Hi

[Guest guest]

Hello cindywebb1667,

Thursday, August 23, 2007, 1:33:24 PM, you wrote:

> I hear that it takes several fills to get optimal tightness. IF

> anyone reading this can answer this for me....I'd like to know if

> one fill will curb my apetite again. I feel like I'm spiraling

> downward. The mind stuff is still new knew to stop me....I am

> trying really I am. I gained one pound and I'm beating myself up.

You didn't gain a pound. You lost 42 instead of 43. 2 percent. Big

deal, doesn't matter.

As to fills, depends completely on the doctor.

Remember, though the band and fills are just help. You still are

responsible. Hope that with the granddaughter with the diabetes that

you aren't one who " has to have junk around for the kids " , right.

dan

--

Best regards,

Dan mailto:honu@...

[Guest guest]

Great to see you again! Glad to hear things are going well! *hug*

Barbara

Hi

> Its been quite awhile,but i'm back.hope things are going well.Hugs

>

>

>

>

>

[Guest guest]

Hello and welcome to the group. I cant help you with anyhting in

the US because I'm in Australia. But if I were in your situation, I

would prefer to travel for the surgery and have the audi that does

the mapping, closer to me.

I still wear my hearing aid in my other ear and even though its

pretty useless on its own, it is very helpful when I use it with the

CI. It seems to give me a more rounded, better sound.

The " scar " will be behind your ear and wont be noticeable. They didnt

even use stitches in mine, they must have glued it together.

If you have any insurance problems or questions, post them here.

Nearly everybody has been through it at some time or the other and

there are some very helpful people here.

The first step is to see if you meet the criteria to get a CI, before

you start worrying about anything else. It sopunds like you should

qualify.

Ted F.

>

> I've been lurking for about a week or so. I just wanted to

introduce myself.

> My name is . I'm originally from Austin, Texas but right now I

am living

> in New Orleans. I have a severe-to-profound hearing loss in my left

ear and

> a profound hearing loss in my right. I wear a hearing aid in my

left ear and

> have done pretty well with it. I have been looking into getting a

cochlear

> implant for myself in my right ear. I haven't made a firm decision

yet.

>

> I speak pretty well and learned sign language starting in high

school.

>

> Anyways. Hi!

>

> My question at the moment. I think Louisiana State University has a

cochlear

> implant center in New Orleans. I know there's one in Houston which

might be

> my next best bet. Has anyone gone to either of these places and if

so, what

> was it like (how big of a scar did they make? how long until they

started

> mapping? etc. etc.)

>

> Also, can I get an audiologist in New Orleans and get my surgery in

Houston?

> I was just curious. I've heard of a lot of people having to travel

long

> distances for the mapping process. I think maybe the surgery center

would be

> better in Houston (still looking into it) and I don't want to go

too far for

> the mapping (It would be a 5 hour drive!). Of course all this would

depend

> on insurance which I'm still looking into.

>

> Thanks for your help!

>

>

>

>

[Guest guest]

Hi ! I went to Dr. , he did an X Ray (he sent me to the hospital and had one done)... How are you doing? How is your 1st fill working out for you? Dr. put my fill back in and I can sure tell it...I sure did like it without, you can eat anything...But, I know you can also gain...Better to get back on track... I hope your doing good...ttyl, Rena <lgr00_00@...> wrote: Rena, So glad to hear

everything is fine with you and your band is in place and your feeling much better. Did you ever go to houston? or did you just go to Dr. ?..Keep in touch. rena brown <rena71857 > wrote: Hi , Deb, Alli, and Everyone Else, I just started back to working today after taking Monday, Tuesday and Wednesday off...I enjoyed my time off but am so ready to get back into my working routine...I feel more tired now than when I took off...lol...I have done absolutely nothing the past two days but lay around and watch TV...Boring I know...I've actually missed working... Everything with me is a ok...As far as I know my band is ok, Dr. would have called me otherwise...I guess I'll call him to make sure he hasn't

