Guest guest Posted February 4, 2004 Report Share Posted February 4, 2004 If you have access to a gym, squeezing a ball between your thighs while doing leg presses is great for the inner thighs. Also, a physical therapist just suggested to me today that I walk backwards on a treadmill to strengthen that area. New group member I am a 31 year old male who is an avid mountain climber but has been sidelined for a few months. I've been diagnosed with chondromalacia, and I'm having a hard time staying motivated for my at home physical therapy exercises. I get very frustrated and lose belief that the exercises work. I also have very powerful legs, so the simple isometrics I was prescribed don't seem to be strengthening my inner thigh muscles. Can anyone offer me some encouragement about the exercises as well as some good exercises to try for my inner leg muscles? Thanks! _____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2004 Report Share Posted February 4, 2004 If you already have strong thigh muscles, try one of the smallest therapy balls. You'll be sitting on it in pretty much a squatting position and bounce on it. This sound goofy but the smaller the ball you sit on the more burn you'll feel, for added exercise lean from one knee to the other kind of like a lunge sitting down (make sense?) you can do this while watching T.V. and you really don't even thing about it plus you burn calories. I realize it may sound kind of stupid to someone if they've never got to play around on the therapy balls but they really work and they make it fun. And most of the balls come with an exercise chart too with more things to try, usually about 30 exercises. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2004 Report Share Posted February 4, 2004 Dear sirgalt -- you are not alone. I have trouble with home PT exercises. Sooooooo boring, and such slow (if any) progress. I finally gave up & had surgery. I'm not saying that surgery is always the answer, but it's one option. I'm glad I had it done because he found a plica in there that was causing a lot of damage by rubbing against the femur and tibia (and probably was responsible for the destruction of 2/3 of my lateral meniscus). It didn't show up on MRI. I have a good one for your inner leg muscles (from my PT). This one's more fun to do. Actually the exercise is designed to strengthen one of the 5 muscles in your hip joint, one that gets neglected (don't know the name of it). Can't hurt to strengthen it. You sit in a chair that lets your feet barely touch the floor (I put a firm pillow on my chair). Loop a Theraband around the metatarsal area of your foot & anchor the Theraband somewhere lateral to that foot. Now turn the whole leg so that the foot is lifted up in front of the other leg (keeping knee bent). Don't lift the thigh up from the chair. You can emphasize either the hip muscle or the adductors. (You may have to train your mind to learn to feel which muscles are working). If you're interested in working on those 5 little muscles, I have another one. With the Theraband anchored low somewhere (I hook mine to a vertical board I screwed into my walls, and onto which I screwed large eye bolts), with you standing and facing the anchor, loop the Theraband around your heel. Making sure that you don't let your body bend with the action (keep facing forward), pull the leg back (not too far -- a foot or two) and at the same time, in one smooth action, turn your foot out (keeping leg straight). And thirdly, lie on the floor on your " good " side with both legs bent so that the feet are in line with your spine. Keeping the heels together, raise your bad knee. Again, don't let your body follow the movement -- keep your pelvis in the same position it was in when you started. All these are 3 sets of 10-20. I think, if you have access to a gym, that the ski machine, if they have one, works your inner thighs. Oh-- I confiscated a 10 " child's ball that found its way into my yard & use it as a Thighmaster. Ann New group member I am a 31 year old male who is an avid mountain climber but has been sidelined for a few months. I've been diagnosed with chondromalacia, and I'm having a hard time staying motivated for my at home physical therapy exercises. I get very frustrated and lose belief that the exercises work. I also have very powerful legs, so the simple isometrics I was prescribed don't seem to be strengthening my inner thigh muscles. Can anyone offer me some encouragement about the exercises as well as some good exercises to try for my inner leg muscles? Thanks! ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2004 Report Share Posted February 4, 2004 >If you already have strong thigh muscles, try one of the smallest therapy >balls. You'll be sitting on it in pretty much a squatting position and bounce on >it. But - but - but -- If you have chondromalacia, that squatting position isn't good for you, is it? >This sound goofy but the smaller the ball you sit on the more burn >you'll feel, for added exercise lean from one knee to the other kind of like a >lunge sitting down (make sense?) you can do this while watching T.V. and you >really don't even thing about it plus you burn calories. I realize it may sound >kind of stupid to someone if they've never got to play around on the therapy >balls but they really work and they make it fun. And most of the balls come >with an exercise chart too with more things to try, usually about 30 exercises. I think it's safer to do it lying on your back, lifting your (bent) legs while crunching the ball between them (make sure you don't strain your lower back). Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2004 Report Share Posted February 8, 2004 Another one from Kip: Yes, I have to walk backwards (crouching) on a treadmill as well in physical therapy. I thought it was a little odd, but now I realize that it must be one of the standard exercises. > If you have access to a gym, squeezing a ball between your thighs while doing leg presses is great for the inner thighs. Also, a physical therapist just suggested to me today that I walk backwards on a treadmill to strengthen that area. > > New group member > > > I am a 31 year old male who is an avid mountain climber but has been > sidelined for a few months. I've been diagnosed with > chondromalacia, and I'm having a hard time staying motivated for my > at home physical therapy exercises. I get very frustrated and lose > belief that the exercises work. I also have very powerful legs, so > the simple isometrics I was prescribed don't seem to be > strengthening my inner thigh muscles. Can anyone offer me some > encouragement about the exercises as well as some good exercises to > try for my inner leg muscles? Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2005 Report Share Posted June 28, 2005 I had this problem for several years. They finally did a Mylogram CT scan (not sure of spelling) and found one of the fusions had only partially fused. So when I moved, it pressed on nerves. I also went to a Pain Management doctor. He recommended Massage with accupressure, and I took a class on how to do accupressure as well. This helped until I could have surgery to repair the broken fusion. It didn't show up on X-rays at all. Good luck! in Oakland wrote: >Hi, my name is ; I am 27. I have idiopathic scoliosis; I have an >S curve. Before I had my surgery, I had two 60 degree curves. I had >my spine fused from the base of my neck to L-5 when I was 14 in 1992 >at the AI DuPont Children's Hospital in Wilmington, Delaware by Dr. >Dan Mason. I now have two 32 degree curves. No major problems, >though I have chronic back pain around L-5... and a lot of noisy >hardware sounds when I move. I have seen several doctors, had MRIs, >and CT scans, and all have told me that every thing is intact and that >my pain stems from facet arthritis. My understanding is that I have >minor arthritis. However, there are some days I simply can't move, I >am in so much pain. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2005 Report Share Posted June 28, 2005 Hi ... I'm sorry that you're in so much pain, and that you haven't found anyone to take you seriously. I'm curious about " hardware sounds. " I haven't ever heard anyone describe this. Do you mean that it sounds like metal scraping against metal? I think you need to keep looking until you find someone who has a lot of experience treating patients with prior fusions. Here are some names to investigate: Todd J. Albert - Philadelphia http://www.rothmaninstitute.com/ourdoctors/detail2.cfm?DrID=6 L. Asordian - Baltimore http://www.gcoa.net/DoctorProfile.asp?DoctorID=3 A. Balderston - Philadelphia http://www.3bortho.com/Balderston.htm Abbott Byrd III - Virginia Beach http://www.atlanticortho.com/doctors/byrd.html C. II - Baltimore http://www.marylandspinecenter.com/surgeon_profiles.htm C. Lauerman - D.C. http://www.georgetownuniversityhospital.org/body.cfm?ID=8 & ?CFID=688431 & CFTOKEN=6\ 4441906 & UserAction=DoctorDetails & doctorid=4448 Regards, > Hi, my name is ; I am 27. I have idiopathic scoliosis; I have an > S curve. Before I had my surgery, I had two 60 degree curves. I had > my spine fused from the base of my neck to L-5 when I was 14 in 1992 > at the AI DuPont Children's Hospital in Wilmington, Delaware by Dr. > Dan Mason. I now have two 32 degree curves. No major problems, > though I have chronic back pain around L-5... and a lot of noisy > hardware sounds when I move. I have seen several doctors, had MRIs, > and CT scans, and all have told me that every thing is intact and that > my pain stems from facet arthritis. My understanding is that I have > minor arthritis. However, there are some days I simply can't move, I > am in so much pain. I try to describe my pain to the docctors... > unfortunately, I believe they think the pain is all in my head. I > don't like suffering in silence and I do not like taking meds to cover > up the pain. On top of that, I simply can not afford to continue to > see doctors for " nothing. " Maybe someone can offer me some advice on > where to go or what to do? I live in the Columbia Gorge area of > Washington. I have been to OHSU but they have not offered me any > effective help. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2005 Report Share Posted June 28, 2005 Well, it's just a bunch of clicking sounds. Like someone is tapping on a wooden xylaphone all the way up my Lumbar area. I sound like a rickety 100 year old person moving around, sometimes. It's hard to explain; but, I do know people around me can hear it, too. Do you have any names in Oregon or Washington? Thank you for listening to me, Racine <linda@...> wrote: Hi ... I'm sorry that you're in so much pain, and that you haven't found anyone to take you seriously. I'm curious about " hardware sounds. " I haven't ever heard anyone describe this. Do you mean that it sounds like metal scraping against metal? I think you need to keep looking until you find someone who has a lot of experience treating patients with prior fusions. Here are some names to investigate: Todd J. Albert - Philadelphia http://www.rothmaninstitute.com/ourdoctors/detail2.cfm?DrID=6 L. Asordian - Baltimore http://www.gcoa.net/DoctorProfile.asp?DoctorID=3 A. Balderston - Philadelphia http://www.3bortho.com/Balderston.htm Abbott Byrd III - Virginia Beach http://www.atlanticortho.com/doctors/byrd.html C. II - Baltimore http://www.marylandspinecenter.com/surgeon_profiles.htm C. Lauerman - D.C. http://www.georgetownuniversityhospital.org/body.cfm?ID=8 & ?CFID=688431 & CFTOKEN=6\ 4441906 & UserAction=DoctorDetails & doctorid=4448 Regards, > Hi, my name is ; I am 27. I have idiopathic scoliosis; I have an > S curve. Before I had my surgery, I had two 60 degree curves. I had > my spine fused from the base of my neck to L-5 when I was 14 in 1992 > at the AI DuPont Children's Hospital in Wilmington, Delaware by Dr. > Dan Mason. I now have two 32 degree curves. No major problems, > though I have chronic back pain around L-5... and a lot of noisy > hardware sounds when I move. I have seen several doctors, had MRIs, > and CT scans, and all have told me that every thing is intact and that > my pain stems from facet arthritis. My understanding is that I have > minor arthritis. However, there are some days I simply can't move, I > am in so much pain. I try to describe my pain to the docctors... > unfortunately, I believe they think the pain is all in my head. I > don't like suffering in silence and I do not like taking meds to cover > up the pain. On top of that, I simply can not afford to continue to > see doctors for " nothing. " Maybe someone can offer me some advice on > where to go or what to do? I live in the Columbia Gorge area of > Washington. I have been to OHSU but they have not offered me any > effective help. ================================== Right now, is . --------------------------------- Sports Rekindle the Rivalries. Sign up for Fantasy Football Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2005 Report Share Posted June 29, 2005 Hi ... Discs can make the same popping sound as knuckles when they're cracked. It sounds a lot more muted since there's a lot more soft tissue surrounding the discs than there is surrounding your fingers. Do you think that might be it? Unfortunately, I don't know of any specialists in Oregon or Washington who specialize in treating prior fusions. (Someone else might have a recommendation, however.) If you can get to San Francisco, I can definitely recommend a bunch of doctors: http://www.ucsfhealth.org/adult/cgi-bin/prd.cgi?action=DISPLAYDOCTOR & doctorid=17\ 33 http://www.ucsfhealth.org/adult/cgi-bin/prd.cgi?action=DISPLAYDOCTOR & doctorid=17\ 34 http://www.ucsfhealth.org/adult/cgi-bin/prd.cgi?action=DISPLAYDOCTOR & doctorid=56\ 6 http://www.ncsi.tv/intro/programoverview/po_meet_booth.htm Or, if you can get to Boise, you might want to try King: http://www.intermountainortho.com/clients/io/king.html > Well, it's just a bunch of clicking sounds. Like someone is tapping on a wooden xylaphone all the way up my Lumbar area. I sound like a rickety 100 year old person moving around, sometimes. > > It's hard to explain; but, I do know people around me can hear it, too. > > Do you have any names in Oregon or Washington? > > Thank you for listening to me, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2005 Report Share Posted November 3, 2005 Hi Kathy - Well... you've come to the right place. You'll find lots of encouragement (and hugs too) here. Being judged by someone you are trusting to provide help is absolutely unacceptable. Does your daughter take medication? Gotta run, but wanted to welcome you and let you know - there's a great group of people here so never fear being judged in this group. In a message dated 11/3/2005 6:40:18 PM Eastern Standard Time, kmgem4girls@... writes: I could really use some encouragement. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2005 Report Share Posted November 3, 2005 Hi Kathy - Well... you've come to the right place. You'll find lots of encouragement (and hugs too) here. Being judged by someone you are trusting to provide help is absolutely unacceptable. Does your daughter take medication? Gotta run, but wanted to welcome you and let you know - there's a great group of people here so never fear being judged in this group. In a message dated 11/3/2005 6:40:18 PM Eastern Standard Time, kmgem4girls@... writes: I could really use some encouragement. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2005 Report Share Posted November 3, 2005 Hi Kathy, welcome!! I have a son, 16, for whom I joined this group many years ago. Back in 6th grade, OCD appeared, seemingly overnight, and I found this group not long after. It's been my BEST support through all this. You're right, you have to live with it to gain an understanding of what a family deals with. And even though his OCD in many ways was different than others might have their kids display, everyone can still understand/support you here! I'm a single mom, 3 sons. We live with my mother (in her 80's now). Though his brothers understood a bit, my mom never did; but I think that's just " her " anyway. And I can't say his brothers were supportive, at least not after a while. They just wanted him to " get over it " ! Well, supper to get, but wanted to welcome you here! > > Hi, Although I am not new to OCD, I am new to this group, or any other > like it. My daughter was diagnosed with OCD approximately 10 years > ago. We have sought many different treatments, but none have worked. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2005 Report Share Posted November 3, 2005 Hi Kathy, welcome!! I have a son, 16, for whom I joined this group many years ago. Back in 6th grade, OCD appeared, seemingly overnight, and I found this group not long after. It's been my BEST support through all this. You're right, you have to live with it to gain an understanding of what a family deals with. And even though his OCD in many ways was different than others might have their kids display, everyone can still understand/support you here! I'm a single mom, 3 sons. We live with my mother (in her 80's now). Though his brothers understood a bit, my mom never did; but I think that's just " her " anyway. And I can't say his brothers were supportive, at least not after a while. They just wanted him to " get over it " ! Well, supper to get, but wanted to welcome you here! > > Hi, Although I am not new to OCD, I am new to this group, or any other > like it. My daughter was diagnosed with OCD approximately 10 years > ago. We have sought many different treatments, but none have worked. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Welcome Bill: You have joined a great group of people. We are are dealing with the same issues you are dealing with. I was dx 2-02 had RF and relapsed 9-05. I had a second opinion from MD in Houston 12-05. Currently in W/W mode. The best way to help yourself is ask questions and participate in the discussions. Regards Gordon Bill Pope <billp_31082@...> wrote: Hi all, I justjoined this group. I didn't knwo it existed. My name is Bill and I have cll. I was dx in Dec.2000 and currently w & w. I have no major symptoms other than swelling lymph nodes, depression, and some fatigue. It hard to find people to talk to that really understand what I am going through. I hope joining this group will help me both emotionally and physically. Anyone is welcome to e-mail me. Thanks, Bill __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Gordon, Thanks for the welcome. Its refreshing to communicate with you all. I do have a question. Is it ok for a person with cll without symptoms etc.to take an asprin a day? Thanks, Bill --- Gordon Dobler <gj628dobler@...> wrote: > Welcome Bill: > You have joined a great group of people. We are > are dealing with the same issues you are dealing > with. > > I was dx 2-02 had RF and relapsed 9-05. I had a > second opinion from MD in Houston 12-05. > Currently in W/W mode. > > The best way to help yourself is ask questions and > participate in the discussions. > > Regards Gordon > > Bill Pope <billp_31082@...