oversensitive, burning fingertips?

[Guest guest]

Hi

Has anyone had this? Whenever I touch something (keyboard, pages of a book, my

hair when showering etc), my fingertips (especially right hand) feel kinda

burning, oversensitive. Really annoying.

The weird thing is, this symptom disappeared 90% one year ago when I got my

amalgams out. But now its back and I have no idea why. The only new thing I have

tried is juice called Limu Plus. Could it have re-distributed toxins?

Anyone else with this?

Thnx

Joni

[Guest guest]

Hi, Joni,

 

Yes, I have that too--burning on my fingertips--but only when I touch things my

body perceives as noxious.  For instance, they burn when I touch foods with

glutens in them, or fruits/veggies at the market which have pesticide residues

(I realized this after having a bad pesticide exposure several years ago).  They

can also burn if I touch something with mold on it, a chemical my body

dislikes, or if I touch metals with alot of EMFs in the area or from no

touching--just the emfs themselves.  My face and arms can also sometimes react. 

 

Is this how it is for you or do you have this sensation all the time?  (If you

do, is it possible you have something present in your surroundings your fingers

are  " intolerant " to?)   I have read that this is a type of peripheral

neuropathy--I think I it was called " small nerve " neuropathy.  But I also notice

it fluctuates--lessening when I have successfully detoxed (just about any type

of detox) and getting worse with toxic exposures or exposures to things I am

chemically and otherwise sensitive to. 

 

Are you the same Joni who had the bad reaction to homeopathy earlier this year? 

I noticed after the dust settled with the bad homeopathy reaction I had, my

burning/tingling sensations were actually better.  But for you, perhaps it could

have redistributed toxins which has heightened your finger burning.

 

my best to you,

Diane

From: Joni <napanft@...>

Subject: oversensitive, burning fingertips?

Date: Wednesday, October 21, 2009, 8:17 AM

 

Hi

Has anyone had this? Whenever I touch something (keyboard, pages of a book, my

hair when showering etc), my fingertips (especially right hand) feel kinda

burning, oversensitive. Really annoying.

The weird thing is, this symptom disappeared 90% one year ago when I got my

amalgams out. But now its back and I have no idea why. The only new thing I have

tried is juice called Limu Plus. Could it have re-distributed toxins?

Anyone else with this?

Thnx

Joni

[Guest guest]

Same here, with peripheral neuropathy, in finger tips, legs and feet.

The pathogenesis of PN is poorly understood. It is could be mitochondrial

metabolic dysfunction.

In my case, since taking very high dose of 6000 mg of Carnitine daily, burning

in finger tips is lessening to almost none.

From what I read it affects fatty acids chain transport in mitochondria, which

of course, is relevant with PN.

I read this info from various sites. It could also involved, sensory neural

death (which will heal by means of new neural circuitry) or cutaneous sensory

dysfunction.

I read that L-Acetyl Carnitine is being prescribed for PN as you described in

some countries.

I will probably swap the L-Carnitine for the LAC, having stumbled on those sites

today, a week after starting the L-Carnitine.

" Immunohistochemical quantification demonstrates a significant restoration of

cutaneous innervation after 6 months of oral LAC

* Oral LAC treatment improves the clinical symptoms of symmetrical

neuropathy, ..... "

" One study has shown that L-acetyl carnitine (Alcar) at a dose of 1500 mg, twice

daily, can lead to nerve improvement. L-acetyl carnitine can be prescribed on a

named-patient basis. Some clinics in the UK already use this treatment

routinely. " http://www.i-base.info/guides/side/neuropathy.html

Worth a try,

Kooky

>

>

> From: Joni <napanft@...>

> Subject: oversensitive, burning fingertips?

>

> Date: Wednesday, October 21, 2009, 8:17 AM

>

>

>  

>

>

>

> Hi

>

> Has anyone had this? Whenever I touch something (keyboard, pages of a book, my

hair when showering etc), my fingertips (especially right hand) feel kinda

burning, oversensitive. Really annoying.

>

> The weird thing is, this symptom disappeared 90% one year ago when I got my

amalgams out. But now its back and I have no idea why. The only new thing I have

tried is juice called Limu Plus. Could it have re-distributed toxins?

>

> Anyone else with this?