forgot to look at the X Rays but now that I got my band re-filled I am eating and everything is going down ok...I can sure feel the restriction... Thanks Deb for the offer...I wish I had known you were passing through I would of been happy to meet you and buy your supper...Next time holler at me...Add my numbers to your phone...870-887-0187 (home) 870-703-4959 (cell) 870-887-2441 (work)... Thanks & Alli and Everyone else, for thinking of me...Yes, I guess I have been under a lot of stress and it may have played a factor in my band problems but I'm sure glad it's over...Now hopefully I'll just cruise along with no more bumps... All is well that ends well... I hope you all have a great day... Love & Hugs, Rena peninsulahair <peninsulahair > wrote: Rena, I am so glad to hear that you are doing well. this has been so stressful for you. I am sure you just cant wait to get back to life as usual and not have to stress about your situation. You are always in my thoughts. please keep us posted on your progress. You are so darn close to goal, I am so excited for you! :-)take good care and I Hope you got some rest.hugs,> >> > Hi All,> > > > I went to the doctor today and had X Rays of my band done at the

> hospital...I haven't talked to Dr. since he got my results > the 2nd time around...We went ahead and put my saline back in and so > far so good...> > > > I'm so tired...I got to Shreveport, LA at 10 AM and did not get > through until 3:30 PM...The wait time at the X Ray clinic (hosptial) > was crazy almost 3 hours...And then to top it off he didn't get a > picture of my band so I had to go back at 3 PM...Once I left there I > just headed home and will talk to Dr. tomorrow to make sure > all is well...> > > > Just wanted to let you all know how it went...> > > > I'll keep you posted if it changes...> > > > Thanks for all the support...Hopefully the worse is behind me...> > > > ttyl, Rena > > > > > > > > > > Rena Brown> > DOB:

9/26/06> > 204/136/135 > > > > > > > > ---------------------------------> > Boardwalk for $500? In 2007? Ha! > > Play Monopoly Here and Now (it's updated for today's economy) at > Games.> >> __________________________________________________

[Guest guest]

,

What seems to be going wrong? I had mine at age 14 and that was

about 14 years ago. I have some issues too but have to do with

vertebrae instability.

>

> So I just joined this group. I had my surgery about 12 years ago

when I

> was 13, but things are starting to go wrong and I need someone to

talk

> to. I don't know anyone at all that even has scoliosis. I have

never

> joined a group before, so I'm not really sure how this works. So if

> someone could show me the ropes that would be great -Brooklyn-

>

[Guest guest]

Brooklyn, I'm new to the group too. Have you had a baby recently? Just wondering

because my pain changed significantly after childbirth due to my pelvis

spreading out and all the heavy lifting. I've experienced that tightning pain

when I breathe also. It starts in my back and radiates around my chest under my

breast to my sternum. Does that sound familiar? I gave up bowling and haven't

had a bad flare up since. Do you do any heavy lifting, like more than your purse

or a gallon of milk? I certainly wouldn't worry if I were you. As I age, I've

found that with every increase in pain, I am able to " adjust the volume " and

eventually it becomes " background noise " again. Sometimes minor lifestyle

adjustments can help as well. Not to be too personal, but I meditate and

visualize painful hot colors (red and purple) changing to cool soothing colors

like green and blue, while i'm taking very hot baths. It sounds nuts, but it

helps. Joy in Alabama

[Guest guest]

I also take 10mg at night berore bed. in the morning I do need a cup

of coffee but then im good to go!

> > So instead of feeling groggy on 10mg, you feel more alert at

20mg? I

> > currently take 10mg myself (before bed).

> >

> > Take Care,

> >

> >

>

> Let me differentiate a bit. Both 10 and 20 Mg doses make me

sleepy.

> I manage that by taking it at 9:00PM.

>

> At 10Mg I did not feel fully " alert. " I had difficulty

concentrating

> on what others were saying. At 20Mg I have fewer issues with

> concentration during the day.

