Guest guest Posted May 18, 2004 Report Share Posted May 18, 2004 Awesome letter! ----- Original Message ----- From: Lara Schuchat msfoundation@... Cc: low dose naltrexone Sent: Monday, May 17, 2004 3:03 PM Subject: [low dose naltrexone] Regarding LDN Therapy To Whom it May Concern, I belong to an on-line forum for patients who are treating their MS (and other auto-immune diseases) with Low-Dose Naltrexone therapy. This therapy has been pioneered by Dr. Bernard Bihari, a physician practicing in New York City. While Naltrexone in high doses is an FDA approved medication, its use in low doses for MS and other diseases is still not FDA approved. Our group is trying to organize an on-line fundraising drive to collect the funds necessary to get an LDN clinical trial underway here in the United States. A trial for the use of LDN in Crohn's Disease will begin soon but our particular focus is on getting a second trial started for patients with Multiple Sclerosis. We would like to know if Mr. or any other celebrity who lives with MS (or any kind of auto-immune disease) would be interested in helping us with our fundraising efforts. The National MS Society recently published an un-informed article that was not supportive of Low-Dose Naltrexone therapy for MS. But the real-life experiences of many patients from all over the world who are utilizing this medicine clearly points to the need for a controlled clinical study of this therapy. Dr. Bihari was offered $25,000 by the National MS Society to begin a clinical trial but this amount falls far short of what he needs to properly conduct the research. To learn more about LDN itself, please visit the website:www.low dose naltrexone.orgHere is a link to an article that was just recently published in the Brattleboro, VT Reformer that contains some more information about a man who is utilizing LDN as part of his MS treatment: http://www.reformer.com/Stories/0,1413,102~8860~2150078,00.html Here is a link to the forum of MS patients (and others) who are utilizing Low-dose Naltrexone: low dose naltrexone And finally, here is a little more information about Dr. Bihari in the event that you would like to contact him directly: Bernard Bihari, MD 29 W. 15th Street New York, NY 10011 (212) 929-4196.Click here to see Dr. Bihari's curriculum vitae. Dr. Bihari has found that Low-dose Naltrexone has valuable therapeutic effects on many different diseases including: ALS (Lou Gehrig's Disease), Alzheimer's Disease, Behcet's Disease, Celiac Disease, Chronic Fatigue Syndrome, Crohn's Disease, Emphysema (COPD), Fibromyalgia, HIV/AIDS, Irritable Bowel Syndrome (IBS), Multiple Sclerosis (MS), Parkinson's Disease, Pemphigoid, Primary Lateral Sclerosis (PLS), Psoriasis, Rheumatoid Arthritis, Sarcoidosis, Systemic Lupus (SLE), Ulcerative Colitis and Wegener's Granulomatosis. Dr. Bihari has also noted that LDN is an effective treatment for many types of Cancer including: Breast Cancer, Carcinoid, Colon & Rectal Cancer, Glioblastoma, Liver Cancer, Lung Cancer (Non-Small Cell), Lymphocytic Leukemia, Lymphoma (Hodgkin's and Non-Hodgkin's), Malignant Melanoma, Multiple Myeloma, Neuroblastoma, Ovarian Cancer, Pancreatic Cancer, Prostate Cancer(untreated),Renal Cell Carcinoma,Throat Cancer and Uterine Cancer. While I do not have MS myself, I have several dear friends who do. I have an Auto-Immune Disease (Hashimoto's Thyroiditis), have battled an Endocrine Cancer (Papillary Carcinoma of the Thyroid) and was recently diagnosed with Hepatisis C (HCV), for which there is no known cure. The standard treatment for HCV is chemotherapy. But Dr. Bihari has successfully treated 60 HCV patients with LDN therapy. I will personally be utilizing LDN in the treatment of my HCV. It is my hope that collecting the funds to begin a legitimate study of LDN in the treatment of MS will lead to other studies that may one day offer all of us relief from the challenges that we face each day whether we are living with an Auto-Immune Disease, a Neurological Disease or Cancer. Thank you for your kind attention to our inquiry and for any assistance you might offer our effort. We look forward to your reply. Sincerely, Lara Schuchat Seattle, WA (206) 265-9754 schuchat@... Lara1967@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2004 Report Share Posted May 18, 2004 Lara, Wow, what a well put together request! Thank you so much for your efforts. Can't wait to see what kind of response you