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My posts

> I realize that some of my posts will make some of you uncomfortable.

****That's not necessarily a bad thing. A few months ago there was much

discussion about Aikers and other athletes who " couldn't possibly

have CFIDS, and they were hurting our " cause " by saying they did, and by

excelling in their activity. There are some PWCs on the extreme opposite end

of the spectrum. We don't like to think about those, nor do we like to

acknowledge that there may be folks with less impairment than us. We hurt

our own cause by not believing in the extremely wide range of devastation

this DD can cause in individuals by chasing of in one way or another those

who fall outside the bell curve. If we can't believe or understand or are

made uncomfortable by the extremes of this disorder, how can we possibly

expect the rest of the world?

Perhaps if someone had said to me the how ill one can get, I may have taken

it easier on myself and maybe not fought so darn hard to get well. Docs said

exercise..I exercised..doc's said forget about the disease...I did...Docs

said take antidepressants..I did..nothing helped, most things hurt...in the

long run I'm far sicker today than I was even 5 years ago not to mention 10.

If I'd have known to listen to my body instead of ignore it, perhaps I

wouldn't have so many physical problems today.<snip>

****Been there...done that. Not only did I not listen to my body, but I

chose to listen to my type A mind, which agreed with those who said.... " push

forward, push forward. You're giving in to it.... "

I also need people to know that we all can't get access to everything that

Cheney does or other treatment plans. <snip>

****I see Cheney. Have put my house in hock to do so. He still can't " fix "

me, despite his efforts. I don't fault him, I just think that there are so

many different variables at play in my illness, there may not be answers or

treatments for me for a long time......I just think that some things just

" happen " , and no amount of money, medical care (alternative or traditional)

or who knows what else can change what is to follow. That said, i also

believe as good an attitude as one can muster (which varies from day to day,

of course), and a good gust of wind from the southern ocean breezes have the

potential to cure things that even the best of medicine can't.....

Donna in NC, waxing philosophical these days

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  • 1 year later...
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Hi ;

There may be an error still. I read your horrific e-mail and clicked "reply". I instantly received "Error - Unable to load page". I decided to try replying from this message and it seems to be fine. It's such a shame though, when you take the time to write a detailed message and it doesn't reach the group.

I am still reeling after reading about the trauma you have gone through. Your wife and family must have been horrified and incredibly angry. As for taking legal action, I also had every reason to sue when I had my first "botched" surgery. I personally couldn't have handled the stress or expense. It's a big decision to make, that's for sure. Are you able to eat? Your body has sure been through more than anyone I know. I'm glad you have a wife and family that love you very much.

Wishing you a speedy recovery, .

-- My posts

I have posted several times in the past few days but have noticed thatmy posts do not show up in the group. I have been asked to respond toa couple of querys re: esophagectomy but they have not gotten througheither. I get my emails forwarded. Today I went on the Achalasia pagein and found the message that signatures on posts are notpermitted. I had such a signature that showed digital art that I do onthe computer. So I assume this is why I have been bumped. I have beena member of this group for several years and would like to continue. Iguess what I am asking is first did this post go through I am typingit in Achalasia . Hope it did.Thanks Fitzgerald

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  • 3 years later...

Must be , some of mine are very late as well. others get here right on

time.

huggs

zoe

Thursday, November 9, 2006, 2:15:24 PM, you wrote:

> Hello Folks:

> Over an hour ago, I sent in 3 postings. Why aren't they arriving

> at their destination, anyone know?

> Bonnie

>

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On 11/9/06, Bonnie Cole <bonnieview@...> wrote:

>

> Hello Folks:

>

> Over an hour ago, I sent in 3 postings. Why aren't they arriving at their

> destination, anyone know?

I think 's playing up. I keep getting posts out of order. My brains

befuddled enough without trying to sort out the meaning of replys to posts

that come in hours later :-)

Kirsteen

--

> Chaos, confusion, disorder - my work here is done

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doesnt have any ryme or reason. Your moderators have no clue.

IN NC

Kirsteen <kirsteen.falconsfan@...> wrote:

On 11/9/06, Bonnie Cole wrote:

>

> Hello Folks:

>

> Over an hour ago, I sent in 3 postings. Why aren't they arriving at their

> destination, anyone know?