>

> Mike

>

[Guest guest]

Kalodapin? is any of that working? something like that happend to me

long ago...Im sorry, that is a horrible thing to go through good luck

to you I know it takes time. I have the most wounderful husband in

the world now so dont give up you will never really trust again but

its ok, you will also never let it happen again. I wish I would have

had a doctor back then. I waisted alot of time trying to deal with it

on my own

>

> On may 7th my husband asked for a divorce.He left 14 months ago but

> it was only suppose to be to take a job that offered free education

> and would be a great opportunity for him .and us .

> I discovered he took out a $5000.00 loan without my knowledge and

> most of what he told me about the job was lies .A year before he

left

> he finally admitted being a compulsive gambler .

>

> I had a car accident in october of 2001 and he was gone bt march of

> that year.

> I take Neurontin for nerve pain.Also on lexapro.My doctor put me on

> something else cause i could not stop crying during my appointment

> which happened to be the same day my husband finally told me he

> wanted a divorce.

> I had asked him a year ago if he wanted out but he assured me he

> loved me and all that .

> I'm a bloody fool .

> Anyway the new med is klonapin or something like that .

>

> I've been without the computer because a power surge did alot of

> damage.I just got it hooked back up tonight .what hurts is on may

> 27th it would have been our 8 year anniversary .But I guess i

should

> be happy at least now i know.but it still hurts .

> anyway ,

> hugs

> Lesli

>

[Guest guest]

when you guys switched from morning til night......... did you experience any

side effects. i currently take the med in the morning, but get really tired. i

would like to start taking them at night. please let me know your thoughts

tks. eileen

kimallred3 <kimallred3@...> wrote:

I also take 10mg at night berore bed. in the morning I do need a cup

of coffee but then im good to go!

> > So instead of feeling groggy on 10mg, you feel more alert at

20mg? I

> > currently take 10mg myself (before bed).

> >

> > Take Care,

> >

> >

>

> Let me differentiate a bit. Both 10 and 20 Mg doses make me

sleepy.

> I manage that by taking it at 9:00PM.

>

> At 10Mg I did not feel fully " alert. " I had difficulty

concentrating

> on what others were saying. At 20Mg I have fewer issues with

> concentration during the day.

>

> Mike

>

Eileen

__________________________________________________

[Guest guest]

Hi Rose - and welcome to our forum where I hope you get all the help and support you need. Sorry to hear you are hobbling around and I can imagine the pain you must have been in. You sound as if you need to get your blood checked to see if you have antibodies to your thyroid. This will show whether you have the autoimmune disease called Hashimoto's. If you test positive for antibodies, the antibodies see your thyroid tissue as public enemy number one so set about its destruction. The more the thyroid is destroyed, the less hormone it is capable of excreting and you have to be treated with thyroid hormone replacement in the same way as any other cause of hypothyroidism.

Tell us a little more about yourself, the results of your last blood tests. Have you asked your GP to refer you to an endocrinologist? Do go to our FILES on this website and read, read, read everything you can. There is a lot to take in, but take things steadily and if there is anything you don't understand, just shout and we will try to help you.

You need blood tests for Thyroid Stimulating Hormone (TSH), Free Thyroxine (FT4, Free Triiodothyronine (FT£) and antibodies. It might be a good idea at the same time to ask your doctor to test your ferritn level (stored iron).

Luv - Sheila

Hi,My name is Rose and I have been Hypothyroid for 11 years, am taking 150mg of Lev.Have just had surgery for the second time on my Achilles tendon, so am hobbling around at the moment. Suffering from lots of problems, Achilles tendonitis, suspected rheumatoid arthritis even though all the blood test I have had over the years come back negative, now thinking that this has something to do with my thyroid!!! Maybe someone here can help.Rose

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.6/1230 - Release Date: 17/01/2008 16:59

[Guest guest]

Thankyou, when I can start driving again I will, this has been going

on for years now, and keeps going backwards and forwards with

different consultants, none of them can decide why this is all going

on.

