Re: Anybody here been diagnosed with ES by a medical doctor?

[Guest guest]

it is hard to find a dr & very Expensive! suffer myself & since p/t & hmo ins no

diagnosis yet hoping someone will step fwd

thanks!

God Bless

Sheila

Carol <YoRed24@...> wrote:

The reason I ask is because a casting producer for a show on Discover

Health/Mystery Diagnosis is looking for people with unusual illnesses.

Prerequisites are that the patient needs to live in the US, a medical

doctor must have given you the diagnosis (no self-diagnosed

electrosensitives), and the doctor must practice in your area and be

willing to get involved.

Here is the info:

Please contact MYSTERY DIAGNOSIS at:

eanniello@... or (212) 645-0904 and leave a message

on their hotline. Be sure to include your full name, phone number,

email address, and disease.

I have severe electrosensitivities myself, but unfortunately I have not

been diagnosed " officially " by a medical doctor. If you are interested,

please write to the producer.

Carol

---------------------------------

Never miss a thing. Make your homepage.

[Guest guest]

I'm in the same boat. A poster on another ES forum is trying to put

me in touch with someone who knows Dr. Carlo. I am desperate for an

official diagnosis because I believe my electrosensitivities are

fueling my chronic Lyme, and with no doctor believing in either, life

has been horrible for me.

I think there is a Dr. Rea in Texas. Is there anyone here who sees

him and received a diagnosis of ES. I'd go to him, but I live in PA

so I'm too far away. I never get a break from EMF either, because I'm

two houses away from some power lines, and the current travels along

the ground wiring under my home.

Peace,

Carol

> The reason I ask is because a casting producer for a show

on Discover

> Health/Mystery Diagnosis is looking for people with unusual

illnesses.

> Prerequisites are that the patient needs to live in the US, a

medical

> doctor must have given you the diagnosis (no self-diagnosed

> electrosensitives), and the doctor must practice in your area and

be

> willing to get involved.

>

> Here is the info:

>

> Please contact MYSTERY DIAGNOSIS at:

>

> eanniello@... or (212) 645-0904 and leave a message

> on their hotline. Be sure to include your full name, phone number,

> email address, and disease.

>

> I have severe electrosensitivities myself, but unfortunately I have

not

> been diagnosed " officially " by a medical doctor. If you are

interested,

> please write to the producer.

>

> Carol

>

>

>

>

>

>

> ---------------------------------

> Never miss a thing. Make your homepage.

>

>

[Guest guest]

In a message dated 3/25/2008 7:02:55 AM GMT Standard Time,

prentice_jon@... writes:

> I have severe electrosensitivitie I have severe electrosens

have not

> been diagnosed " officially " by a medical doctor. If you are

interested,

> please write to the producer.

>

> Carol

What is the definition in medical terms of Diagnosis, what established

criteria do we have and if so has the medical mainstream taken this on board and

oficially endorsed the diagnostic criteria and so on... There are many diseases

that have diagnostic markers,clues but often a process of illimination is

used to arrive at a ultimate diagnosis, ES like so, for many the symptoms are

so difuse that simply placing someone close to an offending device/devices

will not serve as a diagnosis particularly as we are now swamped by esmog.

I have had written oppinion from Dr Dowson here in UK for purposes of

employment tribunal, where he stated that he considered that I was ES on

balance of subjective evidence, but a Diagnosis was not expressed.

Who is qualified to diagnose and so on ....

UK

[Guest guest]

hmm, that is an interesting question, for people in the US at least,

I would like to know if that is possible, best I could do was find a

doctor who was glad that I figured out what was causing my problem.

I hope that being diagnosed ES here doesn't require that the doctor

and the ES person are one and the same.

Jon

> The reason I ask is because a casting producer for a

show on Discover

> Health/Mystery Diagnosis is looking for people with unusual

illnesses.

> Prerequisites are that the patient needs to live in the US, a

medical

> doctor must have given you the diagnosis (no self-diagnosed

> electrosensitives), and the doctor must practice in your area and

be

> willing to get involved.

>

> Here is the info:

>

> Please contact MYSTERY DIAGNOSIS at:

>

> eanniello@... or (212) 645-0904 and leave a message

> on their hotline. Be sure to include your full name, phone number,

> email address, and disease.

>

> I have severe electrosensitivities myself, but unfortunately I

have not

> been diagnosed " officially " by a medical doctor. If you are

interested,

> please write to the producer.

>

> Carol

>

>

>

>

>

>

> ---------------------------------

> Never miss a thing. Make your homepage.

>

>

[Guest guest]

prentice_jon wrote:

> hmm, that is an interesting question, for people in the US at least,

> I would like to know if that is possible, best I could do was find a

> doctor who was glad that I figured out what was causing my problem.