>

> Thnx

>

> Joni

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi, Kooky,

 

I took L-acetyl carnitine for about a year after being dxed with celiac disease

10 years ago (due to extreme deficiency of carnitine) but I did not do well on

it.  Not saying it won't work for you, for one thing, I now suspect part of what

was going on while taking it was some big detoxing, which I mistook for reacting

to the LAC.  But on top of that, I felt like it was stressing my body.  For

people with PN burning/tingling, B12 shots or high-dose sublingual B12 tablets

are often also prescribed.  And I have seen help taking that.  I have mentioned

this often here, but nobody else has said it helps them, so maybe the carnitine

is what they need instead.  Btw, after the prescription LAC didn't helpme 10 yrs

ago, I changed to liquid amino acid complex for awhile and I did very well on

that product--gave me more energy and my heart seemed to quit racing, etc,

afterwards, and I no longer had the stressed out feeling.

 

Thanks for the info re carnitine, Kooky,

Diane

From: furstc0404 <furstc0404@...>

Subject: Re: oversensitive, burning fingertips?

Date: Friday, October 23, 2009, 8:50 PM

 

Same here, with peripheral neuropathy, in finger tips, legs and feet.

The pathogenesis of PN is poorly understood. It is could be mitochondrial

metabolic dysfunction.

In my case, since taking very high dose of 6000 mg of Carnitine daily, burning

in finger tips is lessening to almost none.

From what I read it affects fatty acids chain transport in mitochondria, which

of course, is relevant with PN.

I read this info from various sites. It could also involved, sensory neural

death (which will heal by means of new neural circuitry) or cutaneous sensory

dysfunction.

I read that L-Acetyl Carnitine is being prescribed for PN as you described in

some countries.

I will probably swap the L-Carnitine for the LAC, having stumbled on those sites

today, a week after starting the L-Carnitine.

" Immunohistochemica l quantification demonstrates a significant restoration of

cutaneous innervation after 6 months of oral LAC

* Oral LAC treatment improves the clinical symptoms of symmetrical neuropathy,

...... "

" One study has shown that L-acetyl carnitine (Alcar) at a dose of 1500 mg, twice

daily, can lead to nerve improvement. L-acetyl carnitine can be prescribed on a

named-patient basis. Some clinics in the UK already use this treatment

routinely. " http://www.i- base.info/ guides/side/ neuropathy. html

Worth a try,

Kooky

>

>

> From: Joni <napanft@... >

> Subject: oversensitive, burning fingertips?

> groups (DOT) com

> Date: Wednesday, October 21, 2009, 8:17 AM

>

>

>  

>

>

>

> Hi

>

> Has anyone had this? Whenever I touch something (keyboard, pages of a book, my

hair when showering etc), my fingertips (especially right hand) feel kinda

burning, oversensitive. Really annoying.

>

> The weird thing is, this symptom disappeared 90% one year ago when I got my

amalgams out. But now its back and I have no idea why. The only new thing I have

tried is juice called Limu Plus. Could it have re-distributed toxins?

>

> Anyone else with this?

>

> Thnx

>

> Joni

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi Kooky / Diane

 

I have come across PN quite a lot but don't know what the sensation is - could

either of you describe what it is like ? is what I describe as being the zzz zzz

zzzz or does it feel more like a very rapid sort of moving pins and needles type

of a feeling?? I'm wondering if I have it.

 

BW

 

Steph

From: furstc0404 <furstc0404 (DOT) com>

Subject: Re: oversensitive, burning fingertips?

groups (DOT) com

Date: Friday, October 23, 2009, 8:50 PM

 

Same here, with peripheral neuropathy, in finger tips, legs and feet.

The pathogenesis of PN is poorly understood. It is could be mitochondrial

metabolic dysfunction.

In my case, since taking very high dose of 6000 mg of Carnitine daily, burning

in finger tips is lessening to almost none.

From what I read it affects fatty acids chain transport in mitochondria, which

of course, is relevant with PN.

I read this info from various sites. It could also involved, sensory neural

death (which will heal by means of new neural circuitry) or cutaneous sensory

dysfunction.

I read that L-Acetyl Carnitine is being prescribed for PN as you described in

some countries.

I will probably swap the L-Carnitine for the LAC, having stumbled on those sites

today, a week after starting the L-Carnitine.

