11 year old not yet diagnosed

[Guest guest]

My daughter is 12 next month and will not be fully diagnosed until

after her birthday. My husband is achondroplastic and my daughter

was checked and measured for six months after birth. I was assured

she did not have any problem of this kind. When she was 7 she was

diagnosed with multiple hereditary exostoses at the same time as my

husband was diagnosed with this. Again I was told she was not

achondroplastic. This year a specialist said he thinks she is

achondroplastic or pseudoachondroplastic and will not grow any

further, she is 4'6 " . There doesn't appear to be any support groups

here in Australia and I was wondering if anyone else has had similar

problems with diagnosis/misdiagnosis.

Tracey, Dubbo, Australia