Re: Serious about LDN and a Clinical Trial - Dating and other issues

[Guest guest]

Alan,

May I begin just a little avalanche?? Lol.

ToTALLy AgrEE!!

I like all subjects, I am a woman after all, heheehe, But I too have

given this site link to many professionals to try promote LDN and see

testimonials, read peoples experiences and satisfaction with this

drug. When I see all the off-topic stuff, as much as I dont mind, I

spare a thought to those who I am trying to convince, and I think -

Oh dear, there goes the credibility of this being a serious

promotional tool.

Friday

--- In low dose naltrexone , " alanms1579 " <alanms@c...>

wrote:

> I typically would ignore the dating issues and other non LDN

related

> stuff as is my choice. But I, like many of you, have begun to see

> off label drug use, like LDN, as an important and somewhat

> frustrating challange, to say the least.

>

> It is difficult not to become an advocate after doing the research

> and making the decision to use LDN. This is especially true after

> reading many of the stories (on this and other sites) that realte

to

> the use of MS drugs and the impact, physically, mentally and

> financially on many of us (yes I have MS).

>

> As part of my effort to convince, convert and or otherwise educate

> MSers (and others like Colitis, lupus, etc.) I often suggest

> potentials users and Doctors, in addition to members of the news

> media, to monitor this site, the LDN site and a couple of other

> sites. Given this, and I know I am not the only one doing this, it

> would be most productive nad beneficial to stay on topic as much as

> possible. Certainly this can and should include some personal

> stories, other drugs and treatments, and advocacy related stuff.

>

> Those of you wanting to talk about other things should not be

> insulted, angry or put off by this. We certainly all understand and

> sympathize. But LDN is important and many need it NOW, so to keep

> this site as tool for promotion I think it best to start and

promote

> other groups for this off topic stuff. It is important as well!

>

> I hope this doesn't start an avalanche of commentary, I just

thought

> it might be helpful to focus everyone back on the goal.

>

> Thanks

> Alan

[Guest guest]

Alan and Friday,

I wholeheartedly agree. LDN is the first treatment I have become aware of

that I

have no qualms about unlike the recognised MS drugs. We as a group of

individuals with a chronic disease (and all that goes with it) linking us

desperately need sites such as this one to present an informed cohesive and

credible opinion on LDN and its usage. Trying to convince Neurologists, GPs

and Governments of the effectiveness and good sense (clinically, morally and

economically) of using LDN to treat MS is going to be like skiing UP Mount

Everest. The MS community has a huge task and responsibility (to everyone

with MS and other autoimmune diseases) to educate and inform those who have

the power and control over what drugs we receive that LDN is the best

available option we currently have.

So whilst I really do understand that because of the isolation we sometimes

find ourselves in we do need to talk about any issue which affects our lives

as MSers I do also recognise that there are appropriate forums in which to

do this. One thing I have consistently found since being diagnosed 12 years

ago is that we MSers CARE about each other tremendously and we are the

greatest bunch of empathetic people around. However we also need to care for

ourselves by getting LDN accepted as a mainstream treatment. If that happens

we will have shown the greatest kindness and care to each other. So PLEASE

lets

ensure that this site evolves as the informative voice of experience on LDN

that

everyone one of us needs it to be. Also lets care for each other at more

personal

levels in other forums.

Wishing you each better health and happy fortune and strength to keep

fighting for what we each need.

Missy

----- Original Message -----

From: " Friday " <paraschick@...>

<low dose naltrexone >

Sent: Friday, May 14, 2004 1:52 AM

Subject: [low dose naltrexone] Re: Serious about LDN and a Clinical Trial -

Dating and other issues

> Alan,

>

> May I begin just a little avalanche?? Lol.

>

> ToTALLy AgrEE!!

>

> I like all subjects, I am a woman after all, heheehe, But I too have

> given this site link to many professionals to try promote LDN and see

> testimonials, read peoples experiences and satisfaction with this

> drug. When I see all the off-topic stuff, as much as I dont mind, I

> spare a thought to those who I am trying to convince, and I think -

> Oh dear, there goes the credibility of this being a serious

> promotional tool.

>

> Friday

>

>

> > I typically would ignore the dating issues and other non LDN

> related

> > stuff as is my choice. But I, like many of you, have begun to see

> > off label drug use, like LDN, as an important and somewhat

> > frustrating challange, to say the least.

> >

> > It is difficult not to become an advocate after doing the research

> > and making the decision to use LDN. This is especially true after

> > reading many of the stories (on this and other sites) that realte

> to

> > the use of MS drugs and the impact, physically, mentally and

> > financially on many of us (yes I have MS).

> >

> > As part of my effort to convince, convert and or otherwise educate

> > MSers (and others like Colitis, lupus, etc.) I often suggest

> > potentials users and Doctors, in addition to members of the news

> > media, to monitor this site, the LDN site and a couple of other

> > sites. Given this, and I know I am not the only one doing this, it

> > would be most productive nad beneficial to stay on topic as much as

> > possible. Certainly this can and should include some personal

> > stories, other drugs and treatments, and advocacy related stuff.

> >

> > Those of you wanting to talk about other things should not be

> > insulted, angry or put off by this. We certainly all understand and

> > sympathize. But LDN is important and many need it NOW, so to keep

> > this site as tool for promotion I think it best to start and

> promote

> > other groups for this off topic stuff. It is important as well!

> >

> > I hope this doesn't start an avalanche of commentary, I just

> thought

> > it might be helpful to focus everyone back on the goal.

> >

> > Thanks

> > Alan

>

>

>

>

>