Guest guest Posted December 14, 2001 Report Share Posted December 14, 2001 Just a response as I couldn't help but think it. No hard feelings towards you or you're having had the surgery or any who may be considering it rather my response is towards the reason you say those other than dwarfs shouldn't have it because " you're opposed to them having it and they're taking away the time of the doctors " for those who really 'need' it. You say they are really taking away the time the doctors could be using on those who really need the surgery (ie. dwarfs). However, since it's an elective surgery, one not of necessity or of need even for dwarfs, would that statement of yours really true then? Unless, of course, the surgery is a necessity for us because dwarfism is a life threatening condition and that threat can only be lessened or removed if we do have the surgery? Since it's not, my point is then those who are not dwarfs but still 'choosing' to have the surgery you yourself 'chose', albeit for cosmetic reasons or for vain ones, since it was an 'elective' choice for you and not one of necessity why can't it be for them? Why, because they can look at you and say the same thing. Use the same reason you used against them, dontcha think? They can say, " Hey shorty, it's a well known fact that you've told the whole world that you didn't really need the surgery but you wanted it, so why can't we? " Don't me wrong, Gillian, I'm glad you got it because that's what you wanted (not needed, key point here), and if it made you happy then I'm happy:). I just thought of the ones who you say are taking up the doctors time for their surgery when the doctors could be doing lp's instead, but since it's not even a necessity for us to have it done then why can't they have done as well? luv, grady;) ps-Now, I'm not talking of those who 'need' the surgery to correct one limb from being shorter than the other due to a birth glitch (I hate the word 'defect' and I couldn't think of a better one at the moment), to help them walk better and evenly, or those who broke a leg as a kid from a sporting event or car accident or some other mishap as they do 'need' it. So, if anyone has the right to complain about who is taking up the time of " the few doctors out there who know how to do it well " it would seem to me to be this group more than any other, even more so than the dwarfs. Now, it's true that it wasn't out of 'vanity' as to why you had your surgery, but it wasn't out of 'necessity' either as the folks in this paragraph can say it is and would be right for saying it is as well. Dear , Thanks for making us aware of this article; it was interesting indeed. Though this may come as a surprise to some on this list, I am strongly opposed to cosmetic limb lengthening. There are a couple of reasons for this, but the main one is the few doctors who know how to do this well are far too busy with people who really need them to lengthen these people and it is wrong to make those people wait even longer than they already have to just because someone around 5'5 " cannot live with himself at that height and feels he needs to be taller. People may also be interested to know these people are the majority of people I hear from in response to my statement on ELL that Dan has posted on the website. I won't respond to them, but they keep writing nonetheless and eventually find someone to help them. Gillian. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2001 Report Share Posted December 14, 2001 My opinion of the whole surgery is this: I was born this way, apparently god wanted me like this, why change something he created. I will not have it done,for these reasons. I am old enough now and have been thru alot in my lifetime, why change my life, my size, or my body. Who's to say what the side effects will be? I have alot of friends that know and like me for who I am. When I was younger I always wished I were taller, but not now, I enjoy being little. Ya, it's harder to get a job, but we adapt to that. We have adapted allo our lives, at least I have, and accomplished so much because of our size, why change it. Is it because we're tired of being teased, so what, be positive about that, I have, everybody gets teased for something no matter the shape or size or color. Our life is a challenge because we're little. Which makes it even better. For this I will not change. This is my opinion. Dede --- gradysir <gradysir@...> wrote: > Just a response as I couldn't help but think it. No > hard feelings > towards you or you're having had the surgery or any > who may be > considering it rather my response is towards the > reason you say those > other than dwarfs shouldn't have it because " you're > opposed to them > having it and they're taking away the time of the > doctors " for those > who really 'need' it. > > You say they are really taking away the time the > doctors could be > using on those who really need the surgery (ie. > dwarfs). However, > since it's an elective surgery, one not of necessity > or of need even > for dwarfs, would that statement of yours really > true then? Unless, > of course, the surgery is a necessity for us because > dwarfism is a > life threatening condition and that threat