Luv Rose

>

> Hi Rose - and welcome to our forum where I hope you get all the

help and support you need. Sorry to hear you are hobbling around and

I can imagine the pain you must have been in. You sound as if you

need to get your blood checked to see if you have antibodies to your

thyroid. This will show whether you have the autoimmune disease

called Hashimoto's. If you test positive for antibodies, the

antibodies see your thyroid tissue as public enemy number one so set

about its destruction. The more the thyroid is destroyed, the less

hormone it is capable of excreting and you have to be treated with

thyroid hormone replacement in the same way as any other cause of

hypothyroidism.

>

> Tell us a little more about yourself, the results of your last

blood tests. Have you asked your GP to refer you to an

endocrinologist? Do go to our FILES on this website and read, read,

read everything you can. There is a lot to take in, but take things

steadily and if there is anything you don't understand, just shout

and we will try to help you.

>

> You need blood tests for Thyroid Stimulating Hormone (TSH), Free

Thyroxine (FT4, Free Triiodothyronine (FT£) and antibodies. It might

be a good idea at the same time to ask your doctor to test your

ferritn level (stored iron).

>

> Luv - Sheila

>

>

>

>

> Hi,

>

> My name is Rose and I have been Hypothyroid for 11 years, am

taking

> 150mg of Lev.

> Have just had surgery for the second time on my Achilles tendon,

so am

> hobbling around at the moment. Suffering from lots of problems,

> Achilles tendonitis, suspected rheumatoid arthritis even though

all the

> blood test I have had over the years come back negative, now

thinking

> that this has something to do with my thyroid!!! Maybe someone

here

> can help.

>

> Rose

>

>

>

>

>

>

> --------------------------------------------------------------------

----------

>

>

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.5.516 / Virus Database: 269.19.6/1230 - Release Date:

17/01/2008 16:59

>

[Guest guest]

Welcome, Mandy.

I think you will generally find that people with dwarfism, though we face

certain challenges, do not consider ourselves to have an " illness. " We are

just part of the variety of human beings. Each person has challenges in

life, and each person can choose how he/she will approach them - as

tragedies, or as opportunities. That is not to say I always have a smile on

my face, because I get as frustrated and infuriated as anyone else. But I

can always look around and quickly find someone worse off than I am, so I

just keep trucking. Each of us, whatever our physical circumstances, has a

chance every day to make the world a little better. Part of what we can do

is to encourage people to think about categories like " disabled " and

" normal, " and perhaps help them realize that everyone is in some way

" disabled " and in some way " normal. "

Alyce

On 1/21/08, ilovearsenal222 <ilovearsenal222@...> wrote:

>

> my name is mandy.

>

> although i am not a dwarf, i am disabled, and i would love to be able

> to stay a member of this group.

>

> i joined this group because of a programme i saw on sky tv, about

> Christianne Ray. i was very moved by her story and impressed by her

> positiveness, despite the illness that she has, and indeed what the

> rest of you people have.

>

> i have never thought about dwarfism much, but it bought it home to me

> while watching the programme how cruel people can be.

>

> i have nothing but admiration for ALL of you, for your courage,

> determination, and strength throughout your lives.

>

> please take care

>

> mandy.

>

>

>

[Guest guest]

Hi,

Well have got my results back:

T4 25.01

Serum TSH Level 0.1

Thyroid autoantibodies 72

Ferritin 32

What does that all mean!!

Rose

> >

> > Hi Rose - and welcome to our forum where I hope you get all the

> help and support you need. Sorry to hear you are hobbling around

and

> I can imagine the pain you must have been in. You sound as if you

> need to get your blood checked to see if you have antibodies to

your

> thyroid. This will show whether you have the autoimmune disease

> called Hashimoto's. If you test positive for antibodies, the

> antibodies see your thyroid tissue as public enemy number one so

set

> about its destruction. The more the thyroid is destroyed, the less

> hormone it is capable of excreting and you have to be treated with

> thyroid hormone replacement in the same way as any other cause of

> hypothyroidism.