I think 's playing up. I keep getting posts out of order. My brains

befuddled enough without trying to sort out the meaning of replys to posts

that come in hours later :-)

Kirsteen

--

> Chaos, confusion, disorder - my work here is done

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  • 4 months later...
Guest guest

WHY ARE MY POSTS NONE OF THEM ARE SHOWING UP? patricia <pandas2@...> wrote: Hi Dick, okay feel abit better I worry about my thyroid I am on meds for it now but heard tx causes problems with thyroid. I put myself into such a state I am so dumb hahaha. Thanks for the encouragement, ha just seen my message mis-spelled my own name oh well. Will rock on and party hardy, need to quit smoking again I KNOW IT IS HORRIBLE for me. Quit for 18 months started again smoked 8 months quit

again smoked a week and quit again today. I am on prozac but does nada for anxiety and nerves coming up this Sat. will be 6 years since I lost my son he had just turned 31 month before. Thanks again..PatDick Southern <southernlodelink> wrote: Pat,I was 61 when I did tx....I am a non responder, but figure that I gave my liver a chance to rest a bit. It did reduce the viral load. I am living a very active life 15 months after tx. In fact, most would say I am over active. The sides can be managed and we will help you through it.Stop the confusion...do the tx! If the ultra sound scares you now.....just think what will happen in a year from now. I have had two ultra sounds since tx (one just this month) and my doc says there has been no change. This is even with

cirrhosis.DO THE TX!Party On!DickAt 10:37 AM 3/21/2007, you wrote: Ed this is Par. Could you tell me what banding is? Do you think the tx was worth the try since you didn't respond? I am 61 and see doc next week to give him my answer about tx. I just don't know sometimes its yes other times no can't seem to make up my mind. Part of the reason to say no I am 1 A and is it worth the risk since there is a good chance I won't respond. I figure maybe if I do it and get permanent side effects and I was another non-responder well then I would have more problems to deal with. Never had a bioposy just blood, endoscopy and colonoscopy and liver ultra-sound. Had another liver ultra-sound yesterday and didn't like what I was seeing. I am so confused..Thank you..PatStar Cook <whomeinnc >wrote: Good Evening Ed, I am

end stage liver disease. A Geno type 1a been through just Interferon in the 90's, but was non-responder. I have done the bleed out thing, only mine were in my throat. And I was band. And every six weeks they go down and look to make sure nothing is thinning out. So far, I have had 22 bands. I have had this since the 70's we figure, complications of childbirth, tainted blood. What is your Geno type if I may ask? I am one point away from being listed, here in NC one must be a 12. I was a 14 then dropped to 11. But, I felt the same at 11 then at 14. Are you not wanting a transplant? Yes, I know well how sick can feel. I have lots of complications from this dragon, from Hyper Portal Tension, to low sugar, enlarged spleen, and lots of pain. I have good days, and better days. And just try to enjoy every moment I can. I was told the same thing, that I would not make it in a year. This was 8 years ago. And my viral count is only 65 thousand. I wish the doctor's would stop playing God, and making decisions that are not theirs to make. Star1956 Tim Parsons knoxville,tn 37931 865-588-2465 x107 work www.knoxville1.com

Food fight? Enjoy some healthy debatein the Answers Food Drink Q&A.

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iHi Tim,

I have seen all three that you have posted today. Are you looking in the

right place to see them?

Dick

At 11:28 AM 3/21/2007, you wrote:

WHY ARE MY POSTS NONE OF THEM

ARE SHOWING UP?

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well there not being sent to me maybe this groups set up different then my others Dick Southern <southern@...> wrote: iHi Tim,I have seen all three that you have posted today. Are you looking in the right place to see them?DickAt 11:28 AM 3/21/2007, you wrote: WHY ARE MY POSTS NONE OF THEM ARE SHOWING UP? Tim Parsons knoxville,tn 37931 865-588-2465 x107 work www.knoxville1.com

Food fight? Enjoy some healthy debatein the Answers Food Drink Q&A.

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Hi Tim,

I see all of your posts.

Jerri

--- Hillbilly Tim <knoxweb1@...> wrote:

> well there not being sent to me maybe this groups

> set up different then my others

>

>

> Dick Southern <southern@...> wrote:

> iHi Tim,

>

> I have seen all three that you have posted today.

> Are you looking in the right place to see them?

>

> Dick

>

> At 11:28 AM 3/21/2007, you wrote:

> WHY ARE MY POSTS NONE OF THEM ARE SHOWING UP?

>

>

>

>

> Tim Parsons

>

> knoxville,tn 37931

>

> 865-588-2465 x107 work

>

>

> www.knoxville1.com

>

>

>

> ---------------------------------

> Food fight? Enjoy some healthy debate

> in the Answers Food & Drink Q & A.

________________________________________________________________________________\

____

TV dinner still cooling?

Check out " Tonight's Picks " on TV.

http://tv./

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Tim, do you have a spam filter? It might be picking up the group and quarantining us

well there not being sent to me maybe this groups set up different then my others

Dick Southern <southernlodelink> wrote:

iHi Tim,I have seen all three that you have posted today. Are you looking in the right place to see them?DickAt 11:28 AM 3/21/2007, you wrote:

WHY ARE MY POSTS NONE OF THEM ARE SHOWING UP?