can only > be lessened or > removed if we do have the surgery? Since it's not, > my point is then > those who are not dwarfs but still 'choosing' to > have the surgery you > yourself 'chose', albeit for cosmetic reasons or for > vain ones, since > it was an 'elective' choice for you and not one of > necessity why > can't it be for them? Why, because they can look at > you and say the > same thing. Use the same reason you used against > them, dontcha think? > They can say, " Hey shorty, it's a well known fact > that you've told > the whole world that you didn't really need the > surgery but you > wanted it, so why can't we? " > > Don't me wrong, Gillian, I'm glad you got it because > that's what you > wanted (not needed, key point here), and if it made > you happy then > I'm happy:). I just thought of the ones who you say > are taking up the > doctors time for their surgery when the doctors > could be doing lp's > instead, but since it's not even a necessity for us > to have it done > then why can't they have done as well? > > luv, grady;) > > ps-Now, I'm not talking of those who 'need' the > surgery to correct > one limb from being shorter than the other due to a > birth glitch (I > hate the word 'defect' and I couldn't think of a > better one at the > moment), to help them walk better and evenly, or > those who broke a > leg as a kid from a sporting event or car accident > or some other > mishap as they do 'need' it. So, if anyone has the > right to complain > about who is taking up the time of " the few doctors > out there who > know how to do it well " it would seem to me to be > this group more > than any other, even more so than the dwarfs. Now, > it's true that it > wasn't out of 'vanity' as to why you had your > surgery, but it wasn't > out of 'necessity' either as the folks in this > paragraph can say it > is and would be right for saying it is as well. > > > > Dear , > > Thanks for making us aware of this article; it was > interesting > indeed. Though this may come as a surprise to some > on this list, I > am strongly opposed to cosmetic limb lengthening. > There are a couple > of reasons for this, but the main one is the few > doctors who know how > to do this well are far too busy with people who > really need them to > lengthen these people and it is wrong to make those > people wait even > longer than they already have to just because > someone around 5'5 " > cannot live with himself at that height and feels he > needs to be > taller. People may also be interested to know these > people are the > majority of people I hear from in response to my > statement on ELL > that Dan has posted on the website. I won't respond > to them, but they > keep writing nonetheless and eventually find someone > to help them. > Gillian. > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2001 Report Share Posted December 14, 2001 Grady, As always, you make some interesting points. Sure, some of the people with congenital anomalies and LLD can make the same claim about me and I would respect that, but to date not one has. At the same time, these same people share my opinion of cosmetic lengthening. As everyone here who has read anything I have written previously knows, for me the decision was all about being able to function independently in a world designed for people at least five feet tall. I wanted to able to drive a car without extension pedals, reach the top shelf in a supermarket and take care of my basic needs without assistance. I know many believe that is an excuse I hide behind and I really did this because I could not deal with being small, or my mother made me do this because she could not deal with me being small, but nothing could be further from the truth. Everyone knows LPs do not " need " to be lengthened, I have never said they do, Dr. Paley has never said they do and none of his other LP patients who have been lengthened have made that claim, but there are a couple of differences. This can help LPs in other ways than increasing their height. It can correct varus or valgus, reduce or eliminate the sway back, and help in other areas I am forgetting right now. Taking care of such issues early on can help prevent the need for surgery later on in life. Also insurance covers LPs who want to be lengthened, but not people over five feet who just want to be taller so clearly they see a difference as well. The people I am talking about are a different breed entirely. For starters they are taller than I am today before they begin and the " condition " they have been labeled as having is a height neurosis. " Neurosis " by definition is a disorder of the mind or emotions and should be treated accordingly. Of course, with ISKD now available cosmetic lengthening is going to become much more commonplace, but such is life. And it is not that I want doctors to stop doing this so they have more time for LPs, there are not enough LPs who do this to make them the real issue, rather so they have more time for those who really do need them -- the kids who are at risk of losing their limbs without this procedure. So, Grady, I understand the point you make and it has been made before, but I do think there is a difference. LPs do not need this the way the kids born with congenital anomalies do, but the benefits and reasons for having this are very different for us than for people over five feet tall. As always, just my opinion. Gillian. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2001 Report Share Posted December 14, 2001 Good job Grady!!!!!(-: I do too, as long as I'm not made a fool, lol.Dede --- gradysir <gradysir@...> wrote: > I agree:). I just love turning the tables around on > people is all, to > make them think:Þ. > > luv, grady;) > > > > My opinion of the whole surgery is this: I was > born > > this way, apparently god wanted me like this, why > > change something he created. I will not have it > > done,for these reasons. I am old enough now and > have > > been thru alot in my lifetime, why change my life, > my > > size, or my body. Who's to say what the side > effects > > will be? I have alot of friends that know and like > me > > for who I am. When I was younger I always wished I > > were taller, but not now, I enjoy being little. > Ya, > > it's harder to get a job, but we adapt to that. We > > have adapted allo our lives, at least I have, and > > accomplished so much because of our size, why > change > > it. Is it because we're tired of being teased, so > > what, be positive about that, I have, everybody > gets > > teased for something no matter the shape or size > or > > color. Our life is a challenge because we're > little. > > Which makes it even better. For this I will not > > change. This is my opinion. Dede > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2001 Report Share Posted December 14, 2001 >>but the benefits and reasons for having this are very different for us (lp's) than for people over five feet tall. As always, just my opinion. Gillian. Or so you say, the benefits and reasons are different for us (lp's) as compared to them, but that is my point: The reasons for their (the over five footers) wanting it are just as valid and beneficial in their mind's eye as it was in your's. If not, why not? Not Judging. Just thinking. Just asking. So, if their reason is not as valid or as beneficial as your's, then tell us why their's isn't and >>>ONLY<<< yours is as compared to their's? Just don't say that their's isn't, because they can do the same of your's. I feel that the " reasons " issue is subjective, from whoever's point of view you're looking at it from. Now, if it's for vanity or for cosmetics only as you say it is for them (the over five footers), can you say that you also know their hearts on wanting and choosing it as well? Why, because there may be other hidden and personal reasons just unique to them as to why they want it too. Plus, they may not want to nor do they have to explain to you or any other for that matter as to why they may want the surgery too. Again, Gillian, more power to you for having had the surgery. Just like the Sheryl Crow song, " If It Makes You Happy, " I am happy too with you:). However, then they (the over five footers) should be free to know that same feeling if they so chose or want the surgery as well. No? luv, grady;) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2001 Report Share Posted December 14, 2001 Grady, I understand your point, but I can't agree. The difference is there are some physical and functional benefits from lengthening and correcting the deformities (and I use that term strictly as a medical one, if someone wants to give me a better one please do because I have yet to come up with one) such as varus, valgus and the sway back of certain LPs. There are no such benefits from lengthening people over five feet tall and when these people write to me many admit right away that they are doing this strictly for vanity or because they are not comfortable being as " short " as they are. If cosmetic surgeons want to start doing cosmetic limb lengthening then that is fine because that is their profession, but the best of the best in this field of orthopaedics should be appealing to a higher calling. That is all I am saying. As I say in my statement " While I do not believe this procedure is cosmetic for people with dwarfism, I do believe it is cosmetic for people over five feet who just desire to be taller. Such people need to realize how lucky they are and understand that this procedure is mainly used to help people with severe deformities, people who are at risk of losing their limbs without it, and people with limb-length discrepancies, along with helping those little people who want to make their lives functionally easier. Accordingly, I do not believe that those people over five feet should be considered for this procedure, though some doctors are willing to help them. Personally, I just do not think they need it, and beyond that, since the best doctors are so busy, doing so only forces someone who really needs -- and wants --the procedure to wait, and I do not believe that is right. " That is what I believe. I know there are people out there who disagree with me and that is their right and I respect that. As always my comments on any aspect of limb lengthening are just my opinion. Gillian. Quote Link to comment Share on other sites More sharing options...
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