Guest guest Posted January 30, 2001 Report Share Posted January 30, 2001 Hi everyone, I'm Kathy from Washington State...I think this was the group I was on a year or so back???? Anyone remember? LOL! I do recall that we were suppose to post at least once a month, is this a different group?? a's name rings a bell...so I think I am with the right group... Just wanted to say Hello, and to comment on pain meds...wasn't there a big " to do " recently about how Dr's are now being trained to treat people with pain and to prescribe more freely??? Just curious, as I have been on pain meds alot longer than a few months! My RA has been a continually challenge....I have been on MTX, Arava, Azulfindine, Cyclosporine and am now on week 14 of Gold shots....I seem to plateau and then go downhill or my liver starts acting up and I need to be taken off of the medication..... I am 37 and had a bone density test....I am have borderline Osteo, thank you Prednisone! I am on anywhere from 5-10 mgs of Prednisone, but really can't function without it some days...with three kids 6 and under and a husband that is in the Navy and gone alot, one has to function...... Okay, enough rambling........nice to be here (or be back )... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2001 Report Share Posted January 30, 2001 > Thanks, ...I am getting the links...I am just wondering why that women's Dr would tell her something like that about pain meds?? Fear? Kathy iu Washington State Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2001 Report Share Posted January 30, 2001 , your words " they don't know enough about drug options " is scary. went from the age of 4 to just last year without pain meds other then NSAID and asprin before that. He last 2 rhuemys didn't think he should be on pain meds that he was to young for them and by the time his JRA moved into adulthood there wouldn't be anything that would work for him. They had me conviced that pain meds would hurt him more then help him. I watched him suffer and cry and i did everything i could to help him with warm baths, heating blankets, extra clothes, good thought threapy. This rhuemy said that pain meds are needed to help until they can get him into remission. He was so angry when he found out that never got any. he told me that pain itself can cause depression and mood swings and just plain sick on top of the jra and lung disease. I have to say that if they tried to take away jesses pain meds then i would have to have his lawyer take it to court cause he just can't function with out it and he just cries and lays there not moving and i have to help him bath and go to the bathroom, hold his cup etc. you know what i mean. shelly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2001 Report Share Posted January 30, 2001 In a message dated 1/30/2001 2:18:54 PM Pacific Standard Time, cyrfam@... writes: > That's me! Yes, we must get together! I have often thought of you, Elly! Kathy in Washington State Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2001 Report Share Posted January 30, 2001 Welcome back, Kathy! Yes, you were part of our group before. I saved your intro post dated 10/30/99. Let me know if you would like me to forward a copy to you! We did have a rule about posting every so often before, but no longer. Sorry you are still struggling to get your RA under control. How are you sleeping lately? In October of 1999 you said that you were having sleep problems. Yes, doctors are supposed to be learning how to more effectively prescribe appropriate pain medication for their patients (and without government interference). I just posted several links on the topic. I'm not sure if you'll ever see them in your mailbox. seems to be acting up a bit today for me. You can always go to the archives. Glad you have returned. > Hi everyone, I'm Kathy from Washington State...I think this was the group I > was on a year or so back???? Anyone remember? LOL! I do recall that we were > suppose to post at least once a month, is this a different group?? a's > name rings a bell...so I think I am with the right group... > > Just wanted to say Hello, and to comment on pain meds...wasn't there a big > " to do " recently about how Dr's are now being trained to treat people with > pain and to prescribe more freely??? Just curious, as I have been on pain > meds alot longer than a few months! > > My RA has been a continually challenge....I have been on MTX, Arava, > Azulfindine, Cyclosporine and am now on week 14 of Gold shots....I seem to > plateau and then go downhill or my liver starts acting up and I need to be > taken off of the medication..... > > I am 37 and had a bone density test....I am have borderline Osteo, thank you > Prednisone! I am on anywhere from 5-10 mgs of Prednisone, but really can't > function without it some days...with three kids 6 and under and a husband > that is in the Navy and gone alot, one has to function...... > > Okay, enough rambling........nice to be here (or be back )... > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2001 Report Share Posted January 30, 2001 Hi Kathy! Hey, aren't you my neighbor in Arlington,WA??? I've moved in town (just down the Street from the Library), so this time, I PROMISE I'll look you up!!! Sorry to hear you're having a tough time with your RA these days, yet I hope that the gold shots are helping (they are, aren't they???) Welcome back to our esteemed group!! Elly Cyr ----- Original Message ----- From: <Matsumura_Clan@...> < > Sent: Tuesday, January 30, 2001 11:25 AM Subject: [ ] Re: New, Again... > Welcome back, Kathy! > > Yes, you were part of our group before. I saved your intro post dated > 10/30/99. Let me know if you would like me to forward a copy to you! > We did have a rule about posting every so often before, but no longer. > > Sorry you are still struggling to get your RA under control. How are > you sleeping lately? In October of 1999 you said that you were having > sleep problems. > > Yes, doctors are supposed to be learning how to more effectively > prescribe appropriate pain medication for their patients (and without > government interference). I just posted several links on the topic. > I'm not sure if you'll ever see them in your mailbox. > seems to be acting up a bit today for me. You can always go to the > archives. > > Glad you have returned. > > > > > > > > Hi everyone, I'm Kathy from Washington State...I think this was the > group I > > was on a year or so back???? Anyone remember? LOL! I do recall > that we were > > suppose to post at least once a month, is this a different group?? > a's > > name rings a bell...so I think I am with the right group... > > > > Just wanted to say Hello, and to comment on pain meds...wasn't > there a big > > " to do " recently about how Dr's are now being trained to treat > people with > > pain and to prescribe more freely??? Just curious, as I have been > on pain > > meds alot longer than a few months! > > > > My RA has been a continually challenge....I have been on MTX, > Arava, > > Azulfindine, Cyclosporine and am now on week 14 of Gold shots....I > seem to > > plateau and then go downhill or my liver starts acting up and I > need to be > > taken off of the medication..... > > > > I am 37 and had a bone density test....I am have borderline Osteo, > thank you > > Prednisone! I am on anywhere from 5-10 mgs of Prednisone, but > really can't > > function without it some days...with three kids 6 and under and a > husband > > that is in the Navy and gone alot, one has to function...... > > > > Okay, enough rambling........nice to be here (or be back )... > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2001 Report Share Posted January 30, 2001 ----- Original Message ----- From: <TinyDancer525@...> < > Sent: Tuesday, January 30, 2001 2:24 PM Subject: Re: [ ] Re: New, Again... > > > > > > Thanks, ...I am getting the links...I am just wondering why that women's > Dr would tell her something like that about pain meds?? Fear? > > > Kathy iu Washington State > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2001 Report Share Posted January 30, 2001 Yes, Kathy, I think that there are many reasons, and fear is one of them. Ignorance is another. Ironically, many physicians lack a true understanding of the nature of pain and how important it is to treat it. Sometimes, too, they don't know enough about the drug options available. ----- Original Message ----- From: <TinyDancer525@...> < > Sent: Tuesday, January 30, 2001 2:24 PM Subject: Re: [ ] Re: New, Again... > > > > > > Thanks, ...I am getting the links...I am just wondering why that women's > Dr would tell her something like that about pain meds?? Fear? > > > Kathy iu Washington State Quote Link to comment Share on other sites More sharing options...
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