Re: Digest Number 455

[Guest guest]

Marta,

I agree with you about Jane Brody's article. She does a good job until

the last paragraph.

I think it is important that we send letters to her about her assertion

that there is a definitive test for Lyme and also question the

preventive dose she recommended - while still commending her for the

rest of the article .

The e-mail address of letters to the editor of the Times is

letters@....

Ellen

[Guest guest]

Geri..this is for Susie...Itching I still swear by the Atarax {hydroxyzine }

25 mg. up to 3 times a day. And , SARNA as a quick but short term reliver.

For sleep problems...I was put on the Lactulose for that reason...to

straighten out my sleep patterns..I would sleep couple hours and be up for a

couple and bakc and forth...so I never really got any quality sleep. The

lactulose turned it around for me......now I no longer need it...just the

Atarax does the job of both itch relief and sleep aid. But.every once in a

while I find my sleep getting messed up again and put myself back on the

Lactulose for a while .....Meanwhile ..tell her to cut her fingernails and

not to take hot showers or tubs.use warm water instead. But, I definitely

suggest she call the doctor for Atarax. And remember it is only the Atarax

that works...the other antihystamines do not work. Joanne

[Guest guest]

Also..for Susie...try Paxil for your depession.many with liver disease take

it. Plus, I suggest you find a good gastro that specializes in liver

diseases. Or a hepatobiliary gastro. Then, feel free to e-mail me and I

will give you links for more info. JJCATHCART@...

[Guest guest]

, I remember the relief I felt about 18 years ago when they finally

diagnosed what was wrong with me. And..yes, many of us have several

different diseases.mostly different autoimmune diseases. You are far from

alone. Myself I have PBC, Sjogrens, Raynauds, and costrachondritis { like

arthritis in the rib cage } Just remember you are not alone.......support

groups are terrific..a lot of great people who truly care about YOU. Joanne

[Guest guest]

Pre-medication before the dentist.....I take Amoxicillin....I take 6 {six }

capsules each one 500 mg. about 1 hour before dental appointment. Then take

3 capsules 6 hours later. Now...that I have gotten worse..I have had to

continue taking 1 capsule two times a day for about 5 more days. Normally

the one day of the 6 before and then the 3 later will do it. It is standard

procedure...they do not want us getting an infection...and we get them very

easy from dental work. Joanne

[Guest guest]

Right On, Lori C.,

You sound like you were the person I used to be. It is hard to let go of

those 'neat freak' ways.

Ginger

[Guest guest]

,

I am so glad that you have a diagnosis. I know what a relief it can be to

just KNOW. It makes it a little easier to cope when you know what you are

dealing with.

You will make it, Honey. You have a lot of people who care about you and now

you have good doctors to take care of you. We do adapt and become stronger

for the effort. You are in my prayers daily.

Bless you, Ginger AIH

[Guest guest]

Mike,

Welcome to a great group of people. You will find lots of answers and support

from a wonderful bunch of folks on this list. There is a wealth of info to be

found out there on dealing with this disease and this group will find all of

it!

What is a ERPC?

Ginger AIH Florida

[Guest guest]

To All,

Update

I went yesterday for follow-up with my primary doc. What A day!! First, I

waited an hour to get to a room, then a strange doc comes in and says my doc

isn't there. So, I start explaining my problems and I am clearly agitated!

The clinic system is clearly not patient friendly. I calm down and try to

explain things. I had a list of things to discuss and questions to ask. She

was also, clearing agitated with me. I was there over two hours while she

went back and forth with the attending doc on my questions. I am still upset

about the entire thing!

1. I was denied a referral for a rhumatologist

2.I was denied a referral for a hepatologist

3.I was referred for physical therapy for my hands and knee

4.I did get a flu shot

5.I got labs to determine if I need hep A & G vaccines

6.I did get a prescription for midrin for my headaches

7.I got samples of celebrex to try for 30days at low dose and then will have

liver profiles done to see if it affects the numbers.

