Re: restless leg syndrome (RLS)

[Guest guest]

Marilyn, I've had RLS for many years. I take Klonopin (clonazepam - generic

name) every night. RLS is so disturbing that only those who have it can

actually comprehend the problems it causes. I had it diagnosed during a sleep

study for sleep apnea (which, thank God, I don't have anymore!). I take 1-1/2

pills (they're 2mg pills) for a total of 3 mg a night. I couldn't sleep without

it. I think it helps in my overall sleep pattern. You can also get it during

the day, especially if sitting for long periods of time. Only something like

Percocet can help with the daytime symptoms. Trying to avoid sitting for too

long without stretching and getting the sleep you need at night (along with

taking this medication) is about all (I think) that can be done.

You're not alone with the " creepy crawlies! " Hang in there!

Jul

(lilac_rose@... )

Re: How have your families reacted to stills?

It's ok to get down...we all do. One thing that caught my attention in your

post was Oliver kicking his feet...there is something called restless leg

syndrome or something like that....I had experienced it during the beginning

of my illness with all the steroids and such. You may want to ask the

doctor about this or inquire to Oliver to explain how he feels when he kicks

his legs. It just caught my attention. I don't mean to make you

panic....It's more of an annoyance than anything so please don't be alarmed

I just thought I would bring it up.

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[Guest guest]

Hi All,

This RLS thingy, as Oliver is still in the beginning of Stills and it is

still forming within his body, will he continue to have RLS as par for the

course?

I was interested that Oliver's consultant has a theory of how Stills begins.

He believes that, (wait for it I'll try and spell it), a Steptaccoci (oh!

dear I know its the wrong spelling lol) infection starts it off. Oliver had

such an infection when he was about 9.5 months old and was hospitalised for

three days before we could get his temperature down. What do you all think?

Must go,

Take care

Love, Hugs, Health and Happiness

a, Oliver and the clan

[Guest guest]

a,

I had a really bad ear infection just before my stills appeared, so i think

infections trigger it too, i think there's several people on here who might

aggree also. Kate x

[Guest guest]

There are so many theries and I have heard that one before however I tend not

to believe it, but what do I know??? When I was first dnx'd with Still's I

thought it was crazy nobody in my family has any Rheumatic illness. Well just

last month two of my cousins and my aunt have all been dnx'd with Lupus and some

other syndrome involving the ana factor? I don't recall what it was. They were

talking Still's for a while but settled on the dnx of Lupus. I don't have many

of the details but now I see there is a connection on my mother's side of the

family. One thing I found interesting is that these two cousins were sisters

and their brother passed away at a young age in an automobile accident about a

year and a half ago. He had 3 children he left behind and the whole family was

really distraught. Stress and the ability to handle or not to handle, in my

case, must play an important part in Still's or Lupus or any Rheumatic disease

rearing it's ugly head.

I started out with RLS, but I no longer have it. It has come and gone as have

many on my symptoms. I'm sure I'll see it again. For instance I am sleeping

really well right now...all through the night...with the sweats and all. I will

wake up and my hair is wet and my clothes damp or I'm naked (I don't recall

taking my clothes off) so I know I was sweating pretty hard at one point. I was

sleeping so soundly though that it didn't wake me up. I have been at this stage

before and I really enjoy it, but I have a feeling that my nights of rest will

not last forever. I'm already beginning to wake a bit at night. My body is on

some sort of clock. I'm sure and it will take years to figure out. I was

speaking to Patty on the phone last week shortly after I hung up with my doctor

and she said watch in about a half hour you'll have a fever. Now, Patty has had

Still's for 25 years so she has her clock pretty well figured out. She wasn't

off by much shortly after...more like 45 min from his phone call...I had a fever

that spiked at 103.5. I began to sweat it off pretty quickly and by the time I

was at the pain management doctor it had already dropped to...I think it was

101.9 or something like that. I was soaked when I walked in...so much so that

he gave me a towel to dry off with. If I can just somehow break the cycle that

my body is in....somehow change the clock. I'll be ok....I think.

Well, I hope you figure yours out soon. Love and Hugs, Kim

eneproctor@... wrote: Hi All,

This RLS thingy, as Oliver is still in the beginning of Stills and it is

still forming within his body, will he continue to have RLS as par for the

course?

I was interested that Oliver's consultant has a theory of how Stills begins.

He believes that, (wait for it I'll try and spell it), a Steptaccoci (oh!

dear I know its the wrong spelling lol) infection starts it off. Oliver had

such an infection when he was about 9.5 months old and was hospitalised for

three days before we could get his temperature down. What do you all think?

