Re: Oh happy day

[Guest guest]

Im confused.....Topamax is a siezure medication, I've been on it for 3 yrs now. Why would this other doctor suggest you try Topamax instead of LDN?? Does he not know the difference between the 2?? Talk about one not having all his Marbles!!!

I'm glad you're Neuro is writing the script anyway, and you'll be starting LDN...

Lots of luck to you. Let us know how you're doing!

God Bless

Carol

~~~ true love is neither physical nor romantic. ~~~ true love is the acceptance of all that Is, Has been, and Will be.~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

[Guest guest]

Hi .. That is a tough question. LDN can be taken with

anything bar narcotics so there is no drug conflict there but they

work in opposite ways and it is argued may cancel eachother out. My

husband started LDN mid prednisone but only did so because the

prednisone was not working at all. Had it been working, the plan was

to start LDN once the course completed although Dr Bihari had no

issue with him taking both at the same time. I would apply the same

tactic here .. but please know it really has to be your own call and

within your own comfort level. I would finish the steroids and as

long as they are working hold on the LDN ... then as soon as you are

done I would start the LDN .. mid vacation or not ... I would not

waste any time. Should the steroids not be as effective or fail then

I would recommend starting the LDN sooner. My husband is going to

start a course of prednisone and remain on LDN to get over his latest

episode. You could also do that. He also started taking 500 mg DL

Phenylalanine twice daily to boost endorphins... chances are he is

still immune to prednisone but we will see.

Good luck with your decision

All the Best

--- In low dose naltrexone , " noemkat " <noemkat@y...>

wrote:

> Hi all,

>

> I've posted a couple times but overall I'm a lurker but I had to

> share my news today. Previously I had talked with my neuro who was

> very uninterested in LDN. I went again Monday where he completely

> blew me off and was very offensive to the point of me composing a

> letter of grievence to the North Carolina Medical Board and to my

> insurance company but I held off to see how today's appointment

> went. It went very well so the letter will not be mailed.

>

> My neuro called up one of his mentors and talked to him about LDN.

> This other neuro said it couldn't do any harm but that Dr. Bihari

> didn't quite have all his marbles and suggested my neuro try me on

> Topamax (I've never heard of it). After relaying all this to me, I

> said I would look into Topamax but I'm set on LDN and Copaxone

rather

> than the Avonex I'm on now. He wrote me a script for Copaxone and

> said he will write the one for LDN as soon as I get him the

specifics

> of what mg and all that as long as I waived his responsibility. I

> will drop that off for him tomorrow and I should have the script in

> hand by Friday. I will have the dr's office fax the script to

Skips

> in FL and hopefully get going very soon. YIPPEE!! Overall it was

a

> very good neuro day and my neuro redeemed himself somewhat for

being

> a total jerk on Monday.

>

> I do have one question for yall though. I'm having a flare-up and

> just did my 3rd day of ten of solumedrol so how long should I wait

> before I start my LDN?? I'm thinking I won't get my LDN before

next

> Wednesday when I'll have my last dose of steriods and then get a

> tapering off shot of Prednisone but how long after that should I

wait

> to do LDN?? Also, hubby and I are leaving the week after on

vacation

> for 2 weeks so do yall think it'll be ok to start while I'm away or

> shall I just wait until I get settled back at home toward the

middle

> of June??

>

> Thanks for any info. I love this board and all those who share

their

> stories. May God bless each and everyone of you.

>

>