Re: people who use disability

[Guest guest]

,

Thanks for letting the group know that such a list is available.

I'm sorry you had a bad experience there. List owners of egroups can set

any rules that they want because it is a private list. I also consider

all messages here private and don't want our messages forwarded without

permission. We all have to respect the privacy of others and forwarding a

message without permission violates the author's privacy. I have very few

rules here. As you know, off topic conversations are always welcome as

long as they are marked in the subject line for those that only want

arthritis information. Inflammatory remarks are not tolerated, nor is

trying to profit from our illness.

So I hope you understand where this list owner is coming from. She has

reasons for her rules that you may not understand. I'm not sure why you

were treated unkindly when asking for information, but I also try to keep in

mind that ALL of us are sick and on medication and some days we are crankier

than others.

I hope that was the case with the other list owner. I'm glad to hear that

the scolding was done in private and not on the list. No one here is like

that, so feel free to ask any questions. If we can't answer them, we will

try to direct you to someone that can.

a

----- Original Message -----

From: /Celine Kossart <kozys@...>

< egroups>

Sent: Wednesday, January 17, 2001 2:00 PM

Subject: Re: [ ] people who use disability

> Hi all,

>

> There is a group specifically designed to help people deal with all the

> bureaucracy with the SSA. It is at egroups and called Disinissues-L and

> stands for disability insurance issues, as opposed to " dissin' (da)

issues "

> as the name suggests; I don't know what the " L " stands for, maybe les..no,

> better not go there.

>

> The list owner is a bit snobby...Example:

>

> ---------------

> Remember: ALL messages on Disinissues-L are

> private, that is, sent only to listmembers and

> are not archived for public viewing. DO NOT

> FORWARD ANY MESSAGE FROM DISINISSUES-L WITHOUT

> PRIOR WRITTEN PERMISSION FROM THE AUTHOR.

> --------------

>

> Keep in mind this is not professionally written, copyrighted material, it

> is just questions and answers as goes on on any list.

> I had a run in with her when I asked if info on getting employment with a

> disability was appropriate for the list. She emailed me personally and

> scolded me and implied that I was a mental midget for even asking on

> list...but the information is helpful and seems to come from knowledgeable

> people. They seem to know their stuff and even refer people to lawyers in

> parts of the country.

>

> Any way, for those interested the web site is Disinissues-L@egroups

>

> >Hope this may be of help to some of you.

>

>

> /Celine Kossart

> kozys@...

>

>

>

> Chat room: chat/

> Web pages for our group: http://rheumatoid.arthritis.freehosting.net/

> http://www.rasupport.webprovider.com/

> Change subscription options:

>

[Guest guest]

,

It really make ya wonder what planet some of these people were born on!

~Rainy

> Rainy-

>

> You think that is funny (?), I once represented a child

> who was severely mentally impaired - very low IQ and

> physical disabilities and they thought he was going to

> medically improve too. That is what I meant about

> fairness - actually " un " fairness.

>

>

>

>

>