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If you have access to a gym, squeezing a ball between your thighs while doing

leg presses is great for the inner thighs. Also, a physical therapist just

suggested to me today that I walk backwards on a treadmill to strengthen that

area.

New group member

I am a 31 year old male who is an avid mountain climber but has been

sidelined for a few months. I've been diagnosed with

chondromalacia, and I'm having a hard time staying motivated for my

at home physical therapy exercises. I get very frustrated and lose

belief that the exercises work. I also have very powerful legs, so

the simple isometrics I was prescribed don't seem to be

strengthening my inner thigh muscles. Can anyone offer me some

encouragement about the exercises as well as some good exercises to

try for my inner leg muscles? Thanks!

_____

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If you already have strong thigh muscles, try one of the smallest therapy

balls. You'll be sitting on it in pretty much a squatting position and bounce

on

it. This sound goofy but the smaller the ball you sit on the more burn

you'll feel, for added exercise lean from one knee to the other kind of like a

lunge sitting down (make sense?) you can do this while watching T.V. and you

really don't even thing about it plus you burn calories. I realize it may sound

kind of stupid to someone if they've never got to play around on the therapy

balls but they really work and they make it fun. And most of the balls come

with an exercise chart too with more things to try, usually about 30 exercises.

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Dear sirgalt -- you are not alone. I have trouble with home PT exercises.

Sooooooo boring, and such slow (if any) progress. I finally gave up & had

surgery. I'm not saying that surgery is always the answer, but it's one option.

I'm glad I had it done because he found a plica in there that was causing a lot

of damage by rubbing against the femur and tibia (and probably was responsible

for the destruction of 2/3 of my lateral meniscus). It didn't show up on MRI.

I have a good one for your inner leg muscles (from my PT). This one's more fun

to do. Actually the exercise is designed to strengthen one of the 5 muscles in

your hip joint, one that gets neglected (don't know the name of it). Can't hurt

to strengthen it. You sit in a chair that lets your feet barely touch the floor

(I put a firm pillow on my chair). Loop a Theraband around the metatarsal area

of your foot & anchor the Theraband somewhere lateral to that foot. Now turn

the whole leg so that the foot is lifted up in front of the other leg (keeping

knee bent). Don't lift the thigh up from the chair. You can emphasize either

the hip muscle or the adductors. (You may have to train your mind to learn to

feel which muscles are working).

If you're interested in working on those 5 little muscles, I have another one.

With the Theraband anchored low somewhere (I hook mine to a vertical board I

screwed into my walls, and onto which I screwed large eye bolts), with you

standing and facing the anchor, loop the Theraband around your heel. Making

sure that you don't let your body bend with the action (keep facing forward),

pull the leg back (not too far -- a foot or two) and at the same time, in one

smooth action, turn your foot out (keeping leg straight).

And thirdly, lie on the floor on your " good " side with both legs bent so that

the feet are in line with your spine. Keeping the heels together, raise your

bad knee. Again, don't let your body follow the movement -- keep your pelvis

in the same position it was in when you started.

All these are 3 sets of 10-20.

I think, if you have access to a gym, that the ski machine, if they have one,

works your inner thighs. Oh-- I confiscated a 10 " child's ball that found its

way into my yard & use it as a Thighmaster.

Ann

New group member

I am a 31 year old male who is an avid mountain climber but has been

sidelined for a few months. I've been diagnosed with

chondromalacia, and I'm having a hard time staying motivated for my

at home physical therapy exercises. I get very frustrated and lose

belief that the exercises work. I also have very powerful legs, so

the simple isometrics I was prescribed don't seem to be

strengthening my inner thigh muscles. Can anyone offer me some

encouragement about the exercises as well as some good exercises to

try for my inner leg muscles? Thanks!

------------------------------------------------------------------------------

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>If you already have strong thigh muscles, try one of the smallest therapy

>balls. You'll be sitting on it in pretty much a squatting position and

bounce on

>it.

But - but - but -- If you have chondromalacia, that squatting position isn't

good for you, is it?

>This sound goofy but the smaller the ball you sit on the more burn

>you'll feel, for added exercise lean from one knee to the other kind of like

a

>lunge sitting down (make sense?) you can do this while watching T.V. and

you

>really don't even thing about it plus you burn calories. I realize it may

sound

>kind of stupid to someone if they've never got to play around on the therapy

>balls but they really work and they make it fun. And most of the balls come

>with an exercise chart too with more things to try, usually about 30

exercises.