> >

> > Tell us a little more about yourself, the results of your last

> blood tests. Have you asked your GP to refer you to an

> endocrinologist? Do go to our FILES on this website and read,

read,

> read everything you can. There is a lot to take in, but take things

> steadily and if there is anything you don't understand, just shout

> and we will try to help you.

> >

> > You need blood tests for Thyroid Stimulating Hormone (TSH), Free

> Thyroxine (FT4, Free Triiodothyronine (FT£) and antibodies. It

might

> be a good idea at the same time to ask your doctor to test your

> ferritn level (stored iron).

> >

> > Luv - Sheila

> >

> >

> >

> >

> > Hi,

> >

> > My name is Rose and I have been Hypothyroid for 11 years, am

> taking

> > 150mg of Lev.

> > Have just had surgery for the second time on my Achilles

tendon,

> so am

> > hobbling around at the moment. Suffering from lots of problems,

> > Achilles tendonitis, suspected rheumatoid arthritis even though

> all the

> > blood test I have had over the years come back negative, now

> thinking

> > that this has something to do with my thyroid!!! Maybe someone

> here

> > can help.

> >

> > Rose

> >

> >

> >

> >

> >

> >

> > ------------------------------------------------------------------

--

> ----------

> >

> >

> > No virus found in this incoming message.

> > Checked by AVG Free Edition.

> > Version: 7.5.516 / Virus Database: 269.19.6/1230 - Release

Date:

> 17/01/2008 16:59

> >

>

[Guest guest]

Hi Rose

Well - you do have antibodies to your thyroid, though as yet, very few. Nevertheless, antibodes will gradually destroy your thyroid tissue and make it difficult to secrete the necessary thyroid hormone your body requires. Your Free T4 is very high and it would suggest to me that you are having difficulty in converting T4 into the active hormone T3. This is probably why you are having pain in your muscles and joints. I would ask your GP to refer you to an endocrinologist for a second opinion. What did your GP have to say about these results?

Your Ferritin is low and you should persuade your GP to prescribe you Ferrous Sulphate to build your stored iron up as low ferritin can cause many of the same symptoms as hypothyroidiosm.

Luv - Sheila

..

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.12/1245 - Release Date: 26/01/2008 15:45

[Guest guest]

Hi rose,

Looks borderline hyper to me.

BUT without the free T3 you can't tell if you are converting T4 to T3. This

may be why you have pain in your joints as the unconverted T4 can lodge

there causing toxicity. T3 is the active hormone T4 has little activity

without conversion.

Hi,

Well have got my results back:

T4 25.01

Serum TSH Level 0.1

Thyroid autoantibodies 72

Ferritin 32

What does that all mean!!

Rose

[Guest guest]

Thanks for your help.I am on 150 Levothroxine do you think this is the right dose. Thanks Rose

[Guest guest]

Rosie, do YOU think you are on the right dose. Everybody is different and whereas 50mcg might be right for one person another might need 150.

Most doctors think that 150 is the highest dose anyone should be on, except in very rare cases when they might go up to 200 or more, but they do not like doing this and will try and reduce it the earliest possible moment they can.

Don't forget you have to give it six weeks to get the effect of it.

My sister kept upping her dose because nobody told her to wait six weeks each time. The doctor just told her to up it if she didn't feel any better. Eventually she became psychotic (not sure if that is the right word). The doctor said it was a rare side effect of overdosing. She was taken off the thyroxine immediately and given an anti depressant for a couple of months before they started the thyroxine again. This time she took it more slowly lol.

Lilian

Thanks for your help.I am on 150 Levothroxine do you think this is the right dose.

[Guest guest]

Hi Rose

If you feel good on 150 mcgs thyroxine, that is the right dose, if you do not feel good, then you need to test your blood to see whether you are (or are not) converting this inactive hormone to the active hormone T3. If your local laboratory doesn't test Free T3, you can get it tested through NPTech Services. See our files - which you can access from our Home Page to see what tests you can get done and the prices they charge.