By the time all of this was done, the pharmacy was closed and I now have to

make another trip over there to get my meds. That involves a process that

takes about two hours!

This doctor then tells me that I have too many issues to address in one

appointment and they will see me again in January and address them then. I

was livid!!!

They ordered a bone density test and I was told that my clinic insurance

would not pay for it. So, no test.

I was recently diagnosed with obstructive sleep apnea. The insurance paid for

the sleep study, but will not cover the follow up study for the calculations

for a c-pap machine and will not cover the machine either!

As you can see, it has been a rough week.

I went this morning for screening to apply for Medicaid. I have appointment

on the 30th. They sent me to the Wages board. It is the law here that I have

to register for work with the state to qualify for Medicaid and food stamps.

I came home and called social security and was told that I was denied on

first pass, but my case was in for state review and a final decision would be

made by the 30th of this month.

I am ready to scream scream scream!

To top everything off and make it a total disaster, I have no heat. My

furnace will not start. I can't get the pilot to light and I have called

every man I know and no one knows what to do. I called the gas company and

they want $75. for a service call.

The United Way referred me to the housing partnership here in Jax. and they

told me that lots and lots of people did not have heat and the only way they

would help me was if I got a letter from a doctor who said it was medically

necessary for me to have heat. That is insane to me! I am losing my mind.

Forgive for going on and on. I really needed to get all of this off my chest.

I am blessed to have this forum to do so.

I hope that all of you are having a much better week than I am

Thank you for listening to me ramble.

Thinking of you all and remembering each of you in my prayers, Ginger AIH and

DEPRESSED in the state of FLORIDA

[Guest guest]

Ginger,

One thing my friend of three years liver transplant told me. She has been my

coach through my own transplant. She told me that the doctors have it down

pat for saveing your life but the docs need to be educated on the life ever

after. Well I did not know what she ment, until I have been given the

runaround in my follow up care. I don't think I have had one appointment

since my surgery that doesn't make me frustrated to the level of wanting to

be mean to all of them. In fact I have been mean to some of them. I have had

down right fights with some of my doctors. One doctor threw my consent papers

at me and walked out of the room for a biopsy. He won. My point is I have had

enough of their crap. Insurance or no I demand care anyway. And by the way

that doctor and I are friends now. So fight back my dear we are their study

cases they need us. I am sorry you are having so many other problems as well.

Good thing we are a strong batch.

Gayle

[Guest guest]

Thank you Kathy and ,

I plan to call tomorrow to arrange for a time to talk to the special ed

class. I appreciate any input I can get.

Perhaps it might be easier for the others to respond to if I ask a

couple of specific questions of those on the list.

1. What has a teacher done for you and/or your child that was most

helpful to you? What was most damaging?

2. If you could say anything at all to your child's teacher what

would it be? Something to tell about your child's talents and abilities?

How OCD impacts on the whole family? Hoe to approach the child when in the

throes of an OCD attack?

Thanks to all of you. This list is such an invaluable resource. I only

wish I had had it to lean on when first started with the handwashing.

Maybe then we wouldn't have spent six years trying to figure out what part of

the family dynamic had caused the irratonal behavior! Take care of

yourselves, as says.

Jackie

[Guest guest]

--

No -- it's the Examiner that equivalent to the National Enquirer lolllll

Trashy paper , but good article

My best to your wife. Write Mr. Wolin some time if you like -

jwolin@..., he'd love to hear from you.

[Guest guest]

Dear and Lee,

This is interesting. Your reply to my apology is " ....Why bother responding to

such a

message..... " Anyone who is too self-righteous to accept an apology is in

trouble. God

Himself forgives us when we ask for it. However, you two do not. I wonder

about your

spirituality.

I know you have some of the devil in you and you want an ongoing battle.

However, I do not

have time for such childlessness.

- D'Amico

candidiasisegroups wrote:

>

>

> Send blank message to candidiasis-unsubscribeonelist if you want to

UNSUBSCRIBE !