I think it's safer to do it lying on your back, lifting your (bent) legs while

crunching the ball between them (make sure you don't strain your lower back).

Ann

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Another one from Kip:

Yes, I have to walk backwards (crouching) on a treadmill as well in

physical therapy. I thought it was a little odd, but now I realize

that it must be one of the standard exercises.

> If you have access to a gym, squeezing a ball between your thighs

while doing leg presses is great for the inner thighs. Also, a

physical therapist just suggested to me today that I walk backwards

on a treadmill to strengthen that area.

>

> New group member

>

>

> I am a 31 year old male who is an avid mountain climber but has

been

> sidelined for a few months. I've been diagnosed with

> chondromalacia, and I'm having a hard time staying motivated for

my

> at home physical therapy exercises. I get very frustrated and

lose

> belief that the exercises work. I also have very powerful legs,

so

> the simple isometrics I was prescribed don't seem to be

> strengthening my inner thigh muscles. Can anyone offer me some

> encouragement about the exercises as well as some good exercises

to

> try for my inner leg muscles? Thanks!

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  • 1 year later...
Guest guest

I had this problem for several years. They finally did a Mylogram CT

scan (not sure of spelling) and found one of the fusions had only

partially fused. So when I moved, it pressed on nerves.

I also went to a Pain Management doctor. He recommended Massage with

accupressure, and I took a class on how to do accupressure as well.

This helped until I could have surgery to repair the broken fusion. It

didn't show up on X-rays at all.

Good luck!

in Oakland

wrote:

>Hi, my name is ; I am 27. I have idiopathic scoliosis; I have an

>S curve. Before I had my surgery, I had two 60 degree curves. I had

>my spine fused from the base of my neck to L-5 when I was 14 in 1992

>at the AI DuPont Children's Hospital in Wilmington, Delaware by Dr.

>Dan Mason. I now have two 32 degree curves. No major problems,

>though I have chronic back pain around L-5... and a lot of noisy

>hardware sounds when I move. I have seen several doctors, had MRIs,

>and CT scans, and all have told me that every thing is intact and that

>my pain stems from facet arthritis. My understanding is that I have

>minor arthritis. However, there are some days I simply can't move, I

>am in so much pain.

>

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Guest guest

Hi ...

I'm sorry that you're in so much pain, and that you haven't found

anyone to take you seriously.

I'm curious about " hardware sounds. " I haven't ever heard anyone

describe this. Do you mean that it sounds like metal scraping against

metal?

I think you need to keep looking until you find someone who has a lot

of experience treating patients with prior fusions. Here are some

names to investigate:

Todd J. Albert - Philadelphia

http://www.rothmaninstitute.com/ourdoctors/detail2.cfm?DrID=6

L. Asordian - Baltimore

http://www.gcoa.net/DoctorProfile.asp?DoctorID=3

A. Balderston - Philadelphia

http://www.3bortho.com/Balderston.htm

Abbott Byrd III - Virginia Beach

http://www.atlanticortho.com/doctors/byrd.html

C. II - Baltimore

http://www.marylandspinecenter.com/surgeon_profiles.htm

C. Lauerman - D.C.

http://www.georgetownuniversityhospital.org/body.cfm?ID=8 & ?CFID=688431 & CFTOKEN=6\

4441906 & UserAction=DoctorDetails & doctorid=4448

Regards,

> Hi, my name is ; I am 27. I have idiopathic scoliosis; I have an

> S curve. Before I had my surgery, I had two 60 degree curves. I had

> my spine fused from the base of my neck to L-5 when I was 14 in 1992

> at the AI DuPont Children's Hospital in Wilmington, Delaware by Dr.

> Dan Mason. I now have two 32 degree curves. No major problems,

> though I have chronic back pain around L-5... and a lot of noisy

> hardware sounds when I move. I have seen several doctors, had MRIs,

> and CT scans, and all have told me that every thing is intact and that

> my pain stems from facet arthritis. My understanding is that I have

> minor arthritis. However, there are some days I simply can't move, I

> am in so much pain. I try to describe my pain to the docctors...