receive. (spms) From: Lara Schuchat [mailto:Lara1967@...] Sent: Monday, May 17, 2004 6:03 PMmsfoundation@...Cc: low dose naltrexone Subject: [low dose naltrexone] Regarding LDN Therapy To Whom it May Concern, I belong to an on-line forum for patients who are treating their MS (and other auto-immune diseases) with Low-Dose Naltrexone therapy. This therapy has been pioneered by Dr. Bernard Bihari, a physician practicing in New York City. While Naltrexone in high doses is an FDA approved medication, its use in low doses for MS and other diseases is still not FDA approved. Our group is trying to organize an on-line fundraising drive to collect the funds necessary to get an LDN clinical trial underway here in the United States. A trial for the use of LDN in Crohn's Disease will begin soon but our particular focus is on getting a second trial started for patients with Multiple Sclerosis. We would like to know if Mr. or any other celebrity who lives with MS (or any kind of auto-immune disease) would be interested in helping us with our fundraising efforts. The National MS Society recently published an un-informed article that was not supportive of Low-Dose Naltrexone therapy for MS. But the real-life experiences of many patients from all over the world who are utilizing this medicine clearly points to the need for a controlled clinical study of this therapy. Dr. Bihari was offered $25,000 by the National MS Society to begin a clinical trial but this amount falls far short of what he needs to properly conduct the research. To learn more about LDN itself, please visit the website:www.low dose naltrexone.orgHere is a link to an article that was just recently published in the Brattleboro, VT Reformer that contains some more information about a man who is utilizing LDN as part of his MS treatment: http://www.reformer.com/Stories/0,1413,102~8860~2150078,00.html Here is a link to the forum of MS patients (and others) who are utilizing Low-dose Naltrexone: low dose naltrexone And finally, here is a little more information about Dr. Bihari in the event that you would like to contact him directly: Bernard Bihari, MD 29 W. 15th Street New York, NY 10011 (212) 929-4196.Click here to see Dr. Bihari's curriculum vitae. Dr. Bihari has found that Low-dose Naltrexone has valuable therapeutic effects on many different diseases including: ALS (Lou Gehrig's Disease), Alzheimer's Disease, Behcet's Disease, Celiac Disease, Chronic Fatigue Syndrome, Crohn's Disease, Emphysema (COPD), Fibromyalgia, HIV/AIDS, Irritable Bowel Syndrome (IBS), Multiple Sclerosis (MS), Parkinson's Disease, Pemphigoid, Primary Lateral Sclerosis (PLS), Psoriasis, Rheumatoid Arthritis, Sarcoidosis, Systemic Lupus (SLE), Ulcerative Colitis and Wegener's Granulomatosis. Dr. Bihari has also noted that LDN is an effective treatment for many types of Cancer including: Breast Cancer, Carcinoid, Colon & Rectal Cancer, Glioblastoma, Liver Cancer, Lung Cancer (Non-Small Cell), Lymphocytic Leukemia, Lymphoma (Hodgkin's and Non-Hodgkin's), Malignant Melanoma, Multiple Myeloma, Neuroblastoma, Ovarian Cancer, Pancreatic Cancer, Prostate Cancer(untreated),Renal Cell Carcinoma,Throat Cancer and Uterine Cancer. While I do not have MS myself, I have several dear friends who do. I have an Auto-Immune Disease (Hashimoto's Thyroiditis), have battled an Endocrine Cancer (Papillary Carcinoma of the Thyroid) and was recently diagnosed with Hepatisis C (HCV), for which there is no known cure. The standard treatment for HCV is chemotherapy. But Dr. Bihari has successfully treated 60 HCV patients with LDN therapy. I will personally be utilizing LDN in the treatment of my HCV. It is my hope that collecting the funds to begin a legitimate study of LDN in the treatment of MS will lead to other studies that may one day offer all of us relief from the challenges that we face each day whether we are living with an Auto-Immune Disease, a Neurological Disease or Cancer. Thank you for your kind attention to our inquiry and for any assistance you might offer our effort. We look forward to your reply. Sincerely, Lara Schuchat Seattle, WA (206) 265-9754 schuchat@... Lara1967@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2004 Report Share Posted May 18, 2004 Lara .. This is excellent. I am in. I can be the link to Dr Bihari .. I will be talking with him today and run everything by him. All the Best > To Whom it May Concern, > I belong to an on-line forum