" Immunohistochemica l quantification demonstrates a significant restoration of

cutaneous innervation after 6 months of oral LAC

* Oral LAC treatment improves the clinical symptoms of symmetrical neuropathy,

...... "

" One study has shown that L-acetyl carnitine (Alcar) at a dose of 1500 mg, twice

daily, can lead to nerve improvement. L-acetyl carnitine can be prescribed on a

named-patient basis. Some clinics in the UK already use this treatment

routinely. " http://www.i- base.info/ guides/side/ neuropathy. html

Worth a try,

Kooky

>

>

> From: Joni <napanft@... >

> Subject: oversensitive, burning fingertips?

> groups (DOT) com

> Date: Wednesday, October 21, 2009, 8:17 AM

>

>

>  

>

>

>

> Hi

>

> Has anyone had this? Whenever I touch something (keyboard, pages of a book, my

hair when showering etc), my fingertips (especially right hand) feel kinda

burning, oversensitive. Really annoying.

>

> The weird thing is, this symptom disappeared 90% one year ago when I got my

amalgams out. But now its back and I have no idea why. The only new thing I have

tried is juice called Limu Plus. Could it have re-distributed toxins?

>

> Anyone else with this?

>

> Thnx

>

> Joni

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi Diane:

Severe deficiency of L-Carnitine, can lead to renal failure, heart failure,

cardiomyopathy, liver problems, coma, and sudden death, if not addressed. Other

metabolic dysfunction concerning L-Carnitine are also very serious.

The symptoms for me were very severe, and I am quite sure that if I had not

supplemented with high dose of L-Carnitine, I would have either ended up in a

coma or died.

Having severe PN in both hands, legs and feet, is also a symptoms of L-Carnitine

deficiency along with other symptoms I have. This is diagnosed through blood

and a muscle biopsy, and sometime, liver biopsy.

I will probably have a muscle biopsy in the near future.

Good point about Vitamin B12 is also helpful for neuropathy, except that many of

us with CFS/ME and other health issues are unable to tolerate Vit B12.

There is contention and different theories floating around about which is the

safest form of Vitamin B12, in particular, for methylation.

If deficient in Vitamin B12, NP can occur, equally, if over dosing or some

taking Vit B12, it can also trigger PN.

I have no idea if the PN was triggered by ES/EMS or the Carnitine deficiency, or

mitochondrial trifunctional protein deficiency, I suspect I may be suffering

from both.

I am also reading up on Carnosine, and may supplement with all essential amino

acids

Diane:

The sensation of PN for me is tingling, bzzzzz, numbness, but sensitivity, and

pins and needles, and lack of coordination, hands and fingers, (worse in

fingertips). I had it in my legs and feet also last week for a few days.

Although the worse is over, there are some sensation in the left hand today.

This is odd, because it does not feel like PN. They are usually symmetrical for

me.

I am not sure if the PN is from a deficiency, or EMF/eS

Kooky

> >

> >

> > From: Joni <napanft@ >

> > Subject: oversensitive, burning fingertips?

> > groups (DOT) com

> > Date: Wednesday, October 21, 2009, 8:17 AM

> >

> >

> >  

> >

> >

> >

> > Hi

> >

> > Has anyone had this? Whenever I touch something (keyboard, pages of a book,

my hair when showering etc), my fingertips (especially right hand) feel kinda

burning, oversensitive. Really annoying.

> >

> > The weird thing is, this symptom disappeared 90% one year ago when I got my

amalgams out. But now its back and I have no idea why. The only new thing I have

tried is juice called Limu Plus. Could it have re-distributed toxins?

> >

> > Anyone else with this?

> >

> > Thnx

> >

> > Joni

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

I do get sensations in my fingers after using the computer/mouse.

Also coldness. Some foot symptoms too.

It seems I have to wash my hands after touching anything plastic...

On Sat, Oct 24, 2009 at 6:35 PM, furstc0404 <furstc0404@...> wrote:

>

>

>

> Hi Diane:

>

> Severe deficiency of L-Carnitine, can lead to renal failure, heart failure,

> cardiomyopathy, liver problems, coma, and sudden death, if not addressed.

> Other metabolic dysfunction concerning L-Carnitine are also very serious.

>

> The symptoms for me were very severe, and I am quite sure that if I had not

> supplemented with high dose of L-Carnitine, I would have either ended up in

> a coma or died.

>

> Having severe PN in both hands, legs and feet, is also a symptoms of

> L-Carnitine deficiency along with other symptoms I have. This is diagnosed

> through blood and a muscle biopsy, and sometime, liver biopsy.

