question about temperature

[Guest guest]

I read once that children with achondroplasia have higher temperature than

normal like instead of 98.9 they have 99, I do not remember the exact

number, I will like to know if is true because my 18 month old baby boy

often has high temp. like 37 or 37.5 and he is having for two days 37.7 and

he doesn't seem sick.

I will be grateful if some one answer my question, thank you.

Re: Re: Need some advice-siblings

My two daughters are only 22 months apart, and so my oldest daughter

didn't

really notice or say much until she was about 4 or so. I told her the same

thing I would tell other little children and that was, " Her bones are

just

not going to grow as fast as yours will~ other than that, she's just like

you! "

As they grew, I told them the same information, as much as they could

handle, and what they wanted to hear.

Just make it really easy to understand, and don't tell them more than what

they really want to know, the rest can come later.

Patty

Re: Need some advice

>

> > children. Then hopefully, it will be like a domino

> > effect. Children may

> > sometimes seem cruel but they are actually very

> > acceptable to " new " things --

> > which is great! But to get back to what i was

> > saying in the beginning,

> > allow your daughter to ask questions and definitely

> > seek as much information

> > for her to check out as possible! Books are

> > great...

> > - jen juday

> >

> > > In a message dated 8/24/2001 1:32:07 PM Mountain

> > Daylight Time,

> > sussy_amezcua@... writes:

> >

> > >

> > > we are an average size family and we also have a

> > 18 month old baby boy with

> > > achondroplasia, I will like to ask you how can a

>

>

> __________________________________________________

>

[Guest guest]

Sorry if I confused some body mixing the grades of temperature, 37 is like

99 and 37.5=99.5, 37.7=100.

Re: Re: Need some advice-siblings

My two daughters are only 22 months apart, and so my oldest daughter

didn't

really notice or say much until she was about 4 or so. I told her the

same

thing I would tell other little children and that was, " Her bones are

just

not going to grow as fast as yours will~ other than that, she's just

like

you! "

As they grew, I told them the same information, as much as they could

handle, and what they wanted to hear.

Just make it really easy to understand, and don't tell them more than

what

they really want to know, the rest can come later.

Patty

Re: Need some advice

>

> > children. Then hopefully, it will be like a domino

> > effect. Children may

> > sometimes seem cruel but they are actually very

> > acceptable to " new " things --

> > which is great! But to get back to what i was

> > saying in the beginning,

> > allow your daughter to ask questions and definitely

> > seek as much information

> > for her to check out as possible! Books are

> > great...

> > - jen juday

> >

> > > In a message dated 8/24/2001 1:32:07 PM Mountain

> > Daylight Time,

> > sussy_amezcua@... writes:

> >

> > >

> > > we are an average size family and we also have a

> > 18 month old baby boy with

> > > achondroplasia, I will like to ask you how can a

>

>

> __________________________________________________

>

[Guest guest]

In a message dated 08/27/2001 4:38:17 PM Eastern Daylight Time,

sussy_amezcua@... writes:

> <I read once that children with achondroplasia have higher temperature than

> normal like instead of 98.9 they have 99....>

I think it's more of an individual thing than specifically dwarf-related. My

one niece's normal temperature consistently ran about 97-98. The younger one

generally ran about 99. I asked the doctor and he said not to be concerned

until it went over 100.

A side note: teething usually elevates a child's temperature, which was the

only way that I knew that the older one was cutting a new tooth, especially

just before it broke through the skin. If he's being easily irritated and

having chewing on blankets, toys, etc, this may be the cause.

luthien

[Guest guest]

I've been interested in this question also, as my 4-month-old achon baby

Maya sweats an awful lot and is very sensitive to heat. It seems excessive

even in the tail-end of a southern California summer. We were at Cedars

Sinai yesterday where Dr. Rimoin examined Maya. He said the sweating is

suggestive of spinal cord compression, which we are in the process of

getting evaluated in Maya via MRI, etc. I'm not sure what her body temp

is, though. I haven't been checking it.

By the way, this is my first posting to the list. I just joined. Our baby

Maya was born in May with achondroplasia. We are an AH family otherwise,

and are inexperienced with dwarfism -- we didn't know she was going to be a

dwarf until she was born (quite a surprise after a very difficult

delivery). I would love to have a couple of other parents in a similar

situation to be pen-pals with. Reply to me

off-list: dmharris@.... Thanks -- Diane

At 12:39 AM 8/29/01 +0000, you wrote:

>Message: 3

> Date: Tue, 28 Aug 2001 10:50:03 EDT

> From: luthienxxx@...

>Subject: Re: question about temperature

>

>In a message dated 08/27/2001 4:38:17 PM Eastern Daylight Time,

>sussy_amezcua@... writes:

>

>

> > <I read once that children with achondroplasia have higher temperature than

> > normal like instead of 98.9 they have 99....>

>

>I think it's more of an individual thing than specifically dwarf-related. My

>one niece's normal temperature consistently ran about 97-98. The younger one

>generally ran about 99. I asked the doctor and he said not to be concerned

>until it went over 100.