> unfortunately, I believe they think the pain is all in my head. I

> don't like suffering in silence and I do not like taking meds to cover

> up the pain. On top of that, I simply can not afford to continue to

> see doctors for " nothing. " Maybe someone can offer me some advice on

> where to go or what to do? I live in the Columbia Gorge area of

> Washington. I have been to OHSU but they have not offered me any

> effective help.

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Guest guest

Well, it's just a bunch of clicking sounds. Like someone is tapping on a wooden

xylaphone all the way up my Lumbar area. I sound like a rickety 100 year old

person moving around, sometimes.

It's hard to explain; but, I do know people around me can hear it, too.

Do you have any names in Oregon or Washington?

Thank you for listening to me,

Racine <linda@...> wrote:

Hi ...

I'm sorry that you're in so much pain, and that you haven't found

anyone to take you seriously.

I'm curious about " hardware sounds. " I haven't ever heard anyone

describe this. Do you mean that it sounds like metal scraping against

metal?

I think you need to keep looking until you find someone who has a lot

of experience treating patients with prior fusions. Here are some

names to investigate:

Todd J. Albert - Philadelphia

http://www.rothmaninstitute.com/ourdoctors/detail2.cfm?DrID=6

L. Asordian - Baltimore

http://www.gcoa.net/DoctorProfile.asp?DoctorID=3

A. Balderston - Philadelphia

http://www.3bortho.com/Balderston.htm

Abbott Byrd III - Virginia Beach

http://www.atlanticortho.com/doctors/byrd.html

C. II - Baltimore

http://www.marylandspinecenter.com/surgeon_profiles.htm

C. Lauerman - D.C.

http://www.georgetownuniversityhospital.org/body.cfm?ID=8 & ?CFID=688431 & CFTOKEN=6\

4441906 & UserAction=DoctorDetails & doctorid=4448

Regards,

> Hi, my name is ; I am 27. I have idiopathic scoliosis; I have an

> S curve. Before I had my surgery, I had two 60 degree curves. I had

> my spine fused from the base of my neck to L-5 when I was 14 in 1992

> at the AI DuPont Children's Hospital in Wilmington, Delaware by Dr.

> Dan Mason. I now have two 32 degree curves. No major problems,

> though I have chronic back pain around L-5... and a lot of noisy

> hardware sounds when I move. I have seen several doctors, had MRIs,

> and CT scans, and all have told me that every thing is intact and that

> my pain stems from facet arthritis. My understanding is that I have

> minor arthritis. However, there are some days I simply can't move, I

> am in so much pain. I try to describe my pain to the docctors...

> unfortunately, I believe they think the pain is all in my head. I

> don't like suffering in silence and I do not like taking meds to cover

> up the pain. On top of that, I simply can not afford to continue to

> see doctors for " nothing. " Maybe someone can offer me some advice on

> where to go or what to do? I live in the Columbia Gorge area of

> Washington. I have been to OHSU but they have not offered me any

> effective help.

==================================

Right now, is .

---------------------------------

Sports

Rekindle the Rivalries. Sign up for Fantasy Football

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Guest guest

Hi ...

Discs can make the same popping sound as knuckles when they're

cracked. It sounds a lot more muted since there's a lot more soft

tissue surrounding the discs than there is surrounding your fingers.

Do you think that might be it?

Unfortunately, I don't know of any specialists in Oregon or Washington

who specialize in treating prior fusions. (Someone else might have a

recommendation, however.) If you can get to San Francisco, I can

definitely recommend a bunch of doctors:

http://www.ucsfhealth.org/adult/cgi-bin/prd.cgi?action=DISPLAYDOCTOR & doctorid=17\

33

http://www.ucsfhealth.org/adult/cgi-bin/prd.cgi?action=DISPLAYDOCTOR & doctorid=17\

34

http://www.ucsfhealth.org/adult/cgi-bin/prd.cgi?action=DISPLAYDOCTOR & doctorid=56\

6

http://www.ncsi.tv/intro/programoverview/po_meet_booth.htm

Or, if you can get to Boise, you might want to try King:

http://www.intermountainortho.com/clients/io/king.html

> Well, it's just a bunch of clicking sounds. Like someone is tapping

on a wooden xylaphone all the way up my Lumbar area. I sound like a

rickety 100 year old person moving around, sometimes.

>

> It's hard to explain; but, I do know people around me can hear it, too.

>

> Do you have any names in Oregon or Washington?

>

> Thank you for listening to me,

>

>

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  • 4 months later...