> I hope that being diagnosed ES here doesn't require that the doctor

> and the ES person are one and the same.

I think that in order to be diagnosed with something, there has to

be an official diagnosis " code " , which means the illness has to

be officially recognized? I know that when my ES was at it's worst

and my employer required a diagnosis from my doctor for my medical

disability, the best my doctor could come up with was " chronic

fatigue syndrome " , as there was a code for that...

Marc

[Guest guest]

Hi, Jon,

Dr. Rae's patient consultant (Dr Rae of the Environmental Health Clinic of

Dallas) told me I " was probably ES " by phone. (Something I had already strongly

suspected.) When I asked--2 years ago--whether Dr. Rae had a protocol for ES,

she said he was trying to eliminate toxins and felt they were responsible and

that lymphatic overload was somehow responsible. Again, this was something I

already knew. I asked whether he has had success in helping people recover from

ES symptoms, and she said only within the first 2 years; after that he sees

little improvement. I asked alot of other questions also, about pesticides and

liver detox pathway dysfunction. She mentioned to me (again, remember this is 2

years ago) that he was working on the liver detox pathway dysfunctions and had,

at that time, not felt he had that worked out. (At least this was my take on

what she said.) So, it is possible that we could get a dx of ES from Dr. Rae.

Whether that dx would hold up in the

medical profession as a whole is debatable. I still had problems getting a

medical doc to accept celiac disease as a valid dx in 2003! But, if I were to

be treated or get a dx, that would be where I would start. Dr. Rae gets some

flack because his clinic's patient rooms are not set up for ES. To his credit,

tho, he set his rooms up so his MCS patients would not react to woods, etc.

(That is why so much metal furniture.) He was working with MCS patients way

before he was aware of ES and so his rooms reflect that. I was told that many

of his ES patients travel there and live in their own RVs at a nearby

campground. This was all within the discussion I had with the patient

consultant 2 years ago. Things may have changed since then. This is his site:

http://www.ehcd.com/

Diane

prentice_jon <prentice_jon@...> wrote:

hmm, that is an interesting question, for people in the US at least,

I would like to know if that is possible, best I could do was find a

doctor who was glad that I figured out what was causing my problem.

I hope that being diagnosed ES here doesn't require that the doctor

and the ES person are one and the same.

Jon

> The reason I ask is because a casting producer for a

show on Discover

> Health/Mystery Diagnosis is looking for people with unusual

illnesses.

> Prerequisites are that the patient needs to live in the US, a

medical

> doctor must have given you the diagnosis (no self-diagnosed

> electrosensitives), and the doctor must practice in your area and

be

> willing to get involved.

>

> Here is the info:

>

> Please contact MYSTERY DIAGNOSIS at:

>

> eanniello@... or (212) 645-0904 and leave a message

> on their hotline. Be sure to include your full name, phone number,

> email address, and disease.

>

> I have severe electrosensitivities myself, but unfortunately I

have not

> been diagnosed " officially " by a medical doctor. If you are

interested,

> please write to the producer.

>

> Carol

>

>

>

>

>

>

> ---------------------------------

> Never miss a thing. Make your homepage.

>

>

[Guest guest]

Hi, ,

Here in the US, the dx has to be recognised by the AMA to take on credibility.

But even then this is not actually always the case. As I mentioned earlier,

celiac disease is still questioned by some docs. Also, prior to the arrival of

Dr Alessio Fasano (from Italy) on America's shores in the late 1990's, celiac

disease was taught in US med schools as a rare disease, mainly of children,

causing wasting and diarrhea, which the normal physician would likely never

encounter in his practice during his lifetime. We all now know this is bunk!

Dr. Fasano did a study of the US Red Cross blood supply (in blood banks) in, I

believe the late 1990's, and found an incidence of celiac disease in 1/133

people. Since then, in 2003, he redid his study on actual people in various

parts of the US and found the incidence to be 1/100 people. This was not a

genetic test, which would net a much larger incidence, but a blood test for

active cd. So that tells you alot about how flawed our

medical system is. I had cd from infancy and was dxed at age 49 (in 2000). I

can thank Dr. Fasano directly for that, because without him, docs would still

not be able to dx it.

My 2 cents,

Diane

paulpjc@... wrote:

In a message dated 3/25/2008 7:02:55 AM GMT Standard Time,

prentice_jon@... writes:

> I have severe electrosensitivitie I have severe electrosens

have not

> been diagnosed " officially " by a medical doctor. If you are

interested,

> please write to the producer.

>

> Carol

What is the definition in medical terms of Diagnosis, what established

criteria do we have and if so has the medical mainstream taken this on board and

oficially endorsed the diagnostic criteria and so on... There are many diseases

that have diagnostic markers,clues but often a process of illimination is

used to arrive at a ultimate diagnosis, ES like so, for many the symptoms are

so difuse that simply placing someone close to an offending device/devices

will not serve as a diagnosis particularly as we are now swamped by esmog.

