hands. It was terrible I got every 'side effect" in the book.Also I came home and my hands were totally unusable. It made every thing worse. Never Again!!! It took me ages to get over. That was 8 years ago and LDN is the first pharmaceutical drug I have taken since. Also im the same re MRI .Ive only ever had one in my life.That was depressing enough. .. Besides as I keep on saying ,lesions on your MRI is not specific for MS and they they are not specifically symptom related.. There is alot unknown about MS. Except the evidence is mounting that it is NOT an autoimmune disease. This is the cracked record from Australia talking..... Louise (OZ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2004 Report Share Posted June 7, 2004 WHEN I RELAPSED IN 1998, I WAS PUT ON IV STEROIDS FOR THREE DAYS AT HOME. IT'S THE ONLY THING THAT GOT ME BETTER. I WAS IN BED FOR 6 WEEKS. I FINALLY GOT BETTER AND STARTED COPAXONE. THE ONLY THING I WOULD TELL PEOPLE JUST DIAGNOSED WITH, MS GET ON SOMETHING EVEN THOUGH YOU DON'T FEEL LIKE YOU HAVE MS. NOW INSTEAD OF A NEEDLE I WOULD TELL THEM GO TO LDN!!! HAVEN'T BEEN ON LDN BUT A MONTH, BUT THERE SEEMS TO BE LIGHT AT THE END OF THE TUNNEL. KIM R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2004 Report Share Posted June 7, 2004 Hi all, When my husband had a round of IV steroid treatment for his exacerbation he had a really great nurse who knew what she was doing and she advised him to have a 2 hour drip instead of the regular 1 hour, because people could tolerate it better that way. As a result, he did not have any problems at all. His neuro told him he would be 'wired' and not be able to sleep that night, but thanks to an intelligent and observant nurse he was fine. God bless, Terria Oregon, USA PS. I wish people would put where they are from. It's interesting and helps us all know if our advice would be helpful in their part of the world, such as Drs. to call, etc. On Sun, 6 Jun 2004 21:57:50 -0700 " " <jatrac1@...> writes: So I'm not alone in my reaction, and perhaps it is good for anyone considering steroids who has not already been through a round of IV treatment to be aware of the possibility of reactions like ours. My doctor gave me no hint of what the side effects could be, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2004 Report Share Posted June 7, 2004 I did the IV once, never again, it was 2yrs ago and I am still in a haze it may have done me more harm than good.Like I said never agian -- In low dose naltrexone , KELLY E COBURN <bonsai4jesus@j...> wrote: > Hi all, > > When my husband had a round of IV steroid treatment for his exacerbation > he had a really great nurse who knew what she was doing and she advised > him to have a 2 hour drip instead of the regular 1 hour, because people > could tolerate it better that way. As a result, he did not have any > problems at all. His neuro told him he would be 'wired' and not be able > to sleep that night, but thanks to an intelligent and observant nurse he > was fine. > > God bless, > Terria > Oregon, USA > > PS. I wish people would put where they are from. It's interesting and > helps us all know if our advice would be helpful in their part of the > world, such as Drs. to call, etc. > > On Sun, 6 Jun 2004 21:57:50 -0700 " " <jatrac1@p...> > writes: > So I'm not alone in my reaction, and perhaps it is good for anyone > considering steroids who has not already been through a round of IV > treatment to be aware of the possibility of reactions like ours. My > doctor gave me no hint of what the side effects could be, Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.