Luv - Sheila

Thanks for your help.I am on 150 Levothroxine do you think this is the right dose.

Thanks

Rose

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.15/1249 - Release Date: 29/01/2008 09:51

[Guest guest]

Hi Jus

First, before trying to get T3 added to your thyroxine, you really need to get a blood test (or more preferably 24 hour urine test) done to see what level of T3 you have either in your blood, or in your tissues. What is really needed is to know how much T3 is in your tissues so we can tell whether the thyroxine (the inactive hormone) is actually converting through your liver to the active triiodothyronine (T3). If either reading is low, then you need to add either synthetic liothyronine (T3) or start taking natural desiccated pigs thyroid extract, as the latter has all the hormones a normal body needs. If your GP is not happy to do this, or your local laboratory considers this unnecessary, you can get it done through NPTech Services. If you go to our FILES from the Home Page of this website, and scroll down until you see NPTech Services, you can see the full list of blood and saliva tests they do - the prices they charge and the list of hospitals where you can have your blood drawn. Your own surgery might be happy to withdraw your blood to send to NPTech.

If you are not getting the full benefit of thyroxine, you could be suffering with low adrenal reserve. Read everything about adrenals on our website www.tpa-uk.org.uk and in the FILES here. If you are suffering with this, you would need to boost your adrenals with adrenal glandulars. Your thyroxine will not work properly unless you do this. This is the same if you have Candida Albicans - again, read all about this in our Files and our website. Another problem that stops your thyroxine from being absorbed properly is low Ferritin (this is your stored iron). Ask your GP to test to see if this is low, if so he will give you some elemental iron such as Ferrous Sulphate 200 mgs a day. Once you have boosted your stored iron level, you will find the thyroxine will start to work as it should. Many of the symptoms of low iron are the same as hypothyroidism, and low ferritin can actually cause hypothyroidism.

It is no good your GP raising your thyroxine all the time - because if you have any of the above problems, it will do you no good whatsoever. Do try to get tested (or do the Home Tests and complete the adrenal and Candida questionnaires in our Files, to see if these could, indeed, be a problem for you.

Luv - Sheila

Hi,

Just wanted to introduce myself. I had graves back in 1990 and a total thyroidectomy in 1994. (I'm now 38). Since then I was first diagnosed with depression and now bipolar disorder. I have never felt completely well since the thyroidectomy and requested a referral to an endo a few years back to ask about T3. All he could say was that I wasn't taking my medication and they didn't test for T3. I have always taken my medication!

Now with the treatment for bipolar, I have been prescribed carbamazepine which affects the thyroxine. I was feeling very tired, sleeping all the time, brain fog, dry skin etc and with the blood test, my levels were wrong. I'm now on my 3rd week of an increase in thyroxine to 200mcgs. I'm slowly feeling slightly better, well, I'm not sleeping all the time! My GP stated that he can keep upping the thyroxine if needed.

I'm not happy about T3 being ignored so I'm following this group to see if there's a way I can convince my GP to test.

Jus

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.15/1249 - Release Date: 29/01/2008 09:51

[Guest guest]

Hi Rosie

I was being prescribed 175 mcg Levothyroxine for well over one year

before I changed my medication to Armour Thyroid, but in my own case

my health did not improve as I thought it would despite my being

prescribed that high dose of 175 mcg, which was why I thought I would

give Armour a try. I did and have never looked back since.

Warm Wishes

Marie

[Guest guest]

Dear Pranati,

What state are you in?

Welcome, you are 'accepted'.

First READ all of my emails and purchase a good study guide book.

Second familiarize yoruself with the files and links section of this

site, espeically folders #5.

Study on your own a bit then you get to a problem post your question.

But study some first!

Hope this helps!

Relax I am/we are here to help you.

Jeanetta Mastron CPhT BS

Founder/Owner

>

> hi,

>

> this is pranati.

> just now i joined this group.

> can anybody tel me how to prepare for this exam?