Hi Kathy -

Well... you've come to the right place. You'll find lots of encouragement

(and hugs too) here.

Being judged by someone you are trusting to provide help is absolutely

unacceptable. Does your daughter take medication?

Gotta run, but wanted to welcome you and let you know - there's a great group

of people here so never fear being judged in this group.

In a message dated 11/3/2005 6:40:18 PM Eastern Standard Time,

kmgem4girls@... writes:

I could really use some encouragement.

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Hi Kathy -

Well... you've come to the right place. You'll find lots of encouragement

(and hugs too) here.

Being judged by someone you are trusting to provide help is absolutely

unacceptable. Does your daughter take medication?

Gotta run, but wanted to welcome you and let you know - there's a great group

of people here so never fear being judged in this group.

In a message dated 11/3/2005 6:40:18 PM Eastern Standard Time,

kmgem4girls@... writes:

I could really use some encouragement.

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Hi Kathy, welcome!!

I have a son, 16, for whom I joined this group many years ago. Back

in 6th grade, OCD appeared, seemingly overnight, and I found this

group not long after. It's been my BEST support through all this.

You're right, you have to live with it to gain an understanding of

what a family deals with. And even though his OCD in many ways was

different than others might have their kids display, everyone can

still understand/support you here!

I'm a single mom, 3 sons. We live with my mother (in her 80's now).

Though his brothers understood a bit, my mom never did; but I think

that's just " her " anyway. And I can't say his brothers were

supportive, at least not after a while. They just wanted him to " get

over it " !

Well, supper to get, but wanted to welcome you here!

>

> Hi, Although I am not new to OCD, I am new to this group, or any

other

> like it. My daughter was diagnosed with OCD approximately 10 years

> ago. We have sought many different treatments, but none have

worked.

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Hi Kathy, welcome!!

I have a son, 16, for whom I joined this group many years ago. Back

in 6th grade, OCD appeared, seemingly overnight, and I found this

group not long after. It's been my BEST support through all this.

You're right, you have to live with it to gain an understanding of

what a family deals with. And even though his OCD in many ways was

different than others might have their kids display, everyone can

still understand/support you here!

I'm a single mom, 3 sons. We live with my mother (in her 80's now).

Though his brothers understood a bit, my mom never did; but I think

that's just " her " anyway. And I can't say his brothers were

supportive, at least not after a while. They just wanted him to " get

over it " !

Well, supper to get, but wanted to welcome you here!

>

> Hi, Although I am not new to OCD, I am new to this group, or any

other

> like it. My daughter was diagnosed with OCD approximately 10 years

> ago. We have sought many different treatments, but none have

worked.

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  • 2 months later...

Welcome Bill:

You have joined a great group of people. We are are dealing with the same

issues you are dealing with.

I was dx 2-02 had RF and relapsed 9-05. I had a second opinion from MD

in Houston 12-05. Currently in W/W mode.

The best way to help yourself is ask questions and participate in the

discussions.

Regards Gordon

Bill Pope <billp_31082@...> wrote:

Hi all,

I justjoined this group. I didn't knwo it existed.

My name is Bill and I have cll.

I was dx in Dec.2000 and currently w & w.

I have no major symptoms other than swelling lymph

nodes, depression, and some fatigue. It hard to find

people to talk to that really understand what I am

going through. I hope joining this group will help me

both emotionally and physically.

Anyone is welcome to e-mail me.

Thanks,

Bill

__________________________________________________

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Gordon,

Thanks for the welcome. Its refreshing to communicate

with you all. I do have a question. Is it ok for a

person with cll without symptoms etc.to take an asprin

a day?

Thanks,

Bill

--- Gordon Dobler <gj628dobler@...> wrote:

> Welcome Bill:

> You have joined a great group of people. We are

> are dealing with the same issues you are dealing

> with.

>

> I was dx 2-02 had RF and relapsed 9-05. I had a

> second opinion from MD in Houston 12-05.

> Currently in W/W mode.

>

> The best way to help yourself is ask questions and

> participate in the discussions.

>

> Regards Gordon

>

> Bill Pope <billp_31082@...> wrote:

> Hi all,

> I justjoined this group. I didn't knwo it existed.

> My name is Bill and I have cll.

> I was dx in Dec.2000 and currently w & w.