I have had written oppinion from Dr Dowson here in UK for purposes of

employment tribunal, where he stated that he considered that I was ES on

balance of subjective evidence, but a Diagnosis was not expressed.

Who is qualified to diagnose and so on ....

UK

[Guest guest]

Lots of places you can get a QEEG test (look up neurofeedback therapy).

Slowing of the alpha rhythm has been seen in at least some EHS, and

indicates serious problems (eg early stage Alzheimer's).

Bill

On Tue, Mar 25, 2008 at 11:30 AM, Evie <evie15422@...> wrote:

> Hi, ,

>

> Here in the US, the dx has to be recognised by the AMA to take on

> credibility. But even then this is not actually always the case. As I

> mentioned earlier, celiac disease is still questioned by some docs. Also,

> prior to the arrival of Dr Alessio Fasano (from Italy) on America's shores

> in the late 1990's, celiac disease was taught in US med schools as a rare

> disease, mainly of children, causing wasting and diarrhea, which the normal

> physician would likely never encounter in his practice during his lifetime.

> We all now know this is bunk! Dr. Fasano did a study of the US Red Cross

> blood supply (in blood banks) in, I believe the late 1990's, and found an

> incidence of celiac disease in 1/133 people. Since then, in 2003, he redid

> his study on actual people in various parts of the US and found the

> incidence to be 1/100 people. This was not a genetic test, which would net a

> much larger incidence, but a blood test for active cd. So that tells you

> alot about how flawed our

> medical system is. I had cd from infancy and was dxed at age 49 (in 2000).

> I can thank Dr. Fasano directly for that, because without him, docs would

> still not be able to dx it.

>

> My 2 cents,

> Diane

>

>

> paulpjc@... <paulpjc%40aol.com> wrote:

>

> In a message dated 3/25/2008 7:02:55 AM GMT Standard Time,

> prentice_jon@... <prentice_jon%40> writes:

>

> > I have severe electrosensitivitie I have severe electrosens

> have not

> > been diagnosed " officially " by a medical doctor. If you are

> interested,

> > please write to the producer.

> >

> > Carol

>

> What is the definition in medical terms of Diagnosis, what established

> criteria do we have and if so has the medical mainstream taken this on

> board and

> oficially endorsed the diagnostic criteria and so on... There are many

> diseases

> that have diagnostic markers,clues but often a process of illimination is

> used to arrive at a ultimate diagnosis, ES like so, for many the symptoms

> are

> so difuse that simply placing someone close to an offending device/devices

>

> will not serve as a diagnosis particularly as we are now swamped by esmog.

>

> I have had written oppinion from Dr Dowson here in UK for purposes

> of

> employment tribunal, where he stated that he considered that I was ES on

> balance of subjective evidence, but a Diagnosis was not expressed.

> Who is qualified to diagnose and so on ....

>

> UK

>

>

[Guest guest]

Hi,

Two months ago I've been diagnosed EHS by Dr Rea of the

Environmental Health Center in Dallas.

I did some EMF testing showing sensibility to 50Hz and 60Hz EMF

fields.

I think that the protocol they use to do the testing is

probably the one reported in this article.

http://www.aehf.com/articles/em_sensitive.html

Best regards,

> > The reason I ask is because a casting producer for a

> show on Discover

> > Health/Mystery Diagnosis is looking for people with unusual

> illnesses.

> > Prerequisites are that the patient needs to live in the US, a

> medical

> > doctor must have given you the diagnosis (no self-diagnosed

> > electrosensitives), and the doctor must practice in your area and

> be

> > willing to get involved.

> >

> > Here is the info:

> >

> > Please contact MYSTERY DIAGNOSIS at:

> >

> > eanniello@ or (212) 645-0904 and leave a message

> > on their hotline. Be sure to include your full name, phone number,

> > email address, and disease.

> >

> > I have severe electrosensitivities myself, but unfortunately I

> have not

> > been diagnosed " officially " by a medical doctor. If you are

> interested,

> > please write to the producer.

> >

> > Carol

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Never miss a thing. Make your homepage.

> >

> >

[Guest guest]

I have trouble with grains, too, not to mention all foods high in

calcium or iron. Anybody else have that problem? I recently read an

article that magnetic iron oxides were increased in the brains of

Alzheimer's patients, and I do show early symptoms. That may explain

the problem with iron that I experience.

I would think that the producer would be content with any medically

licensed doctor who was willing to back up a diagnosis of ES

publicly, and with some amount of scientific evidence. Maybe you

should write her, Dan, if Dr. Rea has diagnosed you with this?