>

[Guest guest]

<!doctype html public " -//w3c//dtd html 4.0 transitional//en " >

<html>

What a hilarious answer. I don;t beleive in God so don't start that guilt

trip on me and stop posing that message!

<p>Lee

<p>ldamico wrote:

<blockquote TYPE=CITE>Dear and Lee,

<p>This is interesting. & nbsp; Your reply to my apology is " ....Why bother

responding to such a

<br>message..... " & nbsp; Anyone who is too self-righteous to accept an apology

is in trouble. & nbsp; God

<br>Himself forgives us when we ask for it. & nbsp; However, you two do not. & nbsp;

I wonder about your

<br>spirituality.

<p>I know you have some of the devil in you and you want an ongoing

battle. & nbsp;

However, I do not

<br>have time for such childlessness.

<p>- D'Amico

<p>candidiasisegroups wrote:

<p>>

<br>>

<br>> Send blank message to & nbsp; candidiasis-unsubscribeonelist if

you want to UNSUBSCRIBE !

<br>>

[Guest guest]

What a hilarious answer. I don;t beleive in God so don't start that guilt trip

on me and

stop posing that message!

Lee

ldamico wrote:

> Dear and Lee,

>

> This is interesting. Your reply to my apology is " ....Why bother responding

to such a

> message..... " Anyone who is too self-righteous to accept an apology is in

trouble. God

> Himself forgives us when we ask for it. However, you two do not. I wonder

about your

> spirituality.

>

> I know you have some of the devil in you and you want an ongoing battle.

However, I do not

> have time for such childlessness.

>

> - D'Amico

>

> candidiasisegroups wrote:

>

> >

> >

> > Send blank message to candidiasis-unsubscribeonelist if you want to

UNSUBSCRIBE !

> >

[Guest guest]

PLEASE CHANGE THE SUBJECT HEADING WHEN MAKING OFF

TOPIC COMMENTS LIKE THE ONE HEREIN SO THAT OTHERS DO

NOT HAVE TO READ PERSONAL COMMENTS!

THANK YOU

MATTY

--- ldamico <ldamico@...> wrote:

> Dear and Lee,

>

> This is interesting. Your reply to my apology is

> " ....Why bother responding to such a

> message..... " Anyone who is too self-righteous to

> accept an apology is in trouble. God

> Himself forgives us when we ask for it. However,

> you two do not. I wonder about your

> spirituality.

>

> I know you have some of the devil in you and you

> want an ongoing battle. However, I do not

> have time for such childlessness.

>

> - D'Amico

>

> candidiasisegroups wrote:

>

> >

> >

> > Send blank message to

> candidiasis-unsubscribeonelist if you want to

> UNSUBSCRIBE !

> >

[Guest guest]

In a message dated 9/13/00 8:51:26 PM Pacific Daylight Time,

egroups writes:

<<

My doctor, Joe Mercola (Schaumburg, Illinois), has my son following a 48-day

detox protocol before the chelation process. Our goal is to purify his body

of

celluar toxins before the chelation. I know his patients use this protocol

for other health concerns, not just spectrum issues. This Protocol Package

>>

These sound like hvs products. You can also read more at hvslabs.com.

[Guest guest]

IT is, I can't wait personally to start it next week! Will let the list

know how it goes

Kathy

Re: [ ] Digest Number 455

>

>In a message dated 9/13/00 8:51:26 PM Pacific Daylight Time,

> egroups writes:

>

><<

> My doctor, Joe Mercola (Schaumburg, Illinois), has my son following a

48-day

> detox protocol before the chelation process. Our goal is to purify his

body

>of

> celluar toxins before the chelation. I know his patients use this

protocol

> for other health concerns, not just spectrum issues. This Protocol

Package

>>>

>

>These sound like hvs products. You can also read more at hvslabs.com.