>

> thanks

>

[Guest guest]

-- " ann " mommactwinkie@... wrote:

> I HAVE HAD SCOLIOSIS ALL OF MY LIFE.<

Ditto for me.

> I AM NOW 42 YEARS OLD. <

That's when I started having pain issues.

> I HAD SURGERY WHEN I WAS 13, MY CURVATURE WAS TO THE POINT TO WHERE

THEY COULD NOT USE A HARRINGTON ROD, INSTEAD, THEY TOOK SOME BONE FROM

MY HIP AND PUT IT AROUND THE CURVE SO THAT IT COULD NOT GET ANY WORSE. <

Ditto, ditto, ditto.

> MY BACK HURTS CONSTANTLY AND MY SHOULDERS ARE HUMPED OVER SLIGHTLY,

MY HIP AND LEGS ALSO HURT. PEOPLE DO NOT SEEM TO UNDERSTAND THAT THIS IS

MOST UNCOMFORTABLE <

My back hurts constantly if I do not stick to a strict dosing schedule

of NSAIDs, it is the hip & leg pain that first sent me to the doctor. My

leg pain & some of the hip pain is from radiculopathy. It is caused by

stenosis which is related to my scoliosis. I am blessed in that

gabapentin (Neurotin) adequately controls the radiculopathy for me

though I am at my maximum tolerable dose. (The prescription allows me to

go higher in dose but the side effects become to great for me.)

> ...AND I AM GLAD TO HAVE FOUND YOUR GROUP

Welcome, but sorry you had to find us.

[Guest guest]

That stenosis crap for me turned out to be Charcot-Marie-Tooth Disease, a common

misdiagnosis. I'm 58 with bone deformities, pain, past the leg cramp and

restless leg syndrome into nerve damage that is permanent and muscle atrophy up

to my thighs and in to my hands and lower arms. Seek a neuro exam.

Lana

<laura@...> wrote:

-- " ann " mommactwinkie@... wrote:

> I HAVE HAD SCOLIOSIS ALL OF MY LIFE.<

Ditto for me.

> I AM NOW 42 YEARS OLD. <

That's when I started having pain issues.

> I HAD SURGERY WHEN I WAS 13, MY CURVATURE WAS TO THE POINT TO WHERE

THEY COULD NOT USE A HARRINGTON ROD, INSTEAD, THEY TOOK SOME BONE FROM

MY HIP AND PUT IT AROUND THE CURVE SO THAT IT COULD NOT GET ANY WORSE. <

Ditto, ditto, ditto.

> MY BACK HURTS CONSTANTLY AND MY SHOULDERS ARE HUMPED OVER SLIGHTLY,

MY HIP AND LEGS ALSO HURT. PEOPLE DO NOT SEEM TO UNDERSTAND THAT THIS IS

MOST UNCOMFORTABLE <

My back hurts constantly if I do not stick to a strict dosing schedule

of NSAIDs, it is the hip & leg pain that first sent me to the doctor. My

leg pain & some of the hip pain is from radiculopathy. It is caused by

stenosis which is related to my scoliosis. I am blessed in that

gabapentin (Neurotin) adequately controls the radiculopathy for me

though I am at my maximum tolerable dose. (The prescription allows me to

go higher in dose but the side effects become to great for me.)

> ...AND I AM GLAD TO HAVE FOUND YOUR GROUP

Welcome, but sorry you had to find us.

---------------------------------

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[Guest guest]

:

WOW! It is nice to find someone who has not had these rods......like me. I

also had bones taken from my hips and used in two seperate surgeries to

straighten my spine. I live with pain also and that is what drove me to this

sight....to find some kind of answers as to how to relieve this constant pain.

You are the first person I have seen who mirrors my medical history. Nice to

meet y ou. Carol Cap

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[Guest guest]

>

> Hi, new here. I just started Lexapro for depression and anxiety

> attacks. I really could some people to chat with...someone wanna look

> me up on ?

>

Ha ...trish,, been on it for awhile if you like talk about it drop me

a e-mail.I,m am currently trying to go off of it. take care.