Guest guest Posted December 27, 2007 Report Share Posted December 27, 2007 Amber: You should ask your doctor to check you for Vitamin D Metabolites. This test shows exactly what your Vitamin D is doing. Mine was being converted into another Vitamin D. It wouldn't hurt to find out. Bonnie Can't Get Vitamin D Levels Up For a year my naturopathic doctor has been working to get my vitamin D levels up. First we started at 1000 iu of a mix of cod liver oil and D- 3. My levels went from 27 to 32, then back down. We increased to 4000 iu for a couple of months. My levels went down to 30. Then we increased to 8000 iu for a couple of months and retested again. My levels had gone up to 42, but still not good enough. So she put me on 10,000 iu for the past 3 months and I just got my levels tested again. They are DOWN to 24 (worse than a year ago). I do not understand what may be happening. But I know that good vitamin D levels are necessary for immunity and for cancer prevention. I make sure I take some fat with my supplements to digest the fat soluble vitamins, and I make sure that my fiber supplements are taken 2 to 3 hours away from any of my supplements. Does anybody have any ideas, or some input into this problem. Should I go even higher than 10,000? Amber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2007 Report Share Posted December 27, 2007 One of the best resources we've found for Vitamin D. http://vitamindcouncil.com/ " If you think health is expensive, wait until you try disease " Merlyn Anderberg --- Note: Outgoing e-mail scanned by Symantec's Norton AntiVirus.) amberblzn wrote: > > For a year my naturopathic doctor has been working to get my vitamin D > levels up. First we started at 1000 iu of a mix of cod liver oil and D- > 3. My levels went from 27 to 32, then back down. We increased to 4000 > iu for a couple of months. My levels went down to 30. Then we increased > to 8000 iu for a couple of months and retested again. My levels had > gone up to 42, but still not good enough. So she put me on 10,000 iu > for the past 3 months and I just got my levels tested again. They are > DOWN to 24 (worse than a year ago). I do not understand what may be > happening. But I know that good vitamin D levels are necessary for > immunity and for cancer prevention. > > I make sure I take some fat with my supplements to digest the fat > soluble vitamins, and I make sure that my fiber supplements are taken > 2 to 3 hours away from any of my supplements. > > Does anybody have any ideas, or some input into this problem. Should I > go even higher than 10,000? > > Amber > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2007 Report Share Posted December 28, 2007 I called a medical staff to inquire about the fact that my naturopathic doctor orders the test D 1, 25 Di Hydroxy, and I asked if that was the best test for testing vitamin D levels. Well, it turns out that many doctors *think* that is the best test but actually it is the best test to test for a number of diseases and to test for kidney function, but does not acurrately test vitamin D levels. So here for many months my NP has been increasing *by huge amounts* the vitamin D for me to take (and for the past 3 1/2 months has had me on over 10,000 iu per day). But the fact that the D 1, 25 Di Hydroxy test going *lower* meant that my *kidney function was going lower* - from TOO MUCH vitamin D. In other words I am probably in vitamin D toxidity. Too much vitamin D can also affect the parathyroid glands, and so that is likely the reason my thyroid function dropped a couple of months ago, and my endo told me I was probably having parathyroid problems. Also, my skin and eyes have been getting slightly yellow the last few weeks, and this is probably from vitamin D toxidity. All this because my NP has been ordering the WRONG test, and dosing my vitamin D occording to the WRONG TEST!!! I have been so upset this afternoon that I was just trembling. Yes it may be common error that doctors order the wrong test, but it is still incompetence, and it is still MY organs that end up damaged!!! So, I went and ordered the RIGHT test through Life Extension, by the time I get the test, then get the results it will be about 2 weeks from now. Then I will really know what is going on with my vitamin D levels. Meantime I am stopping ALL vitamin D supplementation. If I didn't have a computer to research this stuff my doctors would have killed me by know with all their mistakes! Oh, by the way, the correct test for accurate testing of vitamin D levels is the 25 Hydroxy test - NOT the 1, 25 Di Hydroxy test. Amber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2007 Report Share Posted December 29, 2007 Amber, thank you for sharing that information. I am terribly sorry to hear that this happened to you. Is the organ damage permanent? Jill~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2007 Report Share Posted December 29, 2007 Bonnie, Did they ever tell you what health condition was making your 1,25 DiHydroxy be elevated? Or did you ever do a search to find out why yours may be elevated? Amber ========= > > Amber: > > I don't want to go and look for my tests but memory tells me, oh I'd better go and find the test or I'll never give you the correct information. > > Okay, the Vitamin D Metabolites Test - My 25 Hydroxy Vitamin D was normal but my 1,25 Hydroxy Vitamin D test was HIGH and because of this I have to AVOID all Vitamin D of any kind in my diet, stay out of the Sun and wear INFRARED shielding Sunglasses to help me get this level down. > > Apparently this is quite a common condition that needs to be addressed (using the above protocol) but very few doctors ever order this test. Quote Link to comment Share on other sites More sharing options...
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