> wrote: > Hi all, > I justjoined this group. I didn't knwo it existed. > My name is Bill and I have cll. > I was dx in Dec.2000 and currently w & w. > I have no major symptoms other than swelling lymph > nodes, depression, and some fatigue. It hard to find > people to talk to that really understand what I am > going through. I hope joining this group will help > me > both emotionally and physically. > Anyone is welcome to e-mail me. > Thanks, > Bill > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Welcome Bill - you've joined the right group - there are a lot of knowledgeable people on here - tell us more about your situation - I'll also put your name on the CLL Information Group - Let me have your name, city and ZIP - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Bill - just join in and talk, you'll find lots of company and lots of info. I know of no reason not to take a daily aspirin. Many people do (a baby aspirin) for heart reason. Usually the limiting issue with aspirin is your stomach, because an aspirin can cause stomach irritation. There are oother analgesics that do less stomach damage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 I do not take as aspirin a day and it would be inappropriate for me to make a recommendation for you. I would suggest that you check with your Dr. who knows your medical history as whether it would be OK. Perhaps others on the board would have a suggestion. Gordon Bill Pope <billp_31082@...> wrote: Gordon, Thanks for the welcome. Its refreshing to communicate with you all. I do have a question. Is it ok for a person with cll without symptoms etc.to take an asprin a day? Thanks, Bill --- Gordon Dobler wrote: > Welcome Bill: > You have joined a great group of people. We are > are dealing with the same issues you are dealing > with. > > I was dx 2-02 had RF and relapsed 9-05. I had a > second opinion from MD in Houston 12-05. > Currently in W/W mode. > > The best way to help yourself is ask questions and > participate in the discussions. > > Regards Gordon > > Bill Pope wrote: > Hi all, > I justjoined this group. I didn't knwo it existed. > My name is Bill and I have cll. > I was dx in Dec.2000 and currently w & w. > I have no major symptoms other than swelling lymph > nodes, depression, and some fatigue. It hard to find > people to talk to that really understand what I am > going through. I hope joining this group will help > me > both emotionally and physically. > Anyone is welcome to e-mail me. > Thanks, > Bill > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Bil, I'm so glad you said that!I was diagnosed with CLL last month, and I've been just crazy ever since!I had never heard of it, and I felt so bad because of it.The people in my irl support group didn't really help, in fact,they actually made me feel way worse.I was really unsure if I thought signing up for an onlie group was the right idea, but now I know it is....Thank you for being so upfront.I will try to do the same! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Hi, Signing up for support on line has been good for me. I learn a lot and it makes me feel like I am not alone. Not many people understand what cll is all about so this is a great outlet. Bill --- cukierekkrolik <cukierekkrolik@...> wrote: > > Bil, > I'm so glad you said that!I was diagnosed with CLL > last month, > and I've been just crazy ever since!I had never > heard of it, and I > felt so bad because of it.The people in my irl > support group didn't > really help, in fact,they actually made me feel way > worse.I was > really unsure if I thought signing up for an onlie > group was the > right idea, but now I know it is....Thank you for > being so upfront.I > will try to do the same! > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Dear All, The aspirin question has other considerations for a CLLer. Often with this disease you have compromised platelets and if this is the case there is an added bleeding possibility. The old but good advise applies, ask your doctor first. Good health and happiness, Dan Hill Re: new group member Bill - just join in and talk, you'll find lots of company and lots of info. I know of no reason not to take a daily aspirin. Many people do (a baby aspirin) for heart reason. Usually the limiting issue with aspirin is your stomach, because an aspirin can cause stomach irritation. There are oother analgesics that do less stomach damage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 Thanks and all, My name is Bill Pope and I live in Eufaula, AL 36027. I was dx in Dec.2000 during a routine physical. I had a high wbc for no apparent reason. My family dr. sent me to have a bmb. The cytomety results etc. confirmed my dx of cll. I have not gotten a 2nd opinion at a cll center as of yet. Since Dec.2000 my wbc has slowly risen and doubles about each year or year and a half. My abs lym count has risen from 6.0 in 2000 to 35 dec.2005. I am currently showing swollen lymph nodes below and behind my ears and below my jaw. I have a couple of nodules or lumps in my neck area. None of these nodes seem to be getting bigger that I can tell. I do experience fatigue from time to time and have been dx as clinically depressed (I am on 300 mg/day wellbutrin xl for now). I just had a small spot removed from the back of my neck which has been identified as squamous cell