I'm not sure why I was unable to post the direct link to the email

address of this producer, so email eanniello AT trueentertainment DOT

net if you are interested, and keep us posted if she responds. Or you

can call her at the number in my previous post.

Carol

>

> The reason I ask is because a casting producer for a show on

Discover

> Health/Mystery Diagnosis is looking for people with unusual

illnesses.

> Prerequisites are that the patient needs to live in the US, a

medical

> doctor must have given you the diagnosis (no self-diagnosed

> electrosensitives), and the doctor must practice in your area and

be

> willing to get involved.

>

> Here is the info:

>

> Please contact MYSTERY DIAGNOSIS at:

>

> eanniello@... or (212) 645-0904 and leave a message

> on their hotline. Be sure to include your full name, phone number,

> email address, and disease.

>

>

> I have severe electrosensitivities myself, but unfortunately I have

not

> been diagnosed " officially " by a medical doctor. If you are

interested,

> please write to the producer.

>

> Carol

>

[Guest guest]

Hi, Carol,

Not saying this is your problem, but celiacs have problems with grains,

calcium, and iron. Sometimes other nutrients as well--carnitine, b12,

molybdenum.... Have you had problems with excess of these or deficiencies?

Celiacs can have either, tho it is usually deficiency. But sometimes testing

will show excesses mainly because the sites where these nutrients are taken into

the blood stream are damaged and they lack the needed " carriers " to be taken

into the cells, and so they just clog up the blood stream and over tax the

liver.

Diane

Carol <YoRed24@...> wrote:

I have trouble with grains, too, not to mention all foods high in

calcium or iron. Anybody else have that problem? I recently read an

article that magnetic iron oxides were increased in the brains of

Alzheimer's patients, and I do show early symptoms. That may explain

the problem with iron that I experience.

I would think that the producer would be content with any medically

licensed doctor who was willing to back up a diagnosis of ES

publicly, and with some amount of scientific evidence. Maybe you

should write her, Dan, if Dr. Rea has diagnosed you with this?

I'm not sure why I was unable to post the direct link to the email

address of this producer, so email eanniello AT trueentertainment DOT

net if you are interested, and keep us posted if she responds. Or you

can call her at the number in my previous post.

Carol

>

> The reason I ask is because a casting producer for a show on

Discover

> Health/Mystery Diagnosis is looking for people with unusual

illnesses.

> Prerequisites are that the patient needs to live in the US, a

medical

> doctor must have given you the diagnosis (no self-diagnosed

> electrosensitives), and the doctor must practice in your area and

be

> willing to get involved.

>

> Here is the info:

>

> Please contact MYSTERY DIAGNOSIS at:

>

> eanniello@... or (212) 645-0904 and leave a message

> on their hotline. Be sure to include your full name, phone number,

> email address, and disease.

>

>

> I have severe electrosensitivities myself, but unfortunately I have

not

> been diagnosed " officially " by a medical doctor. If you are

interested,

> please write to the producer.

>

> Carol

>

---------------------------------

Looking for last minute shopping deals? Find them fast with Search.

[Guest guest]

Oh, sorry, should have mentioned, when you eat foods high in these and the sites

in the gut are damaged where they are supposed to exit the gut to the

bloodstream, you can get symptoms of liver dysfunction--I even sometimes had

jaundice. So, if these are the type reactions you are having, you might suspect

gut damage. This would not necessarily have to be from celiac disease (but you

do mention glutens bothering you). It could also be due to lactose intolerance,

overgrowth of bad gut flora, and other things.

diane

Carol <YoRed24@...> wrote:

I have trouble with grains, too, not to mention all foods high in

calcium or iron. Anybody else have that problem? I recently read an

article that magnetic iron oxides were increased in the brains of

Alzheimer's patients, and I do show early symptoms. That may explain

the problem with iron that I experience.

I would think that the producer would be content with any medically

licensed doctor who was willing to back up a diagnosis of ES

publicly, and with some amount of scientific evidence. Maybe you

should write her, Dan, if Dr. Rea has diagnosed you with this?

I'm not sure why I was unable to post the direct link to the email

address of this producer, so email eanniello AT trueentertainment DOT

net if you are interested, and keep us posted if she responds. Or you

can call her at the number in my previous post.

Carol

>

> The reason I ask is because a casting producer for a show on

Discover

> Health/Mystery Diagnosis is looking for people with unusual

illnesses.

> Prerequisites are that the patient needs to live in the US, a

medical

> doctor must have given you the diagnosis (no self-diagnosed

> electrosensitives), and the doctor must practice in your area and

be

> willing to get involved.

>

> Here is the info:

>

> Please contact MYSTERY DIAGNOSIS at:

>

> eanniello@... or (212) 645-0904 and leave a message

> on their hotline. Be sure to include your full name, phone number,

> email address, and disease.

