Guest guest Posted May 20, 2001 Report Share Posted May 20, 2001 >> From: " Katy Sinclair " <katy.sinclair@...> >Subject: Pseudochondroplasia > >Help from those with pseudochondroplasia please... > >We have a 12 year old male that seems to have tremendous problems with his >hands. > >His ability to maneuver his hands is very, very slow. > >Not sure if this slowness is caused by the message not getting from the >brain to the muscle or the muscles not responding to the brain command. > >Takes forever to write. He is taking keyboard (music) lessons and has >passed all of his exams, but is so very slow with it. > >He is of higher than average intelligence and rarely complains of pain. His >Mother wants to know if this " him " or if this is part of the dwarfism. Can >I please get some feedback on her behalf to pass on. > >Thanks and take care, > > I am a 24 female with psuedoachondroplasia, and have had no problems with my hands. From what I know, problems with the hands are not characteristic of psuedoachondroplasia. I would suggest that this 12 year old see his doctor and maybe an occupational therapist. Hope that helps! > > > _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2001 Report Share Posted May 21, 2001 I am a pseudo and yes, I do have problems with my hands. My finger joints snap, crackle and pop. I swell up at times...and, when my hands are cold, they move very slowly. I have been diagnosed with osteoarthritis and do have some shoulder, elbow, wrist nerve problems related to production work I did in my early 20's. Repetition exercises such as music lessons can contribute to more problems. The occupational therapist idea is a good one. Karin (who is wondering which joints are NOT affected by dwarfism...and a rowdy lifestyle of years ago.) NetZero Platinum No Banner Ads and Unlimited Access Sign Up Today - Only $9.95 per month! http://www.netzero.net Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2001 Report Share Posted October 26, 2001 I love that word!!! Heeheee Okay, I am a pseudo but I feel like I don't know that much about it as crazy as that sounds. Or really I don't know what to expect when I am older. My back (I have scoliosis) is finally stable!!! So good chance won't need another surgery. Now my hips are another question. I never used to have hip troubles but now I am starting too. I just feel like I can't do as much as I used to acouple years ago meaning walk as far, less pain etc. All the time something cracks now, my ankles or my wrists. I mean I am only 22 and sometimes I feel like I am 80. I feel like I am out of my physical prime which shocks me because I am actually quite healthy, lost alot of weight, active. So basically my question is is this as good as it's gonna get??? I wonder how I will feel when I am 32 or 42 or 52. So I know alot of us are a group of people with tons of ortho probs but if there is any older and wiser lol pseudo out there that could help me with this that would be great!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2001 Report Share Posted October 27, 2001 EEEEEKKKKKK!!!! I guess this makes me an OLD PSEUDO!!! (I'm 37 in a few weeks <grin>) My dad and brother are PSEUDOs as well, and my dad at age 60+ has never had even one surgery!! My little bro is 32 now, and has hip pain that takes him out somedays, but, no surgeries as of yet. I, on the other hand, actually came to this group when my hip go out at age 33 and was told I'd have to have it replaced - I freaked, and then came here and found out that it was pretty normal for us Pseudos to have replacments at tender young ages So, I've had the right hip redone in 97, and the other one is hinky - think I can wait another couple of years before I have to have it done. Had an OCD in my knee done in 98, but, that was probably not really dwarfism related, just one of those things. Other than that, had leg straightening surgery (did not work) at ages 5 and 10, but, that was in the olden days. Had a C-section with my son (not LP) 11 years ago, no problems with the pregnancy though. Worked full time til the day before he was born. The aches and pops and things are part of my days. Some days are good, some not so good. Knees wobble, have been having some shoulder pain lately. Just these loosey goosey joints we get. Anyway, feel free to contact me, always happy to talk to you young'ens. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2002 Report Share Posted June 3, 2002 I have pseudoachondroplasia....let me have all the questions you want. Karin Pseudoachondroplasia > Hello, > > Our 3 yr old daughter was recently diagnosed with Pseduo. With so few > Pseudo's we are looking for others to communicate with regarding our > daughter and what we are about to experience. > > Can you help us? > > Jon & Leah Hendrik > > --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.363 / Virus Database: 201 - Release Date: 5/21/2002 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2006 Report Share Posted May 1, 2006 Hi My names Jo and live in the UK, I have Pseudo and so does my eldest daughter who is 3, please feel free to email me. Jo > > Hello all!! > Is there anyone out there who has pseudo? My daughter has been > diagnosed as a psuedo and I would like to chat with others who have > the same condition. > Quote Link to comment Share on other sites More sharing options...
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