>

>

[Guest guest]

In reference to e's reply to Deb about MRI ability to detect

ruptures...I agree completely with e. My ruptures did not show on

MRI w/ breast coil...or CT....the left side did show as ruptured through

ultrasound, but the right did not, and was ruptured. The MRI showed

that both were intact...and, I have also had many women report similar

results with MRI's in regard to showing whether or not a rupture was

present in their implants.

Lany

SBI Prayer Forum

[Guest guest]

In a message dated 9/24/2001 2:36:54 AM Central Daylight Time, writes:

Lorenzi. "If there was a serious illness related to silicone, I think it

> would have shown up by now."

Dua............It has!!!!!!!!!!!!!!

God Bless America & You! 'LINDA' --

[Guest guest]

i was diagnosed with " A " when i was 17,and am now 22.

Dr's in general have made me feel freaky, the first Dr

actually brought his interns into the room to watch me

feast on the barium meal!

recently, the spasms have only worsened,and at my

doctors insistence that it was just " nerves " , i

actually took prozac for a while---i guess, this is

all just in my head LOL LOL! does anyone have any

hints on how to deal with the spasms?

thanks

gina

__________________________________________________

[Guest guest]

I have had "A" since 1968. I've always had spasms, some mild, some just AWFUL. Drinking liquids, room temperature usually helped with both the mild and VERY BAD ones. Before the dilation the spasms were very infrequent so I just dealt with them. Since the dilation I can count on having them almost every day. The doctor is not quite sure whether reflux is causing them or vigorous achalasia. I don't want to have anymore diagnostic tests to find out why, as knowing why probably won't change things much, (even my doctor agreed with this point of view). I have prescriptions for Levsin, the small tablets you let melt under your tongue which you take every four hours, these I use for the mild spasms, when I feel one coming on I take one. I also take prevacid in the a.m. and p.m. for reflux. I have Levsin that is time release and the results last longer than the small tablet. I take one faithfully before I go to bed at night. I do not take the time release during the day, only the under the tongue version as the time release make me very drowsy and dizzy. If I have a major spasm I try to see if it will pass with water, if not I take the stronger Levsin as the pain is so intense I can't handle it. I don't like taking medications like most people don't, but I have resigned myself to the fact that if I want to be pain free I have no other alternative. I was taking Vicodin for the pain but did not want to continue using them for fear of becoming addicted. Levsin is at least not habit forming. Hope this information helps. I also bought the liquid version of arginine which many on this site feels helps with the spasms, but I haven't tried it yet.

gina vallery <gvallery@...> wrote: i was diagnosed with "A" when i was 17,and am now 22. Dr's in general have made me feel freaky, the first Dractually brought his interns into the room to watch mefeast on the barium meal!recently, the spasms have only worsened,and at mydoctors insistence that it was just "nerves", iactually took prozac for a while---i guess, this isall just in my head LOL LOL! does anyone have anyhints on how to deal with the spasms?thanks gina__________________________________________________

[Guest guest]

Hi Dennis,

The recipe I posted before makes about a quart using two cups of yogurt

cream. Yours might be slightly different.

> Date: Wed, 20 Feb 2002 04:57:29 -0000

> From: " dkemnitz2000 " <dkemnitz2000@...>

> Subject: Re:Yogurt ice cream (correction msg4434)

>

> The question might have been confusing anyway. So here's the question

> rephrased: What is the yield/overrun? Dennis

[Guest guest]

Dear Maureen,

I think it would be a good idea to get it checked out. It means you are

reacting to something and it is better to find out what so you can prevent

more reactions. Have you changed laundry soap, hand soap, makeup recently?

Hairspray, a new food, a new medicine? If you can't find the cause soon

an allergy doctor or naet practioner could help.

Re: Digest Number 455

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[Guest guest]

Dear Maureen,

How are you doing as a vegan? Do you feel better eating as a vegan? I like it.

I feel better.

Have you found out what was bothering you? Let me know.

Happy Thanksgiving! What are you doing for Thanksgiving?

Re: Digest Number 455

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