Must go,

Take care

Love, Hugs, Health and Happiness

a, Oliver and the clan

[Guest guest]

Marilyn

I, too, have RLS. I just got home from a vacation in the FL Keys and found

your email. I have had good results with a bedtime combo of Clonapin and

Flexeril. My rheumy chose this treatment and it has worked pretty well. I

know because I forgot my clonapin on this trip and tried to increase my

flexeril doseage to make up for it. This helped some, but still wasn't the

same. I think Clonapin is really an important part of this coctail. Just my

two cents worth!

Stay healthy

[Guest guest]

good to see your post. I hope the vacation was great.

Smiles, Melt

> Marilyn

>

> I, too, have RLS. I just got home from a vacation in the FL Keys

and found

> your email. I have had good results with a bedtime combo of

Clonapin and

> Flexeril. My rheumy chose this treatment and it has worked pretty

well. I

> know because I forgot my clonapin on this trip and tried to

increase my

> flexeril doseage to make up for it. This helped some, but still

wasn't the

> same. I think Clonapin is really an important part of this

coctail. Just my

> two cents worth!

>

> Stay healthy

>

>

>

>

[Guest guest]

Hi ,

Check for parasites and deficite of B Vitamin(parasites like B Vit, B

Vit is esential for nerves)...these ara common for RLS

Dr Igor

>

> Well, after much research, I seem to have found something promising

> for RLS.

>

> It's a NET homeopathic remedy called SCARS ADHESIONS. It works better

> than anything I've tried and so far, no RLS symptoms and that has

been

> two weeks.

>

> is Rotella, M.Ac.

>

[Guest guest]

Where do you get Net Homeopathic remedy Scars Adhesions?

restless leg syndrome (RLS)

Well, after much research, I seem to have found something promising

for RLS.

It's a NET homeopathic remedy called SCARS ADHESIONS. It works better

than anything I've tried and so far, no RLS symptoms and that has been

two weeks.

is Rotella, M.Ac.

.............................................

[Guest guest]

Hi There,

In the matrix there ia a Narayani Scar tissue remedy. This has worked in

most cases I have workrd on

Bala

Re: restless leg syndrome (RLS)

Hi ,

Check for parasites and deficite of B Vitamin(parasites like B Vit, B

Vit is esential for nerves)...these ara common for RLS

Dr Igor

>

> Well, after much research, I seem to have found something promising

> for RLS.

>

> It's a NET homeopathic remedy called SCARS ADHESIONS. It works better

> than anything I've tried and so far, no RLS symptoms and that has

been

> two weeks.

>

> is Rotella, M.Ac.

>

.............................................

[Guest guest]

Also, take lots of magnesium. Most people are deficient in it, and a deficiency will cause cramping and restlessness, not to mention what it does to the heart.Bala Lodhia <blodhia@...> wrote: Hi There, In the matrix there ia a Narayani Scar tissue remedy. This has worked in most cases I have workrd on Bala Re: restless leg syndrome (RLS) Hi , Check for parasites and deficite of B Vitamin(parasites like B Vit, B Vit is esential for nerves)...these ara common for RLS Dr

Igor > > Well, after much research, I seem to have found something promising > for RLS. > > It's a NET homeopathic remedy called SCARS ADHESIONS. It works better > than anything I've tried and so far, no RLS symptoms and that has been > two weeks. > > is Rotella, M.Ac. > ............................................

[Guest guest]

No parasites and no B deficiencies. I think it's a serotonin/dopamine

connection. But thanks. is Rotella, M.Ac.

> >

> > Well, after much research, I seem to have found something promising

> > for RLS.

> >

> > It's a NET homeopathic remedy called SCARS ADHESIONS. It works better

> > than anything I've tried and so far, no RLS symptoms and that has

> been

> > two weeks.

> >

> > is Rotella, M.Ac.

> >

>

[Guest guest]

-Search NET Homeopathic Remdies on the Web. They are in California.

is Rotella, M.Ac.-- In qxci-english , " Clare "

<cadams@z...> wrote:

>

> Where do you get Net Homeopathic remedy Scars Adhesions?

>

> restless leg syndrome (RLS)

>

> Well, after much research, I seem to have found something promising

> for RLS.

>

> It's a NET homeopathic remedy called SCARS ADHESIONS. It works better

> than anything I've tried and so far, no RLS symptoms and that has been

> two weeks.

>

> is Rotella, M.Ac.

>

>

>

>

>

>

>

>

>

> ............................................

>

>

[Guest guest]

I wouldn't be surprised if many RLS cases stem from scar interference

somewhere, including the mouth. But then how would one explain those

cases that disappear when iron or manganese is given? The human body

is a mystery. is Rotella, M.Ac.

> >

> > Well, after much research, I seem to have found something promising

> > for RLS.

> >

> > It's a NET homeopathic remedy called SCARS ADHESIONS. It works better

> > than anything I've tried and so far, no RLS symptoms and that has

> been

> > two weeks.

> >

> > is Rotella, M.Ac.

> >

>

>

>

>

>

>

>

>

>

>

> ............................................

>

>