Tim Parsons knoxville,tn 37931

865-588-2465 x107 work

www.knoxville1.com

..

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ok ,its all good.what i was trying to say was i used to get my posts.but its ok as long as there there.jerri neely <all4jerri@...> wrote: Hi Tim,I see all of your posts.Jerri--- Hillbilly Tim <knoxweb1 > wrote:> well there not being sent to me maybe this groups> set up different then my others> > > Dick Southern <southernlodelink>

wrote:> iHi Tim,> > I have seen all three that you have posted today.> Are you looking in the right place to see them?> > Dick> > At 11:28 AM 3/21/2007, you wrote:> WHY ARE MY POSTS NONE OF THEM ARE SHOWING UP? > > > > > Tim Parsons > > knoxville,tn 37931 > > 865-588-2465 x107 work> > > www.knoxville1.com> > > > ---------------------------------> Food fight? Enjoy some healthy debate> in the Answers Food & Drink Q & A.__________________________________________________________TV dinner still cooling? Check out "Tonight's Picks" on TV.http://tv./Tim Parsons knoxville,tn 37931 865-588-2465 x107 work www.knoxville1.com

Don't be flakey. Get for Mobile and always stay connected to friends.

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hi Tim..Ive been getting alot of my email in the spamfighter folder???I dont know why either..Im doing sumthin wrong...Patty

Re: MY POSTS

iHi Tim,I have seen all three that you have posted today. Are you looking in the right place to see them?DickAt 11:28 AM 3/21/2007, you wrote:

WHY ARE MY POSTS NONE OF THEM ARE SHOWING UP?

I am using the free version of SPAMfighter for private users.It has removed 2394 spam emails to date.Paying users do not have this message in their emails.Try SPAMfighter for free now!

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Guest guest

linda?..How do i keep from this happening???..Hugs, Patty

RE: MY POSTS

Tim, do you have a spam filter? It might be picking up the group and quarantining us

well there not being sent to me maybe this groups set up different then my others

Dick Southern <southernlodelink> wrote:

iHi Tim,I have seen all three that you have posted today. Are you looking in the right place to see them?DickAt 11:28 AM 3/21/2007, you wrote:

WHY ARE MY POSTS NONE OF THEM ARE SHOWING UP?

Tim Parsons knoxville,tn 37931

865-588-2465 x107 work

www.knoxville1.com

..

I am using the free version of SPAMfighter for private users.It has removed 2394 spam emails to date.Paying users do not have this message in their emails.Try SPAMfighter for free now!

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Your post should appear in your email program just like any

other email.

Dick

At 12:15 PM 3/21/2007, you wrote:

well there not being sent to me

maybe this groups set up different then my others

Dick Southern <southern@...> wrote:

Hi Tim,

I have seen all three that you have posted today. Are you looking in

the right place to see them?

Dick

At 11:28 AM 3/21/2007, you wrote:

WHY ARE MY POSTS NONE OF THEM ARE SHOWING UP?

Tim Parsons

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Guest guest

Hey Patty,

I find it hard to believe that you do anything wrong.

It looks like I will make it to chat tonight. Looking forward to seeing

all the new members there too.

Dick

At 04:23 PM 3/21/2007, you wrote:

hi Tim..Ive been getting alot of my

email in the spamfighter folder???I dont know why either..Im doing

sumthin wrong...Patty

Re: MY POSTS

iHi Tim,

I have seen all three that you have posted today. Are you looking in

the right place to see them?

Dick

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Guest guest

Morning Ms Patty,

I will assume you are using Outlook Express? This looks like a pretty good site for both Outlook and Express... the Express info is about 2/3 down on the page. http://www.sitedeveloper.ws/tutorials/spam.htm I figure a few pictures are worth thousands of words. Let me know if this helps?

Llinda

linda?..How do i keep from this happening???..Hugs, Patty

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Guest guest

thank you sweety..Love you...Patty

RE: MY POSTS

Morning Ms Patty,

I will assume you are using Outlook Express? This looks like a pretty good site for both Outlook and Express... the Express info is about 2/3 down on the page. http://www.sitedeveloper.ws/tutorials/spam.htm I figure a few pictures are worth thousands of words. Let me know if this helps?

Llinda

linda?..How do i keep from this happening???..Hugs, Patty

I am using the free version of SPAMfighter for private users.It has removed 2407 spam emails to date.Paying users do not have this message in their emails.Try SPAMfighter for free now!

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