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  • 2 years later...

Hi, my daughter started puling her hair out in 2nd grade and combined with

her new dx of OCD, we were so upset and worried She pulled it out, not the

knot tying, but it sounds like trich. to me. We told our psychologist right

away

and he did CBT ERP with her. We had to tell her teacher as she also did it

at school. we were told to compliment her anytime we noticed she did not pull

and give less attention to the pulling. She got checks to trade in for

goodies when she did not pull. We gave her toys to keep her hands busy when she

tended to pull. I wonder if you could give her some squeeze balls or fidget toys

by her bedside to replace the knot tying. There are some stringy stretch

toys or koosh balls. I would definitely tell your Dr. though. Sue

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I think I would find out does she enjoy the sensation on her head when knotting

or enjoy the actual tying of the knots. There are lots of " knot like " things to

do, friendship bracelets are one that come to mind. They have got neat kits out

for kids making those - she may really enjoy that and could even do it in bed -

or she could just have thin strings attached to a piece of cardboard that she

could knot if that is what she enjoys. If it is the hair feeling she likes,

they make mannequins (and probably dolls) with real human hair and she could

knot the dolls hair all she likes!

My son last year cracked his knuckles non stop and it was just an addictive

behavior. I don't think it was his ocd and not a tic - he just also has an

addictive personality, as do I and many on my side of the family. We tried

stress balls, pencils, etc. and nothing helped and it got worse probably due to

all the attention on it. Finally, we just did rewards. He loves sports cards

and got one card a day if he cracked 10 x or less and a full pack if he didn't

crack at all. In 21 days (the time they say it takes to break a habit), he had

stopped. Actually, he stopped in about 3 days, but we kept it up for 21 days

and now a year later he still does not crack the knuckles. I would tell her

dr., too, but it may not be the ocd - she could probably help you more with

figuring out exactly what it is that she enjoys about the knotting or if she

even enjoys it at all but feels drawn to it.

Good luck.

<@...> wrote:

Hi Becky,

Just some quick thoughts this a.m., only have a moment (at work but

haven't started *work* yet, LOL).

Since she's not actually pulling her hair and you don't feel it's

trich, that is actually some good news!

As to why she's tying the knots, it might be OCD related but might

not. But whether it is or isn't, I *think* I would right now just

be " understanding " about it (e.g., another behavior/issue to work

on) so she'll feel OK to come to mom for help getting the knots out

instead of pulling/breaking her hair off to hide it. Is her hair

long enough to maybe pull it back, put it up, just style it a bit

different while she's at home so that her hair won't be

so " available " to knot?? She could work on finding something else

to " busy " her hands then, instead of messing with her hair.

Again, quick thoughts!

>

> I am really upset tonight. I was making my 7yo daughter's bed

when

> I discovered a stash of knotted hair under the mattress. Recently

I

> found out she was tying knots in her hair while laying in bed. A

> couple of times she came out of her room with a massive knot in

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nicely put!!! Live and learn!!!! try not to beat yourself up

eileen

Quoting julieaw66 <julieaw66@...>:

>

>> I guess it is time to stop telling myself how much better she is

>> than last year at this time. I've been in a denial, wait-and-see

>> place in my head for a while now, and haven't made any steps toward

>> finding a new therapist, etc.

>>

>> Amazing how these things can suddenly pop up (even though it's been

>> in front of me all along.) I hate this.

>>

>> Becky

>>

> Hi Becky,

> I can't speak to the hair pulling as that's not something i've dealt

> with yet. But I do have experience with the denial, wait and see

> stuff. I have really beat myself up in the past for thinking that I

> made mistakes by staying with the wrong therapist, wasted time by not

> doing something different, hoped that a medication would work when it

> obviously wouldn't, etc, etc.

> I try now to see all my experiences with ocd as tools to help me make

> better decisions now. I now know what to look for in a therapist

> having gone to two that were not good with ocd. When I look at what

> we've been through in a positive light it makes it easier for me to

> move forward.

> I think most of us have been where you are (and I probably will again),

> but we can come here and get help and support to get out of it faster.

>

>

>

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