>

>

> I have severe electrosensitivities myself, but unfortunately I have

not

> been diagnosed " officially " by a medical doctor. If you are

interested,

> please write to the producer.

>

> Carol

>

---------------------------------

Looking for last minute shopping deals? Find them fast with Search.

[Guest guest]

I was tested for Celiac's, and though it was negative, you won't find

me eating any glutens. I dropped to 88 lbs, and I now weight about

105, but only after eliminating glutens, milk products, and eggs -

egg was my only blood-proven allergy, though they did not do any real

comprehensive food allergy panel on me - just the basics.

My B12 was very high at one point, but now it is low. I seem to have

great difficulty digesting raw foods, so I don't know what to do.

My A and D levels were low, also. I seem to have difficulty digesting

foods like carrots. I'm wondering if the Accutane I was on in my 30's

damaged my liver.

Carol

> >

> > The reason I ask is because a casting producer for a show on

> Discover

> > Health/Mystery Diagnosis is looking for people with unusual

> illnesses.

> > Prerequisites are that the patient needs to live in the US, a

> medical

> > doctor must have given you the diagnosis (no self-diagnosed

> > electrosensitives), and the doctor must practice in your area and

> be

> > willing to get involved.

> >

> > Here is the info:

> >

> > Please contact MYSTERY DIAGNOSIS at:

> >

> > eanniello@ or (212) 645-0904 and leave a message

> > on their hotline. Be sure to include your full name, phone

number,

> > email address, and disease.

> >

> >

> > I have severe electrosensitivities myself, but unfortunately I

have

> not

> > been diagnosed " officially " by a medical doctor. If you are

> interested,

> > please write to the producer.

> >

> > Carol

> >

>

>

>

>

>

>

> ---------------------------------

> Looking for last minute shopping deals? Find them fast with

Search.

>

>

[Guest guest]

Hi ,

I have heard of this health center and I just revisited their website. I am

trying to decide whether or not to give this health center a try. Would you

recommend it? What was your experience there? Did you do more than just the

initial 1 week visit? Let me know. Any information you can give me would be

helpful. Thanks!

danielferres <danielferres@...> wrote:

Hi,

Two months ago I've been diagnosed EHS by Dr Rea of the

Environmental Health Center in Dallas.

I did some EMF testing showing sensibility to 50Hz and 60Hz EMF

fields.

I think that the protocol they use to do the testing is

probably the one reported in this article.

http://www.aehf.com/articles/em_sensitive.html

Best regards,

> > The reason I ask is because a casting producer for a

> show on Discover

> > Health/Mystery Diagnosis is looking for people with unusual

> illnesses.

> > Prerequisites are that the patient needs to live in the US, a

> medical

> > doctor must have given you the diagnosis (no self-diagnosed

> > electrosensitives), and the doctor must practice in your area and

> be

> > willing to get involved.

> >

> > Here is the info:

> >

> > Please contact MYSTERY DIAGNOSIS at:

> >

> > eanniello@ or (212) 645-0904 and leave a message

> > on their hotline. Be sure to include your full name, phone number,

> > email address, and disease.

> >

> > I have severe electrosensitivities myself, but unfortunately I

> have not

> > been diagnosed " officially " by a medical doctor. If you are

> interested,

> > please write to the producer.

> >

> > Carol

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Never miss a thing. Make your homepage.

> >

> >

[Guest guest]

Hi ,

how much did you spend for this diagnosis ?

have you treated for any therapy ?

My regards

Giorgio

> > > The reason I ask is because a casting producer for a

> > show on Discover

> > > Health/Mystery Diagnosis is looking for people with unusual

> > illnesses.

> > > Prerequisites are that the patient needs to live in the US, a

> > medical

> > > doctor must have given you the diagnosis (no self-diagnosed

> > > electrosensitives), and the doctor must practice in your area

and

> > be

> > > willing to get involved.

> > >

> > > Here is the info:

> > >

> > > Please contact MYSTERY DIAGNOSIS at:

> > >

> > > eanniello@ or (212) 645-0904 and leave a message

> > > on their hotline. Be sure to include your full name, phone

number,

> > > email address, and disease.

> > >

> > > I have severe electrosensitivities myself, but unfortunately I

> > have not

> > > been diagnosed " officially " by a medical doctor. If you are

> > interested,

> > > please write to the producer.

> > >

> > > Carol

> > >

> > >

> > >

> > >

> > >

> > >

> > > ---------------------------------

> > > Never miss a thing. Make your homepage.

> > >

> > >

[Guest guest]

Hi Giorgio,

The EMF Testing costs about $500, the first visit cost $187 and

letters with diagnostics can cost from $25 to $250.