> I have no major symptoms other than swelling lymph

> nodes, depression, and some fatigue. It hard to find

> people to talk to that really understand what I am

> going through. I hope joining this group will help

> me

> both emotionally and physically.

> Anyone is welcome to e-mail me.

> Thanks,

> Bill

>

> __________________________________________________

>

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Welcome Bill - you've joined the right group - there are a lot of

knowledgeable people on here - tell us more about your situation - I'll also put

your

name on the CLL Information Group - Let me have your name, city and ZIP -

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Bill - just join in and talk, you'll find lots of company and lots of info.

I know of no reason not to take a daily aspirin. Many people do (a baby

aspirin) for heart reason.

Usually the limiting issue with aspirin is your stomach, because an aspirin

can cause stomach irritation. There are oother analgesics that do less stomach

damage.

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I do not take as aspirin a day and it would be inappropriate for me to make a

recommendation for you. I would suggest that you check with your Dr. who knows

your medical history as whether it would be OK.

Perhaps others on the board would have a suggestion.

Gordon

Bill Pope <billp_31082@...> wrote:

Gordon,

Thanks for the welcome. Its refreshing to communicate

with you all. I do have a question. Is it ok for a

person with cll without symptoms etc.to take an asprin

a day?

Thanks,

Bill

--- Gordon Dobler wrote:

> Welcome Bill:

> You have joined a great group of people. We are

> are dealing with the same issues you are dealing

> with.

>

> I was dx 2-02 had RF and relapsed 9-05. I had a

> second opinion from MD in Houston 12-05.

> Currently in W/W mode.

>

> The best way to help yourself is ask questions and

> participate in the discussions.

>

> Regards Gordon

>

> Bill Pope wrote:

> Hi all,

> I justjoined this group. I didn't knwo it existed.

> My name is Bill and I have cll.

> I was dx in Dec.2000 and currently w & w.

> I have no major symptoms other than swelling lymph

> nodes, depression, and some fatigue. It hard to find

> people to talk to that really understand what I am

> going through. I hope joining this group will help

> me

> both emotionally and physically.

> Anyone is welcome to e-mail me.

> Thanks,

> Bill

>

> __________________________________________________

>

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Bil,

I'm so glad you said that!I was diagnosed with CLL last month,

and I've been just crazy ever since!I had never heard of it, and I

felt so bad because of it.The people in my irl support group didn't

really help, in fact,they actually made me feel way worse.I was

really unsure if I thought signing up for an onlie group was the

right idea, but now I know it is....Thank you for being so upfront.I

will try to do the same!

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Hi,

Signing up for support on line has been good for me. I

learn a lot and it makes me feel like I am not alone.

Not many people understand what cll is all about so

this is a great outlet.

Bill

--- cukierekkrolik <cukierekkrolik@...> wrote:

>

> Bil,

> I'm so glad you said that!I was diagnosed with CLL

> last month,

> and I've been just crazy ever since!I had never

> heard of it, and I

> felt so bad because of it.The people in my irl

> support group didn't

> really help, in fact,they actually made me feel way

> worse.I was

> really unsure if I thought signing up for an onlie

> group was the

> right idea, but now I know it is....Thank you for

> being so upfront.I

> will try to do the same!

>

>

>

>

__________________________________________________

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Dear All,

The aspirin question has other considerations for a CLLer. Often with this

disease you have compromised platelets and if this is the case there is an added

bleeding possibility. The old but good advise applies, ask your doctor first.

Good health and happiness,

Dan Hill

Re: new group member

Bill - just join in and talk, you'll find lots of company and lots of info.

I know of no reason not to take a daily aspirin. Many people do (a baby

aspirin) for heart reason.

Usually the limiting issue with aspirin is your stomach, because an aspirin

can cause stomach irritation. There are oother analgesics that do less stomach

damage.

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Thanks and all,

My name is Bill Pope and I live in Eufaula, AL 36027.

I was dx in Dec.2000 during a routine physical. I had

a high wbc for no apparent reason. My family dr. sent

me to have a bmb.

