Re: Hi everyone - Electrosensitivity

[Guest guest]

Hey, Troy!

Nice to meet you. Great to hear you are doing so well! I have been

researching both treatments you mentioned helped you most--the L Ron Hubbard

detox program and Hulda 's liver flush! Did you do the L Ron Hubbard

treatment on your own thru his book or did you go to a treatment center, if I

may ask? I was wondering how hard it is to do yourself, if you know? (I am

familiar with the various parts of the treatment--niacin flush, FIR sauna,

frequent showering, supplements, exercise....) I have not read his book yet as

it is out of print. I got the various steps of the treatment online (at

www.nydetox.org), but was not sure I could do the supplemental part on my own.

So any info or advise you have, I would love to hear.

I also have come a long way by detoxing (from mostly bed-bound to able to do

gardening, housework, etc; tho I still have some stamina issues from time to

time). However, I still have much detoxing to do. I have spent the last year

detoxing, but have recently been told by my nutritionist that he thinks I have

been recycling alot of the toxins back into my adipose fat and organs. (My

elimination systems--lymphs, liver, kidneys--are fairly dysfunctional due to the

damage of 4 decades of untreated celiac disease.) Anyway, I would be very

interested in anything you have to say about either of these therapies. Welcome

to the group!

Diane

Troy Knight <mentalwealth@...> wrote:

Hello everyone,

I just wanted to introduce myself... I've had severe ES for a number

of years now (facial skin itching, burning, lesions) and I've set-up

and realised a website http://www.electrosensitivity.org where I

provide basic information and advice on electrosensitivity. You can

view my story at http://www.electrosensitivity.org/mystory.htm (I

will be posting more photo's and information on how I manage to use

computer etc. soon).

It's my own corner of the web where, hopefully, I can do my bit

amongst all the work that other people are doing, to enhance the

awareness of this condition where possible.

Obviously everyone is differentand there is perhaps a whole

multitude of mechanisms that underly electrosensitivity. But I can

say that since dicovering I had ES (maybe 4-6 years ago), I have

have undergone a series of detoxification treatments and I am

pleased to say I am around 50% CURED!

I have found the 2 most effective treatments for me to be:

1) Sauna therapy - L Ron Hubbards controversial detoxification

program

2) Hulda 's Liver flushes - Notice a significant improvement

after each flush

Troy

[Guest guest]

Very good site, Troy. You did a great job!

Diane

Troy Knight <mentalwealth@...> wrote:

Hello everyone,

I just wanted to introduce myself... I've had severe ES for a number

of years now (facial skin itching, burning, lesions) and I've set-up

and realised a website http://www.electrosensitivity.org where I

provide basic information and advice on electrosensitivity. You can

view my story at http://www.electrosensitivity.org/mystory.htm (I

will be posting more photo's and information on how I manage to use

computer etc. soon).

It's my own corner of the web where, hopefully, I can do my bit

amongst all the work that other people are doing, to enhance the

awareness of this condition where possible.

Obviously everyone is differentand there is perhaps a whole

multitude of mechanisms that underly electrosensitivity. But I can

say that since dicovering I had ES (maybe 4-6 years ago), I have

have undergone a series of detoxification treatments and I am

pleased to say I am around 50% CURED!

I have found the 2 most effective treatments for me to be:

1) Sauna therapy - L Ron Hubbards controversial detoxification

program

2) Hulda 's Liver flushes - Notice a significant improvement

after each flush

Troy

[Guest guest]

Evie wrote:

> Very good site, Troy. You did a great job!

Yes, a nice site indeed!

Two comments:

1) I see several links to various places on the

net about ES, but no link to this group here.

Are we not the most important ES site there

is? :-)

2) The site seems a bit heavy on the sentiment

about nobody knowing the cause or the cure of

ES, although I think it's fairly obvious that

it's all down to toxicity and nutrition. Science

and medicine can stall and claim ignorance for

the next few decades while the folks here will

be long-since recovered via self-treatment.

Marc

[Guest guest]

Hi Diane,

Thanks for the site comments. :-)

I did the sauna therapy from home for one month. It consisted of -

as you say - niacin flush, sauna, showering, excercise and so on.

The book I used was 'Clear Body, Clear Mind' which is currently

available on amazon.com. It was fairly rigourous and it takes up

most of the day (lots of rest to recover). As far as the

supplemental part goes, I consulted the book and ordered a huge

amount of vitamins & supplements and spent ages working out the

exact amounts ot take of everything. After about a week though, I

felt just so sick from them that I just took what I could (which

wasn;t much) and carried on with the rest of the program.

I have to say, I was a bit dejected after completing it as it didn't

seem to make a lot of difference at first. But I gradually began to

notice the improvements in the coming weeks & months afterwards.

From what I gather from the book, you will notice perhaps half the

improvement right after the program, and then the body will detoxify

itself for up to a year afterwards. I think that is the case for me.