I'm not sure of the parameters of the EMF testing and I need to

receive more information from them. I mean the magnetic field and

electric field in the place I did the testing.

They said that I'm sensitive to 50Hz and 60Hz EMFs but I do not

know if they mean at all intensities or the sensitivity could

start at some V/m or mGs.

They do not test for microwave radiation only ELF electromagnetic fields.

I also did some skin testing that showed some food alergies (most of

them). I did also blood testings, orine testings...

Dr Rea thought that I could have chemicals and I did the

organophosphates and pyretroids testing, giving negative results.

Then I had to do the CPST (Clhorinated pesticides) but I didn't do

it because I prefered to do other tests.

I did RBC elements and Hair elements, RBC was OK and Hair

Elements showed Uranium (moderate) and Silver (Very High) but

both elements could be only in Hair and not in blood so is

not conclusive. I used a silver cap and this means that it could

have silver in the hair for this reason.

As an hypothesis for Uranium, it could come from the tap water I used

in the shower in Los Angeles.

I also think that hair analysis may not show some toxic elements that

have been long time in the body, and are not in the blood.

I think that I could have mercury, MSG and aspartame because it was

showed in an ART Testing (Klinghardt) I did in last December.

I did the Organix and RBC Fatty Acids testing from MetaMetrix labs,

it gives some interesting information about your metabolism and

supplement requirements, But I received the results later and

I could need now a physician to help me to interpret it.

I did sauna theraphy during some days. Some days I feel really

better after it.

They use an specific protocol reading the weight, pulse, pressure

before exercising and after the sauna.

I took Alhpa Ketoglutamic, L-Glutathione, Vit C, and niacin (a dose is

staring at 25mg first day, increasing 25mg until you have a

niacin flush, red burning skin).

I did 15-20 min exercise (you decide the time), then I did

sauna for 15-30 min (starting 15 min, increasing 5 min next day,

depending on your tolerance). I started at 140F then 150F and I

finished at 160F. They have 3 saunas (2 dry, 1 infrared)

I tried also the Limphatic Drainage therapy, it is 80$ session,

it seems that offers good results for MCS people but I didn't

notice the effects.

The first time I was there I was staying in a hotel for 50$, but was

highly EMF polluted, electric and magnetic fields, and a cell phone

tower at 50metres.

The next time I used cheap place in a relatively low emf (They had

only Wireless in the living room, but is possible to get a room far

from there) in Dallas for 20$ in a hostel at 45 min using rail and metro.

I tried also the environmental housing which is $110 (two beds),

is really good for environmental alergies with ceramic floor and

filtered water in the shower and tap water, air filters in each room...

it is OK for ELF EMFs and you can turn OFF the electrical installation

of the room if you want. In the microwave range I detected 20-40mV/m

in a room in the base floor. Not bad, but I think it maybe too much

for me.

Here I put information I have about costs of all treatments and the

therapies.

===============================================================

Cost of treatment at EHCD

Initial History and Physical = $ 187.00

Return visits = $83.00

Skin Testing = $23.00 an item

Foods 30= $690.00

Pollens 13 = $299.00

Molds and Mold Mixes (19) = $437.00

Dust/Mite = $64.00

Peptides, hormones, terps = $800.00 App.

Smuts, etc., danders

Chemicals 10 = $230.00

Any combination of these items can be tested.

Sauna = $37.00 a session

Sauna is usually 5 days a week for a minimum of 2-3 weeks. Optimally

participation occurs for 6 weeks.

Participation is dependent on chemical or metal in blood or urine lab

analyses.

Oxygen therapy (18 days) = $1062.00 ($59.00 daily)

Participation is dependent upon findings of elevated venous blood gases.

Autogenous Lymphocytic Factor = $500.00

Required Lab analyses = $700.00

Monthly Treatment Cost = $150.00 for 30 day

Yearly Treatment Cost = $2400.00

IV therapy (1) = $200.00 - $500.00

Usually 2 a week for 3 weeks

Laboratory analyses vary from =$500.00 - $2,500.00

Participation in any program is dictated by symptoms, physician

assessment, and laboratory analyses. Any program initiated at the

clinic can be continued at home.

Treatments options vary with each patient.

Housing in environmentally controlled, less-toxic housing = $110.00 a

night

==========================================================

Best regards,

> > > > The reason I ask is because a casting producer for a

> > > show on Discover

> > > > Health/Mystery Diagnosis is looking for people with unusual

> > > illnesses.

> > > > Prerequisites are that the patient needs to live in the US, a

> > > medical

> > > > doctor must have given you the diagnosis (no self-diagnosed

> > > > electrosensitives), and the doctor must practice in your area

> and

> > > be

> > > > willing to get involved.