>

>A side note: teething usually elevates a child's temperature, which was the

>only way that I knew that the older one was cutting a new tooth, especially

>just before it broke through the skin. If he's being easily irritated and

>having chewing on blankets, toys, etc, this may be the cause.

>

>luthien

[Guest guest]

Hi!My 9yr. old achon. daughter has always been " hot

blooded. " In the middle of winter she runs around the

house barefoot and with the least amount of clothes on

that she can.She is always sweating,always has.Her

" normal temp " is usually 99.She never sleeps under a

sheet,blanket,or any type of cover.Even when I sneak

and cover her after she is asleep,in five minutes

she's kicking it off.I was very concerned when she was

smaller,read all kinds of info,asked her ped.,etc. who

said " She's just a little sweater.Full of energy. " I

finally read an article (I can't remember

where,though)that stated little people,being so

compact,shorter limbed,etc,held more heat in.It said

something like blood was cooled by circulating to the

skin surface,which lp's have less of.It also said the

average temp. in lp's were about one to one and one

half higher than average statured persons.At a

genetics dr. appt. I asked if this was really true and

she said " defenitly! " She also told me the sweating at

night could be from the narrowing of the spinal

canal,but usually it was from their unusual temp.I'm

not saying this is " for sure " it's only what I have

found.Hope this helps.My daughter has had CT.scans and

MRI's which,with the exception of extra fluid,been

normal.Can you believe she has fits when I tell her to

get her jacket when she wants to play in the snow???GO

FIGURE!!! Later,Tammy Minkler

__________________________________________________

[Guest guest]

I too, am hot natured................this is good topic to cover! )

~~~Tammy~~~

[Guest guest]

Ok People,

Here's the cure. As I privately told Gretchen, your best bet is to move

to a cooler climate, or get summer jobs in Mountain Pass Resorts out West.

Personnally, my favorite way of beating the heat, a horse tank. If you

have a Farm Service Store, Farmers Coop Store, or something that sells farm

supplies, check out the Rubbermaid Horse Tanks. They're about 3' tall, oval,

about 6' x 5' and hold about 300 gallons, that stay cold. Guarantee, you

will turn a light blue in about 15 minutes. My wife loved it when she was

pregnant, it was her salvation for cooling off during the summer months. One

thing I should warn you about cooling off like that, you pretty much stay

cool all night. If you have a friend that has one of these, try it out, if

you can stand the cold.

Good luck, I don't envy anyone who's back there in the heat and humidity

of the East.

Rob

[Guest guest]

I have a 15 month old son with achon. He also sweated a lot. When he sould

sleep, his sheets would be soaked when he woke up. We found out he had

asthma, and was sweating when he had trouble breathing.

>From: " Diane M. " <dmharris@...>

>dwarfism

>Subject: Re: question about temperature

>Date: Wed, 29 Aug 2001 20:47:45 -0700

>

>I've been interested in this question also, as my 4-month-old achon baby

>Maya sweats an awful lot and is very sensitive to heat. It seems excessive

>even in the tail-end of a southern California summer. We were at Cedars

>Sinai yesterday where Dr. Rimoin examined Maya. He said the sweating is

>suggestive of spinal cord compression, which we are in the process of

>getting evaluated in Maya via MRI, etc. I'm not sure what her body temp

>is, though. I haven't been checking it.

>

>By the way, this is my first posting to the list. I just joined. Our baby

>Maya was born in May with achondroplasia. We are an AH family otherwise,

>and are inexperienced with dwarfism -- we didn't know she was going to be a

>dwarf until she was born (quite a surprise after a very difficult

>delivery). I would love to have a couple of other parents in a similar

>situation to be pen-pals with. Reply to me

>off-list: dmharris@.... Thanks -- Diane

>

>At 12:39 AM 8/29/01 +0000, you wrote:

> >Message: 3

> > Date: Tue, 28 Aug 2001 10:50:03 EDT

> > From: luthienxxx@...

> >Subject: Re: question about temperature

> >

> >In a message dated 08/27/2001 4:38:17 PM Eastern Daylight Time,

> >sussy_amezcua@... writes:

> >

> >

> > > <I read once that children with achondroplasia have higher temperature

>than

> > > normal like instead of 98.9 they have 99....>

> >

> >I think it's more of an individual thing than specifically dwarf-related.

> My

> >one niece's normal temperature consistently ran about 97-98. The younger

>one

> >generally ran about 99. I asked the doctor and he said not to be

>concerned

> >until it went over 100.

> >

> >A side note: teething usually elevates a child's temperature, which was

>the

> >only way that I knew that the older one was cutting a new tooth,

>especially

> >just before it broke through the skin. If he's being easily irritated

>and

> >having chewing on blankets, toys, etc, this may be the cause.

> >

> >luthien

>

>

_________________________________________________________________

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