for patients who are treating their MS (and other auto-immune diseases) with Low-Dose Naltrexone therapy. This therapy has been pioneered by Dr. Bernard Bihari, a physician practicing in New York City. While Naltrexone in high doses is an FDA approved medication, its use in low doses for MS and other diseases is still not FDA approved. > Our group is trying to organize an on-line fundraising drive to collect the funds necessary to get an LDN clinical trial underway here in the United States. A trial for the use of LDN in Crohn's Disease will begin soon but our particular focus is on getting a second trial started for patients with Multiple Sclerosis. > We would like to know if Mr. or any other celebrity who lives with MS (or any kind of auto-immune disease) would be interested in helping us with our fundraising efforts. > > The National MS Society recently published an un-informed article that was not supportive of Low-Dose Naltrexone therapy for MS. But the real-life experiences of many patients from all over the world who are utilizing this medicine clearly points to the need for a controlled clinical study of this therapy. Dr. Bihari was offered $25,000 by the National MS Society to begin a clinical trial but this amount falls far short of what he needs to properly conduct the research. > > To learn more about LDN itself, please visit the website: > www.low dose naltrexone.org > Here is a link to an article that was just recently published in the Brattleboro, VT Reformer that contains some more information about a man who is utilizing LDN as part of his MS treatment: > http://www.reformer.com/Stories/0,1413,102~8860~2150078,00.html > Here is a link to the forum of MS patients (and others) who are utilizing Low-dose Naltrexone: > low dose naltrexone > > And finally, here is a little more information about Dr. Bihari in the event that you would like to contact him directly: > > Bernard Bihari, MD > 29 W. 15th Street > New York, NY 10011 > (212) 929-4196. > Click here to see Dr. Bihari's curriculum vitae. > > Dr. Bihari has found that Low-dose Naltrexone has valuable therapeutic effects on many different diseases including: > ALS (Lou Gehrig's Disease), Alzheimer's Disease, Behcet's Disease, Celiac Disease, Chronic Fatigue Syndrome, Crohn's Disease, Emphysema (COPD), Fibromyalgia, HIV/AIDS, Irritable Bowel Syndrome (IBS), Multiple Sclerosis (MS), Parkinson's Disease, Pemphigoid, Primary Lateral Sclerosis (PLS), Psoriasis, Rheumatoid Arthritis, Sarcoidosis, Systemic Lupus (SLE), Ulcerative Colitis and Wegener's Granulomatosis. > > Dr. Bihari has also noted that LDN is an effective treatment for many types of Cancer including: > Breast Cancer, Carcinoid, Colon & Rectal Cancer, Glioblastoma, Liver Cancer, Lung Cancer (Non-Small Cell), Lymphocytic Leukemia, Lymphoma (Hodgkin's and Non-Hodgkin's), Malignant Melanoma, Multiple Myeloma, Neuroblastoma, Ovarian Cancer, Pancreatic Cancer, Prostate Cancer(untreated),Renal Cell Carcinoma,Throat Cancer and Uterine Cancer. > > While I do not have MS myself, I have several dear friends who do. I have an Auto-Immune Disease (Hashimoto's Thyroiditis), have battled an Endocrine Cancer (Papillary Carcinoma of the Thyroid) and was recently diagnosed with Hepatisis C (HCV), for which there is no known cure. The standard treatment for HCV is chemotherapy. But Dr. Bihari has successfully treated 60 HCV patients with LDN therapy. I will personally be utilizing LDN in the treatment of my HCV. It is my hope that collecting the funds to begin a legitimate study of LDN in the treatment of MS will lead to other studies that may one day offer all of us relief from the challenges that we face each day whether we are living with an Auto-Immune Disease, a Neurological Disease or Cancer. > Thank you for your kind attention to our inquiry and for any assistance you might offer our effort. > We look forward to your reply. > Sincerely, > Lara Schuchat > Seattle, WA > (206) 265-9754 > schuchat@c... > Lara1967@c... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2004 Report Share Posted May 18, 2004 please make 2 copies and run off i need it Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2004 Report Share Posted May 19, 2004 Lara .. This really is a great letter ... It would be great to figure out how to maximize it's use and channel the funds to the foundation. Dr Bihari has no celebrity contacts .. fundraising may prove to be the best way to get a large scale independent trial underway. Who knows what tomorrow will bring though ... All the Best > > To Whom it May Concern, > > I belong to an on-line forum for patients who are treating their MS > (and other auto-immune diseases) with Low-Dose Naltrexone therapy. > This therapy has been pioneered by Dr. Bernard Bihari, a physician > practicing in New York City. While Naltrexone in high doses is an FDA > approved medication, its use in low doses for MS and other diseases > is still not FDA approved. > > Our group is trying to organize an on-line fundraising drive to > collect the funds necessary to get an LDN clinical trial underway > here in the United States. A trial for the use of LDN in Crohn's > Disease will begin soon but our particular focus is on getting a > second trial started for patients with Multiple Sclerosis. > > We would like to know if Mr. or any other celebrity who > lives with MS (or any kind of auto-immune disease) would be > interested in helping us with our fundraising efforts. > > > > The National MS Society recently published an un-informed article > that was not supportive of Low-Dose Naltrexone therapy for MS. But > the real-life experiences of many patients from all over the world > who are utilizing this medicine clearly points to the need for a > controlled clinical study of this therapy. Dr. Bihari was offered > $25,000 by the National MS Society to begin a clinical trial but this > amount falls far short of what he needs to properly conduct the > research. > > > > To learn more about LDN itself, please visit the website: > > www.low dose naltrexone.org > > Here is a link to an article that was just recently published in > the Brattleboro, VT Reformer that contains some more information > about a man who is utilizing LDN as part of his MS treatment: > > http://www.reformer.com/Stories/0,1413,102~8860~2150078,00.html > > Here is a link to the forum of MS patients (and others) who are > utilizing Low-dose Naltrexone: > > low dose naltrexone > > > > And finally, here is a little more information about Dr. Bihari in > the event that you would like to contact him directly: > > > > Bernard Bihari, MD > > 29 W. 15th Street > > New York, NY 10011 > > (212) 929-4196. > > Click here to see Dr. Bihari's curriculum vitae. > > > > Dr. Bihari has found that Low-dose Naltrexone has valuable > therapeutic effects on many different diseases including: > > ALS (Lou Gehrig's Disease), Alzheimer's Disease, Behcet's Disease, > Celiac Disease, Chronic Fatigue Syndrome, Crohn's Disease, Emphysema > (COPD), Fibromyalgia, HIV/AIDS, Irritable Bowel Syndrome (IBS), > Multiple Sclerosis (MS), Parkinson's Disease, Pemphigoid, Primary > Lateral Sclerosis (PLS), Psoriasis, Rheumatoid Arthritis, > Sarcoidosis, Systemic Lupus (SLE), Ulcerative Colitis and Wegener's > Granulomatosis. > > > > Dr. Bihari has also noted that LDN is an effective treatment for > many types of Cancer including: > > Breast Cancer, Carcinoid, Colon & Rectal Cancer, Glioblastoma, > Liver Cancer, Lung Cancer (Non-Small Cell), Lymphocytic Leukemia, > Lymphoma (Hodgkin's and Non-Hodgkin's), Malignant Melanoma, Multiple > Myeloma, Neuroblastoma, Ovarian Cancer, Pancreatic Cancer, Prostate > Cancer(untreated),Renal Cell Carcinoma,Throat Cancer and Uterine > Cancer. > > > > While I do not have MS myself, I have several dear friends who do. > I have an Auto-Immune Disease (Hashimoto's Thyroiditis), have battled > an Endocrine Cancer (Papillary Carcinoma of the Thyroid) and was > recently diagnosed with Hepatisis C (HCV), for which there is no > known cure. The standard treatment for HCV is chemotherapy. But Dr. > Bihari has successfully treated 60 HCV patients with LDN therapy. I > will personally be utilizing LDN in the treatment of my HCV. It is my > hope that collecting the funds to begin a legitimate study of LDN in > the treatment of MS will lead to other studies that may one day offer > all of us relief from the challenges that we face each day whether we > are living with an Auto-Immune Disease, a Neurological Disease or > Cancer. > > Thank you for your kind attention to our inquiry and for any > assistance you might offer our effort. > > We look forward to your reply. > > Sincerely, > > Lara Schuchat > > Seattle, WA > > (206) 265-9754 > > schuchat@c... > > Lara1967@c... Quote Link to comment Share on other sites More sharing options...
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