> > > >

> > > > Here is the info:

> > > >

> > > > Please contact MYSTERY DIAGNOSIS at:

> > > >

> > > > eanniello@ or (212) 645-0904 and leave a message

> > > > on their hotline. Be sure to include your full name, phone

> number,

> > > > email address, and disease.

> > > >

> > > > I have severe electrosensitivities myself, but unfortunately I

> > > have not

> > > > been diagnosed " officially " by a medical doctor. If you are

> > > interested,

> > > > please write to the producer.

> > > >

> > > > Carol

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > ---------------------------------

> > > > Never miss a thing. Make your homepage.

> > > >

> > > >

[Guest guest]

Hi, ,

Thanks for all the info. I was sent testing info but not a total price sheet.

Do you notice a big difference in the way you feel since treatment at EHCD and

would you go this route again? I mentioned in a previous post that Dr Rae felt

(2 years ago) that he had a 2 year window for helping people with ES, but I

didn't clarify what I meant. I should have said that the 2 year window is from

onset of ES symptoms or a toxic incident causing it. Does he still feel this is

the window of time he can bring about a total recovery from ES?

Thanks again for your time and info,

Diane

danielferres <danielferres@...> wrote:

---------------------------------

Never miss a thing. Make your homepage.

[Guest guest]

Hi Diane,

> Do you notice a big difference in the way you feel since treatment

> at EHCD and would you go this route again?

It is very difficult to say. I personally think that I improved

slightly. It is suppossed that with

the saunas I did (7 days) I should lost some chemicals and heavy

metals, but I think I could need dozens of saunas to have a

substancial improvement.

Doing sauna there is easy because you don't have to think about

anything (supplements, water, weighting, pulse control, showers,

exercise machines...). Now I'm repeating the sampe sauna protocol in a

gym in my country but sometimes I get dizzy and I can't sleep well at

night.

I think that I improved slightly there after the saunas . I remember

that after my last sauna of 30 minutes in a 160F infrared I felt very

good during only some hours (feelings that I had lost).

But anyway After 1 week of saunas I returned to a high microwave

radiation place and I experienced again EMF simptoms.

I would love to return there but Dallas is highly EMF polluted and

I would prefer to find a similar place in a less populated area, but

is really difficult to find it, EHCD is probably the best place.

Now I'm living in a relatively (but still maybe anoying) low RF emfs

but high EMFs (power lines 3mG), and I have less dizzyness but I have

also some health problems, stress and insomnia maybe due to 50Hz EMFs.

> Does he still feel this is the window of time he can bring about a

> total recovery from ES?

I think he saids that some people recovered of EHS in 3 years.

It was interesting for me to know some people with MCS due to

pesticides and mercury exposure and most of them are also EMF sensitive.

Best Regards,

>

>

>

>

> ---------------------------------

> Never miss a thing. Make your homepage.

>

>

[Guest guest]

Hi, ,

Thanks so much for your info you have given us! I really appreciate your time

and effort you took to share it.

When I talked to the patient consultant at EHCD, she told me I should invest

in a sauna for my home. (I believe she said to buy the far-infrared sauna.)

She said to overcome this I might have to use the sauna every day and also told

me I'd need to move to a less toxic house first. Still working on that one;

almost there! In the mean time, she told me epsom salts baths would help. Do

you ever try those on your days off from the sauna? I don't know if these would

help in your situation or not. I fit the profile for an MCS person who became

ES as a result of pesticide exposure.

Thanks again for all the info,

Diane

danielferres <danielferres@...> wrote:

Hi Diane,

> Do you notice a big difference in the way you feel since treatment

> at EHCD and would you go this route again?

It is very difficult to say. I personally think that I improved

slightly. It is suppossed that with

the saunas I did (7 days) I should lost some chemicals and heavy

metals, but I think I could need dozens of saunas to have a

substancial improvement.

Doing sauna there is easy because you don't have to think about

anything (supplements, water, weighting, pulse control, showers,

exercise machines...). Now I'm repeating the sampe sauna protocol in a

gym in my country but sometimes I get dizzy and I can't sleep well at

night.

I think that I improved slightly there after the saunas . I remember

that after my last sauna of 30 minutes in a 160F infrared I felt very

good during only some hours (feelings that I had lost).

But anyway After 1 week of saunas I returned to a high microwave

radiation place and I experienced again EMF simptoms.

I would love to return there but Dallas is highly EMF polluted and

I would prefer to find a similar place in a less populated area, but

is really difficult to find it, EHCD is probably the best place.

Now I'm living in a relatively (but still maybe anoying) low RF emfs

but high EMFs (power lines 3mG), and I have less dizzyness but I have

also some health problems, stress and insomnia maybe due to 50Hz EMFs.

