RE: Re: Neurological efects, mitochondria etc

[Guest guest]

Thanks Katrina, very interesting. Agree about the neurological effects -

the point about the immune system aspects is that they may well be a root

cause of the neurological effects in many cases.

You mentioned Pall - we had heard rumours that he had published a

book which Sue would be interested to see (since she can't look at computer

monitors) but can't find any reference to it -do you (or anyone else) know

about it?

Best wishes, Ian

_____

From: [mailto: ] On Behalf Of

kattemayo

Sent: 29 December 2006 10:12

Subject: Re: Overcoming Electrical Sensitivity - a new website

Hi Ian,

You wrote:

>>>>The interesting trend that I have noticed so far is that of people I

have

met or contacted with the severe form of ES, at least 75% (maybe more) have

some sort of severe immune system dysfunction causing ME, multiple chemical

sensitivity or similar problems. These are often helped by special diets

and supplements, but often something more is required.<<<<

{Speaking as a person with long term ME, and then MCS and then Esens},

While it is true that ME/CFS at least does involve significant immune

dysfunction, it is largely a Neurological disease, with a great deal of

brain dysfunction.

It is also increasingly considered a disease of Mitochondria malfunction.

For instance, relating to both of these, an MRS brain scan shows that I have

Lactate spikes in 6 of 36 grids of my brain. (These are found very high in

full on Mito disease).

My Neuro-psych testing shows several cognitive deficits, such as in

Executive functioning, that indicate " Right Hempishere Impairment " .

I also have Movement Disorders that indicate problem with the Basal Ganglia.

Other brain findings in many ME/CFS patients are:

low blood flow

Lesions, white spots

Apparent inflammation

Various metabolic and neurotransmitter imbalances

Typical also is sensory overload, meaning to lights, sound, movement,

smells...sometimes even touch or conversation/sound of others' voices, or

acute sensitivity to " energy " of others.

One patient's recent autopsy showed inflammation of the dorsal root ganglia,

which is said the be " the gateway to all sensation to the brain. "

There is also being found left ventricle ( Diastolic Dysfunction) of the

Heart. This may be a result of the Mitochondria malfunction. Technically

speaking, this DD/Cardiomyopathy is a form of slow heart failure.

Which in itself, effects many functions, including the brain.

Researchers are approaching the disease of ME from many different angles.

Many are relevant, since it is such a multi-system disease!

The majority of longest term ME/CFS researchers still believe it to have

viral origins...particularly those targeting the CNS/Brain, and some, the

Heart, resulting in multi-system malfunctions or injury.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Regarding MCS...there is some very fascinating work by Pall...also

focusing on the brain.

I wonder if someone who understands the EMF effect on the brain might be

interested in his work. just a guess.

Some of those with MCS/CI consider themselves *injured* by chemicals as

opposed to just sensitive or " allergic " to them.

{There may be different mechanisms in MCS/CI without ME/CFS and that that

appears with it ?} Something like that may be true with Esens also?...don't

know.

Anyway, just some food for thought. Especially about CNS and sensory damage.

It seems to me this might relate to Esens as much as just Immune

Dysfunction.

Take care,

Katrina

>

> Thanks Gilligan, will send it when I have got something ready.

>

> The interesting trend that I have noticed so far is that of people I have

> met or contacted with the severe form of ES, at least 75% (maybe more)

have

> some sort of severe immune system dysfunction causing ME, multiple

chemical

> sensitivity or similar problems. These are often helped by special diets

> and supplements, but often something more is required. The remaining small

> proportion appear to have had exposure to very high and prolonged EMF

> fields, e.g. continued high use of mobile phones and electronic equipment

> over many years (maybe early types of mobile were more damaging).

>

> Ian

>

> _____

>

> From: groups (DOT) <mailto:%40> com

[mailto:groups (DOT) <mailto:%40> com] On Behalf

Of

> gilligan_joy

> Sent: 24 December 2006 16:47

> groups (DOT) <mailto:%40> com

> Subject: Re: Overcoming Electrical Sensitivity - a new website

>

>

>

> Thanks for your feedback, Ian.

>

> I know very well that the healing program I present will not be

> sufficient for many people to free themselves from the illness, but it

> is an essential foundation, and many people should experience some

> improvement by following it.

>

> When you get your wife's case history together, please let me know and

> I will post it on my website. Has she made progress? I will post it on

> my site regardless. Instead of calling the new section " Success

> Stories " , perhaps a better name would be " Case Histories. "

>

>

>

>

>

>

>