I would say do it if you can. I ordered a home sauna unit from the

MCS relief company - which I would recomend (although last time I

looked, their site had vanished from the web). I will send you the

number of Fred who builds them if you want via personal

email. i beleive I paid about £500 ($900), or was it $500?!. I can't

remember, but it's good value.

As for the Hulda liver flushes, i found them excellent. I have

done about 7. Right after the first one, I notied that my symtpoms

were significantly improved.

Keep in touch and let me know how any of it goes!

Troy

> Hello everyone,

>

> I just wanted to introduce myself... I've had severe ES for a

number

> of years now (facial skin itching, burning, lesions) and I've set-

up

> and realised a website http://www.electrosensitivity.org where I

> provide basic information and advice on electrosensitivity. You

can

> view my story at http://www.electrosensitivity.org/mystory.htm (I

> will be posting more photo's and information on how I manage to

use

> computer etc. soon).

>

> It's my own corner of the web where, hopefully, I can do my bit

> amongst all the work that other people are doing, to enhance the

> awareness of this condition where possible.

>

> Obviously everyone is differentand there is perhaps a whole

> multitude of mechanisms that underly electrosensitivity. But I can

> say that since dicovering I had ES (maybe 4-6 years ago), I have

> have undergone a series of detoxification treatments and I am

> pleased to say I am around 50% CURED!

>

> I have found the 2 most effective treatments for me to be:

> 1) Sauna therapy - L Ron Hubbards controversial detoxification

> program

> 2) Hulda 's Liver flushes - Notice a significant improvement

> after each flush

>

> Troy

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi Marc,

> 1) > Are we not the most important ES site there

> is? :-)

Done! I have added it under the forums/mailing lists section.

> 2) The site seems a bit heavy on the sentiment

> about nobody knowing the cause or the cure of

> ES, although I think it's fairly obvious that

> it's all down to toxicity and nutrition. Science

> and medicine can stall and claim ignorance for

> the next few decades while the folks here will

> be long-since recovered via self-treatment.

I absolutely agree. From where I'm standing, it certainly appears to

be toxicity for me and lots of other people. I try to give a

balanced view of the situation though, and try not to lean too

heavily in one direction and give people false hope. But as I said

in my previous post, I am 50% cured from doing detox treatments, and

believe there is definately a way out of this condition.

I'll keep reading the archived posts here, but it would be great to

hear about any treatments which people have found effective, so I

can post them on the site.

Troy

[Guest guest]

Welcome Troy,

You did a good job on that site, especially for your young age. I

sent a link of your story to some friends whose teenage son about

lives at the monitor. Being closer to his age, I think he may pay

attention and make some adjustments, or at least be aware when

symptoms would arise.

**** Hey all, I found recently in the U.S. that some insurance co.

will pay for home infrared saunas if Rx'd by a Dr. for pain

management. I don't know if this includes Medicaid, but it's

approved by the FDA, so it might be worth your checking into.

~ Snoshoe

>

> Hello everyone,

>

> I just wanted to introduce myself... I've had severe ES for a

number

> of years now (facial skin itching, burning, lesions) and I've set-

up

> and realised a website http://www.electrosensitivity.org where I

> provide basic information and advice on electrosensitivity. You can

> view my story at http://www.electrosensitivity.org/mystory.htm (I

> will be posting more photo's and information on how I manage to use

> computer etc. soon).

>

> It's my own corner of the web where, hopefully, I can do my bit

> amongst all the work that other people are doing, to enhance the

> awareness of this condition where possible.

>

> Obviously everyone is differentand there is perhaps a whole

> multitude of mechanisms that underly electrosensitivity. But I can

> say that since dicovering I had ES (maybe 4-6 years ago), I have

> have undergone a series of detoxification treatments and I am

> pleased to say I am around 50% CURED!

>

> I have found the 2 most effective treatments for me to be:

> 1) Sauna therapy - L Ron Hubbards controversial detoxification

> program

> 2) Hulda 's Liver flushes - Notice a significant improvement

> after each flush

>

> Troy

>

[Guest guest]

Hi again, Troy,

First and foremost, avoiding and eliminating as many toxins as possible from

my environment has helped. This included, for me, many foods, esp gluten grains

and bean and soy flours, almost all processed foods, sugar and sweeteners of all

ilks. I also eliminated all cleaning chemicals, anti-perspirants, hair spray,

makeup, etc, etc, etc. No teflon, petrochemicals, and I avoid chlorine and

fluoride and as much plastics as possible, tho I find these to be evermore

elusive. I avoid exhaust fumes and smoke from fires and ciggies, etc, as much

as possible. I also avoid emfs and the like as much as possible.

EFT and slapping above my wrists and ankles, the top of my head, beating on my

breast bone, collar bone, etc, seems to help me. (When I am feeling brain foggy

and like my lymphs are sluggish.)