> Does he still feel this is the window of time he can bring about a

> total recovery from ES?

I think he saids that some people recovered of EHS in 3 years.

It was interesting for me to know some people with MCS due to

pesticides and mercury exposure and most of them are also EMF sensitive.

Best Regards,

>

>

>

>

> ---------------------------------

> Never miss a thing. Make your homepage.

>

>

[Guest guest]

> When I talked to the patient consultant at EHCD, she told me I should invest

in a sauna for my home.

> (I believe she said to buy the far-infrared sauna.)

Seems like someone with ES could have a problem with a far-infrared

sauna, which I assume runs on electricity? Perhaps one should try

one somewhere (a local spa or health clinic) first before thinking

of buying one!

And of course, there are traditional saunas and steam rooms, which

also can be beneficial, and found at local swimming pools, health

clubs, etc.

Marc

[Guest guest]

I have once measured an infrared sauna, and found no discrepancies.

So it should be safe for ES.

Of course, one should do a test-sauna beforehand, which is quite possible in

most cases.

Greetings,

Claessens

member Verband Baubiologie

www.milieuziektes.nl

www.milieuziektes.be

www.hetbitje.nl

checked by Bitdefender

Re: Re: Anybody here been diagnosed with ES by a medical

doctor?

>> When I talked to the patient consultant at EHCD, she told me I should

>> invest in a sauna for my home.

> > (I believe she said to buy the far-infrared sauna.)

>

> Seems like someone with ES could have a problem with a far-infrared

> sauna, which I assume runs on electricity? Perhaps one should try

> one somewhere (a local spa or health clinic) first before thinking

> of buying one!

>

> And of course, there are traditional saunas and steam rooms, which

> also can be beneficial, and found at local swimming pools, health

> clubs, etc.

>

> Marc

>

> ------------------------------------

>

>

[Guest guest]

Hi Marc

I have a Sunlight sauna (Signature 1). It is infrared. I've been using

it daily for six weeks for an hour. I plan to soon buy an emf detector

from Safe Living Technologies so I can measure the em. I'll let you

know what I find...

[Guest guest]

Hello ,

I am afraid, that you cannot measure the damaging frequencies with those emf

detector.

Greetings,

Claessens

member Verband Baubiologie

www.milieuziektes.nl

www.milieuziektes.be

www.hetbitje.nl

checked by Bitdefender

Re: Anybody here been diagnosed with ES by a medical

doctor?

> Hi Marc

>

> I have a Sunlight sauna (Signature 1). It is infrared. I've been using

> it daily for six weeks for an hour. I plan to soon buy an emf detector

> from Safe Living Technologies so I can measure the em. I'll let you

> know what I find...

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

Hi, Marc,

I wondered that also (whether far-infrared electric sauna would be ok for one

with ES). I know that who used to come here (tayloka) could use

one and thought it helped. She and I had alot of the same type symptoms at the

time, but I have since become more sensitive in the usual ES way (as opposed to

just me affecting electronics, as I was before). I mentioned this possibility

also to the patient consultant and she told me I could try saunas there at EHCD

and see when I visited. She thought most with ES could use them without

problems, tho. (I was supposed to go down for testing after I moved, which I

have not completed yet.) At any rate, yes, I should have mentioned electric

saunas could be bad for ES, but I was addressing whether epsom salts baths might

help , so I had not thought to. I personally would not buy one till I

knew for sure either. I think someone on this forum mentioned far-infrared

saunas not working for them just recently.

Diane

Marc <marc@...> wrote:

> When I talked to the patient consultant at EHCD, she told me I

should invest in a sauna for my home.

> (I believe she said to buy the far-infrared sauna.)

Seems like someone with ES could have a problem with a far-infrared

sauna, which I assume runs on electricity? Perhaps one should try

one somewhere (a local spa or health clinic) first before thinking

of buying one!

And of course, there are traditional saunas and steam rooms, which

also can be beneficial, and found at local swimming pools, health

clubs, etc.

Marc

---------------------------------

OMG, Sweet deal for users/friends: Get A Month of Blockbuster Total

Access, No Cost. W00t

[Guest guest]

Hi Everyone:

On the mention of Safe Living Technologies, thought I'd add my two

cents......I've had extensive experience with Safe Living Technologies

including having my whole house reviewed and special " breaker " switches

installed on the circuits in my bedroom and bathroom so the circuits are off

automatically. These switches are amazing and now I don't have to keep

running downstairs to the panel to switch off the circuits. If any of you

are considering having your house reviewed, Safe Living Technologies is a

great company. Plus, I purchased two meters from them which I find very

useful. One of them is portable and I take it with me to all new

environments, mainly so I can avoid any " hotspots " .

If anyone wants to know more about my experience with SLT, please email me.

Donna