ldn and spinal cord diseases

[Guest guest]

hello. I have hereditary spastic paralysis and learned about this list

from another list i'm on. can anyone who has a spinal cord disease --

such as PLS or HSP or anyone with ALS -- and who takes ldn tell me

what your experience has been. I'm wondering if it's worth trying.

thanks. you can email me on this list or at my address,

natasha1564@...

thanks

[Guest guest]

Hi Natasha,

I have PLS, which is not a spinal cord disease as such, but I think it

is well worth you trying LDN given the potential benefits and minimal

side effects, most/all of which soon abate for most people. I have

been on 3.0mg for about 10 weeks and find my walking (with walking

frame) has definitely improved. Had increased stiffness for about a

month (and in PLS stiffness is already a problem) but now am generally

less stiff than pre LDN.

natasha1564 wrote:

hello. I have hereditary spastic paralysis and learned about this list

from another list i'm on. can anyone who has a spinal cord disease --

such as PLS or HSP or anyone with ALS -- and who takes ldn tell me

what your experience has been. I'm wondering if it's worth trying.

thanks. you can email me on this list or at my address,

natasha1564@...

thanks

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