>

> I will probably have a muscle biopsy in the near future.

>

> Good point about Vitamin B12 is also helpful for neuropathy, except that

> many of us with CFS/ME and other health issues are unable to tolerate Vit

> B12.

>

> There is contention and different theories floating around about which is

> the safest form of Vitamin B12, in particular, for methylation.

>

> If deficient in Vitamin B12, NP can occur, equally, if over dosing or some

> taking Vit B12, it can also trigger PN.

>

> I have no idea if the PN was triggered by ES/EMS or the Carnitine

> deficiency, or mitochondrial trifunctional protein deficiency, I suspect I

> may be suffering from both.

>

> I am also reading up on Carnosine, and may supplement with all essential

> amino acids

>

> Diane:

>

> The sensation of PN for me is tingling, bzzzzz, numbness, but sensitivity,

> and pins and needles, and lack of coordination, hands and fingers, (worse in

> fingertips). I had it in my legs and feet also last week for a few days.

>

> Although the worse is over, there are some sensation in the left hand

> today. This is odd, because it does not feel like PN. They are usually

> symmetrical for me.

>

> I am not sure if the PN is from a deficiency, or EMF/eS

>

> Kooky

>

>

>

> > >

> > >

> > > From: Joni <napanft@ >

> > > Subject: oversensitive, burning fingertips?

> > > groups (DOT) com

> > > Date: Wednesday, October 21, 2009, 8:17 AM

> > >

> > >

> > >

> > >

> > >

> > >

> > > Hi

> > >

> > > Has anyone had this? Whenever I touch something (keyboard, pages of a

> book, my hair when showering etc), my fingertips (especially right hand)

> feel kinda burning, oversensitive. Really annoying.

> > >

> > > The weird thing is, this symptom disappeared 90% one year ago when I

> got my amalgams out. But now its back and I have no idea why. The only new

> thing I have tried is juice called Limu Plus. Could it have re-distributed

> toxins?

> > >

> > > Anyone else with this?

> > >

> > > Thnx

> > >

> > > Joni

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Hi, Steph,

 

Well, I definitely have PN--I was dxed long before I recognized I reacted to

ES.  That is a bit different than the ES zzzzzzzs for me (not that PN symptoms

are not also caused by emfs; I suspect very much that they can be).  What Kooky

wrote in her answer is the same as what I experience for PN.  The ES zzzzzzs I

mention I get upon laying down--as you mention as well (you don't have this

other than laying or sometimes sitting, right?), I get full body, in my spine

and arms and legs and even my head somewhat, so that could, by definition, not

be the same as " peripheral " neuropathy.  But the other symptom we were

discussing--burning fingertips most likely would be PN related. 

 

Did this answer your question?  If not, ask further.  Are the full-body zzzzzzs

a type of neuropathy but not PN?  I think, probably (not that I have read of

that connection).  The full-body zzzzzs respond for me to B12 supplementation,

which PN also responds to for some people.  I think you might be a good

candidate for trying essential aminos/carnitine supplementation, Steph.  You

have tried B12 without seeing a difference and you also have CFS/ME which

carnitine/full essential amino supplementation can help alot with.  (It can help

fatigue and mitochondrial function.)  I sometimes forget about things which

helped me years before.  The full essential amino complex definitely was a big

help for me, as was/is the hydrogen for addressing the serotonin dumping (both

CFS related).  And these both seem to help people with ES, as well.

 

My 2 cents,

Diane

From: furstc0404 <furstc0404@ . com>

Subject: Re: oversensitive, burning fingertips?

groups (DOT) com

Date: Friday, October 23, 2009, 8:50 PM

 

Same here, with peripheral neuropathy, in finger tips, legs and feet.

The pathogenesis of PN is poorly understood. It is could be mitochondrial

metabolic dysfunction.

In my case, since taking very high dose of 6000 mg of Carnitine daily, burning

in finger tips is lessening to almost none.

From what I read it affects fatty acids chain transport in mitochondria, which

of course, is relevant with PN.

I read this info from various sites. It could also involved, sensory neural

death (which will heal by means of new neural circuitry) or cutaneous sensory

dysfunction.

I read that L-Acetyl Carnitine is being prescribed for PN as you described in

some countries.