The cytomety results etc. confirmed my dx of cll. I

have not gotten a 2nd opinion at a cll center as of

yet. Since Dec.2000 my wbc has slowly risen and

doubles about each year or year and a half. My abs lym

count has risen from 6.0 in 2000 to 35 dec.2005. I am

currently showing swollen lymph nodes below and behind

my ears and below my jaw. I have a couple of nodules

or lumps in my neck area. None of these nodes seem to

be getting bigger that I can tell. I do experience

fatigue from time to time and have been dx as

clinically depressed (I am on 300 mg/day wellbutrin xl

for now). I just had a small spot removed from the

back of my neck which has been identified as squamous

cell carcinoma(scc). Knowing that we

cllers(especially males over 50) are more susceptible

to skin cancer this kind of scares me. I go back to my

dermatologist for a follow-up in 2 weeks. Other than

the above I have no major symptoms and am generally

very healthy and live an active life. I hope this

isn't too much information but I believe it gives a

generally description of my situation.

Also, I asked the question about the one asprin a day

because my family dr. recommended it. I had seen on

some of the discussions that there was concern about

cll people using asprin due to low platlets. I don't

have that problem.

Thanks some much for listening.

Bill

--- jb50192@... wrote:

> Welcome Bill - you've joined the right group - there

> are a lot of

> knowledgeable people on here - tell us more about

> your situation - I'll also put your

> name on the CLL Information Group - Let me have your

> name, city and ZIP -

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

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  • 6 months later...

Welcome Miriam,

You sound like you are a fighter! My sister-in-law has/had bone, lung and brain cancer, she was diagnosed a year ago in June and was only given 2-4 mos to live, well she has made it way past that and is still very much alive! The brain and lung cancer is gone and the bone cancer is in remission. She doesn't have to have chemo anymore and doesn't have to be seen by her doc until October. She is from Houston but recently moved out here to Irvine with her husband Craig, my husband 's brother. I live in Placentia so we are pretty close. I have fibromyalgia, asthma, allergies, chronic sinusitis and several other health problems including anxiety & depression--nothing fatal tho! My 22 yr old daughter has cystic fibrosis and goes to the cf clinic at Long Beach Memorial. It is a very good hospital, we used to go to CHOC and got screwed around so we finally left and found new docs in Long Beach. I also have a 24 yr old healthy son and a great & adorable 3 year old mutt dog Lucy.

As for your spiritual issues, I am a Christian and I really don't think I could do this (be sick and have a sick child) without my Lord. I really lean on Him. I would encourage you to turn to your religion and if you are not finding it relevant or helpful consider a change. Not trying to convert you (I am not that kind of Christian). Just if you are feeling a void maybe even trying to read the New Testament. Just a suggestion. Ignore if you want to.

love,

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Hi , thanks for the welcome.

I go to LB Memorial Hospital as well.

It is a good hospital and I have had three back surgeries there.

I think that if I wasen't happy there, I'd try UCLA or City of Hope.

It's the not knowing that I don't like. I am not a really patient

person in the first place and having no control over the situation is

hard on me.

Miriam

>

> Welcome Miriam,

> You sound like you are a fighter! My sister-in-law has/had bone,

lung and brain cancer, she was diagnosed a year ago in June and was

only given 2-4 mos to live, well she has made it way past that and is

still very much alive! The brain and lung cancer is gone and the bone

cancer is in remission. She doesn't have to have chemo anymore and

doesn't have to be seen by her doc until October. She is from Houston

but recently moved out here to Irvine with her husband Craig, my

husband 's brother. I live in Placentia so we are pretty close. I

have fibromyalgia, asthma, allergies, chronic sinusitis and several

other health problems including anxiety & depression--nothing fatal

tho! My 22 yr old daughter has cystic fibrosis and goes to the cf

clinic at Long Beach Memorial. It is a very good hospital, we used to

go to CHOC and got screwed around so we finally left and found new

docs in Long Beach. I also have a 24 yr old healthy son and a great &

adorable 3 year old mutt dog Lucy.

>

> As for your spiritual issues, I am a Christian and I really don't

think I could do this (be sick and have a sick child) without my

Lord. I really lean on Him. I would encourage you to turn to your

religion and if you are not finding it relevant or helpful consider a

change. Not trying to convert you (I am not that kind of Christian).

Just if you are feeling a void maybe even trying to read the New

Testament. Just a suggestion. Ignore if you want to.

>

> love,

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Hi Miriam,

I know what you mean I hate waiting for test results and stuff. I have to have a CT scan of my sinuses and I am waiting for the dang hmo to approve it. So stupid. I don't go to Long Beach, just . I go to St. ph's in Orange. It's fine for me but not for Ang or imho anyone with cf.

hang in there sweetheart!

love,

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