Very low carb diet helps get the toxins out of fat, but once you get them out

you have to be able to get them totally out of the body, which is where I have

had most problems. Even so, I have done alot along that line which includes:

Epsom salts and sea salt soaking (helps to open pores in skin and pulls out

debris);

Showering and washing hair at least once a day--I mainly detox thru my skin

and scalp, so this has been important for me. I should actually do it much more

often than that but there are only so many minutes in a day!

Rebounding on a mini-tramp (helps lymph fluid to move more effectively)

Drinking alot more water, quality filtered and negative hydrogen ion water

(toxic wastes are acidic and can lead to metabolic acidosis)

More electrolytes (and these have even more effect with the alkaline

water--has to do with zeta potential of the blood to carry toxins. Snoshoe sent

a site awhile back about this which I can resend if you are interested.)

Supplements that help--well, for me, that has been almost every supplement I

have tried due to having multiple nutrient deficiencies from celiac disease.

However, these are the ones that have helped my lymphatics and their symptoms:

Pantethine--start small and work up to 8 or 10 (300mg) caps/day in 3 doses or

more

Calcium AEP--start small and work up to 8 or 10 caps/day in 3 doses or more

(this is 100mg calcium 2 amino ethanol phosphate with 900mg of amino ethanol

phosphate added)

CoQ10--work up to 300mg/day in divided doses

Molybdenum, chromium picolinate, selenium, alpha lipoeic acid--could barely

tolerate each of these at first due to them moving toxins; I had to break apart

caps for all of these and the previously listed ones and take fractions of caps

to begin with. Molybdenun is something most would not need. I need it because

I do not eat grains, but it made a big difference for me.

There are various other supplements that have helped alot but I'm not sure

whether it was in a detoxing capacity, so I will stop there.

Since I am having liver detox pathway problems, my nutritionist has suggested

new supplements. I have just received these today and have not tried them yet.

These are sold by him but you can probably find like products elsewhere:

Sulphur Plus--for the sulphonization pathway--MSM sulphur + Trimethylglycine

Daily Balancer--for the glutathione pathway--it is a mix of amino acids and

root extracts

The liver detox pathway problems, we have decided, are probably why I am

having problems with many toxins to begin with. I realized this problem while

researching detoxing and brought it to his attention.

He also has suggested high fiber which gives the toxins something to hold onto

during elimination (6 grams of psyllium or other fiber). But my digestive tract

is not able to handle more than half a gram, so we are working on healing my

digestive tract further with glutamine, etc. He has made me aware, tho, that

this is where I am having a breakdown of moving the toxins out. He was very

concerned about this (I wasn't, but he has made me aware that this can be a very

dangerous condition, as I am reconcentrating toxins into less fat and more

organs if they are not coming out thru bowel, etc, once I mobilize them. He was

so concerned that he wants me to stop losing weight and gain weight until I have

the fiber problem worked out.)

These are what have helped me (off the top of my head lol),

Diane

Troy Knight <troy@...> wrote:

I'll keep reading the archived posts here, but it would be great to

hear about any treatments which people have found effective, so I

can post them on the site.

---------------------------------

Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates

starting at 1 & cent;/min.

[Guest guest]

Hi Troy,

My name is , I have fluorosis, a skeltal bone condition caused by WAY too

much

electiricty via chemicals I was exposed to at work.

You, young sir, have done a tremendous job! Both in pulling yourself together

and in

putting that informative web site up. Just a great collection of information

organized well,

easy to read, and informative.

I hope you find the inforamtion in this group useful to you. I would hope that

you put its

link on your web site. There is much information and exchange of ideas where

collaboration and communication could greatly enhance understanding of this very

serious

and debilitating condition.

Welcome...

>

> Hello everyone,

>

> I just wanted to introduce myself... I've had severe ES for a number

> of years now (facial skin itching, burning, lesions) and I've set-up

> and realised a website http://www.electrosensitivity.org where I

> provide basic information and advice on electrosensitivity. You can

> view my story at http://www.electrosensitivity.org/mystory.htm (I

> will be posting more photo's and information on how I manage to use

> computer etc. soon).

>

> It's my own corner of the web where, hopefully, I can do my bit

> amongst all the work that other people are doing, to enhance the

> awareness of this condition where possible.

>

> Obviously everyone is differentand there is perhaps a whole

> multitude of mechanisms that underly electrosensitivity. But I can

> say that since dicovering I had ES (maybe 4-6 years ago), I have

> have undergone a series of detoxification treatments and I am

> pleased to say I am around 50% CURED!

>

> I have found the 2 most effective treatments for me to be:

> 1) Sauna therapy - L Ron Hubbards controversial detoxification

> program

> 2) Hulda 's Liver flushes - Notice a significant improvement

> after each flush

>

> Troy

>

[Guest guest]

Troy, I would like to get the sauna, but do not know how to access personal

email. Thanks PegPare9