I will probably swap the L-Carnitine for the LAC, having stumbled on those sites

today, a week after starting the L-Carnitine.

" Immunohistochemica l quantification demonstrates a significant restoration of

cutaneous innervation after 6 months of oral LAC

* Oral LAC treatment improves the clinical symptoms of symmetrical neuropathy,

...... "

" One study has shown that L-acetyl carnitine (Alcar) at a dose of 1500 mg, twice

daily, can lead to nerve improvement. L-acetyl carnitine can be prescribed on a

named-patient basis. Some clinics in the UK already use this treatment

routinely. " http://www.i- base.info/ guides/side/ neuropathy. html

Worth a try,

Kooky

>

>

> From: Joni <napanft@... >

> Subject: oversensitive, burning fingertips?

> groups (DOT) com

> Date: Wednesday, October 21, 2009, 8:17 AM

>

>

>  

>

>

>

> Hi

>

> Has anyone had this? Whenever I touch something (keyboard, pages of a book, my

hair when showering etc), my fingertips (especially right hand) feel kinda

burning, oversensitive. Really annoying.

>

> The weird thing is, this symptom disappeared 90% one year ago when I got my

amalgams out. But now its back and I have no idea why. The only new thing I have

tried is juice called Limu Plus. Could it have re-distributed toxins?

>

> Anyone else with this?

>

> Thnx

>

> Joni

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi Diane

 

I don't get that oversensitive burning fingertips thing going on that you and

other describe - thank goodness because I have enough going on without that -

but can imagine it would be very unpleasant and anyone on here who does have

that would have my 100% sympathy. I just get the zzz zzzz zzzz in the legs

primarily but sometimes the whole body - always lying down but sometimes sitting

up, and then at other times get this fizzing rapidly moving pins and needles

sensation as if my blood is all fizzy - i'm struggling to describe it and this

is the best I can come up with.

 

I am going to save this email re th carnitine and amino acids because I think I

would need to get the test done for the serotonin dumping before trying anything

- but I rekon I would be positive for that - it fits and makes a lot of sense -

it will be sometime before I can get the test for that done - would need to find

a doc who would see the need to do it!!! But it is on my list.

 

Thanks as always for the info!.

 

BW

 

Steph

From: furstc0404 <furstc0404@ . com>

Subject: Re: oversensitive, burning fingertips?

groups (DOT) com

Date: Friday, October 23, 2009, 8:50 PM

 

Same here, with peripheral neuropathy, in finger tips, legs and feet.

The pathogenesis of PN is poorly understood. It is could be mitochondrial

metabolic dysfunction.

In my case, since taking very high dose of 6000 mg of Carnitine daily, burning

in finger tips is lessening to almost none.

From what I read it affects fatty acids chain transport in mitochondria, which

of course, is relevant with PN.

I read this info from various sites. It could also involved, sensory neural

death (which will heal by means of new neural circuitry) or cutaneous sensory

dysfunction.

I read that L-Acetyl Carnitine is being prescribed for PN as you described in

some countries.

I will probably swap the L-Carnitine for the LAC, having stumbled on those sites

today, a week after starting the L-Carnitine.

" Immunohistochemica l quantification demonstrates a significant restoration of

cutaneous innervation after 6 months of oral LAC

* Oral LAC treatment improves the clinical symptoms of symmetrical neuropathy,

...... "

" One study has shown that L-acetyl carnitine (Alcar) at a dose of 1500 mg, twice

daily, can lead to nerve improvement. L-acetyl carnitine can be prescribed on a

named-patient basis. Some clinics in the UK already use this treatment

routinely. " http://www.i- base.info/ guides/side/ neuropathy. html

Worth a try,

Kooky

>

>

> From: Joni <napanft@... >

> Subject: oversensitive, burning fingertips?

> groups (DOT) com

> Date: Wednesday, October 21, 2009, 8:17 AM

>

>

>  

>

>

>

> Hi

>

> Has anyone had this? Whenever I touch something (keyboard, pages of a book, my

hair when showering etc), my fingertips (especially right hand) feel kinda

burning, oversensitive. Really annoying.

>

> The weird thing is, this symptom disappeared 90% one year ago when I got my

amalgams out. But now its back and I have no idea why. The only new thing I have

tried is juice called Limu Plus. Could it have re-distributed toxins?

>

> Anyone else with this?

>

> Thnx

>

> Joni

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>