carcinoma(scc). Knowing that we cllers(especially males over 50) are more susceptible to skin cancer this kind of scares me. I go back to my dermatologist for a follow-up in 2 weeks. Other than the above I have no major symptoms and am generally very healthy and live an active life. I hope this isn't too much information but I believe it gives a generally description of my situation. Also, I asked the question about the one asprin a day because my family dr. recommended it. I had seen on some of the discussions that there was concern about cll people using asprin due to low platlets. I don't have that problem. Thanks some much for listening. Bill --- jb50192@... wrote: > Welcome Bill - you've joined the right group - there > are a lot of > knowledgeable people on here - tell us more about > your situation - I'll also put your > name on the CLL Information Group - Let me have your > name, city and ZIP - > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2006 Report Share Posted August 13, 2006 Welcome Miriam, You sound like you are a fighter! My sister-in-law has/had bone, lung and brain cancer, she was diagnosed a year ago in June and was only given 2-4 mos to live, well she has made it way past that and is still very much alive! The brain and lung cancer is gone and the bone cancer is in remission. She doesn't have to have chemo anymore and doesn't have to be seen by her doc until October. She is from Houston but recently moved out here to Irvine with her husband Craig, my husband 's brother. I live in Placentia so we are pretty close. I have fibromyalgia, asthma, allergies, chronic sinusitis and several other health problems including anxiety & depression--nothing fatal tho! My 22 yr old daughter has cystic fibrosis and goes to the cf clinic at Long Beach Memorial. It is a very good hospital, we used to go to CHOC and got screwed around so we finally left and found new docs in Long Beach. I also have a 24 yr old healthy son and a great & adorable 3 year old mutt dog Lucy. As for your spiritual issues, I am a Christian and I really don't think I could do this (be sick and have a sick child) without my Lord. I really lean on Him. I would encourage you to turn to your religion and if you are not finding it relevant or helpful consider a change. Not trying to convert you (I am not that kind of Christian). Just if you are feeling a void maybe even trying to read the New Testament. Just a suggestion. Ignore if you want to. love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2006 Report Share Posted August 13, 2006 Hi , thanks for the welcome. I go to LB Memorial Hospital as well. It is a good hospital and I have had three back surgeries there. I think that if I wasen't happy there, I'd try UCLA or City of Hope. It's the not knowing that I don't like. I am not a really patient person in the first place and having no control over the situation is hard on me. Miriam > > Welcome Miriam, > You sound like you are a fighter! My sister-in-law has/had bone, lung and brain cancer, she was diagnosed a year ago in June and was only given 2-4 mos to live, well she has made it way past that and is still very much alive! The brain and lung cancer is gone and the bone cancer is in remission. She doesn't have to have chemo anymore and doesn't have to be seen by her doc until October. She is from Houston but recently moved out here to Irvine with her husband Craig, my husband 's brother. I live in Placentia so we are pretty close. I have fibromyalgia, asthma, allergies, chronic sinusitis and several other health problems including anxiety & depression--nothing fatal tho! My 22 yr old daughter has cystic fibrosis and goes to the cf clinic at Long Beach Memorial. It is a very good hospital, we used to go to CHOC and got screwed around so we finally left and found new docs in Long Beach. I also have a 24 yr old healthy son and a great & adorable 3 year old mutt dog Lucy. > > As for your spiritual issues, I am a Christian and I really don't think I could do this (be sick and have a sick child) without my Lord. I really lean on Him. I would encourage you to turn to your religion and if you are not finding it relevant or helpful consider a change. Not trying to convert you (I am not that kind of Christian). Just if you are feeling a void maybe even trying to read the New Testament. Just a suggestion. Ignore if you want to. > > love, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2006 Report Share Posted August 14, 2006 Hi Miriam, I know what you mean I hate waiting for test results and stuff. I have to have a CT scan of my sinuses and I am waiting for the dang hmo to approve it. So stupid. I don't go to Long Beach, just . I go to St. ph's in Orange. It's fine for me but not for Ang or imho anyone with cf. hang in there sweetheart! love, Quote Link to comment Share on other sites More sharing options...
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